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Re: Digest Number 64

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Thank you one and all for your most kind and supportive replies! How

good it is to know that there's someplace I can talk with others in

similar situations and at all ages of growth! I plan to lurk for now but

will let you know how things are " growing " . Thanks again - Margi Z, Mom

of Donny (2) and Twins to be.

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  • 4 months later...
Guest guest

Hi Joan,

For some reason, I'm on digest mode today, and I never requested a change.

How do I change it back? I tried to go to the site, but it tells me I'm not

a member.

CK,

Mom to Ian (2/89),

(9/90),

and Rose (6/94)

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  • 5 months later...

At 08:59 05/09/00 +0000, you wrote:

>Message: 9

> Date: Mon, 04 Sep 2000 23:18:50 -0400

> From: Kent_Moreno@...

>Subject: Digest Number 64

>

>Hi Rick!

>

>I think you bring up some very good points. Ultimately, a child's

>education must be individualized to meet their needs and I do believe that

>some instruction may be able to better occur in a pull-out environment.

>While I am an advocate for inclusion for every child, I am not an advocate

>of full-inclusion for every child. Each child's placement must be based

>on the needs of the specific child. Currently, the research strongly

>suggests that if you have two exellent educational placements one a

>segregated placement and the other and inclusive palcement, the child with

>the developmental disability will achieve more both edicationally and

>socially, in the inclusive placement.

>

>Personally, given the significance of his delays, I know that inclusion

>will become significantly more difficult with Ben as he gets older and

>that some instruction will occur best in a pull-out environment. There

>are of course options such as parallel instruction. As difficult as

>inclusion may become, given the significant benefits which it has to offer

>both Ben and his non-disabled peers, to have Ben in a totally segregared

>environment will never be an option.

>

>There are many parallels between the move to de-segregate schools in the

>late 50's and early 60's and the inclusion movement in the 90's and 00's.

>One of the biggest question is " How " ? As you remember, Eisenhower and

>the many Republicans wanted to " take it slow " and wait until southern

>whites were ready. Kennedy, and many Democrats said " no,

>de-segregation is the right thing and it is not contingent upon the

>readiness of Southern whites " . While it is almost 50 years later and race

>relations are still not where I would like them to be, I truly beleieve

>that if we took the approach favored by Eisenhower, we would still be

>waiting for de-segregation. Likewise with inclusion, there may be some

>segregagted classrooms which in the short term can offer more to the child

>with the developemntal disability but, to decide a placement based on this

>dooms the child and the promise of what inclusion has to offer all

>children.

>

>It is much easier to include children in elementary school, than it is in

>the later grades. Part of this is that we are dealing with routines that

>have only recently been established or in the case of Kindergartners, have

>not yet been established. i am sure than when de-segregation began in the

>late 50's and 60's, that it's first successes were seen at the elementary

>school level where the routine of segregation had not yet been

>established. Like the de-segregation movement of the late 50's early

>60's, Inclusion is very much in it's infancy and we have as of yet

>scratched the surface of how to best facilitate inclusion including, the

>inclusion of older children. I do believe that as we gain success in

>the elementary grades these successes and a commitment to inclusion will

>follow these children as they transition onwards.

>

>

>take Care,

>

>

>Kent

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  • 7 months later...
Guest guest

Hi! This is Sherry.

, you sound like me, fixing to do this and fixing to do that.

I am from Texas and was wondering if you are, as well?

Good luck with treatment, I have not had a biopsy or treatment yet.

I am doing alternatives now for going on 5 years since I found out I

have

this. I have probably had hep c for 15 years, though.

Wanted to let everyone on the list know, I went to my dr today and I

have decided to try the vitamin c treatment and protocol he has.

Dr. McWherter told me that I will have zero viral road, he has no doubt

whatsoever. This dr is hard to get into, it took me a year in advance,

he is THAT popular and booked.

He treats AIDS and cancer patients, along with hepatitis c.

I haven't been to one of his siminars, but I have heard from others

about his success in treating cancer and hep c patients.

I don't know what all this involves, but I will find out more on next

Friday the 13th- YIKES!!!

Dr. McWherter did mention that they have oral vitamin c now, whereas

they were using IV vitamin c treatments.

This is not the same vitamin c that is in the store, none of those are

derived like the kind that they use for this treatment.

I don't think this is covered by my insurance, so will find out Friday

about the cost, too.

I am anxious to try this and I will let ya'll know how it goes!

Hope all of you are doing well!

Love,

Sher

wrote:

>

>

>

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Guest guest

Sher, This is .

WOW. Friday the 13th sounds like a big day! I am totally wishing you the

best. That is fascinating about the Vitamin C treatment, I am very curious

about this, Please keep us all up to date on your treatment. I am holding my

breath with anticipation on this, for you and for the hope this could bring

to me and others!

Love, blessings and GOOD health!

