Sensitivity/Allergy to Amines (Tyramine)

[Guest guest]

I've been doing some more research, and keeping close track of what I've been

eating to figure out what is causing my asthma and sinus reactions. One of the

physician's assistants at my allergy doctor's office said the best way to see if

you are allergic to a certain food is to eat a lot of it.

I was suspecting there was something in cheese that was causing some of my

reactions, so I ate a bunch of cheese, and sure enough, later that day (and for

the next couple of days), I was having to take some breathing treatments. At

the same time, my blood pressure went way up.

A good place to start reading up on amines is

http://en.wikipedia.org/wiki/Foods_containing_tyramine.

There may be some connection to salicylate sensitivities too. Still researching

that.

For now, I've cut out all cheese products, as well as avocados (which I thought

would be good for me), and chocolates. Will let everyone know if that has

helped.

Was wondering if anyone on this group has tried low amine diets, or verified any

reaction to amines?

Jack

[Guest guest]

Thanks for this information jackBy the way I'm in Texas tooDo you see a dr that is helping you at all?that recognizes this but also offers some suggestions 2 Drs. I have seen both said aspirin desensitizationToo risky , might not work, I am a little discouraged to think this might be my life-- struggling with Samters not living with itSent from iPhoneOn Jan 30, 2011, at 12:49 PM, "stuffyintexas" <stuffyintexas@...> wrote:

I've been doing some more research, and keeping close track of what I've been eating to figure out what is causing my asthma and sinus reactions. One of the physician's assistants at my allergy doctor's office said the best way to see if you are allergic to a certain food is to eat a lot of it.

I was suspecting there was something in cheese that was causing some of my reactions, so I ate a bunch of cheese, and sure enough, later that day (and for the next couple of days), I was having to take some breathing treatments. At the same time, my blood pressure went way up.

A good place to start reading up on amines is http://en.wikipedia.org/wiki/Foods_containing_tyramine.

There may be some connection to salicylate sensitivities too. Still researching that.

For now, I've cut out all cheese products, as well as avocados (which I thought would be good for me), and chocolates. Will let everyone know if that has helped.

Was wondering if anyone on this group has tried low amine diets, or verified any reaction to amines?

Jack

[Guest guest]

It took my current doctor a couple of years to diagnose me with Samters.

He had been calling it " Sampters " , which explained why he couldn't find any

information on it! (sorry everyone, I just had to do that)

Early on he told me to never take aspirin as I would have a reaction to it, and

later suggested I go to the Scripps Clinic for desense. He said I'm the worst

he's seen, and also thinks there will be a cure or very good treatment in 2-3

years. (He attends all of the allergy conventions or whatever they attend).

Hope he doesn't retire anytime soon.

Now I see him twice a year, and he simply refills my prescription for Advair,

antibiotics, steroids, inhalers, Epipen, Singulair, and Xyflo, and I take

whatever I think I need, as he says I have a better handle on it, and there's

really not much he can do besides steriod shots and more surgery.

The desense did help me a bit, but I'm working to find out what's triggering my

asthma and polyps. Have made some progress, but the trial and error stuff is

time consuming. In my case, I know it's all related to what I'm eating. Since

this started, I tried living in Alaska, Hawaii, Europe, California, and Georgia

for extended periods of time. The change in climate, humidity, elevation, and

temperature didn't affect my symptoms a bit.

I don't want to be taking aspirin the rest of my life, or any other stupid

drugs. Before all this hit me, I was healthy, climbing mountains, etc. Even

with Samters, I still use less sick leave than anyone I work with. I still try

to exercise and keep healthy, and don't let it get the better part of me. My

parents are healthy and in their 80's, my grandparents died in their 90's, and

everyone else in my family is very healthy, so none of this makes any sense.

Had one sinus surgery, and the polyps came back in less than 3 months. That was

my first and last sinus surgery.

Don't let it discourage you.

Jack

>

> >

> > I've been doing some more research, and keeping close track of what I've

been eating to figure out what is causing my asthma and sinus reactions. One of

the physician's assistants at my allergy doctor's office said the best way to

see if you are allergic to a certain food is to eat a lot of it.

