Guest guest Posted March 23, 2011 Report Share Posted March 23, 2011 Hi, I am a new comer too to this site, which has been useful and to Samters. have been on the diet for nearly a month and admit very hard to stick too. Its so dry and boring.........and not very healthy. I have to admit for me it does work!!If a have one small " cheat " I will pay for it after a short time. Seeing ENT surgeon in may who I hope will remove all my polpys but my GP says may not as they will just return. I still want the chanceto be able to perhaps smell again. Had to come off singulair as reacted to that too. No one seems to talk about desense as yet. Very interested though. All my problems seem to come from when I had a virus last year. Lost smell and taste then and came back a little on singulair but gone again. Live in UK but going to see family in Florida next week. Very nervous being on the diet away from home as never eat out now. People don't understand how my diet is important, unfortuately as I long for a red wine and a curry !! Good luck > > Hi everyone, > > I'm fairly new to this group and have been reading as much as possible on Samters for the past few days. > > I've had this condition for the past 4 years and got no help from doctors on finding the real problem. I've been diagnosed with asthma, which I know I don't have... I've also been giving oral and topical steriods. I've given all of them up but the topical, which is a spray... And that's only when the inflammation gets really bad. I've given up all my acne mediation and am switching to all natural products (deodorant, hair color, shampoo, body wash, etc.) Personally my skin is doing better since i've gotten off the regualr acne meds and face wash. I used to sweat a lot and had a had worse inflammation when using a regular deodorant. Now I use toms of maine. > > I haven't really read a lot of people who have stuck to the diet longer then 3 months. I've just read a lot on desensitization. Why? > I haven't had time to read every little thing about either of the two. I just want your reason, only because most of you have been doing much more research on the issue then I have. > > I bought the Feingold diet program book. I'm willing to give that a shot before dealing with the Aspirin again. Plus, I want to start training like a triathlete and I don't want to fight the fatigue of my immune system and the training at the same time. I feel like the detox might be better anyways. If my body doesn't like it. It shouldn't be there. So desensitization is my last resort. > > - Arielle > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2011 Report Share Posted March 23, 2011 What kind of diet? Sent from my iPhone Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2011 Report Share Posted March 23, 2011 So you have been doing the diet? What are some of the basic meals you eat on a daily basis? And also, has it improved your smell and inflammation? I'm kinda upset, it sounds like you have to eliminate a lot of veggies and fruits... > > > Hi, I am a new comer too to this site, which has been useful and to Samters. have been on the diet for nearly a month and admit very hard to stick too. Its so dry and boring.........and not very healthy. > I have to admit for me it does work!!If a have one small " cheat " I will pay for it after a short time. > Seeing ENT surgeon in may who I hope will remove all my polpys but my GP says may not as they will just return. I still want the chanceto be able to perhaps smell again. > > Had to come off singulair as reacted to that too. > > No one seems to talk about desense as yet. Very interested though. > > All my problems seem to come from when I had a virus last year. Lost smell and taste then and came back a little on singulair but gone again. > > Live in UK but going to see family in Florida next week. Very nervous being on the diet away from home as never eat out now. > > People don't understand how my diet is important, unfortuately as I long for a red wine and a curry !! > > Good luck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2011 Report Share Posted March 24, 2011 Arielle, I'm sure that it was done, but just in case, have you had a COMPLETE allergy series of tests. With me they tested up and down both arms and all across my back with pin-prick type tests and then they also did a blood test for allergic reactions and for genetic disorders. I guess I am saying that once you know what can cause your problems, you do not know what to avoid. You also need to understand that ALL medications, and all diets, have side affects, that will affect ALL of us differently. What works for you may not work for others. I have also been diagnosed with asthma, but the only time I ever experienced a problem was when I took an aspirin, and then it was a severe reaction. Again, everyone is different. Make sure that you are with an allergist or