Guest guest Posted August 17, 2006 Report Share Posted August 17, 2006 > Now my biggest fear is he will lost weight quicker than myself and I'll feel > like a failure. > > > Well, he might lose weight faster than you, because guys seem to do that (I > don't know the real reasons LOL) Yes, men do lose weight much easier than women do, and it's because they have more fat-burning muscle than we do. You guys can both eat the exact same foods and exercise the exact same amounts, and *he* is going to lose almost twice as fast and twice as much as you (Well, it'll seem that way, at least!). > I felt really super bad last night. We just put pics and stuff up on > myspace, and I went into a chatroom, and some guy said I was too fat to have pics up. This happens even on Plus-sized sites. Trolls and vermin are everywhere, so ignore them and do what makes you happy. > I wanted to delete everything, but my bf wouldnt let me. Good for him! >I gave into my fat self and ate pizza. He got mad at me, and said I shouldnt let some jerk make me feel bad, and screw up my work I've done. Sigh. You *will* have occasion all through your life for feeling bad - life is *not* a bowl of cherries all the time. You just have to find new coping mechanisms other than eating. Even punching a pillow is better than chewing pizza crust when it comes to relieving frustrations. Sue in NJ who has hurt her poor arthritic toes so many times kicking the couch when things go wrong instead of stuffing her face with cookies Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2006 Report Share Posted December 5, 2006 Welcome ! I have a SCS that was implanted the past February. I had tried everything prior to it. My first surgery (I've had 3 and going for #4) was a discectomy. My surgeon at the time botched the surgery and has caused permanent nerve damage in my left foot. I get about 30% relief from my SCS. It's not much in the whole scope of things, but it was worth it. Any relief is better than none. Because of all the emotional issues that long term pain can cause, I believe the psych exam is to see what your stability is. Are you suicidal, are your goals and expectations of the SCS realistic, are you addicted to pain meds as well as how mentally stable are you in regards to dealing with anger, depression etc. with your family and so forth. I've never heard of anyone failing it. Some of the questions are off the wall but it's really not a big deal. Best wishes! (Mass.) _____ From: Stimulator [mailto:Stimulator ] On Behalf Of Sent: Thursday, November 30, 2006 9:33 AM stimulator Subject: Fw: newbie here newbie here Hi all! My name is and I am in WI. I am right at the beginning of the process (psych exam Dec.8th) of getting an SCS. I have had LBP for approx. 26 years-- I am 35. I had back surgery (laminectomy, discectomy L4-S1) in July of this year. It was a failure... My surgeon has told me that he has NO idea what more HE can do for me, So hey, try this SCS. I have other health issues (Arnold Chiari, neuropathy, sciatica, DDD, etc), so I am kind of skeptical, but yet hopeful, that this will help me. I have been looking into the psych. portion of this process, but I still have questions... Has anyone here failed that part? What exactly are they looking for? If someone has failed, did they have to have counseling, then became eligible for the SCS? I know I am not crazy, but I hear PSYCHOLOGICAL TESTING and get twitchy--<g>. I am sure I have more questions, but that is enough for now. TIA, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2007 Report Share Posted February 15, 2007 Hi Fran, Who is your ortho surgeon. He is in Boston I understand? Pls let me know. I am trying to get some info on good ortho's here in Canada and in the U.S. I need help. I have waited too long, a year not walking now. Thanks, Bev > > > > > > From what I understand, they did find the right place to put it > in. > > > There was fluid in the area and they couldn't do it. I am going > in > > > for another injection on February 2nd. > > > > > > I have another quuestion. My left leg above the knee swells to > twice > > > it's size. This never happened until after the first steroid > > > injection. Is this normal? Will this eventually go away. It was > > weird > > > and scarey at the same time. I had gone to bed and when I woke > up, > > my > > > leg was huge. My knee was engulfed in the swelling. It feels like > a > > > squishy mass. > > > > > > > > > --------------------------------- > Get your own web address. > Have a HUGE year through Small Business. