Re: Ear problems Samters Quad?

[Guest guest]

The same thing happened to me. I think the tubes made it worse and I was on the ear drops every month it did turn into a ritual. It got really bad. I was able to clear it using extra virgin olive oil, distilled vinegar solution in my ear. Now, I rarely have any issues with my ears. Good Luck Sent from my iPhoneOn Sep 29, 2011, at 6:32 PM, "damianodavid" <damianodavid@...> wrote:

How common is it for people to experience ear problems with samters? Aspirin Desentization, zyflo CR, and saline/steroid with nasal nebulizer have brought my asthma and polyps under control but now I am having problems with my ears. After taking zyflo I was able to get off my monthly taper of prednisone but my ears were getting full of fluid and it was getting hard to hear. Antibiotics were ineffective and I was right back to monthly steroids. I have had tubes placed in my ear and have been fine.However now I am getting fluid draining from my ears. My ENT suctioned my ears said they were full of thick gelatinous fluid and he put me on steroid/antibiotic ear drops. I am afraid this may be my new monthly ritual. Has anyone lost there hearning with samters? Does anyone have any suggestions as to possible treatments? I was thinking of asking my ENT about antiallergy eye drops to put in my ear but, I have not heard of any research or indications to do this. Other places on the web I have read that some antihistimines are ototoxic (refering to oral doses).

[Guest guest]

Diagnosed with Samter's about 30 years ago, ear problems started about 10 years ago. I travel a lot so I had tubes put in and that worked fine for a while, then occasionally would get an ear infection even with the tubes. Once with fluid draining after I got off a 5-hour flight. Had to have oral antibiotics AND Floxacin ear drops. Haven't had one in a few years though, and after my desens 2 months ago - knock on wood - haven't had any problems and everything feels better, including ears.

I am so thrilled to get my SOS back tho (post desense) . . . . it's awesome!!

samters From: samsmom6602@...Date: Thu, 29 Sep 2011 18:41:54 -0400Subject: Re: Ear problems Samters Quad?

The same thing happened to me. I think the tubes made it worse and I was on the ear drops every month it did turn into a ritual. It got really bad. I was able to clear it using extra virgin olive oil, distilled vinegar solution in my ear. Now, I rarely have any issues with my ears. Good Luck Sent from my iPhone

On Sep 29, 2011, at 6:32 PM, "damianodavid" <damianodavid@...> wrote:

How common is it for people to experience ear problems with samters? Aspirin Desentization, zyflo CR, and saline/steroid with nasal nebulizer have brought my asthma and polyps under control but now I am having problems with my ears. After taking zyflo I was able to get off my monthly taper of prednisone but my ears were getting full of fluid and it was getting hard to hear. Antibiotics were ineffective and I was right back to monthly steroids. I have had tubes placed in my ear and have been fine.However now I am getting fluid draining from my ears. My ENT suctioned my ears said they were full of thick gelatinous fluid and he put me on steroid/antibiotic ear drops. I am afraid this may be my new monthly ritual. Has anyone lost there hearning with samters? Does anyone have any suggestions as to possible treatments? I was thinking of asking my ENT about antiallergy eye drops to put in my ear but, I have not heard of any research or indications to do this. Other places on the web I have read that some antihistimines are ototoxic (refering to oral doses).

[Guest guest]

,How long did it take after desens to get your SOS?

[Guest guest]

It's been two months since my desens. SOS is not back full-on, but better than before when I had no SOS at all.

samters From: michellemdo@...Date: Thu, 29 Sep 2011 20:24:01 -0700Subject: RE: Ear problems Samters Quad?

,How long did it take after desens to get your SOS?

[Guest guest]

I would say very common . Even after desens I still have ear issues. I have Hopi ear candles which help my ears and sinuses, but having them done is expensive so, as like now, when they bung up I start a course of steroids. My ears have been bugging me for the past 2 weeks and get really itchy and painful and ringing...they bung up from my sinuses on the inside, and the only way i find helps is getting my sinuses to open up and release the gunk. As our ears are connected to our sinuses, it's only natural they will get blocked and sore if our sinuses are bad. This then also encourages wax to build up in the outer ear canal too.BeckyFrom: damianodavid <damianodavid@...>samters Sent: Thursday, 29 September 2011, 23:32Subject: Ear problems Samters Quad?

