Guest guest Posted October 4, 2011 Report Share Posted October 4, 2011 Back in 2009 when I discovered I had Tarlov Cysts, we knew what the prognosis was likely to be, we borrowed some cash and took off on a world trip for 3months but first we purchased a wheelchair, I had wanted a power one but a manual one did the trick, infact there were bonuses, we were first on the plane, didn't need to stand in lin. They have wheelchairs at most airports, We had a fantastic time I took so many photos I still haven't finished sorting them yet, we came to USA after NZ Canada, UK and France. Just watching the ones I've sorted can lift my spirits some what, but when a photo of one of the Grandies pops up I can't help but smile... Tony's eldest daughter has bought a 5 year old into the folds she is so cute then my eldest daughter has two but we've six children between us, two boys and four girls and what a delight they all have are still are being. Anyway I hope your day is a good one and you rest peacefully at days end Adrienne > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > i was meaning noone in my family understands, not those who are here. Sorry > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >________________________________ > > > > > > > > > > > > > > > >From: BRUCE WINGO <joanwingo2@> > > > > > > > > > > > > > > > >Spinal Stenosis Treatment > > > > > > > > > > > > > > > >Sent: Sunday, October 2, 2011 10:32 AM > > > > > > > > > > > > > > > >Subject: newly diagnosed > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >ÃÆ'‚ > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >To say that " noone here seems to understand " was an unfair thing to say. I completely understand. I feel the same way. I also have many other health problems besides spinal stenosis. The fact that my family loves me is what keeps me going. I would never purposely hurt them. However, I get so frustrated because my body will not let me do the things that I want to do with my six grandkids. When I try, I pay for it. > > > > > > > > > > > > > > > >The neurosurgeon told me to let him know when I'm ready for surgery. I'm scared to even think about back surgery. I know the day may come when I have to have it, but for now the shots and medicines are keeping me moving. > > > > > > > > > > > > > > > >I never saw my last post on this site so I'm not sure what caused that. Maybe this one will make it.ÃÆ'‚ ÃÆ'‚ ÃÆ'‚ ÃÆ'‚ÂÃ\ ‚ ÃÆ'‚ ÃÆ'‚ ÃÆ'‚ ÃÆ'‚ÂÃ\ ‚ ÃÆ'‚ ÃÆ'‚ ÃÆ'‚ ÃÆ'‚ÂÃ\ ‚ Joan > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >> > > > > > > > > > > > > > > > >>ÃÆ'‚ > > > > > > > > > > > > > > > >>Thanks for writing Cathie, I am a very depressed unhappy person. I am just a REcluse anymore. I have spinal stenosis and DDD plus RA and I can't walk but a few steps without sitting are laying down. I have tried so many things pills, shots, etc with no relief. My back and my legs hurt so bad and sometimes they burn. I can't even go to the gro. store anymore. I am scheduled for surgery on the 14th, but I am so sc ared and undecided, as the neurosurgeon ÃÆ'‚ ,I asked him would this surgery take away my pain, and he said he couldn't promise me anything. How scary is that.?? I feel like I am being tortured for some reason. Seems once they try to fix one thing that will call for more surgeries. I can't work anymore and that is killing me.To be truthful with you I have even thought many times of suscide, but guess I am too big a coward for that.Hope you will keep in touch, because noone here seems to understand. Have A Great Day and Feel > Better. God > > > Bless > > > > > > > you!! > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2011 Report Share Posted October 5, 2011 The last trip I was on was to HA. At one airport, I did use a wheelchair. Luckily, I had my husband with me and he was in good shape then. I would find a place to sit down until he got close to the end of the line. Then I joined him. The things we have to do! Joan Back in 2009 when I discovered I had Tarlov Cysts, we knew what the prognosis was likely to be, we borrowed some cash and took off on a world trip for 3months but first we purchased a wheelchair, I had wanted a power one but a manual one did the trick, infact there were bonuses, we were first on the plane, didn't need to stand in lin. They have wheelchairs at most airports, We had a fantastic time I took so many photos I still haven't finished sorting them yet, we came to USA after NZ Canada, UK and France. Just watching the ones I've sorted can lift my spirits some what, but when a photo of one of the Grandies pops up I can't help but smile... Tony's eldest daughter has bought a 5 year old into the folds she is so cute then my eldest daughter has two but we've six children between us, two boys and four girls and what a delight they all have are still are being. Anyway I hope your day is a good one and you rest peacefully at days end Adrienne > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > i was meaning noone in my family understands, not those who are here. Sorry > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >________________________________ > > > > > > > > > > > > > > > >From: BRUCE WINGO <joanwingo2@> > > > > > > > > > > > > > > > >Spinal Stenosis Treatment > > > > > > > > > > > > > > > >Sent: Sunday, October 2, 2011 10:32 AM > > > > > > > > > > > > > > > >Subject: newly diagnosed > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >ÃÆ'‚ > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >To say that "noone here seems to understand" was an unfair thing to say. I completely understand. I feel the same way. I also have many other health problems besides spinal stenosis. The fact that my family loves me is what keeps me going. I would never purposely hurt them. However, I get so frustrated because my body will not let me do the things that I want to do with my six grandkids. When I try, I pay for it. > > > > > > > > > > > > > > > >The neurosurgeon told me to let him know when I'm ready for surgery. I'm scared to even think about back surgery. I know the day may come when I have to have it, but for now the shots and medicines are keeping me moving. > > > > > > > > > > > > > > > >I never saw my last post on this site so I'm not sure what caused that. Maybe this one will make it.