Guest guest Posted November 6, 2001 Report Share Posted November 6, 2001 Hi Tina The only advice I can give you is what has worked for me. Skylar too picks her nose (usually when she is nervous) that is still something I am struggling with. I am just constantly telling her that it is " not nice " and to go and get a kleenex and blow her nose. It is improving slowly. Skylar trained when she was 41/2 and it was difficult. I turned toilet time into play time. Let her take a book or toy and would sit with her until she went, then praise her and usually reward her with a cookie or something she liked. That worked for us. Skylar has very long hair and at the age of 21/2 pulled it all out on her left side. It slowly grew back in. She liked to look at herself in the mirror when she brushed her teeth. So I started brushing her hair while she was doing that. So try brushing her hair when she is doing something she likes e.g. watching a video, looking at a book etc. Sky was upset at the beginning but got used to is. Now she has her hair brushed anywhere and I can do anything with it. She is patient now (well 90% of the time.lol). Think that is about all the advice I can give you. Hope it helps. That is what worked for me. But I am sure others on the list will have good ideas about what worked for them. Good luck!! Tracey actcrae@... wrote: > Hello, everyone. I wanted to thank you for your warm > welcome. It is great to have a place like this. One that > focuses primarily with females on the spectrum is superb. > My child will be five in three weeks. She is such a > wonderful gift from God. My only child (after uterine > troubles too personal and numerous to mention) and I single > parent her due to her daddy's diffuculty with imperfection. > (I sure could say more about that, but I won't.) > I have many questions. I thank you in advance for your time > and interest in helping a fellow mom. > 1. How do I discourage/stop nose picking? (all the time) > 2. How can I increase preference for hair brushing? > 3. what is pineal cyst/precosious puberty? > 4. She has recently " found herself " how does one > monitor/stop that one? (not all the time, yet) > 5. She has some disciplinary behavior issues sprouting > up lately, and I would like advice on how to deal with: > a. screaming when told 'no' > b. pushing mom when disciplined > c. tantruming more often > d. no longer adhereing to rules that are familiar > 6. She has begun toileting, but like accidents to spark > a response from mom. big girl pants all day, b.m. > still in a pull-up (she indicates) and diapers for night. > How do I further that along with better sucess? > > Thank you again for any input you may have. Her diagnosis is > as follows: PDD/NOS with high functions and hyperlexia. Dx was > at two years and two months. She can talk and uses words > appropriately 89% of the time. > She is at a first grade academic level, and a 3.5 social > level. she is in her third year of preschool, and soon I > must research kindergarden placement. > I have many more questions, but since they are about her > adolecence, I started with the above. Smiles to all any God > Bless every one of our kids and ourselves. Tina > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2001 Report Share Posted November 7, 2001 Hi I have experience of a couple of your problems:- Screaming. My daughter (nearly 5) went through a long period of screaming if I said anything she didn't like. The way I was told to deal with this by my speach therapist was simply to say " no thank you " . I.e. I was to say what she should say rather than screaming. I have to say it is a long road, but if you say 'don't scream' then Ellen used to say 'don't scream' when I really wanted her to say 'no thank you'. She now does say 'no thank you' 90% of the time. Also with regard to night time nappies. I decided when Ellen turned 4 that I would get rid of night time nappies. I gave her her last drink at tea time i.e. 5.00 pm and also lifted her on to the toilet when I went to bed at around 10.30 - 11.00. Had a couple of accidents after that, but then she was dry. Hope this helps. Abby > Hello, everyone. I wanted to thank you for your warm > welcome. It is great to have a place like this. One that > focuses primarily with females on the spectrum is superb. > My child will be five in three weeks. She is such a > wonderful gift from God. My only child (after uterine > troubles too personal and numerous to mention) and I single > parent her due to her daddy's diffuculty with imperfection. > (I sure could say more about that, but I won't.) > I have many questions. I thank you in advance for your time > and interest in helping a fellow mom. > 1. How do I discourage/stop nose picking? (all the time) > 2. How can I increase preference for hair brushing? > 3. what is pineal cyst/precosious puberty? > 4. She has recently " found herself " how does one > monitor/stop that one? (not all the time, yet) > 5. She has some disciplinary behavior issues sprouting > up lately, and I would like advice on how to deal with: > a. screaming when told 'no' > b. pushing mom when disciplined > c. tantruming more often > d. no longer adhereing to rules that are familiar > 6. She has begun toileting, but like accidents to spark > a response from mom. big girl pants all day, b.m. > still in a pull-up (she indicates) and diapers for night. > How do I further that along with better sucess? > > Thank you again for any input you may have. Her diagnosis is > as follows: PDD/NOS with high functions and hyperlexia. Dx was > at two years and two months. She can talk and uses words > appropriately 89% of the time. > She is at a first grade academic level, and a 3.5 social > level. she is in her third year of preschool, and soon I > must research kindergarden placement. > I have many more questions, but since they are about her > adolecence, I started with the above. Smiles to all any God > Bless every one of our kids and ourselves. Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2001 Report Share Posted November 12, 2001 Hi all - I'm way behind in posts, just got back from Disneyland...Wow! What a trip...anyway, thought I'd try to answer some of these questions: 1. How do I discourage/stop nose picking? (all the time) -----try to redirect. " nose picking " is usually a sign of anxiety or boredom with my daughter. and we haven't been real successful in stopping it. 2. How can I increase preference for hair brushing? -----you may need to keep trying different brushes until you find one that feels " good " to her. Then, make sure you use that one all the time. 3. what is pineal cyst/precosious puberty? -----I believe Precosious puberty is early on-set puberty 4. She has recently " found herself " how does one monitor/stop that one? (not all the time, yet) -----Reinforce that this is OK only in private. That it is her body, but it is a private thing to do. And reiterate that know one else should touch her and she is to touch no one else. 5. She has some disciplinary behavior issues sprouting up lately, and I would like advice on how to deal with: a. screaming when told 'no' ---- ignore it, do not react b. pushing mom when disciplined ----- physically? reiterate " NO HITTING " and walk away c. tantruming more often ----try to find out the precursurs to the tantrums. Usually finding out what triggers the tantrums can help reduce them by being able to avoid the trigger d. no longer adhereing to rules that are familiar ----- finding independence. Not necessarily a bad thing. Specifics? 