Re: wake up at 3 in the morning with asthma, severe cough

[Guest guest]

Hi Rob,

I agree with Bianca here. My relationship suffered at the beginning, and the worst time is when people don't believe you are ill, and can't understand how such a healthy active person can feel so ill. My family thought I had a mental illness, and my gp who I saw weekly was at a loss. The hardest part is finding a Dr who believes you, then you get the diagnosis, and get the treatment. With this illness you have to be knowledgable, assertive and proactive to get what you need, and when you get the treatment, you'll get your life back....not exactly as before, but it is maneagable and it's great to have the support here.

Best Wishes

Becky

From: Bianca <bianca_f75@...>"samters " <samters >Sent: Sat, 27 August, 2011 22:21:14Subject: Re: Re: wake up at 3 in the morning with asthma, severe cough

I have and did find that my relationships suffered greatly when i was in the state before i was diagnosed an started getting some relief. It adversly affected a lot of things mainly from exhaustion, irritability, amd depression that this disease caused.

Hang in there. Things wont be perfect but u can absolutely take the turn of living with this disease and life being more manageable

Bianca

On Aug 27, 2011, at 11:20 AM, "Darcie" <darciecoe@...> wrote:

Thanks Becky. I wish I could get this all started today... I live in Las Vegas and everything I do is going to take place out of state. It's been difficult but I need to stop feeling sorry for myself and tackle it head on. As the days go on and I get sicker and sicker, i am more convinced it's Sampter's. (I couldn't even eat cereal this morning without a reaction) Now, it's convincing others; family, friends, work and doctors that it is. So far, I am getting resistance from everywhere which is something I am sure everyone on this forum has experienced. However, I do look forward to the day when I can go back to some semblance of the quality of life I used to have and go on this forum and be as supportive and helpful to others as you all have been to me. > > > > > > > > > > > > > > > > > > > > > Today, I am going out to shop for low salicylate foods. I have a > >question though about cleaning products. Could

my bed linens be causing me to > >wake up every night with respiratory issues? Or am I reacting to the foods I am > >eating as I have not completely started the low salicyate diet? I must say I am > >sick and tired of being sick and tired and this is just the beginning. 2 more > >questions..., (1)what supplements can "we" take in order to maintain somewhat of > >a balanced diet? (2)can everyone start posting meal plans that have worked for > >them so we can start getting some variety? Thanks, Rob.> > > > > > > > > > > > > > > > > > > > > >> > > > > > > > > >> > > > > > > > >> > > > > > > > > > > > > > > >> > > > > > >> > > > >

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[Guest guest]

Darcie,

My allergist has been great. We knew Samter's was a possibility for me even

before my aspirin allergy showed up since my father has it. Once the triad was

in place he acted very quickly to get my desense referrals in place. They were

from outside my HMO, but he wrote it as medically necessary and it was fully

covered by my insurance. My allergist acts as my 'point' person for my care,

making sure that my ENT and primary care are kept in the treatment loop and

trying to make sure my care is comprehensive. I feel I've been lucky to have

good insurance coverage and to have found doctor's within my HMO that understand

my condition, are willing to read information I send them and try new things.

Finding the right doctors was not without trial and error however. I had a lot

of experiences getting shut down until I found the right Allergist and ENT.

I take the following:

Daily - 325mg aspirin

As needed - saline nasal rinse with budesonide (I do this regularly if someone

in the house is sick, if I've been playing in the dirt or there's a forest fire,

etc., but otherwise I don't rinse regularly).

As needed - Albuterol and QVAR for asthma - I don't really need them unless I

get sick. If my kids are sick I start the QVAR as a precaution.

Montly - immunotherapy shots for environmental allergens.

That's it!

> > > > >

> > > > > > Today, I am going out to shop for low salicylate foods. I have a

question though about cleaning products. Could my bed linens be causing me to

wake up every night with respiratory issues? Or am I reacting to the foods I am

eating as I have not completely started the low salicyate diet? I must say I am

sick and tired of being sick and tired and this is just the beginning. 2 more

questions..., (1)what supplements can " we " take in order to maintain somewhat of

a balanced diet? (2)can everyone start posting meal plans that have worked for

them so we can start getting some variety? Thanks, Rob.

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