Guest guest Posted November 23, 2007 Report Share Posted November 23, 2007 Jack...welcome to the group...sorry you have Stills but you've found a great place. I have been where you are at now with your lower back, and it was never determined if Stills was the cause according to the Dr's, but I was a work-o-holic and powerlifter for years with little to no trouble. As a matter of fact, I was still lifting @ 32 up until 3 months before I got nailed with Stills, and the only reason I stopped lifting was that I felt " off " ....you know the feeling, you don't feel sick but you don't feel " right " either. Not long after Stills started on me, I developed incredible lower back pain. It got to the point where I couldn't stand unassisted, couldn't walk and stuff like that. A little after a year later, after tons of MRI, MRA, X-rays, CT scans and every other imaginable test they did find a lot of relatively minor problems (6-7 buldging discs that weren't that bad) and 1 herniated disc in my neck (which didn't hurt at all, then or now) from when I was in an " Evel Bonanny " mode snowtubing, yet I was in total agony. They did find a lot of (at that time) minor arthritis, espescially in my sacriatic joints (may have not spelled that right) and they hurt worse than anything, and still do. To best describe where it hurt, you just put pressure at the lower corners of your back, just above your hips. To make a long story short, I had 2 options, major surgery that scared the hell out of me or a morphine pump implant. I went with the imnplant, and barring the times when I'm really down & out (like now) it took me from a wheelchair to a walker and then finally a cane, which gets me by most of the time. There are still times when I need a walker (or worse) as I tend to do horrible from mid October through mid April, and no one knows why. Forgive me if this is hard to follow or for any typos, as I have had a bvlinding headache for a week now, have double vision (have to type with two fingers with one eye closed) and so on. I wish you the best, and ask away...this is a fantastic group of people to ask questions to, BS with, vent or whatever floats your boat. My name is Kirk, I'm now 36 (32 when Stills nailed me, and I've never hit a remission, though I do much better in the summer) and live in NE Pa with my wife, 2 sons (9 & 6) and my dog. Hope this helps, Kirk. > > Dear Stilligans, > > Hello everybody, I hope everyone enjoyed your Thanksgiving Holiday. I am a > new member of the group. I've had stills for two years. It started out with > from what I understand with the typical symptoms fever, rash, joint, muscle > pain and fatigue. Basically feeling miserable on a daily basis. I have dealt > with it by taking methotrexate and enbrel; if I have a bad flare up I'll > take prednisone. > > Lately I have had extreme lower back and hip pain, with additional extreme > pain on the bottom of my feet. It seems like I have developed sciatica. I > have also lost the ability to multitask at work. It gets to the point that I > almost have a panic attack. The simple tasks in the past now seem extremely > difficult to complete. If I complete them I have to lie down for some time > to recuperate. > > My neurologist along with my rheumatologist doesn¢t know if it¢s a stills > related. I have had an MRI with no definitive answers. I will be going to > UCLA in January to see another neurologist to check if I have peripheral > neuropathy. I was wondering if anyone also has the lower back, and foot > pain, but mostly the inability to multitask and develop a loss of control > feeling, similar to a panic attack? > Thanks > -Jack > > > > ________________________________________________________________________________\ ____ > Never miss a thing. Make Yahoo your home page. > http://www.yahoo.com/r/hs > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2007 Report Share Posted November 23, 2007 Jack...welcome to the group...sorry you have Stills but you've found a great place. I have been where you are at now with your lower back, and it was never determined if Stills was the cause according to the Dr's, but I was a work-o-holic and powerlifter for years with little to no trouble. As a matter of fact, I was still lifting @ 32 up until 3 months before I got nailed with Stills, and the only reason I stopped lifting was that I felt " off " ....you know the feeling, you don't feel sick but you don't feel " right " either. Not long after Stills started on me, I developed incredible lower back pain. It got to the point where I couldn't stand unassisted, couldn't walk and stuff like that. A little after a year later, after tons of MRI, MRA, X-rays, CT scans and every other imaginable test they did find a lot of relatively minor problems (6-7 buldging discs that weren't that bad) and 1 herniated disc in my neck (which didn't hurt at all, then or now) from when I was in an " Evel Bonanny " mode snowtubing, yet I was in total agony. They did find a lot of (at that time) minor arthritis, espescially in my sacriatic joints (may have not spelled that right) and they hurt worse than anything, and still do. To best describe where it hurt, you just put pressure at the lower corners of your back, just above your hips. To make a long story short, I had 2 options, major surgery that scared the hell out of me or a morphine pump implant. I went with the imnplant, and barring the times when I'm really down & out (like now) it took me from a wheelchair to a walker and then finally a cane, which gets me by most of the time. There are still times when I need a walker (or worse) as I tend to do horrible from mid October through mid April, and no one knows why. Forgive me if this is hard to follow or for any typos, as I have had a bvlinding headache for a week now, have double vision (have to type with two fingers with one eye closed) and so on. I wish you the best, and ask away...this is a fantastic group of people to ask questions to, BS with, vent or whatever floats your boat. My name is Kirk, I'm now 36 (32 when Stills nailed me, and I've never hit a remission, though I do much better in the summer) and live in NE Pa with my wife, 2 sons (9 & 6) and my dog. Hope this helps, Kirk. > > Dear Stilligans, > > Hello everybody, I hope everyone enjoyed your Thanksgiving Holiday. I am a > new member of the group. I've had stills for two years. It started out with > from what I understand with the typical symptoms fever, rash, joint, muscle > pain and fatigue. Basically feeling miserable on a daily basis. I have dealt > with it by taking methotrexate and enbrel; if I have a bad flare up I'll > take prednisone. > > Lately I have had extreme lower back and hip pain, with additional extreme > pain on the bottom of my feet. It seems like I have developed sciatica. I > have also lost the ability to multitask at work. It gets to the point that I > almost have a panic attack. The simple tasks in the past now seem extremely > difficult to complete. If I complete them I have to lie down for some time > to recuperate. > > My neurologist along with my rheumatologist doesn¢t know if it¢s a stills > related. I have had an MRI with no definitive answers. I will be going to > UCLA in January to see another neurologist to check if I have peripheral > neuropathy. I was wondering if anyone also has the lower back, and foot > pain, but mostly the inability to multitask and develop a loss of control > feeling, similar to a panic attack? > Thanks > -Jack > > > > ________________________________________________________________________________\ ____ > Never miss a thing. Make Yahoo your home page. > http://www.yahoo.com/r/hs > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2007 Report