Re: Official Samter's Facebook Page

[Guest guest]

Advantages of Facebook I'd say is that it could be easier to follow but then comments on different topics could get lost with so many to cover.

Disadvantages though would be total lack of privacy which would concern me.

samters From: kenwest@...Date: Sun, 30 Jan 2011 21:16:24 -0500Subject: Re: Official Samter's Facebook Page

> From: Sergiu Labo <sergiu_labo@...>> > I thought of spreading the word about our condition and about our group and so> created the official facebook page about Samter's Triad.What is the purpose of the Facebook page vv the purpose of this group?I will not be bothered to check into 2 different locations for 1 condition.

[Guest guest]

Thanks Sergiu!

I agree , though I'm happy to support the facebook page, and feel it is worth having both sites/groups - I'd rather post on here about my issues as I'm wary of privacy issues, but am happy to support the facebook page.

Becky

From: Celtic Dove <celtic_dove@...>samters Sent: Mon, 31 January, 2011 6:23:01Subject: RE: Official Samter's Facebook Page

Advantages of Facebook I'd say is that it could be easier to follow but then comments on different topics could get lost with so many to cover.Disadvantages though would be total lack of privacy which would concern me.

samters From: kenwest@...Date: Sun, 30 Jan 2011 21:16:24 -0500Subject: Re: Official Samter's Facebook Page

> From: Sergiu Labo <sergiu_labo@...>> > I thought of spreading the word about our condition and about our group and so> created the official facebook page about Samter's Triad.What is the purpose of the Facebook page vv the purpose of this group?I will not be bothered to check into 2 different locations for 1 condition.

[Guest guest]

Agree completely ---It needs more attention without a doubtI want to start writing in tv morning news shows etc60'minutes etc let's get some people working on thisSent from my iPhoneOn Jan 31, 2011, at 2:44 AM, Bannister <beckyb256@...> wrote:

Thanks Sergiu!

I agree , though I'm happy to support the facebook page, and feel it is worth having both sites/groups - I'd rather post on here about my issues as I'm wary of privacy issues, but am happy to support the facebook page.

Becky

From: Celtic Dove <celtic_dove@...>samters Sent: Mon, 31 January, 2011 6:23:01Subject: RE: Official Samter's Facebook Page

Advantages of Facebook I'd say is that it could be easier to follow but then comments on different topics could get lost with so many to cover.Disadvantages though would be total lack of privacy which would concern me.

samters From: kenwest@...Date: Sun, 30 Jan 2011 21:16:24 -0500Subject: Re: Official Samter's Facebook Page

> From: Sergiu Labo <sergiu_labo@...>> > I thought of spreading the word about our condition and about our group and so> created the official facebook page about Samter's Triad.What is the purpose of the Facebook page vv the purpose of this group?I will not be bothered to check into 2 different locations for 1 condition.

[Guest guest]

The website has always been a place for facts mostly.  Maybe it wouldn't be a bad thing to have somewhere to post about the other side of Samters...like everyday effects that the disease has on us.  Years ago when I joined the Samters group it was ok to get a little emotional, but over the years it has become mostly a factual site...which is fine.  Facebook could offer a place to vent the day to day things of Samters.  There are days I could use a little encouragement from people who understand:)  I agree that it would be a great place to get the word out about Samters too.  The only way people find the Samters group on is if they google it....Facebook offers up a whole new audience.  Tami

 

 

True Ark CreationsTami's Berry Farmwww.truearkcreations.comEveryday holds a possibility of a miracle! 

On Mon, Jan 31, 2011 at 4:41 AM, <aio_cps@...> wrote:

 

Agree completely ---

It needs more attention without a doubt

I want to start writing in tv morning news shows etc

60'minutes etc let's get some people working on this

Sent from my iPhone

On Jan 31, 2011, at 2:44 AM, Bannister <beckyb256@...> wrote:

 

Thanks Sergiu!

I agree , though I'm happy to support the facebook page, and feel it is worth having both sites/groups - I'd rather post on here about my issues as I'm wary of privacy issues, but am happy to support the facebook page.

Becky

From: Celtic Dove <celtic_dove@...>samters

Sent: Mon, 31 January, 2011 6:23:01Subject: RE: Official Samter's Facebook Page 

Advantages of Facebook I'd say is that it could be easier to follow but then comments on different topics could get lost with so many to cover.Disadvantages though would be total lack of privacy which would concern me.

 

samters From: kenwest@...

Date: Sun, 30 Jan 2011 21:16:24 -0500Subject: Re: Official Samter's Facebook Page 

> From: Sergiu Labo <sergiu_labo@...>> > I thought of spreading the word about our condition and about our group and so

> created the official facebook page about Samter's Triad.What is the purpose of the Facebook page vv the purpose of this group?I will not be bothered to check into 2 different locations for 1 condition.

