Guest guest Posted February 26, 2011 Report Share Posted February 26, 2011 Hello everyone! My name is Garrett and I am on this fourm on behalf of a good friend of mine who suffers from Samter's Triad. I just wanted to get some feedback from anyone who shares a similar situation with her, so here we go! My friend is a 28 year old female who has had Samter's now for about six years. It was onset (seemingly) by a nasal infection that didnt want to go away. Asthama was also onset around the same time, maybe a bit earlier. About two years ago it was discovered that polyps had been growing inside of her sinus cavities. Soon after she had polyp removal surgery and all polyps were sucessfully extracted. Witin a few months though, as all of you have probably already guessed, the polyps returned with a vengance and her nasal tissue again became inflamed. Fast forward to last week. My friend had saved up what she could and was admitted to Scripps clinic in La Jolla, CA (or Carmel Valley, I forget which) to undergo aspirin desensitization. The procedure went sucessfully and she was desensitized. Before I forget I would like to also note that during this entire time period my friend has been taking advair which has worked like a charm on her asthma; it is a nonfactor in her life at this time. She has taken many prednisone bursts which enable her to regain her sense of smell (which has been lost since the beginning), taste, squashed all inflammation, released the mucus from her sinus cavities, and allowed her to sleep a full eight to ten hours. Of course these are short lived. Also prior to her surgery and up until the point her polyps and nasal inflammation returned she was taking singulair 10mg as well as a nasal steroid. Now she is around ten days out from desensitization and her facial pressure/nasal inflammation seems to be worse. This may be due to the fact that her perscription for Advair and Singular had lapsed for two days and she was unable to take them during this time. Unfortunatly she does not have the money (or insurance I should add) to have another polyp removal surgery. So with all that being said, my questions are: 1) Is there anyone out there who has had sucscess (even minor) from aspirin desensitization in combination with a leukotriene inhibitor and anything else WITHOUT surgery? 2) Has anyone switched from Singular to Zyflo and experienced major results (without having polyp surgery)? 3) Does anyone have any information regarding the nebulizer rinse (I have only seen this in one topic, sorry for the ambiguity)? 4) Has anyone done any research regarding a combination aspirin desentization and melatonin production (or inhibiting)? Thanks in advance and it's been a pleasure to read alot of these posts. -Garrett PS.I typed this up pretty quick as i'm on my lunch break so please pardon the spelling/grammar issues and any ambiguity! Quote Link to comment Share on other sites More sharing options...
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