RE: Re: Diet vs. Desensitization

[Guest guest]

> Hi Ron, I have been tested for allergies, blood and prick. But I don't think

> aspirin was in the mix... I wasn't allergic to typical allergies like pollen

> and animal dander. I've also seen a ears nose and throat specialist, but he

> never really told me anything other then keep taking your Flonase, and if it

> gets really bad then he said to take my oral steroids.

> I guess I will just go back and get tested again... And just hope for a decent

> specialist, because each time I go is like 50 dollars.

Your experience is not surprising.

It it totally typical for Samterites that:

- aspirin is not included in allergy tests,

- allergy tests are inconclusive,

- specialists don't know what they are talking about.

[Guest guest]

Ken, your replies made me chuckle...it's so true :-))

From: q2 <kenwest@...>samters Sent: Thu, 24 March, 2011 15:57:41Subject: Re: Re: Diet vs. Desensitization

> Hi Ron, I have been tested for allergies, blood and prick. But I don't think> aspirin was in the mix... I wasn't allergic to typical allergies like pollen> and animal dander. I've also seen a ears nose and throat specialist, but he> never really told me anything other then keep taking your Flonase, and if it> gets really bad then he said to take my oral steroids.> I guess I will just go back and get tested again... And just hope for a decent> specialist, because each time I go is like 50 dollars.Your experience is not surprising.It it totally typical for Samterites that:- aspirin is not included in allergy tests,- allergy tests are inconclusive,- specialists don't know what they are talking about.

[Guest guest]

Can you imagine the annual Samters Group party... God help the Caterers!From: Bannister <beckyb256@...>samters Sent: Thu, 24 March, 2011 16:10:50Subject: Re: Re: Diet vs. Desensitization

Ken, your replies made me chuckle...it's so true :-))

From: q2 <kenwest@...>samters Sent: Thu, 24 March, 2011 15:57:41Subject: Re: Re: Diet vs. Desensitization

> Hi Ron, I have been tested for allergies, blood and prick. But I don't think> aspirin was in the mix... I wasn't allergic to typical allergies like pollen> and animal dander. I've also seen a ears nose and throat specialist, but he> never really told me anything other then keep taking your Flonase, and if it> gets really bad then he said to take my oral steroids.> I guess I will just go back and get tested again... And just hope for a decent> specialist, because each time I go is like 50 dollars.Your experience is not surprising.It it totally typical for Samterites that:- aspirin is not included in allergy tests,- allergy tests are inconclusive,- specialists don't know what they are talking about.

[Guest guest]

I know, no salycilates, no wheat (that's me and a few others!), no dairy ..I hope none of us are vegetarians ;-) We could have Salmon with peeled potatoes and cabbage, followed by gluten-free pear and chocolate crumble....mmm sounds quite nice actually...

From: Iain Blacklock <iainblacklock@...>samters Sent: Thu, 24 March, 2011 16:23:17Subject: Re: Re: Diet vs. Desensitization

Can you imagine the annual Samters Group party... God help the Caterers!

From: Bannister <beckyb256@...>samters Sent: Thu, 24 March, 2011 16:10:50Subject: Re: Re: Diet vs. Desensitization

Ken, your replies made me chuckle...it's so true :-))

From: q2 <kenwest@...>samters Sent: Thu, 24 March, 2011 15:57:41Subject: Re: Re: Diet vs. Desensitization

> Hi Ron, I have been tested for allergies, blood and prick. But I don't think> aspirin was in the mix... I wasn't allergic to typical allergies like pollen> and animal dander. I've also seen a ears nose and throat specialist, but he> never really told me anything other then keep taking your Flonase, and if it> gets really bad then he said to take my oral steroids.> I guess I will just go back and get tested again... And just hope for a decent> specialist, because each time I go is like 50 dollars.Your experience is not surprising.It it totally typical for Samterites that:- aspirin is not included in allergy tests,- allergy tests are inconclusive,- specialists don't know what they are talking about.

[Guest guest]

Does your allergist have the ability to test for mold allergies?