> >

> > I was suspecting there was something in cheese that was causing some of my

reactions, so I ate a bunch of cheese, and sure enough, later that day (and for

the next couple of days), I was having to take some breathing treatments. At the

same time, my blood pressure went way up.

> >

> > A good place to start reading up on amines is

http://en.wikipedia.org/wiki/Foods_containing_tyramine.

> >

> > There may be some connection to salicylate sensitivities too. Still

researching that.

> >

> > For now, I've cut out all cheese products, as well as avocados (which I

thought would be good for me), and chocolates. Will let everyone know if that

has helped.

> >

> > Was wondering if anyone on this group has tried low amine diets, or verified

any reaction to amines?

> >

> > Jack

> >

> >

>

[Guest guest]

Jack thank you againYour message is most helpfulI too want to find out triggers for this asthma and polypsI'm really going to work at paying attention to foods I suppose Just need to read more labels too because the lotion I've been using in here has salicilate as ingredient!I went into anaphylaxis shock taking motrinCan't have aspirin either .I really appreciate your message jackThank you again Hope you have a great day!Sent from my iPhoneOn Jan 31, 2011, at 8:55 PM, "stuffyintexas" <stuffyintexas@...> wrote:

It took my current doctor a couple of years to diagnose me with Samters.

He had been calling it "Sampters", which explained why he couldn't find any information on it! (sorry everyone, I just had to do that)

Early on he told me to never take aspirin as I would have a reaction to it, and later suggested I go to the Scripps Clinic for desense. He said I'm the worst he's seen, and also thinks there will be a cure or very good treatment in 2-3 years. (He attends all of the allergy conventions or whatever they attend). Hope he doesn't retire anytime soon.

Now I see him twice a year, and he simply refills my prescription for Advair, antibiotics, steroids, inhalers, Epipen, Singulair, and Xyflo, and I take whatever I think I need, as he says I have a better handle on it, and there's really not much he can do besides steriod shots and more surgery.

The desense did help me a bit, but I'm working to find out what's triggering my asthma and polyps. Have made some progress, but the trial and error stuff is time consuming. In my case, I know it's all related to what I'm eating. Since this started, I tried living in Alaska, Hawaii, Europe, California, and Georgia for extended periods of time. The change in climate, humidity, elevation, and temperature didn't affect my symptoms a bit.

I don't want to be taking aspirin the rest of my life, or any other stupid drugs. Before all this hit me, I was healthy, climbing mountains, etc. Even with Samters, I still use less sick leave than anyone I work with. I still try to exercise and keep healthy, and don't let it get the better part of me. My parents are healthy and in their 80's, my grandparents died in their 90's, and everyone else in my family is very healthy, so none of this makes any sense.

Had one sinus surgery, and the polyps came back in less than 3 months. That was my first and last sinus surgery.

Don't let it discourage you.

Jack

>

> >

> > I've been doing some more research, and keeping close track of what I've been eating to figure out what is causing my asthma and sinus reactions. One of the physician's assistants at my allergy doctor's office said the best way to see if you are allergic to a certain food is to eat a lot of it.

> >

> > I was suspecting there was something in cheese that was causing some of my reactions, so I ate a bunch of cheese, and sure enough, later that day (and for the next couple of days), I was having to take some breathing treatments. At the same time, my blood pressure went way up.

> >

> > A good place to start reading up on amines is http://en.wikipedia.org/wiki/Foods_containing_tyramine.

> >

> > There may be some connection to salicylate sensitivities too. Still researching that.

> >

> > For now, I've cut out all cheese products, as well as avocados (which I thought would be good for me), and chocolates. Will let everyone know if that has helped.

> >

> > Was wondering if anyone on this group has tried low amine diets, or verified any reaction to amines?

> >

> > Jack

> >

> >

>

[Guest guest]

My Doctor also refered to it as sampters.