Share Posted November 23, 2007 Kirk, Thanks for welcoming me to the group. Its nice to that these groups are available for people. Sorry to here about your headache and double vision that would suck...I guess if its not one thing its another. Are your headaches and double vision Stills related? My Dr. thinks my nerves may be inflamed possibly causing my back and foot pain because of the Stills, the inflammation of the sciatica nerves may causing the pain in your back... It seems everyone guesses on whats wrong. Not to many people are familiar with Stills. My family has no idea what we go through. They will comment on why I don't go to family functions as often or play tennis and golf any longer. I can barely get out of bed, its hard to fall and stay a sleep. I went from very active and happy to consistent pain and grumpy. My doctor put me on disability because of my back and foot pain I was unable to walk, I " m very weak, unable to multitask at work. I'm 47, married, with a 19 year old daughter, 17 year old son, 11 year old son, and a 7 year old daughter, and a dog. My wife was diagnosed with M.S. a couple months before I came down with the stills. She is doing good. She hasn't been hit with the crippling part of her disease. I give her a shot of Avonex every week. But tomorrow will be a better day. Thank you Jack Re: New Member Questions Jack...welcome to the group...sorry you have Stills but you've found a great place. I have been where you are at now with your lower back, and it was never determined if Stills was the cause according to the Dr's, but I was a work-o-holic and powerlifter for years with little to no trouble. As a matter of fact, I was still lifting @ 32 up until 3 months before I got nailed with Stills, and the only reason I stopped lifting was that I felt " off " ....you know the feeling, you don't feel sick but you don't feel " right " either. Not long after Stills started on me, I developed incredible lower back pain. It got to the point where I couldn't stand unassisted, couldn't walk and stuff like that. A little after a year later, after tons of MRI, MRA, X-rays, CT scans and every other imaginable test they did find a lot of relatively minor problems (6-7 buldging discs that weren't that bad) and 1 herniated disc in my neck (which didn't hurt at all, then or now) from when I was in an " Evel Bonanny " mode snowtubing, yet I was in total agony. They did find a lot of (at that time) minor arthritis, espescially in my sacriatic joints (may have not spelled that right) and they hurt worse than anything, and still do. To best describe where it hurt, you just put pressure at the lower corners of your back, just above your hips. To make a long story short, I had 2 options, major surgery that scared the hell out of me or a morphine pump implant. I went with the imnplant, and barring the times when I'm really down & out (like now) it took me from a wheelchair to a walker and then finally a cane, which gets me by most of the time. There are still times when I need a walker (or worse) as I tend to do horrible from mid October through mid April, and no one knows why. Forgive me if this is hard to follow or for any typos, as I have had a bvlinding headache for a week now, have double vision (have to type with two fingers with one eye closed) and so on. I wish you the best, and ask away...this is a fantastic group of people to ask questions to, BS with, vent or whatever floats your boat. My name is Kirk, I'm now 36 (32 when Stills nailed me, and I've never hit a remission, though I do much better in the summer) and live in NE Pa with my wife, 2 sons (9 & 6) and my dog. Hope this helps, Kirk. > > Dear Stilligans, > > Hello everybody, I hope everyone enjoyed your Thanksgiving Holiday. I am a > new member of the group. I've had stills for two years. It started out with > from what I understand with the typical symptoms fever, rash, joint, muscle > pain and fatigue. Basically feeling miserable on a daily basis. I have dealt > with it by taking methotrexate and enbrel; if I have a bad flare up I'll > take prednisone. > > Lately I have had extreme lower back and hip pain, with additional extreme > pain on the bottom of my feet. It seems like I have developed sciatica. I > have also lost the ability to multitask at work. It gets to the point that I > almost have a panic attack. The simple tasks in the past now seem extremely > difficult to complete. If I complete them I have to lie down for some time > to recuperate. > > My neurologist along with my rheumatologist doesn¢t know if it¢s a stills > related. I have had an MRI with no definitive answers. I will be going to > UCLA in January to see another neurologist to check if I have peripheral > neuropathy. I was wondering if anyone also has the lower back, and foot > pain, but mostly the inability to multitask and develop a loss of control > feeling, similar to a panic attack? > Thanks > -Jack > > > > ____________ _________ _________ _________ _________ _________ _ > Never miss a thing. Make Yahoo your home page. > http://www.yahoo. com/r/hs > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2007 Report Share Posted November 23, 2007 Kirk, Thanks for welcoming me to the group. Its nice to that these groups are available for people. Sorry to here about your headache and double vision that would suck...I guess if its not one thing its another. Are your headaches and double vision Stills related? My Dr. thinks my nerves may be inflamed possibly causing my back and foot pain because of the Stills, the inflammation of the sciatica nerves may causing the pain in your back... It seems everyone guesses on whats wrong. Not to many people are familiar with Stills. My family has no idea what we go through. They will comment on why I don't go to family functions as often or play tennis and golf any longer. I can barely get out of bed, its hard to fall and stay a sleep. I went from very active and happy to consistent pain and grumpy. My doctor put me on disability because of my back and foot pain I was unable to walk, I " m very weak, unable to multitask at work. I'm 47, married, with a 19 year old daughter, 17 year old son, 11 year old son, and a 7 year old daughter, and a dog. My wife was diagnosed with M.S. a couple months before I came down with the stills. She is doing good. She hasn't been hit with the crippling part of her disease. I give her a shot of Avonex every week. But tomorrow will be a better day. Thank you Jack Re: New Member Questions Jack...welcome to the group...sorry you have Stills but you've found a great place. I have been where you are at now with your lower back, and it was never determined if Stills was the cause according to the Dr's, but I was a work-o-holic and powerlifter for years with little to no trouble. As a matter of fact, I was still lifting @ 32 up until 3 months before I got nailed with Stills, and the only reason I stopped lifting was that I felt " off " ....you know the feeling, you don't feel sick but you don't feel " right " either. Not long after Stills started on me, I developed incredible lower back pain. It got to the point where I couldn't stand unassisted, couldn't walk and stuff like that. A little after a year later, after tons of MRI, MRA, X-rays, CT scans and every other imaginable test they did find a lot of relatively minor problems (6-7 buldging discs that weren't that bad) and 1 herniated disc in my neck (which didn't hurt at all, then or now) from when I was in an " Evel Bonanny " mode snowtubing, yet I was in total agony. They did find a lot of (at that time) minor arthritis, espescially in my sacriatic joints (may have not spelled that right) and they hurt worse than anything, and still do. To