[Guest guest]

Did the facebook page actually get started? I can't seem to find it. I would

love to have a place that others could see what day to day life is like for

those of us who suffer with this disease. Here on this group we gets alot of

factual info from others and that is so awesome but on FB we would be able to

post quick day to day issues and just knowing that others know what we are going

through is some comfort. I really get so so tired of people telling me they

understand because they get hay fever or have allergies too. Samters is all

together different and only those really close to us know how it plays a huge

part on our day to day lives and how it can be so debilitating.

Rhonda

> >

> >

> >

> > Thanks Sergiu!

> > I agree , though I'm happy to support the facebook page, and feel it

> > is worth having both sites/groups - I'd rather post on here about my issues

> > as I'm wary of privacy issues, but am happy to support the facebook page.

> > Becky

> >

> > ------------------------------

> > *From:* Celtic Dove <celtic_dove@...>

> > *To:* samters

> > *Sent:* Mon, 31 January, 2011 6:23:01

> > *Subject:* RE: Official Samter's Facebook Page

> >

> >

> >

> > Advantages of Facebook I'd say is that it could be easier to follow but

> > then comments on different topics could get lost with so many to cover.

> > Disadvantages though would be total lack of privacy which would concern me.

> >

> >

> > ------------------------------

> > samters

> > From: kenwest@...

> > Date: Sun, 30 Jan 2011 21:16:24 -0500

> > Subject: Re: Official Samter's Facebook Page

> >

> >

> > > From: Sergiu Labo <sergiu_labo@...>

> > >

> > > I thought of spreading the word about our condition and about our group

> > and so

> > > created the official facebook page about Samter's Triad.

> >

> > What is the purpose of the Facebook page vv the purpose of this group?

> > I will not be bothered to check into 2 different locations for 1 condition.

> >

> >

> >

> >

> >

>

[Guest guest]

Here it is.http://www.facebook.com/pages/Samters-Triad-Aspirin-induced-asthma/160089420710353--- On Fri, 2/25/11, R <myigloo2@...> wrote:From: R <myigloo2@...>Subject: Re: Official Samter's Facebook Pagesamters Date: Friday, February 25, 2011, 12:06 AM

Did the facebook page actually get started? I can't seem to find it. I would love to have a place that others could see what day to day life is like for those of us who suffer with this disease. Here on this group we gets alot of factual info from others and that is so awesome but on FB we would be able to post quick day to day issues and just knowing that others know what we are going through is some comfort. I really get so so tired of people telling me they understand because they get hay fever or have allergies too. Samters is all together different and only those really close to us know how it plays a huge part on our day to day lives and how it can be so debilitating.

Rhonda

> >

> >

> >

> > Thanks Sergiu!

> > I agree , though I'm happy to support the facebook page, and feel it

> > is worth having both sites/groups - I'd rather post on here about my issues

> > as I'm wary of privacy issues, but am happy to support the facebook page.

> > Becky

> >

> > ------------------------------

> > *From:* Celtic Dove <celtic_dove@...>

> > *To:* samters

> > *Sent:* Mon, 31 January, 2011 6:23:01

> > *Subject:* RE: Official Samter's Facebook Page

> >

> >

> >

> > Advantages of Facebook I'd say is that it could be easier to follow but

> > then comments on different topics could get lost with so many to cover.

> > Disadvantages though would be total lack of privacy which would concern me.

> >

> >

> > ------------------------------

> > samters

> > From: kenwest@...

> > Date: Sun, 30 Jan 2011 21:16:24 -0500

> > Subject: Re: Official Samter's Facebook Page

> >

> >

> > > From: Sergiu Labo <sergiu_labo@...>

> > >

> > > I thought of spreading the word about our condition and about our group

> > and so

> > > created the official facebook page about Samter's Triad.

> >

> > What is the purpose of the Facebook page vv the purpose of this group?

> > I will not be bothered to check into 2 different locations for 1 condition.

> >

> >

> >

> >

> >

>

[Guest guest]

How do we subscribe?

Russ

From: samters [mailto:samters ] On Behalf Of Sergiu LaboSent: Friday, February 25, 2011 9:42 AMsamters Subject: Re: Re: Official Samter's Facebook Page

Here it is.http://www.facebook.com/pages/Samters-Triad-Aspirin-induced-asthma/160089420710353--- On Fri, 2/25/11, R <myigloo2@...> wrote:

From: R <myigloo2@...>Subject: Re: Official Samter's Facebook Pagesamters Date: Friday, February 25, 2011, 12:06 AM