How common is it for people to experience ear problems with samters? Aspirin Desentization, zyflo CR, and saline/steroid with nasal nebulizer have brought my asthma and polyps under control but now I am having problems with my ears. After taking zyflo I was able to get off my monthly taper of prednisone but my ears were getting full of fluid and it was getting hard to hear. Antibiotics were ineffective and I was right back to monthly steroids. I have had tubes placed in my ear and have been fine.However now I am getting fluid draining from my ears. My ENT suctioned my ears said they were full of thick gelatinous fluid and he put me on steroid/antibiotic ear drops. I am afraid this may be my new monthly ritual. Has anyone lost there hearning with samters? Does anyone have any suggestions as to possible treatments? I was thinking of asking my ENT about antiallergy eye drops to put in my ear but, I have not heard of any research or indications to

do this. Other places on the web I have read that some antihistimines are ototoxic (refering to oral doses).

[Guest guest]

Yes recent hearing loss....had ears " candles " yesterday and feel some relief.

>

>

>

>

>

>

> How common is it for people to experience ear problems with samters? Aspirin

Desentization, zyflo CR, and saline/steroid with nasal nebulizer have brought my

asthma and polyps under control but now I am having problems with my ears. After

taking zyflo I was able to get off my monthly taper of prednisone but my ears

were getting full of fluid and it was getting hard to hear. Antibiotics were

ineffective and I was right back to monthly steroids. I have had tubes placed in

my ear and have been fine.However now I am getting fluid draining from my ears.

My ENT suctioned my ears said they were full of thick gelatinous fluid and he

put me on steroid/antibiotic ear drops. I am afraid this may be my new monthly

ritual. Has anyone lost there hearning with samters? Does anyone have any

suggestions as to possible treatments? I was thinking of asking my ENT about

antiallergy eye drops to put in my ear but, I have not heard of any research or

indications to do this. Other places on the web I have read that some

antihistimines are ototoxic (refering to oral doses).

>

[Guest guest]

I found I had to be persistent with my doctor regarding my ear problems - he'd

look and say my ear was okay when I knew I had an infection. Different doctors

would say I simply had a lot of earwax but when they flushed that they'd see

what I was talking about and put me on antibiotics. My hearing came back when I

had a T-tube inserted into the ear - I was deaf in that ear by then due to the

gunk piled up behind the drum. Ringing in my ears has only come back in the last

couple of weeks (a year after the tube was put in), but I think that is because

I have had three colds in two months and my sinuses are still infected from the

last.

Doctors who do not understand samters generally have no idea - they'll treat me

for my asthma, or my sinus infection, or my ear problems but they don't realise

all three go together. Luckily I see a sympathetic and experienced immunologist

every six months who is keeping track of the polyps for me (the ENT specialist

only ever wants to talk about operations!)

cheers

Beverley

[Guest guest]

A while back I did post a study on ear problem and samters in the file

section. Her are a few study abstracts that I think might be related to otitis

media and samters. Apparently their is a condition called eosinophilic otitis

mediaia that is defined by a large number of eosinophils in the middle ear. II

not a doctor but it seems maby that samter ear infection are not just simple

" You've got an infection in your ear "

Eosinophilic otitis media: a new middle ear disease entity.

Iino Y.

Source

Department of Otolaryngology, Jichi Medical University Saitama Medical Center,

1-847, Amanuma-cho, Omiya-ku, Saitama 330-8503, Japan. yiino@...

Abstract

Eosinophilic otitis media (EOM) is intractable otitis media characterized by the

presence of a highly viscous yellow effusion containing eosinophils. It occurs

mainly in patients with bronchial asthma and is resistant to conventional

treatments for otitis media. Here we discuss the clinical features,

pathogenesis, and management of EOM. EOM predominantly affects women and

presents most often in patients in their 50s. The clinical features of the

middle ear in EOM are roughly divided into the otitis media with effusion type

and chronic otitis media type. The latter is further divided into two subtypes:

simple perforation and granulation tissue formation. EOM is often complicated by

rhinosinusitis (eosinophilic sinusitis). High-tone loss is more frequently found

and more severe in EOM patients than in chronic otitis media control patients,

and EOM patients sometimes become deaf suddenly. Systemic or topical steroid

administration is the most effective treatment for patients with EOM. The

instillation of triamcinolone acetonide, a suspension of steroids, into the

middle ear is very effective for controlling eosinophilic inflammation. It is

very important to explain to patients with EOM that the disease may last for a

long period and that progressive and sudden hearing loss may occur.

Clinical characteristics of so called eosinophilic otitis media.

Nagamine H, Iino Y, Kojima C, Miyazawa T, Iida T.

Source

Department of Otolaryngology, Teikyo University School of Medicine, 2-11-1,

Kaga, Itabashi-ku, Tokyo 173-8605, Japan.

Although " eosinophilic otitis media " is not as uncommon a condition as was

previously believed, its cause and pathogenesis are not yet fully understood.