best describe where it hurt, you just put pressure at the lower corners of your back, just above your hips. To make a long story short, I had 2 options, major surgery that scared the hell out of me or a morphine pump implant. I went with the imnplant, and barring the times when I'm really down & out (like now) it took me from a wheelchair to a walker and then finally a cane, which gets me by most of the time. There are still times when I need a walker (or worse) as I tend to do horrible from mid October through mid April, and no one knows why. Forgive me if this is hard to follow or for any typos, as I have had a bvlinding headache for a week now, have double vision (have to type with two fingers with one eye closed) and so on. I wish you the best, and ask away...this is a fantastic group of people to ask questions to, BS with, vent or whatever floats your boat. My name is Kirk, I'm now 36 (32 when Stills nailed me, and I've never hit a remission, though I do much better in the summer) and live in NE Pa with my wife, 2 sons (9 & 6) and my dog. Hope this helps, Kirk. > > Dear Stilligans, > > Hello everybody, I hope everyone enjoyed your Thanksgiving Holiday. I am a > new member of the group. I've had stills for two years. It started out with > from what I understand with the typical symptoms fever, rash, joint, muscle > pain and fatigue. Basically feeling miserable on a daily basis. I have dealt > with it by taking methotrexate and enbrel; if I have a bad flare up I'll > take prednisone. > > Lately I have had extreme lower back and hip pain, with additional extreme > pain on the bottom of my feet. It seems like I have developed sciatica. I > have also lost the ability to multitask at work. It gets to the point that I > almost have a panic attack. The simple tasks in the past now seem extremely > difficult to complete. If I complete them I have to lie down for some time > to recuperate. > > My neurologist along with my rheumatologist doesn¢t know if it¢s a stills > related. I have had an MRI with no definitive answers. I will be going to > UCLA in January to see another neurologist to check if I have peripheral > neuropathy. I was wondering if anyone also has the lower back, and foot > pain, but mostly the inability to multitask and develop a loss of control > feeling, similar to a panic attack? > Thanks > -Jack > > > > ____________ _________ _________ _________ _________ _________ _ > Never miss a thing. Make Yahoo your home page. > http://www.yahoo. com/r/hs > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2007 Report Share Posted November 23, 2007 Kirk, Thanks for welcoming me to the group. Its nice to that these groups are available for people. Sorry to here about your headache and double vision that would suck...I guess if its not one thing its another. Are your headaches and double vision Stills related? My Dr. thinks my nerves may be inflamed possibly causing my back and foot pain because of the Stills, the inflammation of the sciatica nerves may causing the pain in your back... It seems everyone guesses on whats wrong. Not to many people are familiar with Stills. My family has no idea what we go through. They will comment on why I don't go to family functions as often or play tennis and golf any longer. I can barely get out of bed, its hard to fall and stay a sleep. I went from very active and happy to consistent pain and grumpy. My doctor put me on disability because of my back and foot pain I was unable to walk, I " m very weak, unable to multitask at work. I'm 47, married, with a 19 year old daughter, 17 year old son, 11 year old son, and a 7 year old daughter, and a dog. My wife was diagnosed with M.S. a couple months before I came down with the stills. She is doing good. She hasn't been hit with the crippling part of her disease. I give her a shot of Avonex every week. But tomorrow will be a better day. Thank you Jack Re: New Member Questions Jack...welcome to the group...sorry you have Stills but you've found a great place. I have been where you are at now with your lower back, and it was never determined if Stills was the cause according to the Dr's, but I was a work-o-holic and powerlifter for years with little to no trouble. As a matter of fact, I was still lifting @ 32 up until 3 months before I got nailed with Stills, and the only reason I stopped lifting was that I felt " off " ....you know the feeling, you don't feel sick but you don't feel " right " either. Not long after Stills started on me, I developed incredible lower back pain. It got to the point where I couldn't stand unassisted, couldn't walk and stuff like that. A little after a year later, after tons of MRI, MRA, X-rays, CT scans and every other imaginable test they did find a lot of relatively minor problems (6-7 buldging discs that weren't that bad) and 1 herniated disc in my neck (which didn't hurt at all, then or now) from when I was in an " Evel Bonanny " mode snowtubing, yet I was in total agony. They did find a lot of (at that time) minor arthritis, espescially in my sacriatic joints (may have not spelled that right) and they hurt worse than anything, and still do. To best describe where it hurt, you just put pressure at the lower corners of your back, just above your hips. To make a long story short, I had 2 options, major surgery that scared the hell out of me or a morphine pump implant. I went with the imnplant, and barring the times when I'm really down & out (like now) it took me from a wheelchair to a walker and then finally a cane, which gets me by most of the time. There are still times when I need a walker (or worse) as I tend to do horrible from mid October through mid April, and no one knows why. Forgive me if this is hard to follow or for any typos, as I have had a bvlinding headache for a week now, have double vision (have to type with two fingers with one eye closed) and so on. I wish you the best, and ask away...this is a fantastic group of people to ask questions to, BS with, vent or whatever floats your boat. My name is Kirk, I'm now 36 (32 when Stills nailed me, and I've never hit a remission, though I do much better in the summer) and live in NE Pa with my wife, 2 sons (9 & 6) and my dog. Hope this helps, Kirk. > > Dear Stilligans, > > Hello everybody, I hope everyone enjoyed your Thanksgiving Holiday. I am a > new member of the group. I've had stills for two years. It started out with > from what I understand with the typical symptoms fever, rash, joint, muscle > pain and fatigue. Basically feeling miserable on a daily basis. I have dealt > with it by taking methotrexate and enbrel; if I have a bad flare up I'll > take prednisone. > > Lately I have had extreme lower back and hip pain, with additional extreme > pain on the bottom of my feet. It seems like I have developed sciatica. I > have also lost the ability to multitask at work. It gets to the point that I > almost have a panic attack. The simple tasks in the past now seem extremely > difficult to complete. If I complete them I have to lie down for some time > to recuperate. > > My neurologist along with my rheumatologist doesn¢t know if it¢s a stills > related. I have had an MRI with no definitive answers. I will be going to > UCLA in January to see another neurologist to check if I have peripheral > neuropathy. I was wondering if anyone also has the lower back, and foot > pain, but mostly the inability to multitask and develop a loss of control > feeling, similar to a panic attack? > Thanks > -Jack > > > > ____________ _________ _________ _________ _________ _________ _ > Never miss a thing. Make Yahoo your home page. > http://www.yahoo. com/r/hs > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2007 Report Share Posted