Re: The Finish of my Self Desensitizin

[Guest guest]

I'm glad you're ok.

>

> Hello All,

> Well, I just got home from the emergency room due to my self

> desensitizing. What a jerk! Started fine. 1/2 baby - then 1 baby-

> all was fine - felt fine - so I went to 1 1/2 baby aspirin --------

> all hell broke out!! My throat closed - my face was swollen and on

> fire. My wife drove me to the hospital (5 minutes away). They took

> me right in - shot me up with an epi - medrol - pepsid - and I stayed

> for hours while I recovered. - Went home with mega persriptions for

> more stinking steroids - and others.

> I will now wait (as I shoul have) for my insurance company to give me

> permission to do this in the hospital as highly recommended by most.

> Never did I think I would have such a violent reaction from 1 1/2

> BABY ASPIRIN!!! So, as you all know - the prednesone makes me

> shakey, erritable, and it get pimples on my nose, and blood spots on

> my hands.

> GOD! I hate this!!!

> I'll let you know if I ever get the chance to desensitise in the

> protection of a doctor.

> I was even thinking of going to that SCRIPP clinic in California.

> The cost of the air fare is surely cheaper than the over $5,000 out

> of pocket expenses I had in 2007.

> Thanks,

> Dan

>

[Guest guest]

What was the time delay between the doses? The self-desensitization I used successfully was one dose a day and started with a much lower dose (if I remember correctly about 5 mg. - much less that 1/2 baby aspirin) and went up gradually over 30+ days. Anyone attempting this should have all the rescue medicines at hand and someone nearby.

Carl

The Finish of my Self Desensitizin

Hello All,Well, I just got home from the emergency room due to my self desensitizing. What a jerk! Started fine. 1/2 baby - then 1 baby- all was fine - felt fine - so I went to 1 1/2 baby aspirin -------- all hell broke out!! My throat closed - my face was swollen and on fire. My wife drove me to the hospital (5 minutes away). They took me right in - shot me up with an epi - medrol - pepsid - and I stayed for hours while I recovered. - Went home with mega persriptions for more stinking steroids - and others.I will now wait (as I shoul have) for my insurance company to give me permission to do this in the hospital as highly recommended by most. Never did I think I would have such a violent reaction from 1 1/2 BABY ASPIRIN!!! So, as you all know - the prednesone makes me shakey, erritable, and it get pimples on my nose, and blood spots on my hands.GOD! I hate this!!!I'll let you know if I ever get the chance to desensitise in the protection of a doctor. I was even thinking of going to that SCRIPP clinic in California. The cost of the air fare is surely cheaper than the over $5,000 out of pocket expenses I had in 2007.Thanks,Dan

[Guest guest]

Bob, So sorry you went through what you did. We all hate this disease and I hurt for you and all of us when I hear of your difficulties. Now you know that you will have to do this with a doctor close by. I still believe that aspirin desens is worth the try for you. It has certainly helped me considerably. I'm keeping my fingers crossed for you. JaneBob <rthomp0215@...> wrote: I'm glad you're ok.>> Hello All,> Well, I just got home from the emergency room due to my self > desensitizing. What a jerk! Started fine. 1/2 baby - then 1 baby- > all was fine - felt fine - so I went to 1 1/2 baby aspirin -------- > all hell broke out!! My throat closed - my face was swollen and on > fire. My wife drove me to the hospital (5 minutes away). They took > me right in - shot me up with an epi - medrol - pepsid - and I stayed > for hours while I recovered. - Went home with mega persriptions for > more stinking steroids - and others.> I will now wait (as I shoul have) for my insurance company to give me > permission to do this in the hospital as highly recommended by most. > Never did I think I would have such a violent reaction from 1 1/2 > BABY ASPIRIN!!! So, as you

all know - the prednesone makes me > shakey, erritable, and it get pimples on my nose, and blood spots on > my hands.> GOD! I hate this!!!> I'll let you know if I ever get the chance to desensitise in the > protection of a doctor. > I was even thinking of going to that SCRIPP clinic in California. > The cost of the air fare is surely cheaper than the over $5,000 out > of pocket expenses I had in 2007.> Thanks,> Dan>

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[Guest guest]

Dan,

I'm really sorry to hear about this. I am so glad that you are okay

now.