The purpose of this study was to describe the clinical characteristics in

patients with " eosinophilic otitis media " to clarify its pathogenesis.

METHODS:

Seven adult patients with persistent and intractable otitis media with viscous

middle ear effusion containing many eosinophils, who were also under treatment

for bronchial asthma, were studied. The following examinations were conducted:

nasopharyngeal endoscopy, pure-tone audiometry, eustachian tube function test,

temporal bone CT scan, blood analysis, bacterial and fungal culture of middle

ear effusion, histological study of the middle ear and nasal specimens, and

measurement of eosinophilic cationic protein (ECP) in middle ear effusion.

RESULTS:

Some patients had persistent perforation with papillomatous granulation tissue

arising from the mesotympanic mucosa, and all the patients had nasal polyposis.

The pure-tone audiometry showed the mixed-type of hearing loss in all the

patients, and the hearing level deteriorated progressively during the course in

some patients. The eustachian tube function was not always poor but was patulous

in some cases. The most severely diseased areas were in the eustachian tube and

mesotympanum by temporal bone CT images. All the seven patients had the high

levels of total serum IgE, but the RAST scores were negative in three patients

and low grade in three patients. The accumulation of eosinophils was observed in

middle ear effusion, middle ear mucosa and nasal polyps, and the eosinophils

were highly activated with degranulation. High level of ECP was also recovered

from middle ear effusion.

CONCLUSIONS:

Active eosinophilic inflammation occurs in the entire respiratory tract,

including the middle ear in these patients. From our present investigation, we

propose the criteria and clinical characteristics of " eosinophilic otitis

media " .

Eosinophil chemoattractants in the middle ear of patients with eosinophilic

otitis media.

Iino Y, Kakizaki K, Katano H, Saigusa H, Kanegasaki S.

Source

Department of Otolaryngology, Teikyo University School of Medicine, Tokyo,

Japan. yiorl@...

Abstract

BACKGROUND:

Patients with intractable otitis media associated with bronchial asthma have an

extensive accumulation of eosinophils in the effusion and mucosa of the middle

ear; this condition is called eosinophilic otitis media (EOM). It remained to be

determined how eosinophils accumulate in the middle ear.

OBJECTIVES:

To clarify the pathogenesis of middle ear diseases, we measured the

concentration of eosinophil chemoattractants in middle ear effusion (MEE), and

carried out immunohistochemical studies of middle ear mucosa specimens to

demonstrate the expression of eosinophil chemoattractants.

METHODS:

Middle ear effusion samples were obtained from 15 EOM patients with bronchial

asthma and from six controls for the measurement of eosinophil cationic protein

(ECP), IL-5, eotaxin and regulated on activation, normal T expressed and

secreted concentrations. Middle ear mucosa samples were also taken from 14 EOM

patients and 16 controls for immunohistochemical study. In 10 EOM patients, the

numbers of immunoreactive cells as well as apoptotic cells were determined

before and after the topical application of triamcinolone acetonide into the

middle ear.

RESULTS:

In EOM, significantly higher ECP and IL-5 concentrations were detected in MEE

than in serum, and ECP, IL-5 and eotaxin concentrations in MEE were higher in

the EOM patients than in the controls. ECP concentration positively correlated

with that of IL-5. Immunohistochemically, the numbers of cells positive for EG2

and ecalectin were significantly higher in the EOM patients than in the

controls. After the topical application of triamcinolone acetonide, the numbers

of infiltrating cells and immunoreactive cells distinctly decreased, whereas the

number of apoptotic cells significantly increased.

CONCLUSION:

In EOM, locally produced IL-5 may play a crucial role in the accumulation of

eosinophils in the middle ear. Chemokines such as ecalectin and eotaxin are also

produced in the middle ear, and help activate and enhance the survival of

eosinophils to induce the intractable condition in the middle ear. The topical

application of triamcinolone acetonide induces the apoptosis of not only

eosinophils but also eosinophil chemoattractant-producing cells, thereby

improving the middle ear condition.

>

> I found I had to be persistent with my doctor regarding my ear problems - he'd

look and say my ear was okay when I knew I had an infection. Different doctors

would say I simply had a lot of earwax but when they flushed that they'd see

what I was talking about and put me on antibiotics. My hearing came back when I

had a T-tube inserted into the ear - I was deaf in that ear by then due to the

gunk piled up behind the drum. Ringing in my ears has only come back in the last

couple of weeks (a year after the tube was put in), but I think that is because

I have had three colds in two months and my sinuses are still infected from the

last.

>

> Doctors who do not understand samters generally have no idea - they'll treat

me for my asthma, or my sinus infection, or my ear problems but they don't

realise all three go together. Luckily I see a sympathetic and experienced

immunologist every six months who is keeping track of the polyps for me (the ENT

specialist only ever wants to talk about operations!)