November 23, 2007 Hi Jack, I too am sorry you found the need to find us, but like you, I'm grateful we have it available. I've had Still's for about a year and a half now. I have the back aches that are mostly in the lower back, but also move up and down the spine. They haven't gotten dibilitating yet, but I do take a lot of pain killers. That may be why I can't focus and mutitask anymore...or it could be because of the prednisone I take, or just because of the Still's. I personally believe it's a bit of all three. When I first developed this disease, I was very concerned with the fuzzy brain...but others on this board have said they all get it too. You're not alone...but maybe you can find an answer for yours. sometimes just being so tired and weak from this disease will make it impossible for your brain to do any more than rest. Take care of yourself and good luck! I hope everyone had a pain free (or close to it) Thanksgiving. Re: New Member Questions > > > Jack...welcome to the group...sorry you have Stills but you've > found a > great place. I have been where you are at now with your lower > back, and it > was never determined if Stills was the cause according to the > Dr's, but I > was a work-o-holic and powerlifter for years with little to no > trouble. As a > matter of fact, I was still lifting @ 32 up until 3 months before > I got > nailed with Stills, and the only reason I stopped lifting was that > I felt > " off " ....you know the feeling, you don't feel sick but you don't feel > " right " either. > Not long after Stills started on me, I developed incredible lower back > pain. It got to the point where I couldn't stand unassisted, > couldn't walk > and stuff like that. A little after a year later, after tons of > MRI, MRA, > X-rays, CT scans and every other imaginable test they did find a > lot of > relatively minor problems (6-7 buldging discs that weren't that > bad) and 1 > herniated disc in my neck (which didn't hurt at all, then or now) > from when > I was in an " Evel Bonanny " mode snowtubing, yet I was in total > agony. They > did find a lot of (at that time) minor arthritis, espescially in my > sacriatic joints (may have not spelled that right) and they hurt > worse than > anything, and still do. To best describe where it hurt, you just put > pressure at the lower corners of your back, just above your hips. > To make a long story short, I had 2 options, major surgery that > scared the > hell out of me or a morphine pump implant. I went with the > imnplant, and > barring the times when I'm really down & out (like now) it took me > from a > wheelchair to a walker and then finally a cane, which gets me by > most of the > time. There are still times when I need a walker (or worse) as I > tend to do > horrible from mid October through mid April, and no one knows why. > Forgive me if this is hard to follow or for any typos, as I have > had a > bvlinding headache for a week now, have double vision (have to > type with two > fingers with one eye closed) and so on. > I wish you the best, and ask away...this is a fantastic group of > peopleto ask questions to, BS with, vent or whatever floats your > boat. My name is > Kirk, I'm now 36 (32 when Stills nailed me, and I've never hit a > remission,though I do much better in the summer) and live in NE Pa > with my wife, 2 > sons (9 & 6) and my dog. > Hope this helps, Kirk. > > > > > > Dear Stilligans, > > > > Hello everybody, I hope everyone enjoyed your Thanksgiving > Holiday. I am a > > new member of the group. I've had stills for two years. It > started out with > > from what I understand with the typical symptoms fever, rash, > joint, muscle > > pain and fatigue. Basically feeling miserable on a daily basis. > I have dealt > > with it by taking methotrexate and enbrel; if I have a bad flare > up I'll > > take prednisone. > > > > Lately I have had extreme lower back and hip pain, with > additional extreme > > pain on the bottom of my feet. It seems like I have developed > sciatica. I > > have also lost the ability to multitask at work. It gets to the > point that I > > almost have a panic attack. The simple tasks in the past now > seem extremely > > difficult to complete. If I complete them I have to lie down for > some time > > to recuperate. > > > > My neurologist along with my rheumatologist doesn¢t know if it¢s > a stills > > related. I have had an MRI with no definitive answers. I will be > going to > > UCLA in January to see another neurologist to check if I have > peripheral> neuropathy. I was wondering if anyone also has the > lower back, and foot > > pain, but mostly the inability to multitask and develop a loss > of control > > feeling, similar to a panic attack? > > Thanks > > -Jack > > > > > > > > ____________ _________ _________ _________ _________ _________ _ > > Never miss a thing. Make Yahoo your home page. > > http://www.yahoo. com/r/hs > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2007 Report Share Posted November 23, 2007 Hi Jack, I too am sorry you found the need to find us, but like you, I'm grateful we have it available. I've had Still's for about a year and a half now. I have the back aches that are mostly in the lower back, but also move up and down the spine. They haven't gotten dibilitating yet, but I do take a lot of pain killers. That may be why I can't focus and mutitask anymore...or it could be because of the prednisone I take, or just because of the Still's. I personally believe it's a bit of all three. When I first developed this disease, I was very concerned with the fuzzy brain...but others on this board have said they all get it too. You're not alone...but maybe you can find an answer for yours. sometimes just being so tired and weak from this disease will make it impossible for your brain to do any more than rest. Take care of yourself and good luck! I hope everyone had a pain free (or close to it) Thanksgiving. Re: New Member Questions > > > Jack...welcome to the group...sorry you have Stills but you've > found a > great place. I have been where you are at now with your lower > back, and it > was never determined if Stills was the cause according to the > Dr's, but I > was a work-o-holic and powerlifter for years with little to no > trouble. As a > matter of fact, I was still lifting @ 32 up until 3 months before > I got > nailed with Stills, and the only reason I stopped lifting was that > I felt > " off " ....you know the feeling, you don't feel sick but you don't feel > " right " either. > Not long after Stills started on me, I developed incredible lower back > pain. It got to the point where I couldn't stand unassisted, > couldn't walk > and stuff like that. A little after a year later, after tons of > MRI, MRA, > X-rays, CT scans and every other imaginable test they did find a > lot of > relatively minor problems (6-7 buldging discs that weren't that > bad) and 1 > herniated disc in my neck (which didn't hurt at all, then or now) > from when > I was in an " Evel Bonanny " mode snowtubing, yet I was in total > agony. They > did find a lot of (at that time) minor arthritis, espescially in my > sacriatic joints (may have not spelled that right) and they hurt > worse than > anything, and still do. To best describe where it hurt, you just put > pressure at the lower corners of your back, just above your hips. > To make a long story short, I had 2 options, major surgery that > scared the > hell out of me or a morphine pump implant. I went with the > imnplant, and > barring the times when I'm really down & out (like now) it took me > from a > wheelchair to a walker and then finally a cane, which gets me by > most of the > time. There are still times when I need a walker (or worse) as I > tend