new member

[Guest guest]

Hi to everyone in this group. I was diagnosed in Feb 03 with a wbc

of 321,000. I was having very bad night sweats, was very tired, and

I just hurt all over. I told the Dr. that it felt like it was my

bones aching and not my muscles. I also had shortness of breath and

rashes off and on. Also at that time my eyesight also started to

bother me. I am 45 years old I have to daughters age 20 and 23 I

have been married to a wonderful man for almost 27 years. I started

going to MDA cancer center in January and will go back every 6 months

for special tests that the Dr. here in Kansas refused to do. Which

was the quantative pcr. I see Dr. Faderl in Houston he was very nice

and answered all of my questions, and I never once felt rushed. I go

back June 8 and we are going to make a trip out of it. We will go

through San on our way back. Was there in 1992 but it will

be different going without a 9 and 6 year old. That is my story and

I am grateful to have these support groups to ask questions and learn

more about cml.

Shari from Kansas

dx feb 03

gleevec feb 18 03

ccr june 12 03

pcr jan 05 0.09