Guest guest Posted August 31, 2000 Report Share Posted August 31, 2000 In a message dated 8/31/2000 8:38:46 AM Pacific Daylight Time, workstwomuch@... writes: << There goes his overnight visits to his buddies houses. >> Why would using a cpap (isn't that what it's called?) prevent him from sleeping over at his buddies homes? If I recall from seeing the video when had her sleep study done the machine is supposed to be easy to take along with you. Hey at least you've found out now. :-) And yes untreated apnea can cause stress to the heart. Has he ever had xrays to see if his heart is enlarged? what does his peditrician say? Hugs. And wishing you luck with getting him to use the mask. You may need it. LOL Joy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2006 Report Share Posted October 23, 2006 thank you for sharing your stories everyone! I have never seen Sara have any signs of Sleep apnea. Although more and more it scares me to think that I am missing something. I will talk to her cardiologist next month and go from there! Thanks again, Marcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2006 Report Share Posted December 13, 2006 Hi KK, Yes sleep apnea is VERY common in DS. If I remember correctly, Kathy R had sent a piece stating it was under dx in the kids too. I have heard it said that EVERY child with DS should have a sleep study before the age of..... 8?? I can't remember now. It was a single digit. ;-) I know of two adult men who use cpap's to sleep, and one adult female who was dx with sleep apnea post morteum. I think it's a very common issue for many. I was supposed to get a study done on this past summer, but I let the moment pass. Shame on me. It's the first test I have ever 'blown off'. But summer is sacred IMHO, need to call the ENT and get that scheduled though. I am pretty sure her adnoids are going to go. I can't remember, did you come up with solution to this yet? And just because I am noisy, I have to ask, how do you hear him snoring? Feel free to just ignore if it's too personal. :-) Carol in IL Mom to seven including , 6 with TOF, AVcanal, GERD, LS, Asthma, subglottal stenosis, and DS.My problem is not how I look. It's how you see me. Join our Down Syndrome information group - Down Syndrome Treatment/ Listen to oldest dd's music http://www.myspace.com/vennamusic Sleep Apnea I recalled that children with down syndrome tend to have sleeping problem, like not sleeping all the way all night, etc. Is it possible they also experience sleep apnea? From what I learned is the airway in throat is considered narrow that can close up for around a minute, less or more. That causes my son jerk all the time while he was sleeping. Also, Casey snores. He is only three years old. Will be four years old next week. That is something we need to be aware of. Hmm? Thanks. kk Check out the all-new beta - Fire up a more powerful email and get things done faster. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2006 Report Share Posted December 13, 2006 hi, carol, lol, no problem, that s arlight!! i can feel wheezing or "wet lung" - like in his chest by putting my hand on his chest. that is how i noticed that he snores. What is more, he comes to my bed and keep waking me up by moving his body around all night. That is how I realized how serious it was. Casey is to see ENT doctor this coming Monday. I will find out more about that, and I will get some solution. By the way, sleep apnea affects memory learning, performance in school, blood - diseases, strokes, high pressure blood, and others. It all dues to low oxygen incoming during sleeping. I feel it is important that that sleep apnea is under control and treated. 20 to 30 seconds without oxygen times four hundred times a night is something I do not want for my son to experience. It is not good. It is unhealthy. Soo, that is what i feel strongly toward sleep apnea. Also, my father had one, but when he lost some weight, he got off from cpap (is that air machine???). my brother has lost weight, too, but i have no idea whether he still uses cpap or not... That is something we all need to take seriously, not lightly... smile. kk -- Re: Sleep Apnea Hi KK, Yes sleep apnea is VERY common in DS. If I remember correctly, Kathy R had sent a piece stating it was under dx in the kids too. I have heard it said that EVERY child with DS should have a sleep study before the age of..... 8?? I can't remember now. It was a single digit. ;-) I know of two adult men who use cpap's to sleep, and one adult female who was dx with sleep apnea post morteum. I think it's a very common issue for many. I was supposed to get a study done on this past summer, but I let the moment pass. Shame on me. It's the first test I have ever 'blown off'. But summer is sacred IMHO, need to call the ENT and get that scheduled though. I am pretty sure her adnoids are going to go. I can't remember, did you come up with solution to this yet? And just because I am noisy, I have to ask, how do you hear him