to do > horrible from mid October through mid April, and no one knows why. > Forgive me if this is hard to follow or for any typos, as I have > had a > bvlinding headache for a week now, have double vision (have to > type with two > fingers with one eye closed) and so on. > I wish you the best, and ask away...this is a fantastic group of > peopleto ask questions to, BS with, vent or whatever floats your > boat. My name is > Kirk, I'm now 36 (32 when Stills nailed me, and I've never hit a > remission,though I do much better in the summer) and live in NE Pa > with my wife, 2 > sons (9 & 6) and my dog. > Hope this helps, Kirk. > > > > > > Dear Stilligans, > > > > Hello everybody, I hope everyone enjoyed your Thanksgiving > Holiday. I am a > > new member of the group. I've had stills for two years. It > started out with > > from what I understand with the typical symptoms fever, rash, > joint, muscle > > pain and fatigue. Basically feeling miserable on a daily basis. > I have dealt > > with it by taking methotrexate and enbrel; if I have a bad flare > up I'll > > take prednisone. > > > > Lately I have had extreme lower back and hip pain, with > additional extreme > > pain on the bottom of my feet. It seems like I have developed > sciatica. I > > have also lost the ability to multitask at work. It gets to the > point that I > > almost have a panic attack. The simple tasks in the past now > seem extremely > > difficult to complete. If I complete them I have to lie down for > some time > > to recuperate. > > > > My neurologist along with my rheumatologist doesn¢t know if it¢s > a stills > > related. I have had an MRI with no definitive answers. I will be > going to > > UCLA in January to see another neurologist to check if I have > peripheral> neuropathy. I was wondering if anyone also has the > lower back, and foot > > pain, but mostly the inability to multitask and develop a loss > of control > > feeling, similar to a panic attack? > > Thanks > > -Jack > > > > > > > > ____________ _________ _________ _________ _________ _________ _ > > Never miss a thing. Make Yahoo your home page. > > http://www.yahoo. com/r/hs > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2007 Report Share Posted November 23, 2007 Hi Jack, I too am sorry you found the need to find us, but like you, I'm grateful we have it available. I've had Still's for about a year and a half now. I have the back aches that are mostly in the lower back, but also move up and down the spine. They haven't gotten dibilitating yet, but I do take a lot of pain killers. That may be why I can't focus and mutitask anymore...or it could be because of the prednisone I take, or just because of the Still's. I personally believe it's a bit of all three. When I first developed this disease, I was very concerned with the fuzzy brain...but others on this board have said they all get it too. You're not alone...but maybe you can find an answer for yours. sometimes just being so tired and weak from this disease will make it impossible for your brain to do any more than rest. Take care of yourself and good luck! I hope everyone had a pain free (or close to it) Thanksgiving. Re: New Member Questions > > > Jack...welcome to the group...sorry you have Stills but you've > found a > great place. I have been where you are at now with your lower > back, and it > was never determined if Stills was the cause according to the > Dr's, but I > was a work-o-holic and powerlifter for years with little to no > trouble. As a > matter of fact, I was still lifting @ 32 up until 3 months before > I got > nailed with Stills, and the only reason I stopped lifting was that > I felt > " off " ....you know the feeling, you don't feel sick but you don't feel > " right " either. > Not long after Stills started on me, I developed incredible lower back > pain. It got to the point where I couldn't stand unassisted, > couldn't walk > and stuff like that. A little after a year later, after tons of > MRI, MRA, > X-rays, CT scans and every other imaginable test they did find a > lot of > relatively minor problems (6-7 buldging discs that weren't that > bad) and 1 > herniated disc in my neck (which didn't hurt at all, then or now) > from when > I was in an " Evel Bonanny " mode snowtubing, yet I was in total > agony. They > did find a lot of (at that time) minor arthritis, espescially in my > sacriatic joints (may have not spelled that right) and they hurt > worse than > anything, and still do. To best describe where it hurt, you just put > pressure at the lower corners of your back, just above your hips. > To make a long story short, I had 2 options, major surgery that > scared the > hell out of me or a morphine pump implant. I went with the > imnplant, and > barring the times when I'm really down & out (like now) it took me > from a > wheelchair to a walker and then finally a cane, which gets me by > most of the > time. There are still times when I need a walker (or worse) as I > tend to do > horrible from mid October through mid April, and no one knows why. > Forgive me if this is hard to follow or for any typos, as I have > had a > bvlinding headache for a week now, have double vision (have to > type with two > fingers with one eye closed) and so on. > I wish you the best, and ask away...this is a fantastic group of > peopleto ask questions to, BS with, vent or whatever floats your > boat. My name is > Kirk, I'm now 36 (32 when Stills nailed me, and I've never hit a > remission,though I do much better in the summer) and live in NE Pa > with my wife, 2 > sons (9 & 6) and my dog. > Hope this helps, Kirk. > > > > > > Dear Stilligans, > > > > Hello everybody, I hope everyone enjoyed your Thanksgiving > Holiday. I am a > > new member of the group. I've had stills for two years. It > started out with > > from what I understand with the typical symptoms fever, rash, > joint, muscle > > pain and fatigue. Basically feeling miserable on a daily basis. > I have dealt > > with it by taking methotrexate and enbrel; if I have a bad flare > up I'll > > take prednisone. > > > > Lately I have had extreme lower back and hip pain, with > additional extreme > > pain on the bottom of my feet. It seems like I have developed > sciatica. I > > have also lost the ability to multitask at work. It gets to the > point that I > > almost have a panic attack. The simple tasks in the past now > seem extremely > > difficult to complete. If I complete them I have to lie down for > some time > > to recuperate. > > > > My neurologist along with my rheumatologist doesn¢t know if it¢s > a stills > > related. I have had an MRI with no definitive answers. I will be > going to > > UCLA in January to see another neurologist to check if I have > peripheral> neuropathy. I was wondering if anyone also has the > lower back, and foot > > pain, but mostly the inability to multitask and develop a loss > of control > > feeling, similar to a panic attack? > > Thanks > > -Jack > > > > > > > > ____________ _________ _________ _________ _________ _________ _ > > Never miss a thing. Make Yahoo your home page. > > http://www.yahoo. com/r/hs > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2007 Report Share Posted November 23, 2007 Hi Jack! Welcome to the group! I will see if my husband (who has stills) will reply to this... he had such awful pain in feet it was HORRIBLE.. and I know he does get back pain... He wasn't able to think much at all when he was first diagnosed- we think mostly to the high doses of prednisone. Are you taking Pred??? That gave Bob panic attacks/anxiety also... Hope you find some answers here Theresa New Member Questions Dear Stilligans, Hello everybody, I hope everyone enjoyed your Thanksgiving Holiday. I am