Guest guest Posted May 16, 2008 Report Share Posted May 16, 2008 Hi all - haven't been here in awhile but being back reminds me how helpful/supportive this group is for managing samters and also an awesome source of information. just how good is this site? I saw a new doctor today and he's supposedly dialled into samter's management, but there's little he told me that I could find here had I bothered to check this before I went. He wants to put me on 2400mg zyflo (600x2 twice a day). I know you can't really compare medicines but 10mg singulair vs. 2400mg zyflo seems worth an ounce of caution. anyone with experience with zyflo, what is your typical dose and have you had a better response with zyflo than singulair? He also prescribed a new nasal spray called Omnaris but I haven't tried it yet. I'll see how it goes and report back. He also added mucinex, wilson's solution and alkalol. I've had successes with mucinex before and only used wilson's solution once after surgery. I'd never before heard of alkalol but it's a refreshing eucalyptus/peppermint nasal wash and at $3/bottle (OTC) seems like a real bargain. thanks in advance if anyone has insight/experience into zyflo /iddelz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2008 Report Share Posted May 17, 2008 I had a better response to zyflo than I did to singulair. My dosage was 600 mg 4 times a day. That was hard to keep up. I believe they have made an extended release tablet. Maybe that is what you are looking at for only twice a day. Zyflo and singulair are similar in outcome but take different paths. I am one of the 20% that has no luck with singulair. If you are seeking relief, then try it. If both drugs work, Singulair is a safer choice. I have no experience with Omnaris or the 's solution. Tell us more. I was not tolerant of alkalol. The menthol was a trigger for my asthma. I use the past tense because I haven't had an asthma attack in a year or so. There are many things that I still avoid and many things that I no longer avoid. Your doctor sounds experienced with Samters. Let us know how you feel. Pam On May 17, 2008, at 12:00 AM, iddelz wrote: > Hi all - haven't been here in awhile but being back reminds me how > helpful/supportive this group is for managing samters and also an > awesome source of information. > > just how good is this site? I saw a new doctor today and he's > supposedly dialled into samter's management, but there's little he > told me that I could find here had I bothered to check this before I > went. > > He wants to put me on 2400mg zyflo (600x2 twice a day). I know you > can't really compare medicines but 10mg singulair vs. 2400mg zyflo > seems worth an ounce of caution. anyone with experience with zyflo, > what is your typical dose and have you had a better response with > zyflo than singulair? > > He also prescribed a new nasal spray called Omnaris but I haven't > tried it yet. I'll see how it goes and report back. > > He also added mucinex, wilson's solution and alkalol. I've had > successes with mucinex before and only used wilson's solution once > after surgery. I'd never before heard of alkalol but it's a refreshing > eucalyptus/peppermint nasal wash and at $3/bottle (OTC) seems like a > real bargain. > > thanks in advance if anyone has insight/experience into zyflo > > /iddelz > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2008 Report Share Posted May 17, 2008 > I'd never before heard of alkalol but it's a refreshing eucalyptus/peppermint nasal wash and at $3/bottle (OTC) seems like a real bargain. My understanding was that both eucalyptus and peppermint are very high in salicylate... which we're allergic too. Won't that exascerbate the symptoms? Does anyone on the group use these highly smelly things without problems arising? I've avoided them forever... maybe I shouldn't be... wishing you health, happiness and prosperity, Beverley Paine 4 BR HOUSE for RENT, $180 p/w, Cape Jervishttp://beverleypaine.com/housetorent/index.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2008 Report Share Posted May 18, 2008 Just for the sake of precision, being allergic to salicylates and having an aspirin- exacerbated respiratory disease are not automatically related all the time. The reason is that aspirin is not simply salicylic acid, but acetylsalicylic acid, which breaks down into the acetyl half and the salicylic half. One may have both, or just one of the two conditions. The only way of knowing if you have both is by watching for Samter's symptoms after consuming salicylate-rich foods (assuming you do not take corticoids or leukotriene modifiers, which would tend to conceal effects). > > > I'd never before heard of alkalol but it's a refreshing eucalyptus/peppermint nasal wash and at $3/bottle (OTC) seems like a real bargain. > > My understanding was that both eucalyptus and peppermint are very high in salicylate... which we're allergic too. Won't that exascerbate the symptoms? > > Does anyone on the group use these highly smelly things without problems arising? I've avoided them forever... maybe I shouldn't be... > > wishing you health, happiness and prosperity, > Beverley Paine > > 4 BR HOUSE for RENT, $180 p/w, Cape Jervis > http://beverleypaine.com/housetorent/index.html > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2008 Report Share Posted May 18, 2008 Zyflo works better for me and i like the 'up to 4 pills a day' dosage (2400mg)- 2 to 3 a day works fine for me and that's nice since my copay is $45 - i can go almost 2 months on one's month's Rx. I have even been on both zyflo and singulair together and that worked well too (but expensive)....best of luck! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2008 Report Share Posted May 19, 2008 Thanks for this note! I am taking both of them and after last week's posting I stopped the zyflo until I could talk to my doctor about this. They do seem to work well together and the side-effects just dont seem to matter when I can breathe. (Bad thinking, I know.) Have a great Monday! From: danmorrow2323 <danmorrow23@...>Subject: Re: zyflo tolerancesamters Date: Sunday, May 18, 2008, 7:32 PM Zyflo works better for me and i like the 'up to 4 pills a day' dosage (2400mg)- 2 to 3 a day works fine for me and that's nice since my copay is $45 - i can go almost 2 months on one's month's Rx. I have even been on both zyflo and singulair together and that worked well too (but expensive).. ..best of luck! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2008 Report Share Posted May 19, 2008 One of my main problems is that I commute on a train to and from work and because I cannot smell, it conceals cologne or other smells that make me start start coughing and then it is too late. From: asfyso <asfyso@...>Subject: Re:zyflo tolerancesamters Date: Sunday, May 18, 2008, 3:40 PM Just for the sake of precision, being allergic to salicylates and having an aspirin-exacerbated respiratory disease are not automatically related all the time. The reason is that aspirin is not simply salicylic acid, but acetylsalicylic acid, which breaks down into the acetyl half and the salicylic half. One may have both, or just one of the two conditions. The only way of knowing if you have both is by watching for Samter's symptoms after consuming salicylate-rich foods (assuming you do not take corticoids or leukotriene modifiers, which would tend to conceal effects).>> > I'd never before heard of alkalol but it's a refreshing eucalyptus/peppermi nt nasal wash and at $3/bottle (OTC) seems like a real bargain.> > My understanding was that both eucalyptus and peppermint are very high in salicylate.. . which we're allergic too. Won't that exascerbate the symptoms? > > Does anyone on the group use these highly smelly things without problems arising? I've avoided them forever... maybe I shouldn't be... > > wishing you health, happiness and prosperity, > Beverley Paine> > 4 BR HOUSE for RENT, $180 p/w, Cape Jervis> http://beverleypain e.com/housetoren t/index.html> Quote Link to comment Share on other sites More sharing options...
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