From: samters [mailto:samters ] On Behalf Of stuffyintexasSent: Monday, January 31, 2011 9:55 PMsamters Subject: Re: Sensitivity/Allergy to Amines (Tyramine)

It took my current doctor a couple of years to diagnose me with Samters. He had been calling it "Sampters", which explained why he couldn't find any information on it! (sorry everyone, I just had to do that)Early on he told me to never take aspirin as I would have a reaction to it, and later suggested I go to the Scripps Clinic for desense. He said I'm the worst he's seen, and also thinks there will be a cure or very good treatment in 2-3 years. (He attends all of the allergy conventions or whatever they attend). Hope he doesn't retire anytime soon.Now I see him twice a year, and he simply refills my prescription for Advair, antibiotics, steroids, inhalers, Epipen, Singulair, and Xyflo, and I take whatever I think I need, as he says I have a better handle on it, and there's really not much he can do besides steriod shots and more surgery.The desense did help me a bit, but I'm working to find out what's triggering my asthma and polyps. Have made some progress, but the trial and error stuff is time consuming. In my case, I know it's all related to what I'm eating. Since this started, I tried living in Alaska, Hawaii, Europe, California, and Georgia for extended periods of time. The change in climate, humidity, elevation, and temperature didn't affect my symptoms a bit.I don't want to be taking aspirin the rest of my life, or any other stupid drugs. Before all this hit me, I was healthy, climbing mountains, etc. Even with Samters, I still use less sick leave than anyone I work with. I still try to exercise and keep healthy, and don't let it get the better part of me. My parents are healthy and in their 80's, my grandparents died in their 90's, and everyone else in my family is very healthy, so none of this makes any sense.Had one sinus surgery, and the polyps came back in less than 3 months. That was my first and last sinus surgery.Don't let it discourage you. Jack> > > > > I've been doing some more research, and keeping close track of what I've been eating to figure out what is causing my asthma and sinus reactions. One of the physician's assistants at my allergy doctor's office said the best way to see if you are allergic to a certain food is to eat a lot of it.> > > > I was suspecting there was something in cheese that was causing some of my reactions, so I ate a bunch of cheese, and sure enough, later that day (and for the next couple of days), I was having to take some breathing treatments. At the same time, my blood pressure went way up.> > > > A good place to start reading up on amines is http://en.wikipedia.org/wiki/Foods_containing_tyramine.> > > > There may be some connection to salicylate sensitivities too. Still researching that.> > > > For now, I've cut out all cheese products, as well as avocados (which I thought would be good for me), and chocolates. Will let everyone know if that has helped.> > > > Was wondering if anyone on this group has tried low amine diets, or verified any reaction to amines?> > > > Jack> > > >>

[Guest guest]

I also fell like my worse symptoms are related to something I am eating. I am desensitized and have been wondering if I am now just sensitive to something else. Does taking aspirin now allow me to not worry about salycilates at all or are there some types that will still be an issue? It is difficult to figure out what is the offending compound when it is part of something that is eaten over the course of a day. Wish there was a easy way to narrow it down. I am not "allergic" to anything they have tested for so far in the standard skin prick method but I feel like this is not accurate for my reaction.

\michelle

From: samters [mailto:samters ] On Behalf Of stuffyintexasSent: Monday, January 31, 2011 9:55 PMsamters Subject: Re: Sensitivity/Allergy to Amines (Tyramine)

