Naso Neb users?

Posted August 20, 2011 · August 20, 2011

Are there any here in group? The first time I ever heard of the term Naso-Neb

was here in this group and it was like a light bulb went off in my head.

I got my own nebulizer for my asthma about 6 years ago and that thing has saved

me from going to the hospital many, many times.

Why wouldn't the Naso-Neb be life changing for the polyp and sinusitis issues?!

I looked online and found ASL, a company who markets Topical Sinus Therapies.

They called me and I spoke with one of their sales persons. I got my packet in

the mail and I will certainly be having a conversation with my ENT in the very

near future. (I did try my own home made recipe just out of curiosity but not

something I would do again)

Has anyone here used this type of treatment? How has it worked for you? I am a

bit excited to think my life can be somewhat 'normal' and I won't be left

days/weeks/months behind due to 'another sinus infection'.

And the possibility of never having to use a nasal spray again.....OMG!

Posted August 20, 2011 · August 20, 2011

I think there are a lot of users in the group. I believe most folks use

budesonide. I, unfortunately, had a rare allergic reaction to budesonide (which

apparently can happen when you have been on predisone within the last 12

months), so have just been using the nasal neb with saline only, which has still

been great.

My doctor just gave me a script to try mometazone in the nasal neb. I just got

the shipment from ASL, and am excited to try it. Has anyone else use

mometazone?

Posted August 21, 2011 · August 21, 2011

I have been using the NasoNeb for about 15 months and it has been life-changing

for me. I started out with Mometasone, but insurance suddenly dropped coverage,

so my doctor switched me to Budesonide and that has been just as effective.

Before I started on the NasoNeb, my doctor put me on a short course of

prednisone to shrink my polyps and get my sense of smell back. I think that was

key, because I started out with the nebulizer when my sinuses were clear, and

they have been clear ever since.

I had had 4 sinus surgeries and each time my polyps would return within 6 months

and I had spent much of the previous 10 years without my sense of smell. So you

can imagine how wonderful it is to have my sense of smell continually for 15

months. I use the Nasoneb once a day. I have only had one cold, and my doctor

recommended using the Nasoneb 3X a day until I cleared up and though I was

skeptical, it worked!

I hope this helps, and good luck!

Uri

>

> Are there any here in group? The first time I ever heard of the term Naso-Neb

was here in this group and it was like a light bulb went off in my head.

>

> I got my own nebulizer for my asthma about 6 years ago and that thing has

saved me from going to the hospital many, many times.

>

> Why wouldn't the Naso-Neb be life changing for the polyp and sinusitis

issues?! I looked online and found ASL, a company who markets Topical Sinus

Therapies. They called me and I spoke with one of their sales persons. I got my

packet in the mail and I will certainly be having a conversation with my ENT in

the very near future. (I did try my own home made recipe just out of curiosity

but not something I would do again)

>

> Has anyone here used this type of treatment? How has it worked for you? I am a

bit excited to think my life can be somewhat 'normal' and I won't be left

days/weeks/months behind due to 'another sinus infection'.

>

> And the possibility of never having to use a nasal spray again.....OMG!

>

Posted August 22, 2011 · August 22, 2011

I have been using the nasoneb nebulizer for about 2 months I started shortly

after my second sinus surgery. I use it twice a day with 10cc of sterile saline

and budesonide. I think it has been working but only time will tell if the

polyps grow back. I dont know if it works as well as pressure based delivery

systems (Neilmed, Sinus irrigators) but their is probably less risk of infection

because the saline is sterile and you use less of it. The only down side is it

(at least for me )took awhile to get the hang of it.

I

>

> Are there any here in group? The first time I ever heard of the term Naso-Neb

was here in this group and it was like a light bulb went off in my head.

>

> I got my own nebulizer for my asthma about 6 years ago and that thing has

saved me from going to the hospital many, many times.

>

> Why wouldn't the Naso-Neb be life changing for the polyp and sinusitis

issues?! I looked online and found ASL, a company who markets Topical Sinus

Therapies. They called me and I spoke with one of their sales persons. I got my

packet in the mail and I will certainly be having a conversation with my ENT in

the very near future. (I did try my own home made recipe just out of curiosity

but not something I would do again)

>

> Has anyone here used this type of treatment? How has it worked for you? I am a

bit excited to think my life can be somewhat 'normal' and I won't be left

days/weeks/months behind due to 'another sinus infection'.

>

> And the possibility of never having to use a nasal spray again.....OMG!

>

Posted August 26, 2011 · August 26, 2011

Can you tell me what the dosage of the budesonide is? 10 cc is the amount of saline AND budesonide. I'd like to know the dosage of the budesonide itself.

And could you explain a little further on the "get the hang of it" part. I'm going to be doing it for the first time using my regular nebulizer and connecting it to the hose for my cpap machine. Any tips would be appreciated.

Crusher

From: damianodavid <damianodavid@...>samters Sent: Monday, August 22, 2011 7:10 PMSubject: Re: Naso Neb users?

I have been using the nasoneb nebulizer for about 2 months I started shortly after my second sinus surgery. I use it twice a day with 10cc of sterile saline and budesonide. I think it has been working but only time will tell if the polyps grow back. I dont know if it works as well as pressure based delivery systems (Neilmed, Sinus irrigators) but their is probably less risk of infection because the saline is sterile and you use less of it. The only down side is it (at least for me )took awhile to get the hang of it. I.

Posted August 26, 2011 · August 26, 2011

0.6mg mometasone (this is diluted into a vial that contains 2mg total, but the

concentration of mometasone is 0.6mg) + 10mg saline

I had an allergic reaction to budesonide, but when I did try it, it was

prescribed at 0.6mg concentration of budesonide (in a mixture totaling 2mg) +

10mg of saline.