I have to say I do appreciate you posting this as a cautionary tale

for others. There are many here who have done self-desensitization

successfully. Their protocols may not work for everyone, but

certainly we have seen that when people go outside of those protocols

it becomes very dangerous. (For me it would be dangerous, period,

due to the severity of my aspirin reaction.)

Ken has posted a lot of information about self-desensitization in the

files here on the site, and there have been recent experiences that

have showed us that pushing the dose too soon is not a good idea.

One baby aspirin is a LOT of aspirin for a desensitization! At

Scripps they do not start you out that large. I reacted severely to

about 10 milligrams.

I was desensitized twice at Scripps, and both times I was able to

take a few extra days and make it into a vacation, as I find it is

one of the most beautiful places in the world out there. You can get

discount rates at some of the hotels in La Jolla if you are a patient

in the hospital. Two of the hotels are quite affordable, especially

for such a serene and lovely place.

Plus I felt so much better after the desensitization. It was like

heaven for me!

Dan, I hear and appreciate and understand your frustration. I hope

you feel better soon and that your insurance gets on the ball and

approves this ASAP.

Lori

>

> Hello All,

> Well, I just got home from the emergency room due to my self

> desensitizing. What a jerk! Started fine. 1/2 baby - then 1 baby-

> all was fine - felt fine - so I went to 1 1/2 baby aspirin --------

> all hell broke out!! My throat closed - my face was swollen and on

> fire. My wife drove me to the hospital (5 minutes away). They

took

> me right in - shot me up with an epi - medrol - pepsid - and I

stayed

> for hours while I recovered. - Went home with mega persriptions

for

> more stinking steroids - and others.

> I will now wait (as I shoul have) for my insurance company to give

me

> permission to do this in the hospital as highly recommended by

most.

> Never did I think I would have such a violent reaction from 1 1/2

> BABY ASPIRIN!!! So, as you all know - the prednesone makes me

> shakey, erritable, and it get pimples on my nose, and blood spots

on

> my hands.

> GOD! I hate this!!!

> I'll let you know if I ever get the chance to desensitise in the

> protection of a doctor.

> I was even thinking of going to that SCRIPP clinic in California.

> The cost of the air fare is surely cheaper than the over $5,000 out

> of pocket expenses I had in 2007.

> Thanks,

> Dan

>

[Guest guest]

It’s the accumulation of the aspirin in your blood that’s

what got me the first day but after a terror night of puking and stuff I took

an aspirin the next day with no effect and so on for 2 weeks until I was eating

1.3g. But everyone’s different and you made it. Just as well your wife

was there.

Anyway good luck to sorting through it.

Incidentally I went to see the doc and he gave me a 10 day

antibiotics course, the usual nasonex and some funny stuff which is generally

used for the mouth called atrovent ipratroio, it’s strange but I take it

up the nose and recently my taste and smell have returned slightly. First time

in a year.

Cheers off to do a web search

From: samters

[mailto:samters ] On Behalf Of dm.teal1

Sent: 10 February, 2008 11:25

samters

Subject: The Finish of my Self Desensitizin

Hello All,

Well, I just got home from the emergency room due to my self

desensitizing. What a jerk! Started fine. 1/2 baby - then 1 baby-

all was fine - felt fine - so I went to 1 1/2 baby aspirin --------

all hell broke out!! My throat closed - my face was swollen and on

fire. My wife drove me to the hospital (5 minutes away). They took

me right in - shot me up with an epi - medrol - pepsid - and I stayed

for hours while I recovered. - Went home with mega persriptions for

more stinking steroids - and others.

I will now wait (as I shoul have) for my insurance company to give me

permission to do this in the hospital as highly recommended by most.

Never did I think I would have such a violent reaction from 1 1/2

BABY ASPIRIN!!! So, as you all know - the prednesone makes me

shakey, erritable, and it get pimples on my nose, and blood spots on

my hands.

GOD! I hate this!!!

I'll let you know if I ever get the chance to desensitise in the

protection of a doctor.

I was even thinking of going to that SCRIPP clinic in California.

The cost of the air fare is surely cheaper than the over $5,000 out

of pocket expenses I had in 2007.

Thanks,

Dan