Guest guest Posted October 10, 2011 Report Share Posted October 10, 2011 Hi Everyone,I just wanted to check in and see how everyone is doing..... I still have a lot of pain. I am going back to see my GP doctor tomorrow to find a physical therapist and pain managementThe specialist I saw, said I had something called myofascial trigger points on the lower back and thigh. He said it was common among scoliosis patient due to the inbalance posture and the strain on the muscle. Anyway just wanted to know if anyone else has had this syndrome and what you did for the pain. It is very painful. Thanks EllenFrom: Tricia Keane <tgordon71906@...> Sent: Monday, October 10, 2011 6:36 AMSubject: Re: Re: Learning to roll with the punches Good Morning Ellen,I am so happy that you dont need to have surgery! Thank God! I love Dr. Antonacci but thought it would be in my best interest to get a second opinion. I need to have this done as soon as possible. The pain is getting unbearable. Our trip was great but rough on my spine. I tried to keep my complaining to a minimum. It was so beautiful in Santorino greece. That was my favorite place on the whole trip. Gorgeous island.I will keep you posted on what and when my surgery is.Thanks for the prayers! Tricia Sent from my iPadOn Oct 9, 2011, at 9:39 PM, Ellen Mchugh <castlegregory.clan@...> wrote: Hi TriciaI read up on the following other doctors Dr. Errico, Dr. Taddanino, Dr. Kufflick all in the NYC metro area. It is worth it just for a second opinion. FYI I really felt comfortable with Dr. Antonacci. He didn't recommend any surgery for me. I have myofascial trigger point pain in the lower back and leg . It is related to the scoliosis but thank God no surgery. I think I can deal with almost any pain if it doesn't mean surgery. Supposely the best of the best surgeons are at Special Surgery in Manhattan but they don't take any medical insurance. But maybe for your piece of mind a consultation with Dr. Boachie might be worth it to pay out of pocket. I didn't go because I felt what was the point if he didn't take insurance and I needed more treatment I couldn't afford it. Keep in touch and let me know how it goes. I did say a prayer for you and will keep on praying.....us pencil sticking gals got to stick together.EllenFrom: Tricia Keane <tgordon71906@...> Sent: Sunday, October 9, 2011 10:22 AMSubject: Re: Learning to roll with the punches I did the complete opposite! Had a tremendous amount of pain at about 6 months after surgery and thought it was just the hardware that i knew needed to be removed. Well just went to surgeon with new films and cat scan and he told me my fusion failed and i would need to have revision all over again and asap! My family thought i should have seen the doctor for a few months but i didnt want to believe something else was wrong. I already posted this on facebook page but not sure if everyone is a member there. I have read before about some members who had the same thing. Any advice? Thinking i should see another surgeon hoping to stay local in NY ?? I would really appreciate any advice. Thank you, TriciaSent from my iPad Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2011 Report Share Posted October 18, 2011 Hi, Ellen When my back started causing me a lot of pain back in the early 90s, I went to PT, had epidural injections, massage, chiropractic, and almost had back surgery. None of these treatments helped. I had to stop working because the pain was intolerable. I could barely walk and was in bed most of the time. About two years into this journey, a physiatrist told me I had trigger points in my back, and I found a doctor who did trigger point injections. The trigger point injections were the first treatment that gave me relief. (There is also trigger point myotherapy which is noninvasive -- the therapist breaks up the trigger points manually. If the therapist is good, you can get the same level of relief that you would get from injections. But most insurance plans don't cover myotherapy.) Trigger point therapy can be painful, but if you have the injections done by a doctor who is experienced, it shouldn't be too bad. The doctor should be experienced enough to be able to use very, very fine needles. I still go to my pain doctor a few times a year. He has pretty much stopped doing injections and now uses a cold laser which is pain-free. I think most doctors still do injections. I might also mention that I wear prescription orthotics in my shoes without which I would not be able to walk very far. They, too, have been lifesavers. I hope this helps. Pat > > Hi Everyone, > > I just wanted to check in and see how everyone is doing..... I still have a lot of pain.  I am going back to see my GP doctor tomorrow to find a physical therapist and pain management > > The specialist I saw, said I had something called myofascial trigger points on the lower back and thigh.  He said it was common among scoliosis patient due to the inbalance posture and the strain on the muscle.  Anyway just wanted to know if anyone else has had this syndrome and what you did for the pain.  It is very painful. > > Thanks > Ellen > > > ________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2011 Report Share Posted October 25, 2011 Thanks Pat,I am still confused as one doctor said it was trigger points and the others are saying it is nerve damage? EllenFrom: auparkdaisy <daisydoodles@...