Guest guest Posted October 15, 2002 Report Share Posted October 15, 2002 Yes, many of us started with a bout of mono. But which really came first? Maybe we were susceptible because of an inherent weakness or we were already sick. I believe it is an oversimplification to think leaky gut is the " cause " . It could be the cause of some people's problems, but some of us have fine guts with no leaks. There probably are multiple things that cause symptoms, and they vary from person to person. Could be they are different things. Or maybe they are just symptoms of something we all have in common. Personally antibiotics have helped me more than anything else I have done. B12 shots are second. Thanks, Doris ----- Original Message ----- From: " lillog8 " <lillog8@...> > i am new to this group and have only been a chronic fatigue sufferer > for a year. i am unclear as to what the major steps most of you take > to cure yourselves. in looking at back posts i see a lot of talk of > antibiotics, and from my experience with traditional chinese medicine > (TCM) from before and during the last year, i would consider > antibiotics to be an absolute no-no. additionally, i believe the most > plausible theory of chronic fatige is the leaky gut syndrome > accompanied with an overgrowth of candida in the intestines. i have > seen people on this site talking about vaginal yeast infections and > fungal infections of the feet. these are great signs of candida > overgrowth in the intestines. these are the same people that are > talking about taking antibiotics and hence killing friendly bacteria > and increasing the yeast growth. have any of you had success > attacking this disorder with this theory in mind. or no success? the > only problem i have with this theory is that my CFS started with a > bout of mono. is that common? > > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2002 Report Share Posted October 16, 2002 Hi lillog, I'm sorry to hear you have this dd. Personally, I find the TCM stance on our condition to be very plausible. However, I know there are many pwcs who think it is all hogwash. Our dd cannot be cured although some pwcs have long remissions and supposedly some never relapse again although I don't know of any actual cases myself. I think candita of the intestine is a big problem for pwcs because our immune systems are so whacky though I don't think it's a cause of the dd itself. Many pwcs have had viral onset with flu or mono like symptoms for a year or so before being dx with CFIDS. I'm one of them. Others say they got ill gradually and some attribute their illness to antibiotics and some to vaccines. I have found that I cannot tolerate any western medicine but I do respond well to homeopathy or herbs. So I do accupuncture once a week and get herbal formulas individualized for my sx. The candita diet has helped me many times with this dd. I've had CFIDS for 16 years. I've gone into remissions enough to be able to teach full time for 11 years, oh, and finish college first. However, this dd strikes everyone differently and someone else with it could have followed my diet and exercise program and not have fared well at all. Some people feel much better on antibiotics, my body simply won't tolerate them so they're not an option for me. Nothing I'ver tried has cured me but I feel that I'm able to control alot of my sx which can at least give me some relief at worst and has allowed me to be fully functional in life at best. Tracey lillog8 wrote: > i am new to this group and have only been a chronic fatigue sufferer > for a year. i am unclear as to what the major steps most of you take > to cure yourselves. in looking at back posts i see a lot of talk of > antibiotics, and from my experience with traditional chinese medicine > (TCM) from before and during the last year, i would consider > antibiotics to be an absolute no-no. additionally, i believe the most > plausible theory of chronic fatige is the leaky gut syndrome > accompanied with an overgrowth of candida in the intestines. i have > seen people on this site talking about vaginal yeast infections and > fungal infections of the feet. these are great signs of candida > overgrowth in the intestines. these are the same people that are > talking about taking antibiotics and hence killing friendly bacteria > and increasing the yeast growth. have any of you had success > attacking this disorder with this theory in mind. or no success? the > only problem i have with this theory is that my CFS started with a > bout of mono. is that common? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2002 Report Share Posted October 16, 2002 Welcome to the group. For the past two years, I have had repeated various gut tests and we have yet to find any Candida. I do however, do an anti-Candida diet as I am just so used to it now. I am the queen of bladder and urinary tract infections and so far have been able to manage them with a bunch of different things. Most of the credit goes to Homeopathy...I have taken only one antibiotic in the past 1 1/2 years which is a miracle. Tests show that I have no leaky gut and my CDSA's continue to look pretty decent. Recent changes in my probiotics have really worked and I have lots of good guys now. Yet, I am still sick with MCS/CFS. I was immune compromised due to an estrogen based drug given to my mother while in Utero and have lead an exhausted infection filled life. In spite of that, it took my chemical poisioning (another estrogen based drug!) in 1999 for my cup to overflow and here I am now with MCS and CFIDS. It never ceases to amaze me what seems to trigger us. My enviromental doc has played the biggest part in my action plan on how to get better and that has included a bunch of different things. The most emphasized past of my program has been to detox yet I have to be healthy enough to actually do it. I am currently concentrating on trying to build myself up a little for my upcoming detox program. I also started something new recently which is Polarity Therapy. It is really helping me and I wish I could afford to go more than I do. And of course this list of supplements, some very expensive, is very long. I wish you the best. Has the TCM helped you at all? Kathy 0000000000000000000000000000 Wow Kathy. Sounds like a hard road. I am so sorry for all you have suffered. On the detox issue, Have you heard of the Miracle ll soap for non stressful detox. I have not used it but have heard good things. I wonder if you or others on this list have tried it. Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2002 Report Share Posted October 16, 2002 Hi Kathy and All, Kathy, could you explain " Polarity Therapy " Thanks Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2002 Report Share Posted October 16, 2002 Re: leaky gut syndrome snip Some people feel much better on antibiotics, my body simply won't tolerate them so they're not an option for me. snip Tracey 000000000000000000000000 Me either Tracey. Just the tiniest bit of antibiotic makes me feel like I am going to die. And I am not exaggerting. I literally felt like I was going to die. Donna lillog8 wrote: > i am new to this group and have only been a chronic fatigue sufferer > for a year. i am unclear as to what the major steps most of you take > to cure yourselves. in looking at back posts i see a lot of talk of > antibiotics, and from my experience with traditional chinese medicine > (TCM) from before and during the last year, i would consider > antibiotics to be an absolute no-no. additionally, i believe the most > plausible theory of chronic fatige is the leaky gut syndrome > accompanied with an overgrowth of candida in the intestines. i have > seen people on this site talking about vaginal yeast infections and > fungal infections of the feet. these are great signs of candida > overgrowth in the intestines. these are the same people that are > talking about taking antibiotics and hence killing friendly bacteria > and increasing the yeast growth. have any of you had success > attacking this disorder with this theory in mind. or no success? the > only problem i have with this theory is that my CFS started with a > bout of mono. is that common? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2002 Report Share Posted October 16, 2002 Hi Donna, I know you're not kidding, but it's frustrating when the doctors don't get it. I haven't needed abx since 1989 though now that I found out how to cure things or stave them off naturally. (The things that can be cured, that is.) I did need some once when I was in Mexico in '94 because I got a stomach infection and didn't know where to go for natural remedies. I was dragging my left foot around within' 2 days because the abx were attacking me so badly, or allowing bad bacteria to attack me. In Mexico they don't believe you need to finish the courses anyway so the doc had no problem taking me off. Within' 2 more days I was better again except for the CFIDS of course.) TJ Donna wrote: > > Re: leaky gut syndrome > > > snip > Some people feel much better on antibiotics, my body simply won't > tolerate them so they're not an option for me. > > snip > Tracey > > 000000000000000000000000 > Me either Tracey. Just the tiniest bit of antibiotic makes me feel > like I am going to die. And I am not exaggerting. I literally felt > like I was going to die. > Donna > > > > > lillog8 wrote: > > > i am new to this group and have only been a chronic fatigue > sufferer > > for a year. i am unclear as to what the major steps most of you > take > > to cure yourselves. in looking at back posts i see a lot of talk > of > > antibiotics, and from my experience with traditional chinese > medicine > > (TCM) from before and during the last year, i would consider > > antibiotics to be an absolute no-no. additionally, i believe the > most > > plausible theory of chronic fatige is the leaky gut syndrome > > accompanied with an overgrowth of candida in the intestines. i > have > > seen people on this site talking about vaginal yeast infections > and > > fungal infections of the feet. these are great signs of candida > > overgrowth in the intestines. these are the same people that are > > talking about taking antibiotics and hence killing friendly > bacteria > > and increasing the yeast growth. have any of you had success > > attacking this disorder with this theory in mind. or no success? > the > > only problem i have with this theory is that my CFS started with a > > > bout of mono. is that common? > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2002 Report Share Posted October 17, 2002 Yikes. I guess the lesson is, don't go anywhere far from home without Olive Leaf Extract and some other natural anti biotics like acidophilus and garlic, maybe some oregano oil. Any other suggestions, anyone. Donna Re: leaky gut syndrome > > > snip > Some people feel much better on antibiotics, my body simply won't > tolerate them so they're not an option for me. > > snip > Tracey > > 000000000000000000000000 > Me either Tracey. Just the tiniest bit of antibiotic makes me feel > like I am going to die. And I am not exaggerting. I literally felt > like I was going to die. > Donna > > > > > lillog8 wrote: > > > i am new to this group and have only been a chronic fatigue > sufferer > > for a year. i am unclear as to what the major steps most of you > take > > to cure yourselves. in looking at back posts i see a lot of talk > of > > antibiotics, and from my experience with traditional chinese > medicine > > (TCM) from before and during the last year, i would consider > > antibiotics to be an absolute no-no. additionally, i believe the > most > > plausible theory of chronic fatige is the leaky gut syndrome > > accompanied with an overgrowth of candida in the intestines. i > have > > seen people on this site talking about vaginal yeast infections > and > > fungal infections of the feet. these are great signs of candida > > overgrowth in the intestines. these are the same people that are > > talking about taking antibiotics and hence killing friendly > bacteria > > and increasing the yeast growth. have any of you had success > > attacking this disorder with this theory in mind. or no success? > the > > only problem i have with this theory is that my CFS started with a > > > bout of mono. is that common? > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2002 Report Share Posted October 17, 2002 That's true. I should ask at my health food store before I travel for remedies that could help me with bugs I encounter. Those abx did do the trick though and I'm certain I caught something really vicious. In a case like that I may take abx because I think they were warranted. I didn't have to go out to see adoctor because we were staying with one, so it was easy for me too. But it's been really nice to have needed them besides then for so many years. Tracey Donna wrote: > Yikes. I guess the lesson is, don't go anywhere far from home > without Olive Leaf Extract and some other natural anti biotics like > acidophilus and garlic, maybe some oregano oil. Any other suggestions, > anyone. > > Donna > Re: leaky gut syndrome > > > > > > snip > > Some people feel much better on antibiotics, my body simply > won't > > tolerate them so they're not an option for me. > > > > snip > > Tracey > > > > 000000000000000000000000 > > Me either Tracey. Just the tiniest bit of antibiotic makes me > feel > > like I am going to die. And I am not exaggerting. I literally > felt > > like I was going to die. > > Donna > > > > > > > > > > lillog8 wrote: > > > > > i am new to this group and have only been a chronic fatigue > > sufferer > > > for a year. i am unclear as to what the major steps most of > you > > take > > > to cure yourselves. in looking at back posts i see a lot of > talk > > of > > > antibiotics, and from my experience with traditional chinese > > medicine > > > (TCM) from before and during the last year, i would consider > > > antibiotics to be an absolute no-no. additionally, i believe > the > > most > > > plausible theory of chronic fatige is the leaky gut syndrome > > > accompanied with an overgrowth of candida in the intestines. i > > > have > > > seen people on this site talking about vaginal yeast > infections > > and > > > fungal infections of the feet. these are great signs of > candida > > > overgrowth in the intestines. these are the same people that > are > > > talking about taking antibiotics and hence killing friendly > > bacteria > > > and increasing the yeast growth. have any of you had success > > > attacking this disorder with this theory in mind. or no > success? > > the > > > only problem i have with this theory is that my CFS started > with a > > > > > bout of mono. is that common? > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2002 Report Share Posted October 18, 2002 Hi Donna, I would also add to the list wormwood, cloves and black walnut (for parasites), as well as colloidal silver. (I also use all of the herbs that you mention--they are all personal favorites.) Kind regards, Trudy Message: 14 Date: Thu, 17 Oct 2002 11:39:08 -0700 From: " Donna " <ruthful@...> Subject: Re: leaky gut syndrome Yikes. I guess the lesson is, don't go anywhere far from home without Olive Leaf Extract and some other natural anti biotics like acidophilus and garlic, maybe some oregano oil. Any other suggestions, anyone. Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2002 Report Share Posted October 18, 2002 Thank you Trudy and Donna. I saved this to file Tracey Trudy Newman wrote: > Hi Donna, > > I would also add to the list wormwood, cloves and black walnut (for > parasites), as well as colloidal silver. (I also use all of the herbs > that you mention--they are all personal favorites.) > > Kind regards, > Trudy > > > Message: 14 > Date: Thu, 17 Oct 2002 11:39:08 -0700 > From: " Donna " <ruthful@...> > Subject: Re: leaky gut syndrome > > Yikes. I guess the lesson is, don't go anywhere far from home without > Olive Leaf Extract and some other natural anti biotics like > acidophilus and garlic, maybe some oregano oil. Any other suggestions, > anyone. > > Donna > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2011 Report Share Posted July 17, 2011 Has anyone considered " Leaky Gut Syndrome " as a source of their asthma, allergies, and Samters? It seems that any time I ingest something that I'm sensitive to or allergic to (carrageenan, MSG, vinegar, amines, etc), my allergic reactions (wheezing, swollen sinuses, congestion) don't occur for sometimes 10-16 hours later. (It took many months of keeping detailed logs and eating the same thing for days and adding one new food to figure out what the main triggers were). I think my Samters may have been caused about 8 years ago from taking alka-seltzer cold supplements for several days (first time in my life I took aspirin), and was also going thru a very stressful event in my life. Some doctors have suggested that I may have Leaky Gut, which is allowing the allergens to enter the bloodstream directly from a leak somewhere in my intestines, which is why the allergic reaction is delayed (and with rapid onset). I can be sitting at work in the morning, and have a sudden asthma attack from something I ate the night before. They call it " leaky gut syndrome " , meaning it's a theory, but nothing that can easily be diagnosed without lots and lots of tests and procedures. Leaky Gut can be caused by some of our favorite Samterite drugs: NSAIDs (aspirin), prednisone, antibiotics, and caffeine. I did quite a bit of research on ways to heal leaky gut, and have been on a regiment for almost 4 weeks now, but have not really noticed any significant improvement. That regiment includes L-Glutamine, very strong probiotics, Aloe Vera juice, licorice based supplements, Vitamin A, magnesium, calcium, and oregano. I've read many articles, and it seems each one discusses various regiments with some similarities but no two really alike or based on real medical research. Has anyone out there considered Leaky Gut as contributing to their Samters condition, or done any research on it? If so, have you had any successes with avoiding certain foods or trying any treatments? Please do some research on " Leaky Gut Syndrome " and see if anything may apply to your condition. I'm going to stay on this regiment (have plenty of health food stores nearby) for at least another 3-4 months, as I'm sure any gut healing process will take time, and since I'm still taking aspirin each day, it's not helping things any. By the way, I take Adviar once a day (most days), Zyrtec daily, and 325-500 mg of aspirin a day (4-6 baby aspirin, 2-3 in the morning, and 2-3 in the afternoon with meals). Singular doesn't work for me, nor does Claritn. Took Singular before and after my one and only sinus surgery about 4 years ago, and the polyps were back within 3 months. Was even taking 2 a day, which didn't help. When I feel an attack coming on, I take a Zyflo CR (miracle pill for me), which starts to work in 30-60 minutes, and I may take Benadryl if it's closer to bed time. Still have nasal polyps that swell up with any allergic reaction, and the only relief is from a short 4-5 day burst of prednisone, which I try to limit to a few times a year. Haven't had a SOS in years, but after prednisone bursts, or after an annual steroid shot before taking an annual overseas trip, my sinus swelling goes down considerably, and I can breathe great thru my nose, and food tastes fantastic for about 2-3 weeks. My sinuses and lungs seem to be overly sensitive after all these years. Any rapid changes in temperatures (e.g. going from a cold air conditioned building to a hot outside) and I start wheezing a bit, and my sinuses swell up with congestion. I know I may have to get another sinus surgery at some point, but I want to wait till I know I can keep the polyps from coming back. I try to eat well and walk for 30 minutes at least 4 times a week (sometimes take a puff from the rescue inhaler before walking). I haven't experienced any depression, but I don't sleep very deeply due to the constant congestion, which gets worse when I lay down. I haven't experienced any sort of depression or suicidal thoughts, and seem to feel the best when I'm at work and moving around or just keeping busy. I try to keep a very positive attitude, and with God's help, I'm not going to let this annoying condition control my life. Thanks to everyone for your posts. They are truly helpful, and hopefully we can all work together to find a cause and cure for this. Jack. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2011 Report Share Posted July 17, 2011 Hi Jack - I definitely think I have Leaky Gut (that name just kills me!) After I have ingested one of my trigger foods/drinks, I usually don't get sick until the next morning. I don't get any asthma, (been under control for a while) I just get a toxic reaction (nausea, headache, lethargy). Try to keep my diet healthy and take probiotics and loads of supplements. Noticed that L-Glutamine does wonders for my stuffy drippy nose. I am also doing an aspirin desens in two weeks. Good luck! > > Has anyone considered " Leaky Gut Syndrome " as a source of their asthma, allergies, and Samters? > > It seems that any time I ingest something that I'm sensitive to or allergic to (carrageenan, MSG, vinegar, amines, etc), my allergic reactions (wheezing, swollen sinuses, congestion) don't occur for sometimes 10-16 hours later. (It took many months of keeping detailed logs and eating the same thing for days and adding one new food to figure out what the main triggers were). > > I think my Samters may have been caused about 8 years ago from taking alka-seltzer cold supplements for several days (first time in my life I took aspirin), and was also going thru a very stressful event in my life. > > Some doctors have suggested that I may have Leaky Gut, which is allowing the allergens to enter the bloodstream directly from a leak somewhere in my intestines, which is why the allergic reaction is delayed (and with rapid onset). I can be sitting at work in the morning, and have a sudden asthma attack from something I ate the night before. They call it " leaky gut syndrome " , meaning it's a theory, but nothing that can easily be diagnosed without lots and lots of tests and procedures. > > Leaky Gut can be caused by some of our favorite Samterite drugs: NSAIDs (aspirin), prednisone, antibiotics, and caffeine. > > I did quite a bit of research on ways to heal leaky gut, and have been on a regiment for almost 4 weeks now, but have not really noticed any significant improvement. That regiment includes L-Glutamine, very strong probiotics, Aloe Vera juice, licorice based supplements, Vitamin A, magnesium, calcium, and oregano. > > I've read many articles, and it seems each one discusses various regiments with some similarities but no two really alike or based on real medical research. > > Has anyone out there considered Leaky Gut as contributing to their Samters condition, or done any research on it? If so, have you had any successes with avoiding certain foods or trying any treatments? > > Please do some research on " Leaky Gut Syndrome " and see if anything may apply to your condition. > > I'm going to stay on this regiment (have plenty of health food stores nearby) for at least another 3-4 months, as I'm sure any gut healing process will take time, and since I'm still taking aspirin each day, it's not helping things any. > > By the way, I take Adviar once a day (most days), Zyrtec daily, and 325-500 mg of aspirin a day (4-6 baby aspirin, 2-3 in the morning, and 2-3 in the afternoon with meals). Singular doesn't work for me, nor does Claritn. Took Singular before and after my one and only sinus surgery about 4 years ago, and the polyps were back within 3 months. Was even taking 2 a day, which didn't help. When I feel an attack coming on, I take a Zyflo CR (miracle pill for me), which starts to work in 30-60 minutes, and I may take Benadryl if it's closer to bed time. Still have nasal polyps that swell up with any allergic reaction, and the only relief is from a short 4-5 day burst of prednisone, which I try to limit to a few times a year. Haven't had a SOS in years, but after prednisone bursts, or after an annual steroid shot before taking an annual overseas trip, my sinus swelling goes down considerably, and I can breathe great thru my nose, and food tastes fantastic for about 2-3 weeks. My sinuses and lungs seem to be overly sensitive after all these years. Any rapid changes in temperatures (e.g. going from a cold air conditioned building to a hot outside) and I start wheezing a bit, and my sinuses swell up with congestion. I know I may have to get another sinus surgery at some point, but I want to wait till I know I can keep the polyps from coming back. > > I try to eat well and walk for 30 minutes at least 4 times a week (sometimes take a puff from the rescue inhaler before walking). I haven't experienced any depression, but I don't sleep very deeply due to the constant congestion, which gets worse when I lay down. I haven't experienced any sort of depression or suicidal thoughts, and seem to feel the best when I'm at work and moving around or just keeping busy. I try to keep a very positive attitude, and with God's help, I'm not going to let this annoying condition control my life. > > Thanks to everyone for your posts. They are truly helpful, and hopefully we can all work together to find a cause and cure for this. > > Jack. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2011 Report Share Posted July 18, 2011 I think we have to be hypervigilant re: our diet and food. Samter's started for me during a very stressful time along with a very poor diet. I have a book on " leaky gut " but have gone even further. Try to do organic and alot of juicing. NO sugar and I read all labels. Thanks for your informative post ... > > Has anyone considered " Leaky Gut Syndrome " as a source of their asthma, allergies, and Samters? > > It seems that any time I ingest something that I'm sensitive to or allergic to (carrageenan, MSG, vinegar, amines, etc), my allergic reactions (wheezing, swollen sinuses, congestion) don't occur for sometimes 10-16 hours later. (It took many months of keeping detailed logs and eating the same thing for days and adding one new food to figure out what the main triggers were). > > I think my Samters may have been caused about 8 years ago from taking alka-seltzer cold supplements for several days (first time in my life I took aspirin), and was also going thru a very stressful event in my life. > > Some doctors have suggested that I may have Leaky Gut, which is allowing the allergens to enter the bloodstream directly from a leak somewhere in my intestines, which is why the allergic reaction is delayed (and with rapid onset). I can be sitting at work in the morning, and have a sudden asthma attack from something I ate the night before. They call it " leaky gut syndrome " , meaning it's a theory, but nothing that can easily be diagnosed without lots and lots of tests and procedures. > > Leaky Gut can be caused by some of our favorite Samterite drugs: NSAIDs (aspirin), prednisone, antibiotics, and caffeine. > > I did quite a bit of research on ways to heal leaky gut, and have been on a regiment for almost 4 weeks now, but have not really noticed any significant improvement. That regiment includes L-Glutamine, very strong probiotics, Aloe Vera juice, licorice based supplements, Vitamin A, magnesium, calcium, and oregano. > > I've read many articles, and it seems each one discusses various regiments with some similarities but no two really alike or based on real medical research. > > Has anyone out there considered Leaky Gut as contributing to their Samters condition, or done any research on it? If so, have you had any successes with avoiding certain foods or trying any treatments? > > Please do some research on " Leaky Gut Syndrome " and see if anything may apply to your condition. > > I'm going to stay on this regiment (have plenty of health food stores nearby) for at least another 3-4 months, as I'm sure any gut healing process will take time, and since I'm still taking aspirin each day, it's not helping things any. > > By the way, I take Adviar once a day (most days), Zyrtec daily, and 325-500 mg of aspirin a day (4-6 baby aspirin, 2-3 in the morning, and 2-3 in the afternoon with meals). Singular doesn't work for me, nor does Claritn. Took Singular before and after my one and only sinus surgery about 4 years ago, and the polyps were back within 3 months. Was even taking 2 a day, which didn't help. When I feel an attack coming on, I take a Zyflo CR (miracle pill for me), which starts to work in 30-60 minutes, and I may take Benadryl if it's closer to bed time. Still have nasal polyps that swell up with any allergic reaction, and the only relief is from a short 4-5 day burst of prednisone, which I try to limit to a few times a year. Haven't had a SOS in years, but after prednisone bursts, or after an annual steroid shot before taking an annual overseas trip, my sinus swelling goes down considerably, and I can breathe great thru my nose, and food tastes fantastic for about 2-3 weeks. My sinuses and lungs seem to be overly sensitive after all these years. Any rapid changes in temperatures (e.g. going from a cold air conditioned building to a hot outside) and I start wheezing a bit, and my sinuses swell up with congestion. I know I may have to get another sinus surgery at some point, but I want to wait till I know I can keep the polyps from coming back. > > I try to eat well and walk for 30 minutes at least 4 times a week (sometimes take a puff from the rescue inhaler before walking). I haven't experienced any depression, but I don't sleep very deeply due to the constant congestion, which gets worse when I lay down. I haven't experienced any sort of depression or suicidal thoughts, and seem to feel the best when I'm at work and moving around or just keeping busy. I try to keep a very positive attitude, and with God's help, I'm not going to let this annoying condition control my life. > > Thanks to everyone for your posts. They are truly helpful, and hopefully we can all work together to find a cause and cure for this. > > Jack. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2011 Report Share Posted July 18, 2011 I have not posted in a long time because I am feeling good. I absolutely think that it is Leaky Gut and you need to add a high quality probiotic to your healthy food regimen. This will replace the good lining of your bowels that antibiotics have eliminated. I use Kefir. I think you are on the right track. From: laurahlennon <lbl626@...