ear, nose, and throat Doctor that understands Samter's so that he knows exactly what it is and exactly what the DIFFERENT ways to treat the condition are available. For me, my doctor does not recommend aspirin desensitization, but he does recommend it for others. I am not on any special diet and do not have to watch any foods that I eat, but that is mainly because I tested negative for any allergies. I have had three polyp surgeries, the last of which was three years ago. The drugs I use are Singulair, Nasonex, Asmanex, and Loridadine, along with some Vitamin D, B-1, and Calcium supplements. As long as I am taking my medicines, I have no symptoms of Samter's or Asthma and my polyps are not growing back. I have no sinus infections and the only thing I have to avoid is aspirin, or products that contain aspirin, BUT that is what works for me. You are probably different and need a doctor that will test for EVERYTHING and then lay out a plan of treatment that works for you. There is no " one size fits all " treatment with Samter's. Ron > > Hi everyone, > > I'm fairly new to this group and have been reading as much as possible on Samters for the past few days. > > I've had this condition for the past 4 years and got no help from doctors on finding the real problem. I've been diagnosed with asthma, which I know I don't have... I've also been giving oral and topical steriods. I've given all of them up but the topical, which is a spray... And that's only when the inflammation gets really bad. I've given up all my acne mediation and am switching to all natural products (deodorant, hair color, shampoo, body wash, etc.) Personally my skin is doing better since i've gotten off the regualr acne meds and face wash. I used to sweat a lot and had a had worse inflammation when using a regular deodorant. Now I use toms of maine. > > I haven't really read a lot of people who have stuck to the diet longer then 3 months. I've just read a lot on desensitization. Why? > I haven't had time to read every little thing about either of the two. I just want your reason, only because most of you have been doing much more research on the issue then I have. > > I bought the Feingold diet program book. I'm willing to give that a shot before dealing with the Aspirin again. Plus, I want to start training like a triathlete and I don't want to fight the fatigue of my immune system and the training at the same time. I feel like the detox might be better anyways. If my body doesn't like it. It shouldn't be there. So desensitization is my last resort. > > - Arielle > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2011 Report Share Posted March 24, 2011 Hi Ron, I have been tested for allergies, blood and prick. But I don't think aspirin was in the mix... I wasn't allergic to typical allergies like pollen and animal dander. I've also seen a ears nose and throat specialist, but he never really told me anything other then keep taking your Flonase, and if it gets really bad then he said to take my oral steroids. I guess I will just go back and get tested again... And just hope for a decent specialist, because each time I go is like 50 dollars. Granted, my polyps aren't nearly as bad as they used to be. I still can only smell mid work out... And randomly every couple days I can smell for maybe 10 minutes... I still get bad inflammation and pain though. Thank you for the information Ron! > > Arielle, > I'm sure that it was done, but just in case, have you had a COMPLETE allergy series of tests. With me they tested up and down both arms and all across my back with pin-prick type tests and then they also did a blood test for allergic reactions and for genetic disorders. > I guess I am saying that once you know what can cause your problems, you do not know what to avoid. You also need to understand that ALL medications, and all diets, have side affects, that will affect ALL of us differently. What works for you may not work for others. > I have also been diagnosed with asthma, but the only time I ever experienced a problem was when I took an aspirin, and then it was a severe reaction. Again, everyone is different. > Make sure that you are with an allergist or ear, nose, and throat Doctor that understands Samter's so that he knows exactly what it is and exactly what the DIFFERENT ways to treat the condition are available. For me, my doctor does not recommend aspirin desensitization, but he does recommend it for others. I am not on any special diet and do not have to watch any foods that I eat, but that is mainly because I tested negative for any allergies. > I have had three polyp surgeries, the last of which was three years ago. The drugs I use are Singulair, Nasonex, Asmanex, and Loridadine, along with some Vitamin D, B-1, and Calcium supplements. > As long as I am taking my medicines, I have no symptoms of Samter's or Asthma and my polyps are not growing back. I