6. She has begun toileting, but like accidents to spark a response from mom. big girl pants all day, b.m. still in a pull-up (she indicates) and diapers for night. How do I further that along with better sucess? ------My daughter was not toilet trained until well after the 4 year mark. She also has encopresis which made it virtually impossible for her to make it to the toilet. Our kids have sensory issues and she may not always recognize the feeling of needing to go. Don't assume she's doing this for attention. There. These answers are from my experience only, and will most definitely vary from others on the list. Penny-------------------------------------------------------- " Just remember this: Plenty of Horsepower, No Traction " - R. S. on " If a man does not keep pace with his companions, perhaps it is because he hears a different drummer.Let him step to the music he hears, however measured or far away. " --Henry Thoreau Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2011 Report Share Posted July 31, 2011 Thanks for all the great information that you all share. I have found it very useful and interesting. It's nice to know that others out there share some of the same difficulties. My story: - Developed Samter's in my early 20s (never had allergies, etc... before) - Started having wheezing symptoms after taking major doses of aspirin, etc.. for sinus headaches - I've had 4 sinus surgeres (including a frontal obliteration which has been wonderful at reducing my headaches) - I was in denial about having asthma (never symptoms unless I took aspirin/nsaids; before pregnancy had horrible asthma and afterwards too - now on Zyflo successful in treating the asthma - doesn't seem to be helping the polyps (and Singulair didn't either) - Also on Advair - Was desensitized, until pregnancy... haven't been again as it didn't seem to help me - Was on low dose of prednisone for many years and developed Adrenal insufficiency (the miracle and devil drug...) Better now but weary about it - but it's the only thing that helps with the inflammation. Questions: Anyone doing pulmicort respules directly into nose. How can I do it more effectively (laying on bed upside down...) I just have a hard time keeping up with it as during the year I am a school teacher and these sinus infections just take the life out of me. I feel like I am always stressed at work and I am sure this exacerbates my condition... I always want to nap; never feel refreshed. I was using it in my neilmed rinse but it wasn't working well enough. I am now on a pred. taper (60 - 10 in 6 days) and hoping I can open my frontals again as they were closed. I know it is important to keep this up, but any ideas to help? I seem to get so little sleep with my sinuses (I feel like water is gurgling all the time in my nose - very loud - even ear plugs don't help hubby). - How do you cope better with loss of SOS? I hate it to death. I find myself eating more. I love things with texture now.... From your experience (other than being on pred.) is there anything else that may help? - Anyone else look into eosinophils being high? Churg Strauss or eosinophilia? Mine are okay right now. - I just had a recent skin test done again and came back with no positives for environmental allergies. This is really perplexing considering how I feel, but maybe not as it is all year round. I even keep the cat out of my bed now but still feel horrible(supposedly have a allergy to him..., maybe it's the dander holding on for a while...) How does one understand all this " inflammation " but nothing really to pin it on? - Finally, they have cultured pseucdomonas and staph. Pseudomonas really scare me - I feel like I have a chronic infection... Thanks for all the advice on this and I'll be glad to hear more. - Anyone's doctor suspect fungal infection as well. We went that route for a while no real change. Thanks for indulging me in this long email. I feel that I am always " sick " and try to do my best. But it is discouraging and frustrating... and as many say many do not understand - although they try very hard. I feel like they must think I'm crazy at times and I should just try a decongestant (been there done that...). Just a lonely disease if that is what you can call it. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2011 Report Share Posted August 1, 2011 Seeing my husband's results so far (knock on wood), it definitely seems worth it. I don't know think he knew if it was worth it either, until he did it. Its hard to know if diet alone is enough, although we're positive it helped immensely, because like I mentioned, he has been taking supplements too. And now he's to the point of tapering off some of those too. The cleanse is "only" six weeks actually n then you can add things back in. I've witnessed Mike give up all the things he loves: alcohol, cheese, bread, coffee, sweets.... I actually sent the toxic cleanse diet he has been on to another member here. If you're interested I can forward it to you too. His new Dr actually doesn't believe in allergies. He says that its a matter of intolerances and that Mike obviously has a lower tolerance for certain things. So maybe it makes sense you tested neg for food allergies..I think if you can find an integrative medicine doctor, it might be a lot more helpful than a naturopath in this case (no offense to them). Its just such a challenging issue. So I guess he was taking pulmicort then Now he takes Argentyn 23 instead. Best,SabinaSent from my Verizon Wireless BlackBerryFrom: "teacher01" <susandebisschop@...>Sender: samters Date: Mon, 01 Aug 2011 14:35:35 -0000<samters >Reply samters Subject: Re: Thanks and questions Good luck to your husband! He does sound similar! I'll have to look into other eastern methods of treatment... I have seen a naturopath in the past and she was wonderful but I never saw any real improvement. I've tried the elimination diet twice (no sugar, milk, wheat, etc...) and no real improvement either. Maybe I'll try that again. I do have a few weeks before school begins again. It's just so tough with diet changes. But as someone else said on here, it may be worth it. Not sure about losing the chocolate though What stops me sometimes is that I did have the blood test for food allergies (a couple years ago it was new) and didn't show any big reactions to anything. But I am convinced it must be something.I heard something once and I agree with it; if you have minor allergies and then you put them all on top of eachother then it becomes culumative and effects you more. So if you have a minor dust allergy, and maybe cat, etc... then maybe one minor food - that can all accumulate I would guess!Oh and Pulmicort is the same as budesonide. Thanks for your story!Sue>> My husband, Mike, seems to have a similar story.. His symptoms started in his early 20's. And asthma symptoms came in his late 20's (he is now 33). When we first started dating, I told him he " gurgled " in his sleep. I have been wearing ear plugs for the past four years, and feel guilty when the gurgling is so loud I have to wake him up in the middle of the night to blow his nose. This has been the case until very recently.> > He was desensitized over a year ago. Since then, like clockwork, he has taken a tapering amount of prednisone once a month, out of necessity to breath. Because of what we understand about prednisone (although to our surprise some folks in this group have done okay on it longer term), it became a deal breaker in regards to his treatment. My husband and I agreed that if one more month passed that he had to take prednisone, he would see an integrative medicine doctor who came highly recommended. He is in the medical field and highly skeptical about anything other than western meds and approach to disease.