Re: Singulair - help and advice needed

[Guest guest]

Hi ,

Welcome to the group and thank you for reading the posts and library before posting. (I do understand the desperation of new readers for some answers to long time questions. I’ve been there!!!)

You should take Singulair with your current regimen. The 10 mg may not be enough. Some have gone to 20 and sometimes 30mg. It didn’t work at all for me, for for a majority it is a favorite. If Singulair doesn’t work, try zyflo which is similar but more difficult to take and a bit risky for your liver. Zyflo worked well for me, but I quit it in favor of aspirin. They don’t work the same way. I don’t know for sure why aspirin works, but I’m much better now.

6 surgeries! ouch!

The irrigation is great isn’t it?

Pam

On 7/24/06 1:36 PM, " afgilkes " <gilkes@...> wrote:

I have been inspired by the letters on this site from others with

Samters and the info I read in the " library " and links to try a more

proactive approach to treatment. However I feel I still I need some

help and advice.

I was diagnosed in May 1997, initially with asthma and then Samters

(following an unfortunate headache which resulted in an emergency

trip to A and E). Up until this point I had been blissfully unaware

of my allergy to aspirin.

Since then my asthma has been very well controlled by becotide, with

very rare (once every 2-3 months) requirement for salbutamol; however

the polyps are a big problem.

Treatment and knowledge of Samters seem to be very different here in

the UK. Until now I have been seeing only the ENT surgeon and my GP.

I have been taking Becotide inhaler (Beclometasone) – twice daily

Salbutamol inhaler (– as required

Cetirizine – Daily

Beconase nasal spray (beclometasone) – Twice

daily

And, since joining this group and a recent trip to the states, daily

or twice daily nasal irrigation.

I have had 6 polypectomies which are always complicated by excessive

bleeding during surgery. I have no sense of smell and occasional very

sudden attacks of sneezing/running nose and eyes which can last hours

or days.

Today I saw the ENT who was amused by the pile of paperwork I went

armed with. As a consequence I have a referral to an immunologist

and a prescription for Singulair. He had never heard of aspirin

desensitisation and had only prescribed Singulair for rhinitis a

couple of times (never Zyflo). He had no interest in the Arachidonic

pathway map I

had taken with me.

This is where I need your help. I need advice on the Singulair; do I

continue to take the becotide as well as the Singulair? If not, do I

need to reduce the becotide slowly?

And finally although I have a referral to the local immunologist my

internet search does not list aspirin desensitisation as available at

his clinic. Does anyone know of an immunologist in the UK who will

carry out aspirin desensitisation?

[Guest guest]

>

> > I have been inspired by the letters on this site from others with

> > Samters and the info I read in the " library " and links to try a more

> > proactive approach to treatment. However I feel I still I need some

> > help and advice.

> > I was diagnosed in May 1997, initially with asthma and then Samters

> > (following an unfortunate headache which resulted in an emergency

> > trip to A and E). Up until this point I had been blissfully unaware

> > of my allergy to aspirin.

> > Since then my asthma has been very well controlled by becotide, with

> > very rare (once every 2-3 months) requirement for salbutamol; however

> > the polyps are a big problem.

> > Treatment and knowledge of Samters seem to be very different here in

> > the UK. Until now I have been seeing only the ENT surgeon and my GP.

> > I have been taking Becotide inhaler (Beclometasone) – twice daily

> > Salbutamol inhaler (– as required

> > Cetirizine – Daily

> > Beconase nasal spray (beclometasone) – Twice

> > daily

> > And, since joining this group and a recent trip to the states, daily

> > or twice daily nasal irrigation.

> > I have had 6 polypectomies which are always complicated by excessive

> > bleeding during surgery. I have no sense of smell and occasional very

> > sudden attacks of sneezing/running nose and eyes which can last hours

> > or days.

> > Today I saw the ENT who was amused by the pile of paperwork I went

> > armed with. As a consequence I have a referral to an immunologist

> > and a prescription for Singulair. He had never heard of aspirin

> > desensitisation and had only prescribed Singulair for rhinitis a

> > couple of times (never Zyflo). He had no interest in the Arachidonic

> > pathway map I

> > had taken with me.

> > This is where I need your help. I need advice on the Singulair; do I

> > continue to take the becotide as well as the Singulair? If not, do I

> > need to reduce the becotide slowly?

> > And finally although I have a referral to the local immunologist my

> > internet search does not list aspirin desensitisation as available at

> > his clinic. Does anyone know of an immunologist in the UK who will

> > carry out aspirin desensitisation?

> >

> >

>

Dear

Im also UK resident. I see an ENT in Dorchester who was happy to

prescribe a trio of drugs, Singulair, Flixonase Nasules and

Loratidine. I have found that the singulair and the nasules are very

effective with the occasional use of Salbutamol reliever plus some

irrigation when the nasal irritation becomes too much!

I must stress that you can get all this on the NHS and you must press

your GP to prescribe - there is no reason why they cant!

good luck

[Guest guest]

I did not read all the responses to this post because I am away but do not do

not do not discontinue the becotide. The Singulair and the Becotide have

nothing to do with each other. Do not let your doc take you off of it at

least for several months and maybe never. There are rare cases of Churg

Strauss syndrome, a very serious syndrome, associated with Singulair, and most

of them have been associated when people go off their steroids after starting

the Singulair.

Lori

[Guest guest]

Hi again,

thanks for the comments Pam and .

I think the ENT and my GP will prescibe just about anything I ask for

but seem to know little if anything about Samters. I had the courage

to ask for the Singulair but not enough to begin taking it without

asking the people that know. I just needed reassurance that I was

doing the right thing.

Finding this group has made such a difference to me. I now know that

there are other drugs and therapies out there and I don't necessarily

need to rely on steroids and surgery.

Irrigation certainly has made a big difference and I would never have

known about it without this group, which is silly because it is so

obvious and so easy but no-one here ever mentioned it.

Thanks again,