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2007 Report Share Posted September 22, 2007 Never let anyone tell you not to apply for help. You never know...the charts and whatever that the help folks use are understandable only to them. And there's more than one place to go to for help. Check into getting your son on the DD Waiver (or Beckett Waiver, whatever your state calls it), it can help a lot. Check into Medicaid via SSI. I only get $5.25 a month from SSI, but I also get Medicaid which pays for all meds and dr. visits. Sometimes they make exceptions for our kids. Also, see if the National Autism Foundation (I think that's the name) has a chapter in your city; they have rafts of information you could find useful. If there's a University with a medical school and/or a hospital where you live, look into their program for those with few resources. A lot of the time, you can get medical care and prescriptions for a fairly low co-pay. If you are a member of a church, look into what they offer in the way of financial help. Our church has a Deacon's Fund for that and it's pulled our irons out of the fire more than once. If you're renting, talk to your landlord or apt. owner about doing cleaning work or gardening work in your complex for a knock-off on your rent. I do the gardening where we live, and the lower rent really has helped. Above all, don't give up. It's rough now, I know (believe me, I know!), but you've only got about 10 years tops to get through before your son is grown and moves into another place. And those years pass really quickly. Our son (Louie, HFA/AS, prosopagnosia, hyperlexia) moved into assisted living when he was 21, and has advanced in leaps and bounds in the six years since then (he's gonna be 28 on Feb. 29 of next year). You will look back on these years and pat yourself on the back for perservering, believe me. BTW, I'm in Albuquerque NM. I hope this helps you some. Annie, who loves ya annie@... -- “They understand but a little who understand only what can be explained.” -- Marie von Ebner-Eschenbach, Austrian writer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2007 Report Share Posted September 23, 2007 some states have programs that are not income based call your local and state heath departments and tell them you are looking for a program also search the state web sites, I know MD has one that is $2500 a year plus $800 for summer camp. its a drop but it could be for meds, theripy, etc.. you just have to document your kid is on the spectrumgood luckGretaOn Sep 20, 2007, at 2:48 PM, lamhunter wrote:Hi EveryoneI am so tired and I need help. My son was recently diagnosed with Aspergers but let me go back a few. In 1st grade they tested him at school and it was determined that he had severe learning disabilites. Then in 3rd grade the doctor diagnosed him ADHD/ODD. Then in 5th grade diagnosed with Asperger's and now Bipolar. He is now in the 6th grade and he is 11 years just in case you were wondering. I lost a good paying job (by no fault of mine)when he was in the 3rd grade. So we decided that it was best for me to stay home and be there for him. Which I really felt was the best thing to do for him. And I still believe is the best thing for him. I am working now and I was working during school hours so that I was always home when he was home. But now they have cut my hours. How are we to afford his meds and doctors? Everyone tells us that we make to much money to apply for help anywhere so not to bother. My husband has a good job but by the time they take out insurance his paychecks are horrible and he works so hard. I don't even know if I pay our rent next month. This really wasn't suppose to be a sad story but I am just so lost and not sure where to turn. I love my children so much and I only want what is best for them. We could always move to a different area where rent is cheaper but that concerns me and what it do to my son. He is doing so well this year so far in school for the first time. Past years well that is another story.Thanks for letting me vent. If anyone has any suggestions please let me know. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2007 Report Share Posted October 21, 2007 Hi , I am new here too as I rarely post. My son just got diagnosed with AS,I am not even sure it is really what he has, but anyhow. I wanted to tell you that if the college accepts your son,you should send him and not worry about his social behaviour. Take one day at a time. My son who is 16 has decided not to go to school anymore since last year and it breaks my heart. He is brilliant but refuses to write tests and does not want to sit in a classroom. If your son wants to go to college and he accepts, please send him and you will not regret it. Go with the flow! Lo > > New here! My name is Rene and my son Joe has Aspergers. He graduated in June while living with his dad, and now moved in here. He wants to play video games or go online most of the day - I'm trying to get him hooked up with Massachusetts Rehab and see what they have to offer. He wants to go to the state college in the next town, but although I know he could probably do the academic end of it, he'll have a hard time socially - just not being able to understand what is acceptable behavior, etc...but should I let him try it if they'll accept him? Do any of you have children with similar issues who attend college? Right now he's tagging along while I homeschool his little sister. > > Blessings... > Rene Coston > > " I believe in the sun even when it is not shining, in love even when I am alone and in God even when He is silent. " > > > > ______________________________________________________________________ ______________ > Need a vacation? Get great deals > to amazing places on Travel. > http://travel./ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2007 Report Share Posted October 21, 2007 Welcome Rene, I'm Toni mom to n and Noah , 19 yo..I'm