snoring? Feel free to just ignore if it's too personal. :-) Carol in IL Mom to seven including , 6 with TOF, AVcanal, GERD, LS, Asthma, subglottal stenosis, and DS.My problem is not how I look. It's how you see me. Join our Down Syndrome information group - Down Syndrome Treatment/ Listen to oldest dd's music http://www.myspace.com/vennamusic Sleep Apnea I recalled that children with down syndrome tend to have sleeping problem, like not sleeping all the way all night, etc. Is it possible they also experience sleep apnea? From what I learned is the airway in throat is considered narrow that can close up for around a minute, less or more. That causes my son jerk all the time while he was sleeping. Also, Casey snores. He is only three years old. Will be four years old next week. That is something we need to be aware of. Hmm? Thanks. kk Check out the all-new beta - Fire up a more powerful email and get things done faster. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2011 Report Share Posted May 27, 2011 Personally, I know I have been having problems sleeping although I have not been treated or diagnosed. My wife says I snore a lot so it affects her sleep too. I always feel like I need more sleep and people say I have been looking really tired. The group system has the ability to do polls; I think this would be a good topic for one. Sam - Southern Calif. On 5/26/11, Wayne <louis7680@...> wrote: > Asfy I read your recent post re; New York Times and sinusitis.There were > several responses below this article,including one from Dr. Y. Park. > I googled his name and found his site where he talks a lot about sleep apnea > and sinusitis. I wonder how many people in this group have done a sleep > study to evaluate whether they have sleep apnea or not.Has there been a > survey in this group regarding this? > > -- Sent from my mobile device Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2011 Report Share Posted May 27, 2011 Sam, sounds to me like you have it - I'm like that, been tested and yes, have it mildly. I can get to bed early enough and stay there for up to nine hours but a good night for me is only waking up two or maybe three times and the next day I'm always tired. It's so easy to grab a sleep after lunch but I try not to unless absolutely necessary in fear I won't sleep that night. The GP actually put me on Normison, a mild sleeping tablet that I take probably once a month for three or four nights to break the waking habit which does help a little. samters From: samcmiller@...Date: Fri, 27 May 2011 14:17:40 -0700Subject: Re: sleep apnea Personally, I know I have been having problems sleeping although Ihave not been treated or diagnosed. My wife says I snore a lot so itaffects her sleep too. I always feel like I need more sleep and peoplesay I have been looking really tired.The group system has the ability to do polls; I think this wouldbe a good topic for one.Sam - Southern Calif.On 5/26/11, Wayne <louis7680@...> wrote:> Asfy I read your recent post re; New York Times and sinusitis.There were> several responses below this article,including one from Dr. Y. Park.> I googled his name and found his site where he talks a lot about sleep apnea> and sinusitis. I wonder how many people in this group have done a sleep> study to evaluate whether they have sleep apnea or not.Has there been a> survey in this group regarding this?>>-- Sent from my mobile device Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2011 Report Share Posted May 29, 2011 I have apnea. I also have a cpap machine and it is my best friend I sleep like a stone now and it has made a major difference in the quality of sleep. Crusher From: Wayne <louis7680@...>samters Sent: Thursday, May 26, 2011 8:18 PMSubject: sleep apnea Asfy I read your recent post re; New York Times and sinusitis.There were several responses below this article,including one from Dr. Y. Park. I googled his name and found his site where he talks a lot about sleep apnea and sinusitis. I wonder how many people in this group have done a sleep study to evaluate whether they have sleep apnea or not.Has there been a survey in this group regarding this? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2011 Report Share Posted May 31, 2011 American Associates, Ben-Gurion University of the Negev (2011, March 15). Apnea may be cause for awakening and voiding for those with enlarged prostates. ScienceDaily. Retrieved May 31, 2011, from http://www.sciencedaily.com/releases/2011/03/110315103751.htm I intend to ask my M.D. for a sleep study to find if this affects me,hopefully before any potential problem's. I did see this above study which may explain Bph. and /or sleep apnea being the cause for urinating several times during the night. Also I don't believe obesity,chronic sinusitis etc. are the only causes of sleep apnea as a smaller airway part of evolutionary change may be responsible as wellThanks for the info on the CPAP.Wayne Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.