Re: Polyps/Aspirin Desens/Budesonide

[Guest guest]

An ENT who only does surgery:

a carpenter using a hammer to drive a screw.

> He was not going to offer much other than possibility of

> surgery. I asked for the budesonide so I can rinse with that.

>

Not worth spending any time or money on self-serving charlatans like this.

[Guest guest]

Excellent comment. I learned about fifteen years ago that I needed a

diagnosis/treatment ENT and secondly an ENT Cutter. - Different skills are

requited by each and the Cutter gets paid a lot more.

Re: Polyps/Aspirin Desens/Budesonide

An ENT who only does surgery:

a carpenter using a hammer to drive a screw.

> He was not going to offer much other than possibility of

> surgery. I asked for the budesonide so I can rinse with that.

>

Not worth spending any time or money on self-serving charlatans like this.

------------------------------------

[Guest guest]

Hello, that sounds very much like my experience too. Had polyps out about 2

years ago, then desens a few months back, but it feels like they're back again!

Starts to sound like a horror film. Know just how you feel......really don't

want to go through that again! Have had 10 ops over the 19 years and have had

enough now! What is RUSH immunotherapy? I haven't heard that before?

Good Luck with your treatment.

>

> Saw the ENT this week. He said I have more polyps on the left side growing.

Since I de-sens'd 8/12/11 I do have more 'open' passages than before so I did

not take his news so well. Hmmmm.

>

> He was not so interested in the Naso-Neb ?'s I had and pushed it off on my

Allergist. =/ He was not going to offer much other than possibility of surgery.

I asked for the budesonide so I can rinse with that.

>

> He agreed to one month daily rinses then switching to every other day for 2

weeks until I see him in early Dec.

>

> I then saw my Allergist yesterday for week 3 of RUSH Immunotherapy (going well

except for local reaction at site of injections, normal red/white hive that goes

away by next day)

>

> She suggested I up my aspirin regimen for one month. She wants me to take 650

mg 3 times a day. She warned to watch for 'the signs' and to stop the 3rd dose

if I get any of them. (extreme bruising/ulcer/ringing in the ears) It is her

hope that I will get the polyps down and possibly some SOS with the budesonide

rinses w/saline and increased aspirin. She said there is a chance I may end up

having surgery to start with a 'clean slate'.

>

> I am not sure how I feel about that. Surgery. ugh. =/

>

>

>

[Guest guest]

Yeah. Surgery. Ugh. I am going to hold off a while longer, it can't hurt to let aspirin do it's thing for 6 months or so. RUSH immunotherapy is basically allergy shots given in a very short amount of time vs taking up to one year to reach maintenance. It is sort of like the aspirin de-sensitizing. In a four week period, I will have had up to 4-6 months worth of shots. The only reason my body is able to withstand this right now is because I am on Xolair and now aspirin desens'd. I tried the typical allergy shots twice in my past and twice now, things have come up (move from area and polyp surgery) and all the time/money/expense of getting it done flushed down the toilet. Once you miss over a period of time, you go back to square one and start over. My hope is

that in time, all of the steps we are taking (my allergist and I) will come together and my polyps will shrink. I am following restrictive diet (low sals, gluten/wheat/corn/sugar free) at this time as well. If 6 months from now the polyps are still here, I honestly do not know what else I can do. Naso Neb? Hope things work out for you as well without another surgery. Hang in there!

[Guest guest]

,

Stick with the low salicylate diet but also look at what products & ingredients

(ie. mint flavoured toothpaste) which contains salicylates. Try to avoid them

as well. For women, fragrances and perfumes, cosmetics such as lipsticks,

lotions, and skin clansers may contain salicylates. Avoid aritficial food

coloring and flavoring, Benzoates (found in Sprite, 7-UP, etc), menthol, mint,

peppermint, spearmint, etc. I found that strong mint flavored toothpastes would

cause me to cough and wheeze. I switched brands and have no issues.

I have tried to avoid salicylates in foods, products, and ingredients, and have

now been off Singulair for over 2 years. Another thing to be careful of are

certain juices. Some of them can make you react almost as badly as a glass of

wine. I am just using Rhinocort Aqua nasal spray (shrinks polyps) before bed

and have had my SOS back for an incredible 2 weeks! I now barely ever use my

inhaler providing I avoid high salicylate foods and products containing sals.

Oh how I miss drinking a glass of red wine with my Saturday night steak! A

Coors Light seems to fill in for now ;^)

Here is a good link for you re: Salicylates in products and ingredients

http://www.webmd.com/allergies/guide/salicylate-allergy

...... but even better, I would read this whole webpage:

http://www.sixwise.com/newsletters/06/02/08/what-are-salicylates-could-salicylat\

es-be-zapping-your-energy-and-making-you-feel-ill.htm

Best of luck!

>

> Yeah. Surgery. Ugh.  I am going to hold off a while longer, it can't hurt to

let aspirin do it's thing for 6 months or so. RUSH immunotherapy is basically

allergy shots given in a very short amount of time vs taking up to one year to

reach maintenance.  

> It is sort of like the aspirin de-sensitizing. In a four week period, I will

have had up to 4-6 months worth of shots. The only reason my body is able to

withstand this right now is because I am on Xolair and now aspirin desens'd.  

> I tried the typical allergy shots twice in my past and twice now, things have

come up (move from area and polyp surgery) and all the time/money/expense of

getting it done flushed down the toilet.  Once you miss over a period of time,

you go back to square one and start over.  

> My hope is that in time, all of the steps we are taking (my allergist and I)

will come together and my polyps will shrink. I am following restrictive diet

(low sals, gluten/wheat/corn/sugar free) at this time as well. If 6 months from

now the polyps are still here, I honestly do not know what else I can do.  Naso

Neb? 

> Hope things work out for you as well without another surgery. Hang in there!

>

>