a new member of the group. I've had stills for two years. It started out with from what I understand with the typical symptoms fever, rash, joint, muscle pain and fatigue. Basically feeling miserable on a daily basis. I have dealt with it by taking methotrexate and enbrel; if I have a bad flare up I'll take prednisone. Lately I have had extreme lower back and hip pain, with additional extreme pain on the bottom of my feet. It seems like I have developed sciatica. I have also lost the ability to multitask at work. It gets to the point that I almost have a panic attack. The simple tasks in the past now seem extremely difficult to complete. If I complete them I have to lie down for some time to recuperate. My neurologist along with my rheumatologist doesn¢t know if it¢s a stills related. I have had an MRI with no definitive answers. I will be going to UCLA in January to see another neurologist to check if I have peripheral neuropathy. I was wondering if anyone also has the lower back, and foot pain, but mostly the inability to multitask and develop a loss of control feeling, similar to a panic attack? Thanks -Jack ____________________________________________________________________________ ________ Never miss a thing. Make Yahoo your home page. http://www.yahoo.com/r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2007 Report Share Posted November 24, 2007 , well it seems like another Stills side effect, your description hits the spot. This dam disease has so many symptoms. I have to try to stay unstressed so I don't get that " feeling " I am very worried about this because I have to be able to multitask under a stressful working environment when I go back to work. Yikes. At least I'm understanding that it may be Stills and I am not loosing my mind, I don't have much of one left... I hope Orencia works for you..I am going to look into this drug this morning. I wonder why your so low on vitamin D, that can cause concern.. -Jack Re: New Member Questions To: Stillsdisease@ yahoogroups. com > Hello , > Thanks for responding, I definitely had the fuzzy brain deal for > awhile.When I have to concentrate and multitask after a while I > seem to get frustrated that I'm not performing to my own personal > standards. I was unable to stay focused and start to panic, is > this the feeling you have? > I was informed by the doc that Pred has a lot of side effects. > -Jack > > > > > > > ________________________________________________________________________________\ ____ Never miss a thing. Make Yahoo your home page. http://www.yahoo.com/r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2007 Report Share Posted November 24, 2007 , well it seems like another Stills side effect, your description hits the spot. This dam disease has so many symptoms. I have to try to stay unstressed so I don't get that " feeling " I am very worried about this because I have to be able to multitask under a stressful working environment when I go back to work. Yikes. At least I'm understanding that it may be Stills and I am not loosing my mind, I don't have much of one left... I hope Orencia works for you..I am going to look into this drug this morning. I wonder why your so low on vitamin D, that can cause concern.. -Jack Re: New Member Questions To: Stillsdisease@ yahoogroups. com > Hello , > Thanks for responding, I definitely had the fuzzy brain deal for > awhile.When I have to concentrate and multitask after a while I > seem to get frustrated that I'm not performing to my own personal > standards. I was unable to stay focused and start to panic, is > this the feeling you have? > I was informed by the doc that Pred has a lot of side effects. > -Jack > > > > > > > ________________________________________________________________________________\ ____ Never miss a thing. Make Yahoo your home page. http://www.yahoo.com/r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2007 Report Share Posted November 24, 2007 Hello, thanks for sharing. and the heads up on the site practice tip. although I am unable to cut out the balance of this email for some reason. I am on Windows Vista I'll figure it out. Re: New Member Questions > > ________________________________________________________________________________\ ____ Get easy, one-click access to your favorites. Make Yahoo! your homepage. http://www.yahoo.com/r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2007 Report Share Posted November 24, 2007 Hello, thanks for sharing. and the heads up on the site practice tip. although I am unable to cut out the balance of this email for some reason. I am on Windows Vista I'll figure it out. Re: New Member Questions > > ________________________________________________________________________________\ ____ Get easy, one-click access to your favorites. Make Yahoo! your homepage. http://www.yahoo.com/r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2007 Report Share Posted November 24, 2007 Hello, thanks for sharing. and the heads up on the site practice tip. although I am unable to cut out the balance of this email for some reason. I am on Windows Vista I'll figure it out. Re: New Member Questions > > ________________________________________________________________________________\ ____ Get easy, one-click access to your favorites. Make Yahoo! your homepage. http://www.yahoo.com/r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2007 Report Share Posted November 24, 2007 Hi Jack, I have low Vit D, Low Vit B, B 12, anemia. And I've have peripheral neuralgia in my feet from my spine. It's a horrible feeling. The neuro did a test to discover where in my spine it came from and sure enough, he found it. I also have Triennial neuralgia in my left eye. It's like having a knife stab you in your eye about 30 times a day when you least expect it. It causes cluster headaches in my left eye which leaves me begging my husband to take me to the resort (hospital) for a pain shot when my break through pain meds just aren't enough. It's somewhat pathetic. Anyway - I have joint pain in my wrists, elbows and my spine (I have bone spurs in those places). My knees hurt at night and I'm getting Rhuematiod problems with my feet now too.. I've also had some swollen glands in my abdomen. I'm on Kineret, have been for almost two years. At first it worked ok, at least In regards to helping fevers, etc., but now, I have temps about 102 every night, so now I need to look at switching it to something else with my doc. Unfortunately, we just moved, so I have a new RD to see at the end of December. My other RD doc is awesome and he's been giving me advice by email on how to get by, but I think switching from Kineret is the only thing that is going to help me now. So yes, you could easily have some time of peripheral neuralgia in your feet and yes, it is unbearable at times. I hope this helps. Sometimes, heat helps, sometimes Ice does (The heat and Ice has to be applied to your back). Try both and see what helps you the most. It's a hard disease, but at least we can fight it. We moved so we could be with my family. We were by ourselves and living in a damp area. It made me even sicker so we decided it was time to leave. It's much easier on me and my husband to have our families around us. It's a real help for us. Welcome to the group, but I'm sorry you had to find us. At least we are all here to help each other! -- Re: New Member Questions , well it seems like another Stills side effect, your description hits the spot. This dam disease has so many symptoms. I have to try to stay unstressed so I don't get that " feeling " I am very worried about this because I have to be able to multitask under a stressful working environment when I go back to work. Yikes. At least