ÃÆ'‚ ÃÆ'‚ ÃÆ'‚ ÃÆ'‚ ÃÆ'‚ ÃÆ'‚ ÃÆ'‚ ÃÆ'‚ ÃÆ'‚ ÃÆ'‚ ÃÆ'‚ ÃÆ'‚ Joan > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >> > > > > > > > > > > > > > > > >>ÃÆ'‚ > > > > > > > > > > > > > > > >>Thanks for writing Cathie, I am a very depressed unhappy person. I am just a REcluse anymore. I have spinal stenosis and DDD plus RA and I can't walk but a few steps without sitting are laying down. I have tried so many things pills, shots, etc with no relief. My back and my legs hurt so bad and sometimes they burn. I can't even go to the gro. store anymore. I am scheduled for surgery on the 14th, but I am so sc ared and undecided, as the neurosurgeon ÃÆ'‚ ,I asked him would this surgery take away my pain, and he said he couldn't promise me anything. How scary is that.?? I feel like I am being tortured for some reason. Seems once they try to fix one thing that will call for more surgeries. I can't work anymore and that is killing me.To be truthful with you I have even thought many times of suscide, but guess I am too big a coward for that.Hope you will keep in touch, because noone here seems to understand. Have A Great Day and Feel > Better. God > > > Bless > > > > > > > you!! > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2011 Report Share Posted October 7, 2011 Not good Joan but at least it manageable. Hope your days are providing lovely memories for tomorrow Cheers Adrienne > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > i was meaning noone in my family understands, not those who are here. Sorry > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >________________________________ > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >From: BRUCE WINGO <joanwingo2@> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >Spinal Stenosis Treatment > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >Sent: Sunday, October 2, 2011 10:32 AM > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >Subject: newly diagnosed > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >ÃÆ'Æ'Æ'ÃÆ'¢â‚¬Å¡ÃÆ'Æ'‚ÃÆ'‚Ã\ ƒâ€šÃ‚ > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >To say that " noone here seems to understand " was an unfair thing to say. I completely understand. I feel the same way. I also have many other health problems besides spinal stenosis. The fact that my family loves me is what keeps me going. I would never purposely hurt them. However, I get so frustrated because my body will not let me do the things that I want to do with my six grandkids. When I try, I pay for it. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >The neurosurgeon told me to let him know when I'm ready for surgery. I'm scared to even think about back surgery. I know the day may come when I have to have it, but for now the shots and medicines are keeping me moving. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >I never saw my last post on this site so I'm not sure what caused that. Maybe this one will make > it.ÃÆ'Æ'Æ'ÃÆ'¢â‚¬Å¡ÃÆ'Æ'‚ÃÆ'â€Å\ ¡Ãƒâ€šÃ‚ ÃÆ'Æ'Æ'ÃÆ'¢â‚¬Å¡ÃÆ'Æ'‚ÃÆ\ '‚ ÃÆ'Æ'Æ'ÃÆ'¢â‚¬Å¡ÃÆ'Æ'â€\ Å¡ÃÆ'‚ ÃÆ'Æ'Æ'ÃÆ'¢â‚¬Å¡ÃÆ'Æ'â\ €šÃÆ'‚ ÃÆ'Æ'Æ'ÃÆ'¢â‚¬Å¡ÃÆ'\ Æ'‚ÃÆ'‚ ÃÆ'Æ'Æ'ÃÆ'¢â‚¬ÅÃ\ ‚¡ÃÆ'Æ'‚ÃÆ'‚ ÃÆ'Æ'Æ'ÃÆ'¢â‚ÂÂ\ ¬Ãƒâ€¦Ã‚¡ÃÆ'Æ'‚ÃÆ'‚ ÃÆ'Æ'Æ'ÃÆ'¢âââ\ ‚¬Å¡Ã‚¬Ã…¡ÃÆ'Æ'‚ÃÆ'‚ ÃÆ'Æ'Æ'ÃÆ'¢\ €šÃÆ'Æ'‚ÃÆ'‚ ÃÆ'Æ'Æ'Ã\ ƒÆ'¢â‚¬Å¡ÃÆ'Æ'‚ÃÆ'‚ ÃÆ'Æ'\ Æ'ÃÆ'¢â‚¬Å¡ÃÆ'Æ'‚ÃÆ'‚ \ ÃÆ'Æ > 'Æ'ÃÆ'¢â‚¬Å¡ÃÆ'Æ'‚ÃÆ'‚ÂÂÂ\ Joan > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >>ÃÆ'Æ'Æ'ÃÆ'¢â‚¬Å¡ÃÆ'Æ'‚ÃÆ'‚\  > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >>Thanks for writing Cathie, I am a very depressed unhappy person. I am just a REcluse anymore. I have spinal stenosis and DDD plus RA and I can't walk but a few steps without sitting are laying down. I have tried so many things pills, shots, etc with no relief. My back and my legs hurt so bad and sometimes they burn. I can't even go to the gro. store anymore. I am scheduled for surgery on the 14th, but I am so sc ared and undecided, as the neurosurgeon ÃÆ'Æ'Æ'ÃÆ'¢â‚¬Å¡ÃÆ'Æ'‚ÃÆ'‚Ã\ ‚ ,I asked him would this surgery take away my pain, and he said he couldn't promise me anything. How scary is that.?? I feel like I am being tortured for some reason. Seems once they try to fix one thing that will call for more surgeries. I can't work anymore and that is killing me.To be truthful with you I have even thought many times of suscide, but guess I am too big a coward for that.Hope you will keep in > touch, because noone here seems to understand. > > > Have A Great Day and Feel > > > > > > > Better. God > > > > > > > > > > > > > > > Bless > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > you!! > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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