Re: Diet vs. Desensitization

Hi Ron, I have been tested for allergies, blood and prick. But I don't think

aspirin was in the mix... I wasn't allergic to typical allergies like pollen

and animal dander. I've also seen a ears nose and throat specialist, but he

never really told me anything other then keep taking your Flonase, and if it

gets really bad then he said to take my oral steroids.

I guess I will just go back and get tested again... And just hope for a

decent specialist, because each time I go is like 50 dollars.

Granted, my polyps aren't nearly as bad as they used to be. I still can only

smell mid work out... And randomly every couple days I can smell for maybe

10 minutes... I still get bad inflammation and pain though.

Thank you for the information Ron!

>

> Arielle,

> I'm sure that it was done, but just in case, have you had a COMPLETE

allergy series of tests. With me they tested up and down both arms and all

across my back with pin-prick type tests and then they also did a blood test

for allergic reactions and for genetic disorders.

> I guess I am saying that once you know what can cause your problems,

you do not know what to avoid. You also need to understand that ALL

medications, and all diets, have side affects, that will affect ALL of us

differently. What works for you may not work for others.

> I have also been diagnosed with asthma, but the only time I ever

experienced a problem was when I took an aspirin, and then it was a severe

reaction. Again, everyone is different.

> Make sure that you are with an allergist or ear, nose, and throat

Doctor that understands Samter's so that he knows exactly what it is and

exactly what the DIFFERENT ways to treat the condition are available. For

me, my doctor does not recommend aspirin desensitization, but he does

recommend it for others. I am not on any special diet and do not have to

watch any foods that I eat, but that is mainly because I tested negative for

any allergies.

> I have had three polyp surgeries, the last of which was three years

ago. The drugs I use are Singulair, Nasonex, Asmanex, and Loridadine, along

with some Vitamin D, B-1, and Calcium supplements.

> As long as I am taking my medicines, I have no symptoms of Samter's or

Asthma and my polyps are not growing back. I have no sinus infections and

the only thing I have to avoid is aspirin, or products that contain aspirin,

BUT that is what works for me. You are probably different and need a doctor

that will test for EVERYTHING and then lay out a plan of treatment that

works for you. There is no " one size fits all " treatment with Samter's.

> Ron

>

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[Guest guest]

Mmm... vodka and schwepps tonic water...with a teeny tiny slice of lime :-)

From: Helen <hpcharles63@...>samters Sent: Fri, 25 March, 2011 20:24:52Subject: Re: Diet vs. Desensitization

with a vodka or nice glasses of filtered water to wash it down with !!>> I know, no salycilates, no wheat (that's me and a few others!), no dairy ..I > hope none of us are vegetarians ;-) We could have Salmon with peeled potatoes > and cabbage, followed by gluten-free pear and chocolate crumble....mmm sounds > quite nice actually...> > > > > ________________________________> From: Iain Blacklock <iainblacklock@...>> samters > Sent: Thu, 24 March, 2011 16:23:17> Subject: Re: Re: Diet vs.

Desensitization> > Â > Can you imagine the annual Samters Group party... God help the Caterers!> > > > > ________________________________> From: Bannister <beckyb256@...>> samters > Sent: Thu, 24 March, 2011 16:10:50> Subject: Re: Re: Diet vs. Desensitization> > Â > Ken, your replies made me chuckle...it's so true :-))> > > > > ________________________________> From: q2 <kenwest@...>> samters > Sent: Thu, 24 March, 2011 15:57:41> Subject: Re: Re: Diet vs.

Desensitization> > Â > > Hi Ron, I have been tested for allergies, blood and prick. But I don't think> > aspirin was in the mix... I wasn't allergic to typical allergies like pollen> > and animal dander. I've also seen a ears nose and throat specialist, but he> > never really told me anything other then keep taking your Flonase, and if it> > gets really bad then he said to take my oral steroids.> > I guess I will just go back and get tested again... And just hope for a decent> > specialist, because each time I go is like 50 dollars.> > Your experience is not surprising.> It it totally typical for Samterites that:> - aspirin is not included in allergy tests,> - allergy tests are inconclusive,> - specialists don't know what they are talking about.>