I'm understanding that it may be Stills and I am not loosing my mind, I don't have much of one left... I hope Orencia works for you..I am going to look into this drug this morning. I wonder why your so low on vitamin D, that can cause concern.. -Jack Re: New Member Questions To: Stillsdisease@ yahoogroups. com > Hello , > Thanks for responding, I definitely had the fuzzy brain deal for > awhile.When I have to concentrate and multitask after a while I > seem to get frustrated that I'm not performing to my own personal > standards. I was unable to stay focused and start to panic, is > this the feeling you have? > I was informed by the doc that Pred has a lot of side effects. > -Jack > > > > > > > __________________________________________________________ Never miss a thing. Make Yahoo your home page. http://www.yahoo.com/r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2007 Report Share Posted November 24, 2007 Hi Jack, I have low Vit D, Low Vit B, B 12, anemia. And I've have peripheral neuralgia in my feet from my spine. It's a horrible feeling. The neuro did a test to discover where in my spine it came from and sure enough, he found it. I also have Triennial neuralgia in my left eye. It's like having a knife stab you in your eye about 30 times a day when you least expect it. It causes cluster headaches in my left eye which leaves me begging my husband to take me to the resort (hospital) for a pain shot when my break through pain meds just aren't enough. It's somewhat pathetic. Anyway - I have joint pain in my wrists, elbows and my spine (I have bone spurs in those places). My knees hurt at night and I'm getting Rhuematiod problems with my feet now too.. I've also had some swollen glands in my abdomen. I'm on Kineret, have been for almost two years. At first it worked ok, at least In regards to helping fevers, etc., but now, I have temps about 102 every night, so now I need to look at switching it to something else with my doc. Unfortunately, we just moved, so I have a new RD to see at the end of December. My other RD doc is awesome and he's been giving me advice by email on how to get by, but I think switching from Kineret is the only thing that is going to help me now. So yes, you could easily have some time of peripheral neuralgia in your feet and yes, it is unbearable at times. I hope this helps. Sometimes, heat helps, sometimes Ice does (The heat and Ice has to be applied to your back). Try both and see what helps you the most. It's a hard disease, but at least we can fight it. We moved so we could be with my family. We were by ourselves and living in a damp area. It made me even sicker so we decided it was time to leave. It's much easier on me and my husband to have our families around us. It's a real help for us. Welcome to the group, but I'm sorry you had to find us. At least we are all here to help each other! -- Re: New Member Questions , well it seems like another Stills side effect, your description hits the spot. This dam disease has so many symptoms. I have to try to stay unstressed so I don't get that " feeling " I am very worried about this because I have to be able to multitask under a stressful working environment when I go back to work. Yikes. At least I'm understanding that it may be Stills and I am not loosing my mind, I don't have much of one left... I hope Orencia works for you..I am going to look into this drug this morning. I wonder why your so low on vitamin D, that can cause concern.. -Jack Re: New Member Questions To: Stillsdisease@ yahoogroups. com > Hello , > Thanks for responding, I definitely had the fuzzy brain deal for > awhile.When I have to concentrate and multitask after a while I > seem to get frustrated that I'm not performing to my own personal > standards. I was unable to stay focused and start to panic, is > this the feeling you have? > I was informed by the doc that Pred has a lot of side effects. > -Jack > > > > > > > __________________________________________________________ Never miss a thing. Make Yahoo your home page. http://www.yahoo.com/r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2007 Report Share Posted November 24, 2007 Hi Jack, I have low Vit D, Low Vit B, B 12, anemia. And I've have peripheral neuralgia in my feet from my spine. It's a horrible feeling. The neuro did a test to discover where in my spine it came from and sure enough, he found it. I also have Triennial neuralgia in my left eye. It's like having a knife stab you in your eye about 30 times a day when you least expect it. It causes cluster headaches in my left eye which leaves me begging my husband to take me to the resort (hospital) for a pain shot when my break through pain meds just aren't enough. It's somewhat pathetic. Anyway - I have joint pain in my wrists, elbows and my spine (I have bone spurs in those places). My knees hurt at night and I'm getting Rhuematiod problems with my feet now too.. I've also had some swollen glands in my abdomen. I'm on Kineret, have been for almost two years. At first it worked ok, at least In regards to helping fevers, etc., but now, I have temps about 102 every night, so now I need to look at switching it to something else with my doc. Unfortunately, we just moved, so I have a new RD to see at the end of December. My other RD doc is awesome and he's been giving me advice by email on how to get by, but I think switching from Kineret is the only thing that is going to help me now. So yes, you could easily have some time of peripheral neuralgia in your feet and yes, it is unbearable at times. I hope this helps. Sometimes, heat helps, sometimes Ice does (The heat and Ice has to be applied to your back). Try both and see what helps you the most. It's a hard disease, but at least we can fight it. We moved so we could be with my family. We were by ourselves and living in a damp area. It made me even sicker so we decided it was time to leave. It's much easier on me and my husband to have our families around us. It's a real help for us. Welcome to the group, but I'm sorry you had to find us. At least we are all here to help each other! -- Re: New Member Questions , well it seems like another Stills side effect, your description hits the spot. This dam disease has so many symptoms. I have to try to stay unstressed so I don't get that " feeling " I am very worried about this because I have to be able to multitask under a stressful working environment when I go back to work. Yikes. At least I'm understanding that it may be Stills and I am not loosing my mind, I don't have much of one left... I hope Orencia works for you..I am going to look into this drug this morning. I wonder why your so low on vitamin D, that can cause concern.. -Jack Re: New Member Questions To: Stillsdisease@ yahoogroups. com > Hello , > Thanks for responding, I definitely had the fuzzy brain deal for > awhile.When I have to concentrate and multitask after a while I > seem to get frustrated that I'm not performing to my own personal > standards. I was unable to stay focused and start to panic, is > this the feeling you have? > I was informed by the doc that Pred has a lot of side effects. > -Jack > > > > > > > __________________________________________________________ Never miss a thing. Make Yahoo your home page. http://www.yahoo.com/r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2007 Report Share Posted November 24, 2007 Interesting...I thought I was the only one on the list who has low Vitamin D levels (among others).........Except it has never effected the way I think, I was always under pressure and do my best thinking that way. I also have low Vitamin B levels, low Potassium, low Testosterone (which, combined with prednisone is why I developed Osteoporosis