> > Two months have passed since seeing this new dr, and he cannot remember the last time he could breath for two consecutive months (without prednisone, polypectomy, surgery). It was through a diet cleanse, along with supplements (I.e. Aller-c; olive leaf extract..) that he can now breath like he has not since the onset! And I haven't had to wear my ear plugs! There is still some trial and error, but at least now through eating ultra healthy and doing a diet detox, he can identify (and accept that he cannot have) the triggers: wine, beer, wheat, dairy, to name a few. Mike is still on the road to recovery, but he has been able to lower his aspirin dose and eliminate a couple of prescriptions from the long list.> > I just strongly recommend to anyone facing this..or at least those who haven't found something that works for them.. to be open to trying to find an integrative doc..someone who knows both western and eastern / holistic practices. It does seem to be a challenge to these alt med doctors, like western dr's, but they seem more likely to look at the whole lifestyle of a person..and his dr said that polyps are actually a sign of a healthy individual because the body is trying to get rid of toxins. > > Anyway, hope this story helps.> > Sabina> > P.s. He wasn't inhaling pulmacort directly, but he was inhaling a vile of budesonide nightly while laying down. > > Sent from my Verizon Wireless BlackBerry> > Thanks and questions> > Thanks for all the great information that you all share. I have found it very useful and interesting. It's nice to know that others out there share some of the same difficulties.> > My story:> > - Developed Samter's in my early 20s (never had allergies, etc... before)> - Started having wheezing symptoms after taking major doses of aspirin, etc.. for sinus headaches> - I've had 4 sinus surgeres (including a frontal obliteration which has been wonderful at reducing my headaches)> - I was in denial about having asthma (never symptoms unless I took aspirin/nsaids; before pregnancy had horrible asthma and afterwards too - now on Zyflo successful in treating the asthma - doesn't seem to be helping the polyps (and Singulair didn't either)> - Also on Advair> - Was desensitized, until pregnancy... haven't been again as it didn't seem to help me> - Was on low dose of prednisone for many years and developed Adrenal insufficiency (the miracle and devil drug...) Better now but weary about it - but it's the only thing that helps with the inflammation.> > Questions:> > Anyone doing pulmicort respules directly into nose. How can I do it more effectively (laying on bed upside down...) I just have a hard time keeping up with it as during the year I am a school teacher and these sinus infections just take the life out of me. I feel like I am always stressed at work and I am sure this exacerbates my condition... I always want to nap; never feel refreshed. I was using it in my neilmed rinse but it wasn't working well enough. I am now on a pred. taper (60 - 10 in 6 days) and hoping I can open my frontals again as they were closed. > > I know it is important to keep this up, but any ideas to help? I seem to get so little sleep with my sinuses (I feel like water is gurgling all the time in my nose - very loud - even ear plugs don't help hubby).> > - How do you cope better with loss of SOS? I hate it to death. I find myself eating more. I love things with texture now.... From your experience (other than being on pred.) is there anything else that may help? > > - Anyone else look into eosinophils being high? Churg Strauss or eosinophilia? Mine are okay right now. > > - I just had a recent skin test done again and came back with no positives for environmental allergies. This is really perplexing considering how I feel, but maybe not as it is all year round. I even keep the cat out of my bed now but still feel horrible(supposedly have a allergy to him..., maybe it's the dander holding on for a while...) How does one understand all this " inflammation " but nothing really to pin it on?> > - Finally, they have cultured pseucdomonas and staph. Pseudomonas really scare me - I feel like I have a chronic infection... Thanks for all the advice on this and I'll be glad to hear more. > > - Anyone's doctor suspect fungal infection as well. We went that route for a while no real change.> > Thanks for indulging me in this long email. I feel that I am always " sick " and try to do my best. But it is discouraging and frustrating... and as many say many do not understand - although they try very hard. I feel like they must think I'm crazy at times and I should just try a decongestant (been there done that...). Just a lonely disease if that is what you can call it. > > Sue > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2011 Report Share Posted August 5, 2011 Wow, that sounds great for you. I hope you can get off the inhalers. I have been off mine for a few months now and it is night and day! I hear you about the Vitamin D.... my regular GP tested me and low and behold I was low in that. I took supplements (didn't notice any change when I took the supplement though) and have since stopped. I am going to restart again and supposed to get another blood test. Hopefully that is back up.  I did read though that maybe low Potassium can cause adrenal issues. I have been tracking my vitamins and calories online and noticed I only get about 1,000 out of 4,700 of the needed amount... perhaps I need to just eat more Potassium and I would feel better too. Can't hurt.  I hope you continue to do well and best wishes! SueOn Fri, Aug 5, 2011 at 6:43 PM, hopefaithlove2006 <michellemdo@...> wrote:  Sue, I can relate. My new allergist/immunologist ran a zillion tests on me and I was very low on Vitamin D. I would have never bothered to look into it as I am not really a ' vitamin' taker but then I googled symptoms of low vitamin d and surprise surprise. I found very helpful and agreed to take massive amounts of iu's (12,000 per day) and after two months, my base line went from ten to sixty (range was 60-100). I swear I am still amazed at how my energy levels increased and I felt more like me than ever before,even in midst of ongoing allergies/asthma/polyps flaring. WOW. I didn't think it possible. I recommend any of us samters to look at their vitamin d blood levels. Another trick I JUST was taught by my doc (after all these freakin years of prednisone use!) was when my asthma starts acting up, instead of turning to emergency doses of prednisone she said I could up my flovent dose so instead of two puffs two times per day, I could go 4 puffs 2 times per day and GUESS WHAT....it worked! After a few days, when the wheezy's passed, she told me to back down to 3 puffs 2 times a day and then back to normal..... She said it is like prednisone but without side affects. I have only had to do this once so far......I feel empowered now, not at mercy of prednisone..... I am also currently on xolair (potent med) so I am sure it also helped. I also take Zyflo. I am month 5 on xolair and then plan is to be on it for up to 12 months while we knocknout each step in overall plan. Once I can attain aspirin desens she believes I will no longer need inhalers....fingers crossed! > > Thanks for all the great information that you all share. I have found it very useful and interesting. It's nice to know that others out there share some of the same difficulties. > > My story: > > - Developed Samter's in my early 20s (never had allergies, etc... before) > - Started having wheezing symptoms after taking major doses of aspirin, etc.. for sinus headaches > - I've had 4 sinus surgeres (including a frontal obliteration which has been wonderful at reducing my headaches) > - I was in denial about having asthma (never symptoms unless I took aspirin/nsaids; before pregnancy had horrible asthma and afterwards too - now on Zyflo successful in treating the asthma - doesn't seem to be helping the polyps (and Singulair didn't either) > - Also on Advair > - Was desensitized, until pregnancy... haven't been again as it didn't seem to help me > - Was on low dose of prednisone for many years and developed Adrenal insufficiency (the miracle and