having the same problems now... My one son is taking his GED at the end of this month and then we are going to look into our local college.. I worry about the social and academics with both of them. They test well, and are very intelligent but when it comes to studying and homework, we're in trouble. I think getting hooked up with the rehab folks is a great idea. Here they told us that they would help pay for school and other things but my kids won't go that route and they are adults so I can't force them to. I think that he could get a mentor or coach through rehab? I'm not sure, but if he is willing to go that route, I'd GO FOR IT! I totally get the video game and computer.. that's all my kids do... too bad they don't have a college specifically for aspies... Welcome again... Toni Newbie here New here! My name is Rene and my son Joe has Aspergers. He graduated in June while living with his dad, and now moved in here. He wants to play video games or go online most of the day - I'm trying to get him hooked up with Massachusetts Rehab and see what they have to offer. He wants to go to the state college in the next town, but although I know he could probably do the academic end of it, he'll have a hard time socially - just not being able to understand what is acceptable behavior, etc...but should I let him try it if they'll accept him? Do any of you have children with similar issues who attend college? Right now he's tagging along while I homeschool his little sister. Blessings... Rene Coston "I believe in the sun even when it is not shining, in love even when I am alone and in God even when He is silent." oneSearch: Finally, mobile search that gives answers, not web links. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2007 Report Share Posted October 23, 2007 My husband tells me the same thing. He says let him go do what he wants and stop being so afraid of how others will treat him. It is a scary thing, though, you understand! I am going to help him apply, and if he is accepted I will drive him back and forth each day. Cost and fear lead me to have him live here instead of in a dorm. Of course, we live 5 minutes from the school, too! ;-) I'll let you know how it goes! Blessings... Rene Coston "I believe in the sun even when it is not shining, in love even when I am alone and in God even when He is silent." Re: Newbie here Hi ,I am new here too as I rarely post.My son just got diagnosed with AS,I am not even sure it is really what he has, but anyhow.I wanted to tell you that if the college accepts your son,you should send him and not worry about his social behaviour. Take one day at a time. My son who is 16 has decided not to go to school anymore since last year and it breaks my heart. He is brilliant but refuses to write tests and does not want to sit in a classroom.If your son wants to go to college and he accepts, please send him and you will not regret it.Go with the flow!Lo>> New here! My name is Rene and my son Joe has Aspergers. He graduated in June while living with his dad, and now moved in here. He wants to play video games or go online most of the day - I'm trying to get him hooked up with Massachusetts Rehab and see what they have to offer. He wants to go to the state college in the next town, but although I know he could probably do the academic end of it, he'll have a hard time socially - just not being able to understand what is acceptable behavior, etc...but should I let him try it if they'll accept him? Do any of you have children with similar issues who attend college? Right now he's tagging along while I homeschool his little sister.> > Blessings...> Rene Coston > > "I believe in the sun even when it is not shining, in love even when I am alone and in God even when He is silent."> > > > ____________ _________ _________ _________ _________ _________ _____________ __> Need a vacation? Get great deals> to amazing places on Travel.> http://travel. />__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 29, 2008 Report Share Posted February 29, 2008 De, Where in Texas are you? I am in the Dallas area and I have Kombucha and milk kefir. Sorry, no water kefir! Regine On Feb 28, 2008, at 9:25 PM, De wrote: > Hello. I am a newbie--- just reading and learning. I am interested in > getting some kombucha starters so I can try making my own Kombucha > tea. > I'm in Texas. If there is anyone from this area of the US that > would be > willing to share with me I would be grateful. I'm willing to pay for > shipping of course. > I'm also looking for milk and water kefir grains if anyone has those. > > To your health. > > De > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 29, 2008 Report Share Posted February 29, 2008 Oh, Regine--- this is awesome. I'm just south of Dallas in Red Oak. When would be a good time for me to come? Do you work thru the week? I can come most days- most times as long as I know in advance. I prefer weekdays- during the day to avoid the traffic but this is negotiable. I'm so excited that you have both. I can't wait to get started with them. De De, > Where in Texas are you? > I am in the Dallas area and I have Kombucha and milk kefir. Sorry, no > water kefir! > Regine > > On Feb 28, 2008, at 9:25 PM, De wrote: > >> Hello. I am a