> Sent: Tuesday, October 18, 2011 4:35 PMSubject: Re: Myofasical trigger points Hi, Ellen When my back started causing me a lot of pain back in the early 90s, I went to PT, had epidural injections, massage, chiropractic, and almost had back surgery. None of these treatments helped. I had to stop working because the pain was intolerable. I could barely walk and was in bed most of the time. About two years into this journey, a physiatrist told me I had trigger points in my back, and I found a doctor who did trigger point injections. The trigger point injections were the first treatment that gave me relief. (There is also trigger point myotherapy which is noninvasive -- the therapist breaks up the trigger points manually. If the therapist is good, you can get the same level of relief that you would get from injections. But most insurance plans don't cover myotherapy.) Trigger point therapy can be painful, but if you have the injections done by a doctor who is experienced, it shouldn't be too bad. The doctor should be experienced enough to be able to use very, very fine needles. I still go to my pain doctor a few times a year. He has pretty much stopped doing injections and now uses a cold laser which is pain-free. I think most doctors still do injections. I might also mention that I wear prescription orthotics in my shoes without which I would not be able to walk very far. They, too, have been lifesavers. I hope this helps. Pat > > Hi Everyone, > > I just wanted to check in and see how everyone is doing..... I still have a lot of pain.  I am going back to see my GP doctor tomorrow to find a physical therapist and pain management > > The specialist I saw, said I had something called myofascial trigger points on the lower back and thigh.  He said it was common among scoliosis patient due to the inbalance posture and the strain on the muscle.  Anyway just wanted to know if anyone else has had this syndrome and what you did for the pain.  It is very painful. > > Thanks > Ellen > > > ________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2011 Report Share Posted October 27, 2011 Hi Ellen,I am so sorry to hear you are still in such pain. I also had trigger point injections which helped for a little while. I went to PT and started doing a steady workout 5 days a week. This all helped until flatback came into play. I am headin to my second revision surgery this coming Monday and praying the fusion takes this time. My pain is unbearable right now so it needs to get done but I am extremely nervous.I hope you find a doctor and plan that can relieve your pain soon.SincerelyTricia Sent from my iPadOn Oct 25, 2011, at 5:56 PM, Ellen Mchugh <castlegregory.clan@...> wrote: Thanks Pat,I am still confused as one doctor said it was trigger points and the others are saying it is nerve damage? EllenFrom: auparkdaisy <daisydoodles@...> Sent: Tuesday, October 18, 2011 4:35 PMSubject: Re: Myofasical trigger points Hi, Ellen When my back started causing me a lot of pain back in the early 90s, I went to PT, had epidural injections, massage, chiropractic, and almost had back surgery. None of these treatments helped. I had to stop working because the pain was intolerable. I could barely walk and was in bed most of the time. About two years into this journey, a physiatrist told me I had trigger points in my back, and I found a doctor who did trigger point injections. The trigger point injections were the first treatment that gave me relief. (There is also trigger point myotherapy which is noninvasive -- the therapist breaks up the trigger points manually. If the therapist is good, you can get the same level of relief that you would get from injections. But most insurance plans don't cover myotherapy.) Trigger point therapy can be painful, but if you have the injections done by a doctor who is experienced, it shouldn't be too bad. The doctor should be experienced enough to be able to use very, very fine needles. I still go to my pain doctor a few times a year. He has pretty much stopped doing injections and now uses a cold laser which is pain-free. I think most doctors still do injections. I might also mention that I wear prescription orthotics in my shoes without which I would not be able to walk very far. They, too, have been lifesavers. I hope this helps. Pat > > Hi Everyone, > > I just wanted to check in and see how everyone is doing..... I still have a lot of pain.  I am going back to see my GP doctor tomorrow to find a physical therapist and pain management > > The specialist I saw, said I had something called myofascial trigger points on the lower back and thigh.  He said it was common among scoliosis patient due to the inbalance posture and the strain on the muscle.  Anyway just wanted to know if anyone else has had this syndrome and what you did for the pain.  It is very painful. > > Thanks > Ellen > > > ________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2011 Report Share Posted October 29, 2011 You said that some docs say you have nerve damage and some say it's trigger points. I'm not sure what to tell you. However, generally if a trigger point is causing you pain, you will feel referred pain when the trigger point is activated. The referred pain is generally somewhere down below the trigger point -- at least that's how it works for me. I think -- if it were me -- I would try trigger point therapy. If it works, then at least you know you have some trigger points, and you may get some relief. Good luck. I know it's frustrating when doctors don't agree. Pat Quote Link to comment Share on other sites More sharing options...
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