Hospital Report

[Guest guest]

Hi , I'm really sorry I did not reply - for me it may have just been the timing was wrong as when I am too busy I just delete block messages without seeing what they are, if I don't have time to read. I have a bit of free time at the moment and would love to read your report, if you still have a copy of this message. Regards, Becky Belbin <stoneywood21@...> wrote: I was disappointed that I did not get any feedback on my recent "Hospital Report"

request.I am even more disappointed that we are back on the desensitisation theme.Year on year, month on month, day by day, the same questions, the same answers.The forum should be re-named Desensitisation, allowing those not interested in this procedure to bypass it.DGB

[Guest guest]

Hi Becky

The report is of no consequence, but is in the file area of the

forum.

I AM hacked off with desensitisation though.

Regards david.

> I was disappointed that I did not get any feedback on my

> recent " Hospital Report " request.

> I am even more disappointed that we are back on the desensitisation

> theme.

> Year on year, month on month, day by day, the same questions, the

same

> answers.

> The forum should be re-named Desensitisation, allowing those not

> interested in this procedure to bypass it.

> DGB

>

[Guest guest]

I’ve never been offered desensitization simply for the reason

the doctor, ENT etc. don’t do it.

From: Belbin

[mailto:stoneywood21@...]

Sent: Wednesday, 10 December 2008 7:04 AM

samters

Subject: Re: Hospital Report

Hi Becky

The report is of no consequence, but is in the file area of the

forum.

I AM hacked off with desensitisation though.

Regards david.

> I was disappointed that I did not get any feedback on my

> recent " Hospital Report " request.

> I am even more disappointed that we are back on the desensitisation

> theme.

> Year on year, month on month, day by day, the same questions, the

same

> answers.

> The forum should be re-named Desensitisation, allowing those not

> interested in this procedure to bypass it.

> DGB

>

[Guest guest]

Hi , Are you hacked off because you've had it and it didn't work, or because you don't want to do it, or it isn't available to you...or what/why? I find I do respond to posts about desens simply because I WAS desensitised 18 months ago and the process was a big deal...and because as far as I can gather, i am one of the few on here who has had it done in the UK. I have been on this Samters forum for 7 years now, and for almost 6 of those years I wasn't desens and didn't want to be so those posts about desens didn't appeal to me then. But we have to talk about what is relevant to us. There are many on here who are not desens...and anyway, the issues are still the same for me - I am not cured at all and I still take the same amount of all my medications, so desens has NOT been a miracle cure - it just has slighty improved my situation and I am

generally less ill overall, but not wonderfully so. Maybe those who haven't been desens would like to post and participate more???? Does this site still have mods? Regards, Becky Belbin <stoneywood21@...> wrote: Hi BeckyThe report is of no consequence, but is in the file area of the forum.I AM hacked off with desensitisation though.Regards david.> I was disappointed that I did not get any feedback on my > recent "Hospital Report" request.> I am even more disappointed that we are back on the desensitisation > theme.> Year on year, month on month, day by day, the same questions, the same > answers.> The forum should be re-named Desensitisation, allowing those not >

interested in this procedure to bypass it.> DGB>

[Guest guest]

Hi ,

In fact, I have planned for some while to reply to your very interesting

post, but have been too busy to do so, and still will be for a few days

unfortunately. In a nutshell :

- first, thanks for taking the time to write out a chronology of the

treatment you tested, along with the results observed - it's a good

habit all of us should try to take ;

- second, Klaricid is Clarythromycin, a macrolide antibiotic used

against airways infections ; it often works quite well ; 12 weeks is a

very long length of time and should eradicate all sensitive germs ; it

will work if : 1) your germ does not already have macrolide resistance

capability - which it should not normally have if you haven't tried

macrolides for a long treatment yet, 2) you don't have a biofilm ;

otherwise, the biofilm goes into " dormant " state while the antibiotic is

present, and then gradually awakens when it is stopped. So, what happens

after the 12-week course ends is crucial to diagnosis. Barring external

reinfection (meeting people with germs, catching a cold, allergy

flare-up, etc), if all is perfect and the same infection comes back,

it's likely there is a problem. A way of knowing then is to see if a

second 12-week Klaracid course works as well as the first one (but have

a germ culture done first).

- third, of course, as you pointed out, the Pizotifen's success is the

most interesting part ; I have not had time to do research, but

Pizotifen is both a serotonin antagonist and a moderate antihistamine ;

the most interesting part would be to know which property has the

positive effect you experienced ; for instance, would an anti-histamine

have the same effect?

Thanks for the info, and please do keep us informed of what happens

after the 12-week course ends (if nothing bad happens, then

congratulations!).

>

> I was disappointed that I did not get any feedback on my

> recent " Hospital Report " request.

> I am even more disappointed that we are back on the desensitisation

> theme.

> Year on year, month on month, day by day, the same questions, the same

> answers.

> The forum should be re-named Desensitisation, allowing those not

> interested in this procedure to bypass it.

> DGB

>

[Guest guest]

Firstly, let me apologise for my testy post. I have tried to open

up debates in the past and been met with deafening silence and this

one had no greater aspiration.

Belatedly, it seems to have given you all " a poke with a sharp stick "

and now my typing speeds preclude the possibility of answering you

all individually.

No, desensitisation is not available to me, my ENT consultant told me

this morning that it " does not work " , and having needed heart massage

after taking an AlkaSeltzer on a camping trip forty years ago, I aint

goin to argue.

He also dismissed my Pitzotifen theory. Having suffered for so

long with sinusitis, and to see such a radical improvement in three

weeks, I am still sceptical.

Asfyso describes the antibiotic treatment better than I. This is an

imported treatment regime from the USA and has been showing good

success. I have not yet finished the course yet, have an ENT

appointment in six months, and will post again on this subject if

there are further developments.

Not surprisingly, with the " near normal " functioning of my nose, my

asthma has improved and I am successfully risking " forbidden foods " .

Thanks for your responses. Comments and questions are welcome.

.

[Guest guest]

Hi Gwen, thanks for popping in and letting us know how you are! I know some of us are really busy - even with having this illness, so it's great to have you pop in even just once in a while. Beckygwenrafter@... wrote: Thanks , I don't post often because I work 11 hours a day and I have school work to do for 4-5 hours a night for

my doctoral program. I do get into the site maybe 1-2 times per week to read the post. , I wish you the best, All, if I fail to post you know it is because I am too busy. I do enjoy the post. I am back on prednisone along wity Veramist and xlyzal to replace allegra. I hope something helps. Hi BeckyThe report is of no consequence, but is in the file area of the forum.I AM hacked off with desensitisation though.Regards david.> I was disappointed that I did not get any feedback on my > recent "Hospital Report" request.> I am even more disappointed that we are back on the desensitisation > theme.> Year on year, month on month, day by day, the same questions, the same > answers.> The forum should be re-named Desensitisation, allowing those not > interested in this

procedure to bypass it.> DGB> Listen to 350+ music, sports, news radio stations – including songs for the holidays – FREE while you browse. Start Listening Now!