Did the facebook page actually get started? I can't seem to find it. I would love to have a place that others could see what day to day life is like for those of us who suffer with this disease. Here on this group we gets alot of factual info from others and that is so awesome but on FB we would be able to post quick day to day issues and just knowing that others know what we are going through is some comfort. I really get so so tired of people telling me they understand because they get hay fever or have allergies too. Samters is all together different and only those really close to us know how it plays a huge part on our day to day lives and how it can be so debilitating. Rhonda> >> >> >> > Thanks Sergiu!> > I agree , though I'm happy to support the facebook page, and feel it> > is worth having both sites/groups - I'd rather post on here about my issues> > as I'm wary of privacy issues, but am happy to support the facebook page.> > Becky> >> > ------------------------------> > *From:* Celtic Dove <celtic_dove@...>> > *To:* samters > > *Sent:* Mon, 31 January, 2011 6:23:01> > *Subject:* RE: Official Samter's Facebook Page> >> >> >> > Advantages of Facebook I'd say is that it could be easier to follow but> > then comments on different topics could get lost with so many to cover.> > Disadvantages though would be total lack of privacy which would concern me.> > > >> > ------------------------------> > samters > > From: kenwest@...> > Date: Sun, 30 Jan 2011 21:16:24 -0500> > Subject: Re: Official Samter's Facebook Page> >> >> > > From: Sergiu Labo <sergiu_labo@...>> > >> > > I thought of spreading the word about our condition and about our group> > and so> > > created the official facebook page about Samter's Triad.> >> > What is the purpose of the Facebook page vv the purpose of this group?> > I will not be bothered to check into 2 different locations for 1 condition.> >> >> >> > > >>

[Guest guest]

"I like" button.

From: R <myigloo2@...>Subject: Re: Official Samter's Facebook Pagesamters Date: Friday, February 25, 2011, 12:06 AM

Did the facebook page actually get started? I can't seem to find it. I would love to have a place that others could see what day to day life is like for those of us who suffer with this disease. Here on this group we gets alot of factual info from others and that is so awesome but on FB we would be able to post quick day to day issues and just knowing that others know what we are going through is some comfort. I really get so so tired of people telling me they understand because they get hay fever or have allergies too. Samters is all together different and only those really close to us know how it plays a huge part on our day to day lives and how it can be so debilitating. Rhonda> >> >> >> > Thanks Sergiu!> > I agree , though I'm happy to support the facebook page, and feel it> > is worth having both sites/groups - I'd rather post on here about my issues> > as I'm wary of privacy issues, but am happy to support the facebook page.> > Becky> >> > ------------------------------> > *From:* Celtic Dove <celtic_dove@...>> > *To:* samters > > *Sent:* Mon, 31 January, 2011 6:23:01> > *Subject:* RE: Official Samter's Facebook Page> >> >> >> > Advantages of Facebook I'd say is that it could be easier to follow but> > then comments on different topics could get lost with so many to cover.> > Disadvantages though would be total lack of privacy which would concern me.> > > >> > ------------------------------> > samters > > From: kenwest@...> > Date: Sun, 30 Jan 2011 21:16:24 -0500> > Subject: Re: Official Samter's Facebook Page> >> >> > > From: Sergiu Labo <sergiu_labo@...>> > >> > > I thought of spreading the word about our condition and about our group> > and so> > > created the official facebook page about Samter's Triad.> >> > What is the purpose of the Facebook page vv the purpose of this group?> > I will not be bothered to check into 2 different locations for 1 condition.> >> >> >> > > >>

[Guest guest]

Thank you Sergiu for the Facebook page.

> > >

> > >

> > >

> > > Thanks

> Sergiu!

> > > I agree , though I'm happy to support the

> facebook page, and feel it

> > > is worth having both

> sites/groups - I'd rather post on here about my issues

> > > as

> I'm wary of privacy issues, but am happy to support the facebook

> page.

> > > Becky

> > >

> > >

> ------------------------------

> > > *From:* Celtic Dove

> <celtic_dove@>

> > > *To:* samters

> >

> > *Sent:* Mon, 31 January, 2011 6:23:01

> > > *Subject:* RE:

> Official Samter's Facebook Page

> > >

> >

> >

> > >

> > > Advantages of Facebook I'd say is that it

> could be easier to follow but

> > > then comments on different

> topics could get lost with so many to cover.

> > > Disadvantages

> though would be total lack of privacy which would concern me.

> >

> >

> > >

> > >

> ------------------------------

> > > samters

> >

> > From: kenwest@

> > > Date: Sun, 30 Jan 2011 21:16:24

> -0500

> > > Subject: Re: Official Samter's Facebook

> Page

> > >

> > >

> > > > From: Sergiu Labo

> <sergiu_labo@>

> > > >

> > > > I thought of

> spreading the word about our condition and about our group

> > >

> and so

> > > > created the official facebook page about

> Samter's Triad.

> > >

> > > What is the purpose of the

> Facebook page vv the purpose of this group?

> > > I will not be

> bothered to check into 2 different locations for 1 condition.

> >

> >

> > >

> > >

> > >

> >

> >

> >

>