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In concept this seems like a great idea. I'm just wondering if its much

harder to apply to real life; because my LLMD never mentioned testing

pathogens for sensitivity; and I've never heard of a doctor who treats the

chronic infections of CFS (lyme, mycoplasma, chlamidia) and related

dissorders doing anything like that. I do think I may ask her about this

though next time I see her.

Also, in concept it does seem really scary to visualize superbugs being

created from months or years of taking a broad spectrum antibiotic like

doxycycline or minocycline; but if this actually happened i dont imagine they

would give it out to people with some pimples on their face for years on end.

I'm sure many strains of bacteria in the body do become resistant to a

'cycline if its taken for a long period of time, but there should be plenty

of other antibiotics that would work. It does irk me that the pharmacist

tells of all these people who get 100mg of doxy or minocycline twice/day for

their acne and yet its very difficult to find a doctor who'll perscribe it

for FMS or CFS; even though for a small subset of us it helps greatly.

>>>Doesn't matter if you know which organism it is or not. All that

matters is which abx it's sensitive to. And that can be done in the

right culture medium. Ask any vet. They do it all the time.

Unfortunately, for most docs (not dogs), it's a lost art. :-)

penny >>>>

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Doesn't matter if you know which organism it is or not. All that

matters is which abx it's sensitive to. And that can be done in the

right culture medium. Ask any vet. They do it all the time.

Unfortunately, for most docs (not dogs), it's a lost art. :-)

penny

> In a message dated 1/30/03 3:34:14 AM Eastern Standard Time,

> writes:

>

>

> > This broad spectrum approach worries me. I've been taking

clindamycin

> > and tetracycline for a couple weeks now. It's helping clear the

brain

> > fog, and must be working on the staph a bit, but when I got my

test

> > results, I have strep that's resistant to clindamycin and

teracyline.

> > So while I may be knocking down some bugs, I may be increasing

> > others. And strep, although not the worst bacteria, is known to

lead

> > to heart problems. So it's much better to get your organisms

> > identified with the sensitivites, and treat effectively, than

blindly.

> >

>

> I agree with what you're saying but when you say " get your

organisms

> identified with the sensetivities " you assume one is always able to

identify

> the organisms. When dealing with something like lyme or perhaps

even some

> unknown pathogen or spirochete (like what shows up in my Bowen

test), this is

> not feasible. I know two others who got well using abx so far, one

of which

> has no idea why he got well but just that buying doxy in Mexico and

taking it

> was the best decision he ever made and is (for now) cured.

>

>

>

>

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With mycoplasmas and chlamydia, the usual testing is pcr. From a pcr

test it is possible to work out which abx to use because of the dna

found in the bacteria in the pcr test. Staph are harder to pcr because

we may end up pcr'ing the fragments of a staph we have killed off -

remember we are surrounded and attacked by staph 24-7. Thus this is

why culturing is useful because it'll only grow the staph that are

active in the body at that time.

Dave

> In concept this seems like a great idea. I'm just wondering if its

much

> harder to apply to real life; because my LLMD never mentioned

testing

> pathogens for sensitivity; and I've never heard of a doctor who

treats the

> chronic infections of CFS (lyme, mycoplasma, chlamidia) and related

> dissorders doing anything like that. I do think I may ask her about

this

> though next time I see her.

> Also, in concept it does seem really scary to visualize superbugs

being

> created from months or years of taking a broad spectrum antibiotic

like

> doxycycline or minocycline; but if this actually happened i dont

imagine they

> would give it out to people with some pimples on their face for

years on end.

> I'm sure many strains of bacteria in the body do become resistant

to a

> 'cycline if its taken for a long period of time, but there should be

plenty

> of other antibiotics that would work. It does irk me that the

pharmacist

> tells of all these people who get 100mg of doxy or minocycline

twice/day for

> their acne and yet its very difficult to find a doctor who'll

perscribe it

> for FMS or CFS; even though for a small subset of us it helps

greatly.

>

>

> >>>Doesn't matter if you know which organism it is or not. All that

> matters is which abx it's sensitive to. And that can be done in the

> right culture medium. Ask any vet. They do it all the time.

> Unfortunately, for most docs (not dogs), it's a lost art. :-)

>

> penny >>>>

>

>

>

>

>

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penny wrote:

> Doesn't matter if you know which organism it is or not. All that

> matters is which abx it's sensitive to. And that can be done in the

> right culture medium. Ask any vet. They do it all the time.

> Unfortunately, for most docs (not dogs), it's a lost art. :-)

>

> penny

this astonishes me too. When I worked in vet clinics years ago and then

sold vet supplies to vets (pre CFS crash that stole that carreer), the

culture and sensitivity test was a given. Thats how we knew what antbx.

to use in any given infection. Its SIMPLE technology, just stick the

stuff in the petri dish with the culture medium and see which antbx.

killed what grew. When I had my nose surg I called the docs office to

make SURE that the infectious crud they were about to remove would be C

& S/d. The office told me of OF COURSE we check everything, its sent to

pathology. But she meant 'biopsied' in the cases of strange growths. As

it turns out she didn't even know what a C and S was. Don't they do

these at all anymore????? I was so dissappointed it wasn't done.