Getting the hang of it: the nasal neb relies on vaporization, rather than sheer

force of the liquid shooting up your nose. You have to hold it a little away

from your nostrils so that the mixture comes out as a vapor. If you hold it at,

or place it in, your nostrils, it does not reach the vapor state and will not

reach a state of bliss inside your sinuses. You also want to make sure the

angle hits the back of your sinuses. It takes some playing around with, but you

will get the hang of it. The pharmacists at ASL are fabulous and will walk you

through the entire process. They are also very easy to get a hold of and will

answer any questions you may have.

Posted August 26, 2011 · August 26, 2011

Thanks for the info. That helps a lot.

Crusher

From: N Ls <novalanceseghi@...>samters Sent: Friday, August 26, 2011 8:48 PMSubject: Re: Naso Neb users?

0.6mg mometasone (this is diluted into a vial that contains 2mg total, but the concentration of mometasone is 0.6mg) + 10mg salineI had an allergic reaction to budesonide, but when I did try it, it was prescribed at 0.6mg concentration of budesonide (in a mixture totaling 2mg) + 10mg of saline.Getting the hang of it: the nasal neb relies on vaporization, rather than sheer force of the liquid shooting up your nose. You have to hold it a little away from your nostrils so that the mixture comes out as a vapor. If you hold it at, or place it in, your nostrils, it does not reach the vapor state and will not reach a state of bliss inside your sinuses. You also want to make sure the angle hits the back of your sinuses. It takes some playing around with, but you will get the hang of it. The pharmacists at ASL are fabulous and will walk you through the entire process. They are also very easy to get a hold of and will answer any questions you

may have.

Posted August 27, 2011 · August 27, 2011

I'm sorry, the Budesonide is 1: .05mg/2mL vial (TEVA) with 2: 5mL sterile

saline vials. The whole process should not take much more than 2 minutes. And

its better to stop at around that time than to keep using it. With a neti pot

the saline goes out the other nose with the nasoneb the air needs a place to go.

Since both nostrils are being used the back of the throat needs to be kept open

at all times or else it goes back into the nasoneb. And just like with a nasal

spray you have to aim to get the medication to reach the sinuses. The people at

the company are also very helpful at explaining proper use. Also, are you using

their nebulizer because I don't think it will work if you are using a regular

lung nebulizer. The particles are much larger (and need to be for it to work)

than fron a lung nebulizer.

-

>

> Can you tell me what the dosage of the budesonide is? 10 cc is the amount of

saline AND budesonide. I'd like to know the dosage of the budesonide itself.

>

> And could you explain a little further on the " get the hang of it " part. I'm

going to be doing it for the first time using my regular nebulizer and

connecting it to the hose for my cpap machine. Any tips would be appreciated.

>

> Crusher

>

> From: damianodavid <damianodavid@...>

> samters

> Sent: Monday, August 22, 2011 7:10 PM

> Subject: Re: Naso Neb users?

>

> I have been using the nasoneb nebulizer for about 2 months I started shortly

after my second sinus surgery. I use it twice a day with 10cc of sterile saline

and budesonide. I think it has been working but only time will tell if the

polyps grow back. I dont know if it works as well as pressure based delivery

systems (Neilmed, Sinus irrigators) but their is probably less risk of infection

because the saline is sterile and you use less of it. The only down side is it

(at least for me )took awhile to get the hang of it.

>

> I

> .

>

Posted August 27, 2011 · August 27, 2011

Thanks . Who's equipment? Plz point me in the right direction. I asked at a couple of places I already use and they had no clue what I was talking about. Crusher From: damianodavid <damianodavid@...>To:

samters Sent: Saturday, August 27, 2011 5:26 PMSubject: Re: Naso Neb users?

I'm sorry, the Budesonide is 1: .05mg/2mL vial (TEVA) with 2: 5mL sterile saline vials. The whole process should not take much more than 2 minutes. And its better to stop at around that time than to keep using it. With a neti pot the saline goes out the other nose with the nasoneb the air needs a place to go. Since both nostrils are being used the back of the throat needs to be kept open at all times or else it goes back into the nasoneb. And just like with a nasal spray you have to aim to get the medication to reach the sinuses. The people at the company are also very helpful at explaining proper use. Also, are you using their nebulizer because I don't think it will work if you are using a regular lung nebulizer. The particles are much larger (and need to be for it to work) than fron a lung nebulizer.

-

>

> Can you tell me what the dosage of the budesonide is? 10 cc is the amount of saline AND budesonide. I'd like to know the dosage of the budesonide itself.

>

> And could you explain a little further on the "get the hang of it" part. I'm going to be doing it for the first time using my regular nebulizer and connecting it to the hose for my cpap machine. Any tips would be appreciated.

>

> Crusher

>

> From: damianodavid <damianodavid@...>

> samters

> Sent: Monday, August 22, 2011 7:10 PM

> Subject: Re: Naso Neb users?

>

> I have been using the nasoneb nebulizer for about 2 months I started shortly after my second sinus surgery. I use it twice a day with 10cc of sterile saline and budesonide. I think it has been working but only time will tell if the polyps grow back. I dont know if it works as well as pressure based delivery systems (Neilmed, Sinus irrigators) but their is probably less risk of infection because the saline is sterile and you use less of it. The only down side is it (at least for me )took awhile to get the hang of it.

>

> I

> .

>

Posted August 27, 2011 · August 27, 2011

So are you saying that I could not just attach a separate hose with Naso Neb attachment on my current machine (which I use for my lungs)?Hmmmm. I wonder how much does it cost and are insurance companies paying for this?

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