>samters Sent: Monday, July 18, 2011 6:03 AMSubject: Re: Leaky Gut Syndrome I think we have to be hypervigilant re: our diet and food. Samter's started for me during a very stressful time along with a very poor diet. I have a book on "leaky gut" but have gone even further. Try to do organic and alot of juicing. NO sugar and I read all labels. Thanks for your informative post ... > > Has anyone considered "Leaky Gut Syndrome" as a source of their asthma, allergies, and Samters? > > It seems that any time I ingest something that I'm sensitive to or allergic to (carrageenan, MSG, vinegar, amines, etc), my allergic reactions (wheezing, swollen sinuses, congestion) don't occur for sometimes 10-16 hours later. (It took many months of keeping detailed logs and eating the same thing for days and adding one new food to figure out what the main triggers were). > > I think my Samters may have been caused about 8 years ago from taking alka-seltzer cold supplements for several days (first time in my life I took aspirin), and was also going thru a very stressful event in my life. > > Some doctors have suggested that I may have Leaky Gut, which is allowing the allergens to enter the bloodstream directly from a leak somewhere in my intestines, which is why the allergic reaction is delayed (and with rapid onset). I can be sitting at work in the morning, and have a sudden asthma attack from something I ate the night before. They call it "leaky gut syndrome", meaning it's a theory, but nothing that can easily be diagnosed without lots and lots of tests and procedures. > > Leaky Gut can be caused by some of our favorite Samterite drugs: NSAIDs (aspirin), prednisone, antibiotics, and caffeine. > > I did quite a bit of research on ways to heal leaky gut, and have been on a regiment for almost 4 weeks now, but have not really noticed any significant improvement. That regiment includes L-Glutamine, very strong probiotics, Aloe Vera juice, licorice based supplements, Vitamin A, magnesium, calcium, and oregano. > > I've read many articles, and it seems each one discusses various regiments with some similarities but no two really alike or based on real medical research. > > Has anyone out there considered Leaky Gut as contributing to their Samters condition, or done any research on it? If so, have you had any successes with avoiding certain foods or trying any treatments? > > Please do some research on "Leaky Gut Syndrome" and see if anything may apply to your condition. > > I'm going to stay on this regiment (have plenty of health food stores nearby) for at least another 3-4 months, as I'm sure any gut healing process will take time, and since I'm still taking aspirin each day, it's not helping things any. > > By the way, I take Adviar once a day (most days), Zyrtec daily, and 325-500 mg of aspirin a day (4-6 baby aspirin, 2-3 in the morning, and 2-3 in the afternoon with meals). Singular doesn't work for me, nor does Claritn. Took Singular before and after my one and only sinus surgery about 4 years ago, and the polyps were back within 3 months. Was even taking 2 a day, which didn't help. When I feel an attack coming on, I take a Zyflo CR (miracle pill for me), which starts to work in 30-60 minutes, and I may take Benadryl if it's closer to bed time. Still have nasal polyps that swell up with any allergic reaction, and the only relief is from a short 4-5 day burst of prednisone, which I try to limit to a few times a year. Haven't had a SOS in years, but after prednisone bursts, or after an annual steroid shot before taking an annual overseas trip, my sinus swelling goes down considerably, and I can breathe great thru my nose, and food tastes fantastic for about 2-3 weeks. My sinuses and lungs seem to be overly sensitive after all these years. Any rapid changes in temperatures (e.g. going from a cold air conditioned building to a hot outside) and I start wheezing a bit, and my sinuses swell up with congestion. I know I may have to get another sinus surgery at some point, but I want to wait till I know I can keep the polyps from coming back. > > I try to eat well and walk for 30 minutes at least 4 times a week (sometimes take a puff from the rescue inhaler before walking). I haven't experienced any depression, but I don't sleep very deeply due to the constant congestion, which gets worse when I lay down. I haven't experienced any sort of depression or suicidal thoughts, and seem to feel the best when I'm at work and moving around or just keeping busy. I try to keep a very positive attitude, and with God's help, I'm not going to let this annoying condition control my life. > > Thanks to everyone for your posts. They are truly helpful, and hopefully we can all work together to find a cause and cure for this. > > Jack. > Quote Link to comment Share on other sites More sharing options...
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