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Guest guest

Most all biopsy results are done in a

professional lab. My doctor is one of the

busiest ones around and does all the

endoscopies, and biopsies but sends them out to

the hospital lab. I have seen how they magnify

these pictures to really look at them, its quite

amazing although a bit disgusting really to look

at. lol It takes around 4 to 10 days

depending on the mail and type of transit used

or if the lab is in the hospital the doctor is

associated with. Each situation is different as

are our bodies eco make-up due to lifestyle and

nutritional and alcohol usage in our lives.

The new pegelated is on the market now and

available in research trials by both Roche and

Schering. Ask your doctor about getting into

and onto this form as it is injected only one

time a week. I truly feel that daily dosing is

the way to go and pegelated is a much better

form to use due to all the injecting and the

Roche product is the one I am opting for. Tried

the pegelated Schering and it did not agree with

me. The difference in the two according to the

NIH is the size of the molecules and that

differentiates where the interferon goes to

Begin the work. The Roche as I understand it

goes directory to the liver, the other product

is a smaller size and may get into other areas

of affected liver damage from the virus. I

think it depends on the stage we are at as to

which will work most optimally but then I am not

a doctor just an activist advocate and trained

educator for support groups so am not a know it

all by any means. If you tolerate Riba and are

either a 1a or 1b genotype I personally would go

for the pegelated combo. A choice a good doctor

can make who has done all the correct tests to

include genotyping and biopsy etc. We just have

to hope our doctors are keeping up with all the

new changes or even started out with some

knowledge.

take care all!

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  • 2 months later...
Guest guest

To and ,

I have been following your discussion on your sons wetting and " smearing "

problems. Both of these were associated with magnesium with my son. If I

give him too much mag, he has the stool leaking problems. You may actually

need to lower the dosage as well as changing the time of day. Everytime I

have tried to increase the dosage of magnesium with my son, we have the

smearing problems, then I back down on the mag and the smearing goes away.

Just something else to consider. Also, are you giving a calcium/magnesium

combo????

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Guest guest

,

My son was having the wetting/smearing problems on enzymes with all

supplements removed. I have just added back a calcium/magnesium

supplement and additional magnesium. He went back to wetting last

night. I'll keep tinkering with the dose. Thanks for the

information.

> To and ,

> I have been following your discussion on your sons wetting

and " smearing "

> problems. Both of these were associated with magnesium with my son.

If I

> give him too much mag, he has the stool leaking problems. You may

actually

> need to lower the dosage as well as changing the time of day.

Everytime I

> have tried to increase the dosage of magnesium with my son, we have

the

> smearing problems, then I back down on the mag and the smearing

goes away.

> Just something else to consider. Also, are you giving a

calcium/magnesium

> combo????

>

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  • 5 months later...

Dear Tim

will you be an actor in the movie?

Stinky

From: Tim Casey

> SSRI medications@y...

> Sent: Sunday, December 02, 2001 12:17 PM

> Subject: A Most Interesting

Call

>

>

> Hey Guys,

>

> Guess what!!! We're going to be in a

movie!!

>

> Remember I mentioned that a summer employee

of mine was in

an advertising/media class. Well, in January he starts

a project to

make a video, at least 30 minutes long, of his choice

of subject

matter. He has chosen " antidepressants " ( I wonder

why).

>

> So, we're in guys. We will have an

incredible amount of

influence over what goes into this video, so let's

make it count.

Think of the impact a professional video would have in

the hands of

the big media boys.

>

> Let's make sure Tony gets an A+ on his

project.

>

>

>

> Tim

__________________________________________________

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Dear Tim

will you be an actor in the movie?

Stinky

From: Tim Casey

> SSRI medications@y...

> Sent: Sunday, December 02, 2001 12:17 PM

> Subject: A Most Interesting

Call

>

>

> Hey Guys,

>

> Guess what!!! We're going to be in a

movie!!

>

> Remember I mentioned that a summer employee

of mine was in

an advertising/media class. Well, in January he starts

a project to

make a video, at least 30 minutes long, of his choice

of subject

matter. He has chosen " antidepressants " ( I wonder

why).

>

> So, we're in guys. We will have an

incredible amount of

influence over what goes into this video, so let's

make it count.

Think of the impact a professional video would have in

the hands of

the big media boys.

>

> Let's make sure Tony gets an A+ on his

project.

>

>

>

> Tim

__________________________________________________

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  • 3 years later...
Guest guest

Good to hear you are still doing well Dane. i too hope the 100 day bmb returns

good results. I am taking gleevec after relapsing from a bmb with excellent

results. At last look I had 93% donor marrow and 1% bcr, this time I am hoping

for 100% donor cells, I have another bmb in June. I take 400mg og gleevec.

Judy T.

wrote:

---------------------------------

Find local movie times and trailers on Movies.

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