Marcia

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Well, I'm living proof. I got my last culture analysis yesterday. The

staph I have was tested with 14 antibioitics, and it was completely

resistant to 12 of them (and possibly resistant to the 13th). All

I've ever taken in my lifetime was penicillin as a child and cipro

recently. So how did these staph get so resistant? If you don't hit

them hard and appropriately, you have very little chance of

eradicating them. Ask any infectious disease doc or orthopedic

surgeon.

You're going to have trouble convincing a doc who's been trained in

standard medical school about this. I'd suggest you ask them to call

Esoterix labs and talk to one of their microbiologists about the

toxicity of these so called " normal flora " . Or to an infectious

disease doc who knows his stuff. You can find them by asking people

in the labs, 'who's the best infectious disease doc they know' (in

other words, who's the biggest pain in the butt and hassles them in

the lab all the time?).

penny

> In concept this seems like a great idea. I'm just wondering if its

much

> harder to apply to real life; because my LLMD never mentioned

testing

> pathogens for sensitivity; and I've never heard of a doctor who

treats the

> chronic infections of CFS (lyme, mycoplasma, chlamidia) and related

> dissorders doing anything like that. I do think I may ask her

about this

> though next time I see her.

> Also, in concept it does seem really scary to visualize superbugs

being

> created from months or years of taking a broad spectrum antibiotic

like

> doxycycline or minocycline; but if this actually happened i dont

imagine they

> would give it out to people with some pimples on their face for

years on end.

> I'm sure many strains of bacteria in the body do become resistant

to a

> 'cycline if its taken for a long period of time, but there should

be plenty

> of other antibiotics that would work. It does irk me that the

pharmacist

> tells of all these people who get 100mg of doxy or minocycline

twice/day for

> their acne and yet its very difficult to find a doctor who'll

perscribe it

> for FMS or CFS; even though for a small subset of us it helps

greatly.

>

>

> >>>Doesn't matter if you know which organism it is or not. All that

> matters is which abx it's sensitive to. And that can be done in the

> right culture medium. Ask any vet. They do it all the time.

> Unfortunately, for most docs (not dogs), it's a lost art. :-)

>

> penny >>>>

>

>

>

>

>

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, staph is the most resistant bacteria known and yet docs ignore

it as " ordinary flora " . If Esoterix i.d.s staph and what it's

sensitive too, you're going to be so covered. As long as you take the

appropriate and agressive treatment path.

Seriously, this used to be the way doctors diagnosed and treated

illness. But these are just cheap lab tests, and nobody makes money

off them anymore. They'd rather sell you some expensive computerized

tests or do scans or biopsies or histology, etc., than simple lab

pathology. And this IS the way science is done. This IS the way

research labs work. It's even the way veterinarians treat their

animal patients. It's pathetic that we don't get the basic care that

animals get.

Best of luck with those tests, looking forward to your results,

penny

> In a message dated 1/31/03 8:34:01 AM Eastern Standard Time,

> writes:

>

>

> > Doesn't matter if you know which organism it is or not. All that

> > matters is which abx it's sensitive to. And that can be done in

the

> > right culture medium. Ask any vet.

>

> Penny, I am still not sure what you mean. If there are organisms

in your

> body that have yet to be discovered by your doctor, let alone say

scientists,

> how can you say all that matters is which abx it is sensitive to

when you are

> the one who first told me that playing a guessing game is not a

good idea and

> that you need to know the organism first so you can find out which

abx it is

> sensitive to? Now it sounds more like you are agreeing with my

original

> protocol idea. It was not too long ago that they discovered

nanobacteria for

> instance. Now, taking your argument, if they found lyme in the

right culture

> medium then that would be great, wouldn't it? But problem is that

it is hard

> to find lyme in the first place! This is not as much science as

you may

> think. I wish it were like how you make it sound as then it would

be simple

> to find out every little bug that may be affecting us (forget

finding each

> bug, finding the ones that are bad for us in the first place is

still not

> science--for instance, it is Shoemaker's idea that CNS is bad but

you know

> what, he may be proven wrong with time--that is a fact, and this

comes from

> one who did the Esoterix test just last week so you can't call me

closeminded

> on this issue) and then simply match up the best abx for the job.

This would

> seem tantamount to the US knowing exactly how many soldiers there

are in each

> area around Bagdad and the desert before you get to Bagdad and

knowing where

> each one was placed before the battle even began. I am glad

Shoemaker is

> getting more attention and with doc of the year award I'd say he

can't be too

> shaby but don't get your hopes up too much on his theories as they

have yet

> to be proven. FWIW I personally give patients a nod of approval if

they wish

> to see him as at least he is open to trying to find the causes of

CFS and

> does not cost an arm and a leg to see him and takes insurance and

does phone

> consultations to outsiders. Having said that, I wouldn't be the

ranch on his

> theories like you seem to be doing. But for your sake and ours I

hope you

> are right and then we all get cured by him! Take care.

>

>

>

>

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