newbie--- just reading and learning. I am interested in >> getting some kombucha starters so I can try making my own Kombucha >> tea. >> I'm in Texas. If there is anyone from this area of the US that >> would be >> willing to share with me I would be grateful. I'm willing to pay for >> shipping of course. >> I'm also looking for milk and water kefir grains if anyone has those. >> >> To your health. >> >> De >> >> >> > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 29, 2008 Report Share Posted February 29, 2008 De...I see someone has already offered a KT SCOBY and milk kefir grains. I can help you out with water kefir for postage. Shipping 1 cup of Water Kefir Crystals/Grains Priority is about $5. Let me know off list. Gayle WI/USA Newbie here > Hello. I am a newbie--- just reading and learning. I am interested in > getting some kombucha starters so I can try making my own Kombucha tea. > I'm in Texas. If there is anyone from this area of the US that would be > willing to share with me I would be grateful. I'm willing to pay for > shipping of course. > I'm also looking for milk and water kefir grains if anyone has those. > > To your health. > > De > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2008 Report Share Posted September 27, 2008 > I thought I'd start out making > linen water...I love old vintage linens and > buy linen water from a local store. My > favorite is lavender. Welcome. A linen spray will definitely be part of my line. I've received rave reviews for one I made in which the key ingredient is petitgrain sur fleur. It definitely makes getting into bed more pleasurable; I hadn't thought of the ironing part but will try it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2009 Report Share Posted January 24, 2009 ---dont forget spiritual healing and reiki and massage Glandular imbalances Each individual's case may be a little different. Different contributing causes, different solutions. However, in Cayce Medicine we might say that any illness in the body is created by one or more of these three factors: 1. mental-emotional stress, 2. pressure upon nerves (often at the spine), 3. toxicity (localized or systemic). Glandular problems are no exception. In the case of the thyroid, we might ask if the body is toxic overall, or perhaps just locally. If so, what would we do to clear this up? Since the thyroid is located at the base of the throat, we might check the neck and shoulders to see if they are tense. If so, perhaps the tension is disrupting the circulation of blood, lymph, and nerve energies to the area - creating the abnormal thyroid activity. Should this be the case, it is best for the tension to be relieved. Are the mind and emotions being chosen in such a way that they might express poorly through the thyroid gland? Are the mind and emotions the cause of tension and disrupted circulation in the neck and shoulder area? Are other glands possibly involved? These sorts of questions can begin to focus us on what has gone wrong and what needs to change in order to restore a healthy balance. Typical suggestions for addressing hypothyroid issues might include: 1. Neck and shoulder massage, castor oil pack at neck, and/or spinal manipulation, 2. Atomidine on a 1-2-3-4-5-0-0 drop schedule (which detoxifies the glands), 3. Meditation to change patterns of doubt to belief, worry to faith, feeling overwhelmed to dwelling in harmony, wariness to peace, and impatience to patience. Atomidine can be given in a series this is to balance the glands one drop daily in half a glass of water for five days stop for three days then to two drops daily for five days stop for three days. Then back to one drop daily then a rest and start the regime again. A cleansing of the glands was the first priority, a drop of atomidine in half a glass of water in the morning before any meal is taken for 5 days, and then 2 drops for 5 days then leave off entirely Cayce found a lack of activity of the thyroid glands, which causes this disturbance in the body where apparently for no cause, there are patches on the body that are bald. These come from circulation and from the lack of certain elements in the diet. For the glandular forces give small quantities of Atomidine to purify the glandular system. In the beginning take one drop in half a glass of water before the morning meal, each day for three to five days; leave off five days, then take again for five days. Then leave off. At the beginning of the second rest period from the Atomidine, start massaging the body of evenings when ready to go to bed on those areas of scalp and where the baldness appears, using Pure Hog Lard. Massage this thoroughly into the areas and bind up. The next morning bathe off, and then in the evening apply again. Do this for three to four days in succession, then leave off for a week - during which period another series of Atomidine would be taken. 