Finding what works

[Guest guest]

I believe that each and every Samter's patient is different and it is really a

matter of trial and error as to what works for each individual. I have had the

experience that doctors want to treat all patients the same and I have had to

take things into my own hands along with what the doctors have told me to do and

find all the right things that work for me.

I have been off aspirin and prednisone since February and am doing great. I am

still on Zyflo CR, Nasonex, Singulair, and Dulara.

I have added sitting in a far infrared sauna daily to clean out toxins in my

body, I do light yoga, I visit a chiropractor to help blood flow throughout my

body and I take a variety of vitamins and minerals. I also sit in a bath of hot

water and epsom salts a couple of times of week to sweat out toxins. These seem

to work for me but not one of my physicians recommended any of these. It was up

to me to try these things. I figured I needed to work in conjunction with my

doctors if I wanted to get any real solutions and relief.

Not being a very patient person, I had to force myself to take time with each of

these things to see if they really did work. Results did not happen in the first

few days. How long will all of this continue to work for me????that's the

million dollar questions but for now it all seems good.

I encourage everyone with the pain in the butt disease to try as many things as

possible to find what works for you. It has taken me years of reading,

researching, getting PO'd at doctors and finding new ones etc.....

On another note: As many of us know Zyflo CR is very, very expensive. I happen

to be one without insurance so it was imperative that I find a way to get

assistance with this med. There is a program, Conerstone Cares, that has an

application you can fill out and get assistance with this med.

You can also do the same for Singulair and Nasonex, I just can't recall the name

of that program at the moment.

I wish the best of luck to everyone with this maddening and frustrating disease.