devil drug...) Better now but weary about it - but it's the only thing that helps with the inflammation. > > Questions: > > Anyone doing pulmicort respules directly into nose. How can I do it more effectively (laying on bed upside down...) I just have a hard time keeping up with it as during the year I am a school teacher and these sinus infections just take the life out of me. I feel like I am always stressed at work and I am sure this exacerbates my condition... I always want to nap; never feel refreshed. I was using it in my neilmed rinse but it wasn't working well enough. I am now on a pred. taper (60 - 10 in 6 days) and hoping I can open my frontals again as they were closed. > > I know it is important to keep this up, but any ideas to help? I seem to get so little sleep with my sinuses (I feel like water is gurgling all the time in my nose - very loud - even ear plugs don't help hubby). > > - How do you cope better with loss of SOS? I hate it to death. I find myself eating more. I love things with texture now.... From your experience (other than being on pred.) is there anything else that may help? > > - Anyone else look into eosinophils being high? Churg Strauss or eosinophilia? Mine are okay right now. > > - I just had a recent skin test done again and came back with no positives for environmental allergies. This is really perplexing considering how I feel, but maybe not as it is all year round. I even keep the cat out of my bed now but still feel horrible(supposedly have a allergy to him..., maybe it's the dander holding on for a while...) How does one understand all this " inflammation " but nothing really to pin it on? > > - Finally, they have cultured pseucdomonas and staph. Pseudomonas really scare me - I feel like I have a chronic infection... Thanks for all the advice on this and I'll be glad to hear more. > > - Anyone's doctor suspect fungal infection as well. We went that route for a while no real change. > > Thanks for indulging me in this long email. I feel that I am always " sick " and try to do my best. But it is discouraging and frustrating... and as many say many do not understand - although they try very hard. I feel like they must think I'm crazy at times and I should just try a decongestant (been there done that...). Just a lonely disease if that is what you can call it. > > Sue > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2011 Report Share Posted August 5, 2011 Vitamin D is definitely helpful. I have been taking 4000 IU's a day for about 5 years, and although it does not seem to help my immune system - still lots of sinus infections - it makes me feel better, clearer and more energy. I just had aspirin desens and am hoping that that will help with the infections. Also discovered an antihistamine that really helps the snot and sneezing attacks - Clarinex. Doc gave it to me during desens and now I find that I sleep a lot better without waking up every night at 4 AM to have a sneezing attack. Good luck! > samters > From: michellemdo@...> Date: Fri, 5 Aug 2011 22:43:55 +0000> Subject: Re: Thanks and questions> > Sue,> > I can relate. My new allergist/immunologist ran a zillion tests on me and I was very low on Vitamin D. I would have never bothered to look into it as I am not really a ' vitamin' taker but then I googled symptoms of low vitamin d and surprise surprise. I found very helpful and agreed to take massive amounts of iu's (12,000 per day) and after two months, my base line went from ten to sixty (range was 60-100).> > I swear I am still amazed at how my energy levels increased and I felt more like me than ever before,even in midst of ongoing allergies/asthma/polyps flaring. WOW.> > I didn't think it possible. I recommend any of us samters to look at their vitamin d blood levels.> > Another trick I JUST was taught by my doc (after all these freakin years of prednisone use!) was when my asthma starts acting up, instead of turning to emergency doses of prednisone she said I could up my flovent dose so instead of two puffs two times per day, I could go 4 puffs 2 times per day and GUESS WHAT....it worked! After a few days, when the wheezy's passed, she told me to back down to 3 puffs 2 times a day and then back to normal..... She said it is like prednisone but without side affects. I have only had to do this once so far......I feel empowered now, not at mercy of prednisone.....> > I am also currently on xolair (potent med) so I am sure it also helped. I also take Zyflo. I am month 5 on xolair and then plan is to be on it for up to 12 months while we knocknout each step in overall plan. Once I can attain aspirin desens she believes I will no longer need inhalers....fingers crossed!> > > >> > Thanks for all the great information that you all share. I have found it very useful and interesting. It's nice to know that others out there share some of the same difficulties.> > > > My story:> > > > - Developed Samter's in my early 20s (never had allergies, etc... before)> > - Started having wheezing symptoms after taking major doses of aspirin, etc.. for sinus headaches> > - I've had 4 sinus surgeres (including a frontal obliteration which has been wonderful at reducing my headaches)> > - I was in denial about having asthma (never symptoms unless I took aspirin/nsaids; before pregnancy had horrible asthma and afterwards too - now on Zyflo successful in treating the asthma - doesn't seem to be helping the polyps (and Singulair didn't either)> > - Also on Advair> > - Was desensitized, until pregnancy... haven't been again as it didn't seem to help me> > - Was on low dose of prednisone for many years and developed Adrenal insufficiency (the miracle and devil drug...) Better now but weary about it - but it's the only thing that helps with the inflammation.> > > > Questions:> > > > Anyone doing pulmicort respules directly into nose. How can I do it more effectively (laying on bed upside down...) I just have a hard time keeping up with it as during the year I am a school teacher and these sinus infections just take the life out of me. I feel like I am always stressed at work and I am sure this exacerbates my condition... I always want to nap; never feel refreshed. I was using it in my neilmed rinse but it wasn't working well enough. I am now on a pred. taper (60 - 10 in 6 days) and hoping I can open my frontals again as they were closed. > > > > I know it is important to keep this up, but any ideas to help? I seem to get so little sleep with my sinuses (I feel like water is gurgling all the time in my nose - very loud - even ear plugs don't help hubby).> > > > - How do you cope better with loss of SOS? I hate it to death. I find myself eating more. I love things with texture now.... From your experience (other than being on pred.) is there anything else that may help? > > > > - Anyone else look into eosinophils being high? Churg Strauss or eosinophilia? Mine are okay right now. > > > > - I just had a recent skin test done again and came back with no positives for environmental allergies. This is really perplexing considering how I feel, but maybe not as it is all year round. I even keep the cat out of my bed now but still feel horrible(supposedly have a allergy to him..., maybe it's the dander holding on for a while...) How does one understand all this "inflammation" but nothing really to pin it on?> > > > - Finally, they have cultured pseucdomonas and staph. Pseudomonas really scare me - I feel like I have a chronic infection... Thanks for all the advice on this and I'll be glad to hear more. > > > > - Anyone's doctor suspect fungal infection as well. We went that route for a while no real change.