Dane @ BMT +90 and still feeling fine.

May 10, 2005

Day 90 and still feeling fine. Actually I feel great. Occasionally fatigued, but

that's about it.

Sorry for the infrequent updates, but there simply is not too much to tell.

After a full week of 200mgs of Gleevec per day, my counts are still fine, so we

increased the dosage to 400mgs a day.

I am still on the reduced dosage of tacrolimus (anti-rejection drug) and hoping

that GVL is occuring. I have had no outward symptoms of GVHD, but my oncologist

reminds that this does not mean that GVL is not being achieved.

In any case....increasing the dosage of Gleevec and continuing the reduced

dosage of tacrolimus is all that can be done for now.

I have my 100th day bone marrow biopsy on the 18th of this month, and then I get

to go home! I will return to Houston on June 2nd for the biopsy results and

hopefully have my central line removed. Until then I just play the waiting game.

I was allowed to drive home last weekend, so I got to see my family and even

caught one of Caroline's softball games.

I will probably get to go home again this coming weekend, then return for my

final clinic day and biopsy.

It's a lot of driving, but it beats sitting in this apartment between clinic

days...as it is getting hotter now which limits my outdoor activities. The

dressing around my CVC line has to be protected from excessive sweating.

The car we rented came with unlimited mileage...and we are taking advantage of

that! I think they are in for a surprise when we return it.

My mother is doing a great job as caregiver...in fact she is spoiling me rotten.

It's been many years since we have spent this much time together, and it has

brought us closer.

I don't want to forget to pass on information about this apartment I am renting

here in Houston, just in case anyone will be needing a place down here. Pictures

of the apartment can be viewed by going to www.danesweb.com and selecting the

" Houston Rental " album.

Here's the info:

Concierge & Lodging International LLC

Camden Vanderbilt Apartments

7171 Buffalo Speedway

Houston Texas 77025

Phone: 713 667 9667 Contact is Melinda.

That's all for now.....will update next week before leaving Houston!

Regards and Prayers

Dane

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