1904-1 F 52 Cayce found disturbing conditions This needs attention to stop other problems. The disturbing forces arise from, primarily the glandular system; caused by an unbalancing in the chemical reactions in the system and not sufficient iodides , also pressures upon the nerve system were found - to cause a disturbance in the locomotion of the body at times. The blood supply has also become unbalanced, so that there is insufficient vitamins in the blood as assimilated through these glandular disturbances to produce the proper capillary circulation. A cleansing was required , to help the glandular forces .begin first with taking small doses of Atomidine..For the first seven days, take one minim (drop) in half a glass of water each morning before any meal is taken. Then leave same off five days. Then begin taking TWO minims each morning for seven days. Then leave off five days. Then at the third series take THREE minims in half a glass of water (not more than this) each morning for the seven days. Leave off three to five days. 26 How can I regain my hair (which I have been losing since my late teens - thought by a doctor to be due to a sickness, which I had for several years with earache, fever and headache)? 4056-1 M 26 Cayce found a lack of activity of the glands in the thyroid area. This causes a weakness in the activities to nails and hair over the body. Take small doses of Atomidine to purify in the thyroid activity. Take one drop each morning for five days in succession. Then leave off for five days. During that period give the scalp a thorough massage with crude oil; using the electrically driven vibrator with the suction applicator this was to be done very thoroughly, for at least thirty to forty minutes for the massage with the crude oil and then the application of white Vaseline and then the electrically driven vibrator using the suction cup applicator. Then begin the first of the next week with the Atomidine, one drop each morning for five days. Then give another crude oil shampoo following with the white Vaseline and the vibrator treatment. Leave these off then for two weeks. Then have another complete series, but between each two series allow two weeks to elapse. Doing these, we will find that in six to eight months it will begin to stimulate the activities for the growth of hair over the scalp and on body. Diet must carry iodine in their natural forms. Use only kelp salt or deep-sea salt. Eat plenty of seafoods. Not too much sweets. Atomidine was also recommended in 42% of cases but due to its high iodine content this was recommended in specific dosages and treatment cycles. Excessive iodine in the system could overstimulate the thyroid and result in harmful effects in the body. Never take atomidine when you are using thyroid medicine or other drugs as the drugs could react with each other and have undesirable effects. The most common dosage was one drop taken daily for five days followed by a five-day rest period then one-drop daily then rest for five days. Then resume the cycle.Daily dosages ranged from one to eight drops daily. It was recommended that atomidine was taken in half glass of water in the morning before eating. Frequently atomidine was coordinated with Epsom salt baths and massage with the baths being taken during the rest period and immediately following the atomidine sequence. 5 After the osteopathic adjustments have been given then take a course of atomidine which should be given starting with one drop twice a day increasing by one drop per day until you are taking 5 drops twice daily then continue for a further 3 days and then reduce by one drop per day until the original dose is used. Then rest a week or two then repeat this regime 3-4 times. The atomidine is for the cleansing of the glands and for the glandular forces of the body. BACKGROUND 5345-1 F 35 For some time she has been suffering with sugar diabetes, no help from MD's. . She's read the book THERE IS A RIVER and is ready to accept and follow anything that may come through the reading. " Cayce cautioned to apply corrections to the diet, this with the spinal corrections , will bring much better conditions and reactions with this Person. He found a subluxation, caused from a strain many years ago and has gradually been a great pressure, which has caused overactivity in the pancreas and spleen area, and from this created in the body, too much sugar. This affects the activity of the kidneys and bladder, as well as the general nervous system and the incoordination in the areas of the brachials, just a little higher up, which cause distresses to organs of sensory system, general nervous system and the glandular forces of the body. Alternative Treatment Edgar cayce gave over 250 readings for epilepsy and associated disorders. In Reba Ann karps book a study was made of about 84 readings for 37 people with an age range of 20 months to 62 yrs old. There are quite a few files at the A.R.E. which members can research further and anyone contemplating treatment would well advised to consult with them. Causes 1.Most frequently mentioned was glandular imbalances, which implied adhesions and lesions in the lacteal area of the intestines. 2. Other glands were mentioned particularly the pineal. 