> > > > Thanks for indulging me in this long email. I feel that I am always "sick" and try to do my best. But it is discouraging and frustrating... and as many say many do not understand - although they try very hard. I feel like they must think I'm crazy at times and I should just try a decongestant (been there done that...). Just a lonely disease if that is what you can call it. > > > > Sue > >> > > > > ------------------------------------> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2011 Report Share Posted August 6, 2011 so sorry for the delay!! after giving it more thought, and because everyone who experiences samters reacts differently to various treatments, i figured it is probably best to just give a general idea of the diet, and refer you to a book the doctor wrote, the new millenium diet revolution, by dr. keith deorio (i want to mention however that neither of us have read it ourselves, and i am in no way pushing it.. i just don't want to steer anyone in the wrong direction). in addition to the new diet, mike's first visit also included acupuncture and i.v. therapy. the diet is mostly proteins and veggies, and we added brown rice and quinoa. and like i mentioned, he remains avoiding sugar (uses agave nectar instead), beer, wine, wheat, gluten, coffee, dairy.. since the cleanse he has only added a few items, like protein bars, vodka, and yeast free bread. mike is not considered overweight, but he did loose a lot of weight doing this diet for six weeks. also, he really thinks the aller-c and argentyn 23 have been helpful. i'm providing a link to the doctor he had seen, and another one i found in the area, just to give examples of what to look for if you do consider seeking out this type of caregiver (we are in southern california):http://www.drdeorio.com/http://www.iprogressivemed.com/index.htmlwishing you the best!From: teacher01 <susandebisschop@...>samters Sent: Monday, August 1, 2011 7:35 AMSubject: Re: Thanks and questions Good luck to your husband! He does sound similar! I'll have to look into other eastern methods of treatment... I have seen a naturopath in the past and she was wonderful but I never saw any real improvement. I've tried the elimination diet twice (no sugar, milk, wheat, etc...) and no real improvement either. Maybe I'll try that again. I do have a few weeks before school begins again. It's just so tough with diet changes. But as someone else said on here, it may be worth it. Not sure about losing the chocolate though What stops me sometimes is that I did have the blood test for food allergies (a couple years ago it was new) and didn't show any big reactions to anything. But I am convinced it must be something. I heard something once and I agree with it; if you have minor allergies and then you put them all on top of eachother then it becomes culumative and effects you more. So if you have a minor dust allergy, and maybe cat, etc... then maybe one minor food - that can all accumulate I would guess! Oh and Pulmicort is the same as budesonide. Thanks for your story! Sue > > My husband, Mike, seems to have a similar story.. His symptoms started in his early 20's. And asthma symptoms came in his late 20's (he is now 33). When we first started dating, I told him he "gurgled" in his sleep. I have been wearing ear plugs for the past four years, and feel guilty when the gurgling is so loud I have to wake him up in the middle of the night to blow his nose. This has been the case until very recently. > > He was desensitized over a year ago. Since then, like clockwork, he has taken a tapering amount of prednisone once a month, out of necessity to breath. Because of what we understand about prednisone (although to our surprise some folks in this group have done okay on it longer term), it became a deal breaker in regards to his treatment. My husband and I agreed that if one more month passed that he had to take prednisone, he would see an integrative medicine doctor who came highly recommended. He is in the medical field and highly skeptical about anything other than western meds and approach to disease. > > Two months have passed since seeing this new dr, and he cannot remember the last time he could breath for two consecutive months (without prednisone, polypectomy, surgery). It was through a diet cleanse, along with supplements (I.e. Aller-c; olive leaf extract..) that he can now breath like he has not since the onset! And I haven't had to wear my ear plugs! There is still some trial and error, but at least now through eating ultra healthy and doing a diet detox, he can identify (and accept that he cannot have) the triggers: wine, beer, wheat, dairy, to name a few. Mike is still on the road to recovery, but he has been able to lower his aspirin dose and eliminate a couple of prescriptions from the long list. > > I just strongly recommend to anyone facing this..or at least those who haven't found something that works for them.. to be open to trying to find an integrative doc..someone who knows both western and eastern / holistic practices. It does seem to be a challenge to these alt med doctors, like western dr's, but they seem more likely to look at the whole lifestyle of a person..and his dr said that polyps are actually a sign of a healthy individual because the body is trying to get rid of toxins. > > Anyway, hope this story helps. > > Sabina > > P.s. He wasn't inhaling pulmacort directly, but he was inhaling a vile of budesonide nightly while laying down. > > Sent from my Verizon Wireless BlackBerry > > Thanks and questions > > Thanks for all the great information that you all share. I have found it very useful and interesting. It's nice to know that others out there share some of the same difficulties. > > My story: > > - Developed Samter's in my early 20s (never had allergies, etc... before) > - Started having wheezing symptoms after taking major doses of aspirin, etc.. for sinus headaches > - I've had 4 sinus surgeres (including a frontal obliteration which has been wonderful at reducing my headaches) > - I was in denial about having asthma (never symptoms unless I took aspirin/nsaids; before pregnancy had horrible asthma and afterwards too - now on Zyflo successful in treating the asthma - doesn't seem to be helping the polyps (and Singulair didn't either) > - Also on Advair > - Was desensitized, until pregnancy... haven't been again as it didn't seem to help me > - Was on low dose of prednisone for many years and developed Adrenal insufficiency (the miracle and devil drug...) Better now but weary about it - but it's the only thing that helps with the inflammation. > > Questions: > > Anyone doing pulmicort respules directly into nose. How can I do it more effectively (laying on bed upside down...) I just have a hard time keeping up with it as during the year I am a school teacher and these sinus infections just take the life out of me. I feel like I am always stressed at work and I am sure this exacerbates my condition... I always want to nap; never feel refreshed. I was using it in my neilmed rinse but it wasn't working well enough. I am now on a pred. taper (60 - 10 in 6 days) and hoping I can open my frontals again as they were closed. > > I know it is important to keep this up, but any ideas to help? I seem to get so little sleep with my sinuses (I feel like water is gurgling all the time in my nose - very loud - even ear plugs don't help hubby). > > - How do you cope better with loss of SOS? I hate it to death. I find myself eating more. I love things with texture now.... From your experience (other than being on pred.) is there anything else that may help? > > - Anyone else look into eosinophils being high? Churg Strauss or eosinophilia? Mine are okay right now. > > - I just had a recent skin test done again and came back with no positives for environmental allergies. This is really perplexing considering how I feel, but maybe not as it is all year round. I even keep the cat out of my bed now but still feel horrible(supposedly have a allergy to him..., maybe it's the dander holding