>

> cheers

> Beverley

>

[Guest guest]

Thanks for that! Explains it very well in my case and I am printing it out to

share with my husband. Having the correct terminology should help next time I

visit the doctor... :-)

Beverley

>

> A while back I did post a study on ear problem and samters in the file

section. Her are a few study abstracts that I think might be related to otitis

media and samters. Apparently their is a condition called eosinophilic otitis

mediaia that is defined by a large number of eosinophils in the middle ear. II

not a doctor but it seems maby that samter ear infection are not just simple

" You've got an infection in your ear "

>

[Guest guest]

Curr Allergy Asthma Rep. 2011 Sep 30. [Epub ahead of print]Is There an Association Between Otitis Media and Nasal Polyposis?Parietti-Winkler C, Jankowski R.SourceService d'ORL et CCF, CHU-Hôpital Central, 29 Avenue de Lattre de Tassigny, 54035, Cedex, France, c.parietti@....AbstractThe association between otitis media with effusion (OME) and nasal polyposis (NP) is poorly described. However, two different approaches to this problem seem to come from the few studies concerning both otitis media and NP in the literature. One study was based on the assessment of a population of patients presenting with NP, with the authors interested in patients among the studied population who complained of ear-related symptoms and developed OME (rhinologic approach). Other studies were based on the assessment of a population of patients developing a particular OME, with the authors interested in characterizing this condition they named eosinophilic otitis media (otologic approach). The article reviews currents concepts in the relationship between OME and NP. It appears that regardless of the approach to the problem of interest (rhinologic or otologic approach), OME and NP seem to be closely related. Moreover, some striking similarities can be noted between the different entities described in the different studies reviewed, and all authors seem to agree that the middle ear has a central role in the concept of united airways inflammatory disease. Otologists and rhinologists should work together on a single approach that allows for better management of inflammatory disease leading to the formation of polyps, development of concurrent asthma, appearance of aspirin intolerance, and finally involvement of the middle ear.> >> > A while back I did post a study on ear problem and samters in the file section. Her are a few study abstracts that I think might be related to otitis media and samters. Apparently their is a condition called eosinophilic otitis mediaia that is defined by a large number of eosinophils in the middle ear. II not a doctor but it seems maby that samter ear infection are not just simple "You've got an infection in your ear"> >>

[Guest guest]

Thanks .

It may not be very difficult for the ear to become inflamed once Samter's has

overtaken the nasal fossa area. All it takes is a regular amount of inflammatory

secretions to work its way up the eustacian tube. If the secretions are infected

- say, by staph - the germ will happily settle in the ear ; and if the

secretions are purely inflammatory (ie no germs, but pro-inflammatory

cytokines), then it is likely that they will over time inflame the eustacian

tube and ear area as well and start polyposis. I suspect that some sleeping

positions may help the inflammatory secretions get into the eustacian tubes.

> >

> > I found I had to be persistent with my doctor regarding my ear problems -

he'd look and say my ear was okay when I knew I had an infection. Different

doctors would say I simply had a lot of earwax but when they flushed that they'd

see what I was talking about and put me on antibiotics. My hearing came back

when I had a T-tube inserted into the ear - I was deaf in that ear by then due

to the gunk piled up behind the drum. Ringing in my ears has only come back in

the last couple of weeks (a year after the tube was put in), but I think that is

because I have had three colds in two months and my sinuses are still infected

from the last.

> >

> > Doctors who do not understand samters generally have no idea - they'll treat

me for my asthma, or my sinus infection, or my ear problems but they don't

realise all three go together. Luckily I see a sympathetic and experienced

immunologist every six months who is keeping track of the polyps for me (the ENT

specialist only ever wants to talk about operations!)

> >

> > cheers

> > Beverley

> >

>

[Guest guest]

To " samsmom6602 " -- you said you use olive oil and distilled vinegar solution to

clear ear problems. Could you elaborate on this a little more? My ears are SO

itchy and I'm getting more ear infections of late. Can the oil/vinegar stuff be

used in an ear that has a tube in it?

thanks!

> > samters

> > From: samsmom6602@

> > Date: Thu, 29 Sep 2011 18:41:54 -0400

> > Subject: Re: Ear problems Samters Quad?

> > The same thing happened to me. I think the tubes made it worse and I was

> on the ear drops every month it did turn into a ritual. It got really bad. I

> was able to clear it using extra virgin olive oil, distilled vinegar

> solution in my ear. Now, I rarely have any issues with my ears. Good Luck

> >

> > Sent from my iPhone

> >