It took my current doctor a couple of years to diagnose me with Samters. He had been calling it "Sampters", which explained why he couldn't find any information on it! (sorry everyone, I just had to do that)Early on he told me to never take aspirin as I would have a reaction to it, and later suggested I go to the Scripps Clinic for desense. He said I'm the worst he's seen, and also thinks there will be a cure or very good treatment in 2-3 years. (He attends all of the allergy conventions or whatever they attend). Hope he doesn't retire anytime soon.Now I see him twice a year, and he simply refills my prescription for Advair, antibiotics, steroids, inhalers, Epipen, Singulair, and Xyflo, and I take whatever I think I need, as he says I have a better handle on it, and there's really not much he can do besides steriod shots and more surgery.The desense did help me a bit, but I'm working to find out what's triggering my asthma and polyps. Have made some progress, but the trial and error stuff is time consuming. In my case, I know it's all related to what I'm eating. Since this started, I tried living in Alaska, Hawaii, Europe, California, and Georgia for extended periods of time. The change in climate, humidity, elevation, and temperature didn't affect my symptoms a bit.I don't want to be taking aspirin the rest of my life, or any other stupid drugs. Before all this hit me, I was healthy, climbing mountains, etc. Even with Samters, I still use less sick leave than anyone I work with. I still try to exercise and keep healthy, and don't let it get the better part of me. My parents are healthy and in their 80's, my grandparents died in their 90's, and everyone else in my family is very healthy, so none of this makes any sense.Had one sinus surgery, and the polyps came back in less than 3 months. That was my first and last sinus surgery.Don't let it discourage you. Jack> > > > > I've been doing some more research, and keeping close track of what I've been eating to figure out what is causing my asthma and sinus reactions. One of the physician's assistants at my allergy doctor's office said the best way to see if you are allergic to a certain food is to eat a lot of it.> > > > I was suspecting there was something in cheese that was causing some of my reactions, so I ate a bunch of cheese, and sure enough, later that day (and for the next couple of days), I was having to take some breathing treatments. At the same time, my blood pressure went way up.> > > > A good place to start reading up on amines is http://en.wikipedia.org/wiki/Foods_containing_tyramine.> > > > There may be some connection to salicylate sensitivities too. Still researching that.> > > > For now, I've cut out all cheese products, as well as avocados (which I thought would be good for me), and chocolates. Will let everyone know if that has helped.> > > > Was wondering if anyone on this group has tried low amine diets, or verified any reaction to amines?> > > > Jack> > > >>

[Guest guest]

Thanks for your post Jack

From: samters [mailto:samters ] On Behalf Of Drew & Sent: Tuesday, February 01, 2011 7:49 AMsamters Subject: RE: Re: Sensitivity/Allergy to Amines (Tyramine)

My Doctor also refered to it as sampters.

From: samters [mailto:samters ] On Behalf Of stuffyintexasSent: Monday, January 31, 2011 9:55 PMsamters Subject: Re: Sensitivity/Allergy to Amines (Tyramine)

It took my current doctor a couple of years to diagnose me with Samters. He had been calling it "Sampters", which explained why he couldn't find any information on it! (sorry everyone, I just had to do that)Early on he told me to never take aspirin as I would have a reaction to it, and later suggested I go to the Scripps Clinic for desense. He said I'm the worst he's seen, and also thinks there will be a cure or very good treatment in 2-3 years. (He attends all of the allergy conventions or whatever they attend). Hope he doesn't retire anytime soon.Now I see him twice a year, and he simply refills my prescription for Advair, antibiotics, steroids, inhalers, Epipen, Singulair, and Xyflo, and I take whatever I think I need, as he says I have a better handle on it, and there's really not much he can do besides steriod shots and more surgery.The desense did help me a bit, but I'm working to find out what's triggering my asthma and polyps. Have made some progress, but the trial and error stuff is time consuming. In my case, I know it's all related to what I'm eating. Since this started, I tried living in Alaska, Hawaii, Europe, California, and Georgia for extended periods of time. The change in climate, humidity, elevation, and temperature didn't affect my symptoms a bit.I don't want to be taking aspirin the rest of my life, or any other stupid drugs. Before all this hit me, I was healthy, climbing mountains, etc. Even with Samters, I still use less sick leave than anyone I work with. I still try to exercise and keep healthy, and don't let it get the better part of me. My parents are healthy and in their 80's, my grandparents died in their 90's, and everyone else in my family is very healthy, so none of this makes any sense.Had one sinus surgery, and the polyps came back in less than 3 months. That was my first and last sinus surgery.Don't let it discourage you. Jack> > > > > I've been doing some more research, and keeping close track of what I've been eating to figure out what is causing my asthma and sinus reactions. One of the physician's assistants at my allergy doctor's office said the best way to see if you are allergic to a certain food is to eat a lot of it.> > > > I was suspecting there was something in cheese that was causing some of my reactions, so I ate a bunch of cheese, and sure enough, later that day (and for the next couple of days), I was having to take some breathing treatments. At the same time, my blood pressure went way up.> > > > A good place to start reading up on amines is http://en.wikipedia.org/wiki/Foods_containing_tyramine.> > > > There may be some connection to salicylate sensitivities too. Still researching that.> > > > For now, I've cut out all cheese products, as well as avocados (which I thought would be good for me), and chocolates. Will let everyone know if that has helped.> > > > Was wondering if anyone on this group has tried low amine diets, or verified any reaction to amines?> > > > Jack> > > >>

[Guest guest]

> From: Drew & <anmcarter@...>

> My Doctor also refered to it as sampters.