on for a while...) How does one understand all this "inflammation" but nothing really to pin it on? > > - Finally, they have cultured pseucdomonas and staph. Pseudomonas really scare me - I feel like I have a chronic infection... Thanks for all the advice on this and I'll be glad to hear more. > > - Anyone's doctor suspect fungal infection as well. We went that route for a while no real change. > > Thanks for indulging me in this long email. I feel that I am always "sick" and try to do my best. But it is discouraging and frustrating... and as many say many do not understand - although they try very hard. I feel like they must think I'm crazy at times and I should just try a decongestant (been there done that...). Just a lonely disease if that is what you can call it. > > Sue > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2011 Report Share Posted August 6, 2011 Can't smell or taste at all. The last time I could smell was after a prednisone burst. It was so nice to feel like a normal person and be able to smell flowers, taste food, even to smell my stinky dog (everyone is right, he was very smelly, but I was so excited to be able to smell him). I really miss being able to smell and taste. To my understanding, the nasal nebulizer has only been around for a year, give or take. It's basically an air compressor with a hose attached to a cup (holds the medication), with two holes that you put up to your nose. It works like a breathing treatment for asthma, except instead of inhaling it through your mouth into your lungs, you lean over the sink neti-pot style and breathe it in through your sinuses. The medication comes in little pre-measured plastic vials that you break off the top and put into the cup. My doctor prescribed me 2 vials of saline solution and 1 vial of budesonide, for use twice a day. I ended up having a rare allergic reaction to the budesonide Apparently if you have taken prednisone in the past 12 months, it's rare, but you can have the reaction to budesonide - be warned, I was at a friend's wedding across the country when I was starting the budesonide and my throat was swollen, I was wheezing and having trouble breathing, and my lips and tongue were numb. My doctor flipped out when I called him cross country to ask about my symptoms. LOL So, I can't do the budesonide any longer, but still do the nasal nebuliser twice a day with just the saline solution. You are supposed to hold the cup a little away from from your nose so the medication is vaporized and you breathe it in. I have been not following the rules (since I can't do the budesonide), and have been holding the cup closer to my nostrils so it shoots the water through my sinuses. Kind of like a pressure washer for your sinuses. I'll inhale it through the nose and out through the mouth. I find that the neti-pot will flush the sinuses, then the nasal nebulizer will flush the connection to throat and get all the snot out that hangs out in the post nasal drip area. It's amazing what you can get out. This probably sounds super gross, but then again, I think everyone here has had to make peace with their mucus production, so please don't judge me. :-) It's obnoxious to have to go through the process twice a day, but I think it provides for a solid flush and has helped alleviate a lot of the pressure/pain issues. I have actually had boogers lately, which I have really weirded out my boyfriend with my excitement over, but when you're so used to constant sludge coming out and you move towards crusty, that is AWESOME! I would love to be able to take omnaris through the nasal neb, but it is still under patent and not available. The omnaris spray has worked really well for me, but it will be nice some day when it is available for the nebulizer for better absorption. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2011 Report Share Posted August 13, 2011 Nova, You can actually nebulize Omnaris by spraying it into the nebulization cup first. Be aware, however, that the effect will possibly be more powerful than by spraying it into the nose because the nebulizer will give it a far better diffusion inside your sinuses, so be prepared to lower the dose if necessary. Note that if plain saline gives fine results, you may not need to nebulize Omnaris. I tried that once with my steroid spray of the moment and found that the effect was too powerful, but I did not bother to dilute further the spray in extra saline. > > Can't smell or taste at all. The last time I could smell was after a prednisone burst. It was so nice to feel like a normal person and be able to smell flowers, taste food, even to smell my stinky dog (everyone is right, he was very smelly, but I was so excited to be able to smell him). I really miss being able to smell and taste. > > To my understanding, the nasal nebulizer has only been around for a year, give or take. It's basically an air compressor with a hose attached to a cup (holds the medication), with two holes that you put up to your nose. It works like a breathing treatment for asthma, except instead of inhaling it through your mouth into your lungs, you lean over the sink neti-pot style and breathe it in through your sinuses. The medication comes in little pre-measured plastic vials that you break off the top and put into the cup. My doctor prescribed me 2 vials of saline solution and 1 vial of budesonide, for use twice a day. I ended up having a rare allergic reaction to the budesonide Apparently if you have taken prednisone in the past 12 months, it's rare, but you can have the reaction to budesonide - be warned, I was at a friend's wedding across the country when I was starting the budesonide and my throat was swollen, I was wheezing and having trouble breathing, and my lips and tongue were numb. My doctor flipped out when I called him cross country to ask about my symptoms. LOL > > So, I can't do the budesonide any longer, but still do the nasal nebuliser twice a day with just the saline solution. You are supposed to hold the cup a little away from from your nose so the medication is vaporized and you breathe it in. I have been not following the rules (since I can't do the budesonide), and have been holding the cup closer to my nostrils so it shoots the water through my sinuses. Kind of like a pressure washer for your sinuses. I'll inhale it through the nose and out through the mouth. I find that the neti-pot will flush the sinuses, then the nasal nebulizer will flush the connection to throat and get all the snot out that hangs out in the post nasal drip area. It's amazing what you can get out. This probably sounds super gross, but then again, I think everyone here has had to make peace with their mucus production, so please don't judge me. :-) > > It's obnoxious to have to go through the process twice a day, but I think it provides for a solid flush and has helped alleviate a lot of the pressure/pain issues. I have actually had boogers lately, which I have really weirded out my boyfriend with my excitement over, but when you're so used to constant sludge coming out and you move towards crusty, that is AWESOME! > > I would love to be able to take omnaris through the nasal neb, but it is still under patent and not available. The omnaris spray has worked really well for me, but it will be nice some day when it is available for the nebulizer for better absorption. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2011 Report Share Posted August 13, 2011 I have actually wondered about that, but have never tried it. I'm checking in with my ENT in a couple weeks and will chat with him about suggested dosage in the nebulizer. What's that about not being able to see the forest for the trees? Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2011 Report Share Posted August 13, 2011 The idea with the dosage is to use the same quantity of Omnaris that you would use while spraying, at the same moments of the day (preferably only in the morning, as with all steroids).This amount should then be diluted with the amount of saline required by the nebulizer to total one nebulizing session (they usually tell you to fill the cup to a certain level).But that is actually partially wrong for two reasons :- the first being that the spraying dosage may be wrong,- and the spraying dosage may be wrong because it is determined after trials by...spraying ; nebulizing gives the product a far better access than through spraying, and a greater effect may therefore be achieved with the same quantity of product ; in plain terms, a spray mist won't go inside the sinuses but will be stopped inside the nasal fossa, whereas a nebulized mist will (at least partially) enter the sinuses if the ostia are not completely swelled shut and act where the inflammation is the greatest.So the answer is either to start with a lower-than-usual dosage and build up if it is insufficient, or with the usual dosage and taper down if it is too powerful.Either way, I'm not sure your ENT will approve tinkering with the dosages or using Omnaris off-label.>> I have actually wondered about that, but have never tried it. I'm checking in with my ENT in a couple weeks and will chat with him about suggested dosage in the nebulizer. > > What's that about not being able to see the forest for the trees?> > Thanks!> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2011 Report Share Posted August 13, 2011 Thank you for more information. I am not a professional nor expert. I figured since I put a drop of the mentioned oil in boiling water and breathed it in, how is that different in a nebulizer? I am not a scientist. Is there really a difference between steam and mist? My naturopath has put oils on a q-tip and inserted them in my nasal passages when I am congested. I sometimes do that with my nasal sprays when I am blocked. The oil I was talking about was specifically written out for me by my naturopath. I included that other information about the oil just in case someone thought of trying that and that they should consider checking with their doc first. I did make my own mixture, I used my saline (from neti pot) and one spray of Nasacort and one drop of the oil. I breathed in the mist and I could feel a little bit of the oil. I only did it for a few minutes. I can't say if it made a difference or not. It did not hurt me. I too will be asking my ENT about this. I loathe sprays. Half the time I can't spray them because I am blocked. Many other times it runs down my throat. I try every thing suggested and still I am unsuccessful. If I can use a nebulizer with the right meds for my nasal, I will be very happy. From: asfy <asfyso@...>Subject: Re: Thanks and questionssamters Date: Saturday, August 13, 2011, 12:55 PM ,I advise the greatest caution if you plan to nebulize essential oils. This is something that I would strongly discourage in view of the considerable risks. From the "general safety information" you posted, I understand that you are aware of the fact that essential oils are not to be taken lightly, but I would like to elaborate on that matter for other members who might be tempted to try.First, nebulizing sends the mist partly into the sinuses and partly into the lungs. So, unless you breathe strictly by the mouth while nebulizing, you will send essential oil particles into your lungs. The effect of doing that on asthmatic lungs is unpredictable and you may end up in the ER depending on the characteristics of your asthma. At best, you will feel your lungs burning. You mentioned adding Nasacort : this will lessen the local inflammation, but everything depends on the proportions and you have no way to tell beforehand how much Nasacort is required to combat inflammation generated by a certain amount of essential oil.Second, essential oils are extremely variable in their properties. A few are pretty safe, many have side effects, and a number are outright dangerous. For instance, the eucalyptus radiata you mentioned belongs to the small number of relatively safe oils. But, for example, another variety called eucalyptus dives (mint-eucalyptus) gives an essential oil that contains a ketone component that is neurotoxic and abortive. If a salesman unknowingly gives you the wrong variety of eucalyptus, you may end up with a catastrophe. Same thing if the product is not chemotyped (i.e. is not perfectly well defined in chemical terms - in other words if the batch has not been tested to make sure it really is what it claims and is not a mix with other essential oils).Same problem with the quantity used. Even a "safe" oil used in excessive dosage will have serious effects. And dosing essential oils is something that is pretty tricky because they are oily and require drop bottles.Also, essential oils do not mix well with water - they tend to remain as an oily drop, and will not dissolve unless mixed in a dispersant, which will allow mixing in water. This phenomenon increases the risk of an accident because when this undiluted oily drop makes contact with a human tissue, the local concentration is very high.If you are really intent on trying essential oils, stick with chemotyped, reliable ingredients and instead of nebulizing them, put a couple of drops in a bowl of boiling water and spend 10 minutes inhaling above it - drugstores even sell cone-shaped plastic inhalers to that effect. Another way to try them is to dilute them in alcohol and spray a few drops on a handkerchief to inhale for a couple of minutes. Some also use essential oil cold diffusers which nebulize a fine mist in a room. This way, you will be able to react in time should a strong reaction develop.> > >> > > Can't smell or taste at all. The last time I could smell was after a prednisone burst. It was so nice to feel like a normal person and be able to smell flowers, taste food, even to smell my stinky dog (everyone is right, he was very smelly, but I was so excited to be able to smell him). I really miss being able to smell and taste.> > > > > > To my understanding, the nasal nebulizer has only been around for a year, give or take. It's basically an air compressor with a hose attached to a cup (holds the medication), with two holes that you put up to your nose. It works like a breathing treatment for asthma, except instead of inhaling it through your mouth into your lungs, you lean over the sink neti-pot style and breathe it in through your sinuses. The medication comes in little pre-measured plastic vials that you break off the top and put into the cup. My doctor prescribed me 2 vials of saline solution and 1 vial of budesonide, for use twice a day. I ended up having a rare allergic reaction to the budesonide Apparently if you have taken prednisone in the past 12 months, it's rare, but you can have the reaction to budesonide - be warned, I was at a friend's wedding across the country when I was starting the budesonide and my throat was swollen, I was wheezing and having trouble> breathing, and my lips and tongue were numb. My doctor flipped out when I called him cross country to ask about my symptoms. LOL > > > > > > So, I can't do the budesonide any longer, but still do the nasal nebuliser twice a day with just the saline solution. You are supposed to hold the cup a little away from from your nose so the medication is vaporized and you breathe it in. I have been not following the rules (since I can't do the budesonide), and have been holding the cup closer to my nostrils so it shoots the water through my sinuses. Kind of like a pressure washer for your sinuses. I'll inhale it through the nose and out through the mouth. I find that the neti-pot will flush the sinuses, then the nasal nebulizer will flush the connection to throat and get all the snot out that hangs out in the post nasal drip area. It's amazing what you can get out. This probably sounds super gross, but then again, I think everyone here has had to make peace with their mucus production, so please don't judge me. :-)> > > > > > It's obnoxious to have to go through the process twice a day, but I think it provides for a solid flush and has helped alleviate a lot of the pressure/pain issues. I have actually had boogers lately, which I have really weirded out my boyfriend with my excitement over, but when you're so used to constant sludge coming out and you move towards crusty, that is AWESOME!