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Hello Friends, I haven't posted anything on this site for a long time, although

I do read the coments often. Some of you may remember me some may not. If you

do you will recall me as the women who probably had the most surgical procedures

due to the Samters. Things are about the same, I have just found myself very

alone as none of the doctors I see really know much about Samters. It seems many

of you have great resources outside the US with very bright people. If anyone on

this site has a name of a good doctor or group of doctors in New England I would

love to know. Thanks so much for all your great input, keep it up!! May you all

find good health and peace in the very near future, Thanks, Angel

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