>

Which, of course, is typical of the knowledge possessed by most doctors

about the condition.

[Guest guest]

I am wondering the same thing ...

From: Drew & <anmcarter@...>Subject: RE: Re: Sensitivity/Allergy to Amines (Tyramine)samters Date: Tuesday, February 1, 2011, 7:55 AM

I also fell like my worse symptoms are related to something I am eating. I am desensitized and have been wondering if I am now just sensitive to something else. Does taking aspirin now allow me to not worry about salycilates at all or are there some types that will still be an issue? It is difficult to figure out what is the offending compound when it is part of something that is eaten over the course of a day. Wish there was a easy way to narrow it down. I am not "allergic" to anything they have tested for so far in the standard skin prick method but I feel like this is not accurate for my reaction.

\michelle

From: samters [mailto:samters ] On Behalf Of stuffyintexasSent: Monday, January 31, 2011 9:55 PMsamters Subject: Re: Sensitivity/Allergy to Amines (Tyramine)

It took my current doctor a couple of years to diagnose me with Samters. He had been calling it "Sampters", which explained why he couldn't find any information on it! (sorry everyone, I just had to do that)Early on he told me to never take aspirin as I would have a reaction to it, and later suggested I go to the Scripps Clinic for desense. He said I'm the worst he's seen, and also thinks there will be a cure or very good treatment in 2-3 years. (He attends all of the allergy conventions or whatever they attend). Hope he doesn't retire anytime soon.Now I see him twice a year, and he simply refills my prescription for Advair, antibiotics, steroids, inhalers, Epipen, Singulair, and Xyflo, and I take whatever I think I need, as he says I have a better handle on it, and there's really not much he can do besides steriod shots and more surgery.The desense did help me a bit, but I'm working to find out what's

triggering my asthma and polyps. Have made some progress, but the trial and error stuff is time consuming. In my case, I know it's all related to what I'm eating. Since this started, I tried living in Alaska, Hawaii, Europe, California, and Georgia for extended periods of time. The change in climate, humidity, elevation, and temperature didn't affect my symptoms a bit.I don't want to be taking aspirin the rest of my life, or any other stupid drugs. Before all this hit me, I was healthy, climbing mountains, etc. Even with Samters, I still use less sick leave than anyone I work with. I still try to exercise and keep healthy, and don't let it get the better part of me. My parents are healthy and in their 80's, my grandparents died in their 90's, and everyone else in my family is very healthy, so none of this makes any sense.Had one sinus surgery, and the polyps came back in less than 3 months. That was my first and last sinus

surgery.Don't let it discourage you. Jack> > > > > I've been doing some more research, and keeping close track of what I've been eating to figure out what is causing my asthma and sinus

reactions. One of the physician's assistants at my allergy doctor's office said the best way to see if you are allergic to a certain food is to eat a lot of it.> > > > I was suspecting there was something in cheese that was causing some of my reactions, so I ate a bunch of cheese, and sure enough, later that day (and for the next couple of days), I was having to take some breathing treatments. At the same time, my blood pressure went way up.> > > > A good place to start reading up on amines is http://en.wikipedia.org/wiki/Foods_containing_tyramine.> > > > There may be some connection to salicylate sensitivities too. Still researching that.> > > > For now, I've cut out all cheese products, as well as avocados (which I thought would be good for me), and chocolates. Will let

everyone know if that has helped.> > > > Was wondering if anyone on this group has tried low amine diets, or verified any reaction to amines?> > > > Jack> > > >>