> > > > > > I would love to be able to take omnaris through the nasal neb, but it is still under patent and not available. The omnaris spray has worked really well for me, but it will be nice some day when it is available for the nebulizer for better absorption.> > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2011 Report Share Posted August 14, 2011 See my comments below.> > > > >> > > > > Can't smell or taste at all. The last time I could smell was after a prednisone burst. It was so nice to feel like a normal person and be able to smell flowers, taste food, even to smell my stinky dog (everyone is right, he was very smelly, but I was so excited to be able to smell him). I really miss being able to smell and taste.> > > > > > > > > > To my understanding, the nasal nebulizer has only been around for a year, give or take. It's basically an air compressor with a hose attached to a cup (holds the medication), with two holes that you put up to your nose. It works like a breathing treatment for asthma, except instead of inhaling it through your mouth into your lungs, you lean over the sink neti-pot style and breathe it in through your sinuses. The medication comes in little pre-measured plastic vials that you break off the top and put into the cup. My doctor prescribed me 2 vials of saline solution and 1 vial of budesonide, for use twice a day. I ended up having a rare allergic reaction to the budesonide Apparently if you have taken prednisone in the past 12 months, it's rare, but you can have the reaction to budesonide - be warned, I was at a friend's wedding across the country when I was starting the budesonide and my throat was swollen, I was wheezing and having trouble> > breathing, and my lips and tongue were numb. My doctor flipped out when I called him cross country to ask about my symptoms. LOL > > > > > > > > > > So, I can't do the budesonide any longer, but still do the nasal nebuliser twice a day with just the saline solution. You are supposed to hold the cup a little away from from your nose so the medication is vaporized and you breathe it in. I have been not following the rules (since I can't do the budesonide), and have been holding the cup closer to my nostrils so it shoots the water through my sinuses. Kind of like a pressure washer for your sinuses. I'll inhale it through the nose and out through the mouth. I find that the neti-pot will flush the sinuses, then the nasal nebulizer will flush the connection to throat and get all the snot out that hangs out in the post nasal drip area. It's amazing what you can get out. This probably sounds super gross, but then again, I think everyone here has had to make peace with their mucus production, so please don't judge me. :-)> > > > > > > > > > It's obnoxious to have to go through the process twice a day, but I think it provides for a solid flush and has helped alleviate a lot of the pressure/pain issues. I have actually had boogers lately, which I have really weirded out my boyfriend with my excitement over, but when you're so used to constant sludge coming out and you move towards crusty, that is AWESOME!> > > > > > > > > > I would love to be able to take omnaris through the nasal neb, but it is still under patent and not available. The omnaris spray has worked really well for me, but it will be nice some day when it is available for the nebulizer for better absorption.> > > > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2011 Report Share Posted August 14, 2011 I love this group. Why didn't I think to find it sooner? I did see website for ASL yesterday. I requested info from them and plan to take it with me next appt. I will be asking my ENT about it. I do have some polyps that are coming back...last surgery was mid 2009. He was going to wait to see if aspirin desens. made a difference. I personally think if they are already there causing blockage I am looking at removal...again. Thank you very much for all the info. It is appreciated. From: asfy <asfyso@...>; To: <samters >; Subject: Re: Thanks and questions Sent: Sun, Aug 14, 2011 3:16:59 PM See my comments below.> > > > >> > > > > Can't smell or taste at all. The last time I could smell was after a prednisone burst. It was so nice to feel like a normal person and be able to smell flowers, taste food, even to smell my stinky dog (everyone is right, he was very smelly, but I was so excited to be able to smell him). I really miss being able to smell and taste.> > > > > > > > > > To my understanding, the nasal nebulizer has only been around for a year, give or take. It's basically an air compressor with a hose attached to a cup (holds the medication), with two holes that you put up to your nose. It works like a breathing treatment for asthma, except instead of inhaling it through your mouth into your lungs, you lean over the sink neti-pot style and breathe it in through your sinuses. The medication comes in little pre-measured plastic vials that you break off the top and put into the cup. My doctor prescribed me 2 vials of saline solution and 1 vial of budesonide, for use twice a day. I ended up having a rare allergic reaction to the budesonide Apparently if you have taken prednisone in the past 12 months, it's rare, but you can have the reaction to budesonide - be warned, I was at a friend's wedding across the country when I was starting the budesonide and my throat was swollen, I was wheezing and having trouble> > breathing, and my lips and tongue were numb. My doctor flipped out when I called him cross country to ask about my symptoms. LOL > > > > > > > > > > So, I can't do the budesonide any longer, but still do the nasal nebuliser twice a day with just the saline solution. You are supposed to hold the cup a little away from from your nose so the medication is vaporized and you breathe it in. I have been not following the rules (since I can't do the budesonide), and have been holding the cup closer to my nostrils so it shoots the water through my sinuses. Kind of like a pressure washer for your sinuses. I'll inhale it through the nose and out through the mouth. I find that the neti-pot will flush the sinuses, then the nasal nebulizer will flush the connection to throat and get all the snot out that hangs out in the post nasal drip area. It's amazing what you can get out. This probably sounds super gross, but then again, I think everyone here has had to make peace with their mucus production, so please don't judge me. :-)> > > > > > > > > > It's obnoxious to have to go through the process twice a day, but I think it provides for a solid flush and has helped alleviate a lot of the pressure/pain issues. I have actually had boogers lately, which I have really weirded out my boyfriend with my excitement over, but when you're so used to constant sludge coming out and you move towards crusty, that is AWESOME!> > > > > > > > > > I would love to be able to take omnaris through the nasal neb, but it is still under patent and not available. The omnaris spray has worked really well for me, but it will be nice some day when it is available for the nebulizer for better absorption.> > > > >> >> Quote Link to comment Share on other sites More sharing options...
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