3. In 16 cases spinal sublaxations and lesions were found to be a direct cause with mention of other vertebrae out of alignment in any part of the spine. These misalignments would interfere with the proper supply of nutrients and or nerve impulses which were needed in other parts of the body the lack of which would result in ) What causes and what should be done to correct, excess growth of hair on legs and arms? Is this from a glandular condition? (A) Cayce said A glandular condition, combined with a disturbance in the general circulation. Do not use anything other than too the thyroids to make better activity there; this done better by manipulation than by drugs. From epilepsy file (Q) Why are the menstrual periods irregular? (A) A problem partly from the circulation and the adjusting of the bodily functions from the glandular forces of the whole system to the activity of such periods. The adjustments and manipulations are for these specific disturbances; as also the purifying of the glands by the use of iodized salt. Cayce gives the causes of Glaucoma; to do with the functioning of the glands in origin with mention of spinal misalignments causing other blockages where proper channels needed to be kept open, Toxins or infectious forces could also cause problems in the system, poor eliminations and kidney and liver imbalances were also mentioned. Karma was also mentioned. According to cayce any of these conditions either singly or combined could interfere with the proper nutriments that feed the eyes and or nerve impulses, which go to the eyes. To another who had been treated for glaucoma by conventional means, this lady was in excrutiating pain Cayce said there was incorrect activities from the adrenal glands and their effect on the kidneys, which had their effect on other organs, which produced slowness in the eliminations. The emphasis on eliminations is a crucial factor in maintaining good health in this case it was effecting the optic nerve. 630-3 F 37 " About 8 mos. ago (eye specialist) told me I had Glaucoma and Iritis Pigmentosis, but being an optimist I thought they would be all right. Now I am at home and Dr. says my eyes are decidedly worse. Cayce found disturbances with the glandular system, related to the activities of the adrenals. This made for an unbalanced condition relating to the supply of energies in the circulation to the sensory forces. This hinders or impoverishes the supply to the optic forces; producing a relaxation that causes the problem in the eye reflex itself. These hinder in the kidneys' activity in bringing about elimination, and a flow of secretions that are a part of same deflect through the supply to optic forces. Cayce sited the causes of M.S.as being varied but briefly it was the lack of gold in the body which caused a glandular imbalance which in turn caused a hormonal deficiency.This hormone was said to be vital to the proper functioning of the nerves. Also it can be stated that even with enough gold present in the system the body still has to have the ability to use it, it was this ability that was lacking in some of the cases that cayce dealt with. The body has to have the ability to absorb or assimilate the gold. phill here is some stuff on glandualr imbalences In , " hayleyscocoabear " <hayleyscocoabear@...> wrote: > > Hello:My name is Tina.I just recently bought a couple of Edgar cayce > books.My son has autismseziures,circlatory problems,puffy eyes.I also > have puffy eyes,poor circulation,thin hair.I`m interested in some of > his remedies.Massage therapy,castor oil packs,violet Ray,Wet cell,I > think is the name,I don`t have my book handy.He says glandular > imbalance,elimination problems,spinal lesions,are factors in > epilepsy.Also glandular imbalance,may cause puffy eyes.I have taken him > for somechiropractic care,but he doesn`t cooperate very well.Any advice? > Need advice,using castor oil packs please.Best massage oil,for > elimination,spinal lesions.Thankyou.Tina > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2009 Report Share Posted January 24, 2009 Hi, and welcome! I'm Jennie. My daughter Caitlin has . There are some interesting similarities. Caitlin always reacted badly to vaccinations, not badly enough to go to the ER but she got fevers, irritability, and once a giant lump on her arm that lasted about six weeks. She's also been diagnosed with sensory integration disorder. Caitlin's bloodwork doesn't show an infection, but there is an elevated marker for inflammation and her white blood cell count is high/normal with a higher than normal number of a certain type that can indicate bacterial infection. Caitlin's behavioral problems make us wonder about hypoglygemia. That is something we are investigating in the near future, along with possible seizure activity. She shares a lot of traits with 'spectrum kids'. I would love to see some studies done about kids like ours and vaccinations. I would love to know if ANY children with or this kind of collection of symptoms is unvaccinated. Dr. Feder said that behavioral symptoms are not associated with . Interesting, though, that our children have some similarities in that area, isn't it? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2009 Report Share Posted January 24, 2009 Hi, and welcome! I'm Jennie. My daughter Caitlin has . There are some interesting similarities. Caitlin always reacted badly to vaccinations, not badly enough to go to the ER but she got fevers, irritability, and once a giant lump on her arm that lasted about six weeks. She's also been diagnosed with sensory integration disorder. Caitlin's bloodwork doesn't show an infection, but there is an elevated marker for inflammation and her white blood cell count is high/normal with a higher than normal number of a certain type that can indicate bacterial infection. Caitlin's behavioral problems make us wonder about hypoglygemia. That is something we are investigating in the near future, along with possible seizure activity. She shares a lot of traits with 'spectrum kids'. I would love to see some studies done about kids like ours and vaccinations. I would love to know if ANY children with or this kind of collection of symptoms is unvaccinated. Dr. Feder said that behavioral symptoms are not associated with . Interesting, though, that our children have some similarities in that area, isn't it? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2009 Report Share Posted January 26, 2009 Hi All I really wonder about the sensory issues as well. The doctors says they are not related but I think they are. I was wondering what sensory issues your child has. When my son is sick, his sensory issues become significantly worse. He becomes hypersensitive to many things especially certain sounds. I think if you do not feel good you are going to be more sensitive to other things. Maybe like when you have the flu. Lately, he seems to feel sick most of the time which I am not sure I understand, because he does not have a fever but his right tonsil is always enlarged. We are also wondering about the hypoglycemia. Have you tested for it? What are the behavioral problems for Caitlin that make you think this. Ethan needs to eat frequently or he gets extremely irritable, has break downs and seems very fatigued. Once he has a snack he is ok. It just seems more than typical kids. Maybe I will try and send out a survey later and see how many kids with have similar things. Take Care Ethan 2 1/2 fevering since 3 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2009 Report Share Posted January 26, 2009 Hi All I really wonder about the sensory issues as well. The doctors says they are not related but I think they are. I was wondering what sensory issues your child has. When my son is sick, his sensory issues become significantly worse. He becomes hypersensitive to many things especially certain sounds. I think if you do not feel good you are going to be more sensitive to other things. Maybe like when you have the flu. Lately, he seems to feel sick most of the time which I am not sure I understand, because he does not have a fever but his right tonsil is always enlarged. We are also wondering about the hypoglycemia. Have you tested for it? What are the behavioral problems for Caitlin that make you think this. Ethan needs to eat frequently or he gets extremely irritable, has break downs and seems very fatigued. Once he has a snack he is ok. It just seems more than typical kids. Maybe I will try and send out a survey later and see how many kids with have similar things. Take Care Ethan 2 1/2 fevering since 3 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2009 Report Share Posted January 28, 2009 My daughter's sensory issues tend to be more sensitive than seeking (she shies away from things as opposed to needing more and more input) with touch, oral, sound, movement mostly - they do seem to be elevated sensitivities when she's sick, but I guess I just assumed we're all like that when we're sick (cranky, sore, tired, sensitive to light and sound, etc) so I didn't pay that much mind. My daughter also has hypoglycemia and a variety of other issues that have been contributed to her Mitochondrial Disease diagnosis. It's possible that her cyclical fevers are part of this disease as well and they aren't - though this month she has had a fever every seven days, on Mondays, lasting two days each with high fevers, complaining of a sore throat, pain in her legs and stomach. Maybe you can have -like syndrome that's just part of the mito. Do any of your children have other medical issues outside of the cyclical fevers? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2009 Report Share Posted January 28, 2009 My daughter's sensory issues tend to be more sensitive than seeking (she shies away from things as opposed to needing more and more input) with touch, oral, sound, movement mostly - they do seem to be elevated sensitivities when she's sick, but I guess I just assumed we're all like that when we're sick (cranky, sore, tired, sensitive to light and sound, etc) so I didn't pay that much mind. My daughter also has hypoglycemia and a variety of other issues that have been contributed to her Mitochondrial Disease diagnosis. It's possible that her cyclical fevers are part of this disease as well and they aren't - though this month she has had a fever every seven days, on Mondays, lasting two days each with high fevers, complaining of a sore throat, pain in her legs and stomach. Maybe you can have -like syndrome that's just part of the mito. Do any of your children have other medical issues outside of the cyclical fevers? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2009 Report Share Posted January 29, 2009 HI , I read this and one thing you said reminded me of my lil one and I had to post. When her fevers first started they thought UTI also. funny is she even complained of woohoo pain. but the cultures continually came back neg. I wonder if anyone else had this kind of link. I always thought it odd that thats what they first thought it was. Please keep us posted your story is one I will most definitely pray for often. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2009 Report Share Posted February 1, 2009 Our daughter has fevered since birth and has had other odd/rare conditions that don't seem to be connected with in any way. She was born with a cyst in her adrenal gland, had the most incredible rash on her face and torso area that started shortly after birth and had drs donning masks and gloves before coming in our room (by this time we were already in the hospital because of a fever- this trip lasted 6 weeks because the rash earned a leukemia cutis diagnosis that was retracted a week later... you can imagine how long that story is, lol!), chiari I malformation and craniosynostosis (sp?) that required a craniectomy when she was 12 mo old. Other than her fevers that are consistantly every 2-3 weeks, she is a happy and somehow healthy little girl! mom to Riley, just turned 3! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2009 Report Share Posted February 1, 2009 Our daughter has fevered since birth and has had other odd/rare conditions that don't seem to be connected with in any way. She was born with a cyst in her adrenal gland, had the most incredible rash on her face and torso area that started shortly after birth and had drs donning masks and gloves before coming in our room (by this time we were already in the hospital because of a fever- this trip lasted 6 weeks because the rash earned a leukemia cutis diagnosis that was retracted a week later... you can imagine how long that story is, lol!), chiari I malformation and craniosynostosis (sp?) that required a craniectomy when she was 12 mo old. Other than her fevers that are consistantly every 2-3 weeks, she is a happy and somehow healthy little girl! mom to Riley, just turned 3! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2009 Report Share Posted February 1, 2009 Our daughter has fevered since birth and has had other odd/rare conditions that don't seem to be connected with in any way. She was born with a cyst in her adrenal gland, had the most incredible rash on her face and torso area that started shortly after birth and had drs donning masks and gloves before coming in our room (by this time we were already in the hospital because of a fever- this trip lasted 6 weeks because the rash earned a leukemia cutis diagnosis that was retracted a week later... you can imagine how long that story is, lol!), chiari I malformation and craniosynostosis (sp?) that required a craniectomy when she was 12 mo old. Other than her fevers that are consistantly every 2-3 weeks, she is a happy and somehow healthy little girl! mom to Riley, just turned 3! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2009 Report Share Posted July 2, 2009 Numerous options Jeannie. 1. Some-one reading will be close enough to give you one. 2. As above but post (Mail?) it. 3. Within the group's pages, go here >>>---------------> kombucha tea/files/Kombucha%20For%20Fr\ ee/ Where list members prepared to help are there. 4. Go here>>>-------------------> http://www.kombu.de/suche2.htm#uk where, if you scroll down to USA lists several scattered between Alaska and Arizona via California and Colorado. HTH . (UK) A.B.A.L.T.A.T. " Any, LEGAL, topic which other groups would consider Off-Topic. " http://uk./group/ABALTAT/ ________________________________ From: the_barn_swallow Sent: Wednesday, 1 July, 2009 14:56:27 Howdy, I am Jeannie and very much a newbie to the Kombucha drinking. Last fall I had begun brewing Kombucha for the first time only to not really enjoy the labour the scoby would produce since I found my family and I moving into our first small farm home. With that move I lost my scoby I am currently reading through Animal Vegetable Miracle by Barbara Kingsolver and since I started reading it I have not been able to put it down, the wealth of information has sparked my heart to want to live better and it reminded me of what I was trying to start with as far as moving into a better health mindset..... Kombucha. Since it appears you all are full of information about the stuff, how do you go about getting scoby? I had got my original scoby through a fellow blogger but have since lost contact with her. Do you have any online " scoby " stores that you would reccomend, literally any ideas on how about acquiring a scoby? Thanks So Much PS: I have Nourishing Traditions also and plan to re read it again, that is also a wonderful book of information. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2010 Report Share Posted July 28, 2010 Welcome Pam!! Liliann From: dancinonsonshine <dancinonsonshine@...>100-plus Sent: Wed, July 28, 2010 1:27:17 PMSubject: Newbie Here Hello, The name is Pam I am near Cincinnati Ohio. Happy to have others on the journey to health! I am a newbie and would love to say HI! Feel free to e-mail me!Smiles,Pam Quote Link to comment Share on other sites More sharing options...
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