have no sinus infections and the only thing I have to avoid is aspirin, or products that contain aspirin, BUT that is what works for me. You are probably different and need a doctor that will test for EVERYTHING and then lay out a plan of treatment that works for you. There is no " one size fits all " treatment with Samter's. > Ron > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2011 Report Share Posted March 24, 2011 I have my sense of smell back now but when it was gone, my diet got pretty basic. I loved salmon, but without a sense of smell, it tasted like some kind of mush. I stopped eating it. Beef still tasted the same but chicken and pork lost their flavor. Orange juice, which I also loved, tasted strange enough that I stopped drinking it. Hot spicy foods didn't seem near as hot. Sweets still tasted about the same. Since most foods had lost their flavor for me, I couldn't see spending money on anything but basic beef, potatoes, and veggies. I was sure glad when my sense of smell returned and I could start enjoying foods again. Once after getting my smell back, my wife was cooking cabbage and corned beef in the crock pot. I thought the dog had dumped somewhere in the house, but it was still nice to be able to smell my dinner again and it did taste good. :-) Ron > > I know, no salycilates, no wheat (that's me and a few others!), no dairy ..I > hope none of us are vegetarians ;-) We could have Salmon with peeled potatoes > and cabbage, followed by gluten-free pear and chocolate crumble....mmm sounds > quite nice actually... > > > > > ________________________________ > From: Iain Blacklock <iainblacklock@...> > samters > Sent: Thu, 24 March, 2011 16:23:17 > Subject: Re: Re: Diet vs. Desensitization > >  > Can you imagine the annual Samters Group party... God help the Caterers! > > > > > ________________________________ > From: Bannister <beckyb256@...> > samters > Sent: Thu, 24 March, 2011 16:10:50 > Subject: Re: Re: Diet vs. Desensitization > >  > Ken, your replies made me chuckle...it's so true :-)) > > > > > ________________________________ > From: q2 <kenwest@...> > samters > Sent: Thu, 24 March, 2011 15:57:41 > Subject: Re: Re: Diet vs. Desensitization > >  > > Hi Ron, I have been tested for allergies, blood and prick. But I don't think > > aspirin was in the mix... I wasn't allergic to typical allergies like pollen > > and animal dander. I've also seen a ears nose and throat specialist, but he > > never really told me anything other then keep taking your Flonase, and if it > > gets really bad then he said to take my oral steroids. > > I guess I will just go back and get tested again... And just hope for a decent > > specialist, because each time I go is like 50 dollars. > > Your experience is not surprising. > It it totally typical for Samterites that: > - aspirin is not included in allergy tests, > - allergy tests are inconclusive, > - specialists don't know what they are talking about. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2011 Report Share Posted March 25, 2011 with a vodka or nice glasses of filtered water to wash it down with !! > > I know, no salycilates, no wheat (that's me and a few others!), no dairy ..I > hope none of us are vegetarians ;-) We could have Salmon with peeled potatoes > and cabbage, followed by gluten-free pear and chocolate crumble....mmm sounds > quite nice actually... > > > > > ________________________________ > From: Iain Blacklock <iainblacklock@...> > samters > Sent: Thu, 24 March, 2011 16:23:17 > Subject: Re: Re: Diet vs. Desensitization > >  > Can you imagine the annual Samters Group party... God help the Caterers! > > > > > ________________________________ > From: Bannister <beckyb256@...> > samters > Sent: Thu, 24 March, 2011 16:10:50 > Subject: Re: Re: Diet vs. Desensitization > >  > Ken, your replies made me chuckle...it's so true :-)) > > > > > ________________________________ > From: q2 <kenwest@...> > samters > Sent: Thu, 24 March, 2011 15:57:41 > Subject: Re: Re: Diet vs. Desensitization > >  > > Hi Ron, I have been tested for allergies, blood and prick. But I don't think > > aspirin was in the mix... I wasn't allergic to typical allergies like pollen > > and animal dander. I've also seen a ears nose and throat specialist, but he > > never really told me anything other then keep taking your Flonase, and if it > > gets really bad then he said to take my oral steroids. > > I guess I will just go back and get tested again... And just hope for a decent > > specialist, because each time I go is like 50 dollars. > > Your experience is not surprising. > It it totally typical for Samterites that: > - aspirin is not included in allergy tests, > - allergy tests are inconclusive, > - specialists don't know what they are talking about. > Quote Link to comment Share on other sites More sharing options...
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