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[Guest guest]

Subj: CDC advisory on anti-virals, in view of flu vaccine shortage. 

Date: 10/26/2004 4:58:16 PM Eastern Standard Time

From: chaya@...

alert@...

Sent from the Internet (Details)

TOPICS ALERT Number: 2004-54

Date: October 26, 2004

The flu season is upon us, and unless you live in a cave with no contact

with the outside world, you are aware of two things: (1) there is a

tremendous shortage of flu vaccines in the U.S.A this year (2) as an immune

compromised CLL patient you fall into the high risk category.  If you are

unable to get the flu vaccine, there are other action items that may give

you a level of protection.  For starters, pay particular attention to

personal hygiene.  Avoid crowded places, avoid physical contact with people

who are obviously suffering from the flu, wash your hands frequently, use

" hand sanitizers " you can find in every drug store, and break that habit of

touching your face, rubbing your eyes, nose or mouth.  Besides these

commonsense items, you may also wish to discuss with your doctor the

advisability of taking anti-viral medications.

The U.S. Department of Health and Human Services (HHS) and the U.S. Centers

for Disease Control and Prevention (CDC) have released new interim

guidelines to advise physicians on the use of antiviral medications during

the current influenza season, given the acute vaccine shortage. These

guidelines will make it easier for you to discuss the issues with your

physician.  The online link is given below, and you can print out a hard

copy of it for your doctor.

http://www.cdc.gov/flu/professionals/treatment/0405antiviralguide.htm

Normally we ask that you not post these Topics Alerts on other sites.

However, in view of the importance of the CDC guidelines, I would appreciate

it if some of you who participate in the various internet CLL chat rooms

would post the full text of this Alert at those sites. I would like to see

the information distributed to the larger CLL patient community, not just

those that have registered to receive our Topics Alerts service.

Be well,

[Guest guest]

Hi !

Nice to hear from you & meet someone else whose child has ds. It's

great to hear that your daughter is doing so well.

Kassie has been crawling since she was about 8 1/2 months, but only

on her belly. We've been trying to get her to crawl on hands and

knees for months now. This last week I've finally seen some

improvement. I think she's almost there! I'm sure part of the

reason she won't do it is that she is so good at pulling herself

along on her tummy.

I'm surprised that it took me so long to discover these methods in my

hours of wandering around the internet! I have noticed several others.

Is crawling stressed with these methods? I have noticed that the

mainstream medical community does not seem to think crawling is as

important as does other schools of thought.

I appreciate your thoughts.

[Guest guest]

,

Thank you so much for the wonderful information... You have answered many of my

questions and I certainly appreciate it.  I am so sorry to hear of your pain and

so happy to hear that the scs is working for you.  You seem to have quite a bit

of knowledge to share.  Thank you for that.

I look forward to hearing more about you in the future.

Have as low a pain day as possible!!!

 ~ Utah

________________________________

From: <radiant.salubrity@...>

Stimulator

Sent: Mon, October 19, 2009 9:28:53 AM

Subject: .

 

Hi there ,

Welcome to the group. My name is . I am from Western Australia. So

you can see we are spread far and wide across the globe.

I had my implant done on the 3rd September this year. Mine was for

damaged nerves to the lower back. All up I have had 6 back surgeries. 3

of them being fusions. I am 45. Married and live on a farm in the south

east of Western Australa.

As for all of your queries, I can only help you with what I know. I have

learnt that they do things differently here in Australia compared to

what the do in the States. Even if I am " Down Under " I hope I can be of

some help until one of the other members can jump in and advise you

probably a little better than I can.

Firstly, I'm so sorry to hear how much trouble you have been through

with all of your complications. It must have been awful to contend with.

We all know here what chronic pain is like to live with. Unless you go

through it yourself, it's something you really can't explain.

I can only say that I have had a great deal of succcess with mine so

far. I am finally getting used to using it alot more effectively with

day to day life than when I first came out of hospital.

>

> 1. How much recovery time is needed after a scs implant with paddles?

You will find this to be about 8 - 12 weeks depending on how well you

heal. Being in the upper region of your neck, I would presume that you

wouldn't be able to do many head movements. They like you to do as

little as possible, this is to make sure that the implant " scars " into

place. This is what helps to hold the leads, paddles and control box

into place.

> 2. Is it really that painful?

Like any surgery, you will find that you have pain from the surgery

itself. I can't really help you with the neck area. My paddles are in

the middle os my shoulder blades with the leads running down to the

control box which is implanted just abour my left hip. (Still painful to

wear jeans for too long at the moment).

> 3. How limited will I be post op and for how long?

8 - 12 weeks.

> 4. Are spinal headaches associated with scs w/ paddles?

I found for the 1st week that I did get some headaches, but that was my

fault because I think I over stimulated myself. I was enjoying the

beauty of having my pain rediced by 50%.

> 5. Do you have to wear a neck brace of any kind?

Sorry I can't help you for this one.

> 6. Is hospitalization a fairly common practice after this type of

surgery?

I'm not sure about the America. I was in hospital for 5 days. This was

due to the fact that I lived 500 km's away and the Dr wanted to make

sure I was all better and coping with the device before I left to come

home,

> 7. How many incisions will there be?

I have 3 Incisions. 1 where the controller is. 1 at the base of the

spine and 1 where the paddles were placed.

> 8. Since they will be placing the paddles in my neck, will they

protrude?

Mine do a litle. But eventually they bond within the framework of your

body and you won't be able to notice them. The body usually encases then

naturally with new tissue fibre.

I do hope that I have been of some assistance for you . Don't

forget to let us know how your progressing. Rest assured, we'll all help

you as much as each of us can.

Warm Cheers