in my spine so quickly) and have been anemic at times, yet often have high white blood cell counts. I never have experienced this :fuzzy " sensation you have described though, but I'll gladly take it in exchange for the headaches! Later, Kirk > > , well it seems like another Stills side effect, your description > hits the spot. This dam disease has so many symptoms. I have to try to stay > unstressed so I don't get that " feeling " I am very worried about this > because I have to be able to multitask under a stressful working environment > when I go back to work. Yikes. At least I'm understanding that it may be > Stills and I am not loosing my mind, I don't have much of one left... I hope > Orencia works for you..I am going to look into this drug this morning. I > wonder why your so low on vitamin D, that can cause concern.. > -Jack > > Re: New Member Questions > To: Stillsdisease@ yahoogroups. com > > > Hello , > > Thanks for responding, I definitely had the fuzzy brain deal for > > awhile.When I have to concentrate and multitask after a while I > > seem to get frustrated that I'm not performing to my own personal > > standards. I was unable to stay focused and start to panic, is > > this the feeling you have? > > I was informed by the doc that Pred has a lot of side effects. > > -Jack > > > > > > > > > > > > > __________________________________________________________ > Never miss a thing. Make Yahoo your home page. > http://www.yahoo.com/r/hs > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2007 Report Share Posted November 24, 2007 Interesting...I thought I was the only one on the list who has low Vitamin D levels (among others).........Except it has never effected the way I think, I was always under pressure and do my best thinking that way. I also have low Vitamin B levels, low Potassium, low Testosterone (which, combined with prednisone is why I developed Osteoporosis in my spine so quickly) and have been anemic at times, yet often have high white blood cell counts. I never have experienced this :fuzzy " sensation you have described though, but I'll gladly take it in exchange for the headaches! Later, Kirk > > , well it seems like another Stills side effect, your description > hits the spot. This dam disease has so many symptoms. I have to try to stay > unstressed so I don't get that " feeling " I am very worried about this > because I have to be able to multitask under a stressful working environment > when I go back to work. Yikes. At least I'm understanding that it may be > Stills and I am not loosing my mind, I don't have much of one left... I hope > Orencia works for you..I am going to look into this drug this morning. I > wonder why your so low on vitamin D, that can cause concern.. > -Jack > > Re: New Member Questions > To: Stillsdisease@ yahoogroups. com > > > Hello , > > Thanks for responding, I definitely had the fuzzy brain deal for > > awhile.When I have to concentrate and multitask after a while I > > seem to get frustrated that I'm not performing to my own personal > > standards. I was unable to stay focused and start to panic, is > > this the feeling you have? > > I was informed by the doc that Pred has a lot of side effects. > > -Jack > > > > > > > > > > > > > __________________________________________________________ > Never miss a thing. Make Yahoo your home page. > http://www.yahoo.com/r/hs > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2007 Report Share Posted November 24, 2007 Interesting...I thought I was the only one on the list who has low Vitamin D levels (among others).........Except it has never effected the way I think, I was always under pressure and do my best thinking that way. I also have low Vitamin B levels, low Potassium, low Testosterone (which, combined with prednisone is why I developed Osteoporosis in my spine so quickly) and have been anemic at times, yet often have high white blood cell counts. I never have experienced this :fuzzy " sensation you have described though, but I'll gladly take it in exchange for the headaches! Later, Kirk > > , well it seems like another Stills side effect, your description > hits the spot. This dam disease has so many symptoms. I have to try to stay > unstressed so I don't get that " feeling " I am very worried about this > because I have to be able to multitask under a stressful working environment > when I go back to work. Yikes. At least I'm understanding that it may be > Stills and I am not loosing my mind, I don't have much of one left... I hope > Orencia works for you..I am going to look into this drug this morning. I > wonder why your so low on vitamin D, that can cause concern.. > -Jack > > Re: New Member Questions > To: Stillsdisease@ yahoogroups. com > > > Hello , > > Thanks for responding, I definitely had the fuzzy brain deal for > > awhile.When I have to concentrate and multitask after a while I > > seem to get frustrated that I'm not performing to my own personal > > standards. I was unable to stay focused and start to panic, is > > this the feeling you have? > > I was informed by the doc that Pred has a lot of side effects. > > -Jack > > > > > > > > > > > > > __________________________________________________________ > Never miss a thing. Make Yahoo your home page. > http://www.yahoo.com/r/hs > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2008 Report Share Posted April 1, 2008 Hello, I recently joined this group to learn more about spinal stenosis and to be in contact with people who are also diagnosed with this. I am 24 years old and I was diagnosed with cervical spinal stenosis about 3 weeks ago. My doctor told me that I was born with it. I have been a track runner and horseback rider for basically my whole life. My doctor told me that I will have to change my whole lifestyle and stop doing the things I love. I own a horse and I'm not really sure what I should do with him now because I don't think I really understand how serious or not serious spinal stenosis is. I am constantly in pain and I don't know how to stop this... I'm assuming swimming will help? I am in the process of getting a second opinion with a doctor who specializes in the spine. Any advice or info is helpful... do I really have to stop running and horse riding? Thank you, E Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2008 Report Share Posted April 6, 2008 > > Hello, > I recently joined this group to learn more about spinal stenosis and > to be in contact with people who are also diagnosed with this. I am 24 > years old and I was diagnosed with cervical spinal stenosis about 3 > weeks ago. My doctor told me that I was born with it. I have been a > track runner and horseback rider for basically my whole life. My > doctor told me that I will have to change my whole lifestyle and stop > doing the things I love. I own a horse and I'm not really sure what I > should do with him now because I don't think I really understand how > serious or not serious spinal stenosis is. I am constantly in pain > and I don't know how to stop this... I'm assuming swimming will help? > I am in the process of getting a second opinion with a doctor who > specializes in the spine. > > Any advice or info is helpful... do I really have to stop running and > horse riding? > > Thank you, > E > I would get a second opionion about the horse. I have good days and bad days. It will really change your life. Pain will be your constant companion. I have the lower spinal type and I am a bit clutzy. I have been in pain for a solid almost 5 years (may 31, 2005.) But if it brings you joy you don't get joy from many places. Quote Link to comment Share on other sites More sharing options...
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