RE: Re : Moro Reflex - Help!

[Guest guest]

How does he respond to tactile and fear paralysis treatments?If you get positive results with these therapies, you might consider doing them with him in his car seat.Also TLR seated. Esty CMTwww.brianesty.com415.350.4868On Sep 1, 2011, at 1:45 PM, Aixois 12 <aixois_loin@...> wrote:

It might help him : stimulate a little bit his vestibular system. How old is he?You can put him on your bach and walk with him. Or just do some balancing on his chair. But not too much, 5 to 10 balancing but everyday and you see how it goes.or work on the emotional side. What does it mean for him and what does he want to communicate?with lovehediaDe : D & K Dedert <dedertfamily@...>À : " "

< >Cc : iampcurlee@...; valfreitas2k@...Envoyé le : Mercredi 31 Août 2011 3h46Objet : Moro Reflex - Help!

I would like to see if anybody in this group has some advice for me regarding the Moro Reflex.My son, Calvin, is nearly two and has severe neurological impairments. We attended a camp (which was wonderful!) last August in San Mateo. The past year has been touch and go with Calvin and so many times we nearly lost him. This has hampered our efforts to do therapy for him. This summer he's been doing well and we've renewed our efforts.Calvin's reflexes are extremely over active and not integrated. One of the biggest challenges we have in everyday life is Calvin's startle or moro reflex. Some time ago it started with me noticing every time I placed him on his back to change his diaper he'd startle, put his arms out, legs up, and begin crying. It would stop

when I lifted him out of that

position. Now it is getting stronger and more out of control. It's gotten to the point that we can scarcely go anywhere in the car with him or place him in any seated position. When we put him in the stroller or car seat he often begins breathing more rapids, his arms fly out, his legs come up a bit and it just builds from there. He begins to shriek in absolute fright, as soon as I get to him his little arms and legs feel as stiff as iron and his screaming out of control. We desperately have to quiet and calm him as quickly as possible because he has trachiabronchomalasia (his airways collapse under stress or with strong crying).It is so distressing for him and for us. It's odd that it doesn't necessarily begin when I put him in a seating device. He can be sitting there for five minutes and then all of a sudden it will start, or just as I'm putting him into a seat. The only way it does not

activate is if he is in a side-lying position. Sometime I've even had to drive to therapy with him lying sideways on my lap! I know it's not safe, but the other option is his airway collapsing.We've been doing rehab therapy at Free Bed Rehab and they've suggested a sort of neck brace to keep his head in an aligned position. This helps somewhat but the problem remains. Has anybody ever heard or this or experienced this? We have so many bizarre thing to handle we often feel like the only people in the world with this situation! I would be grateful for any advice, tips, or shared experience.I also have looked back in my camp notes and for some reason I all the instructions for the reflexes but am missing that particular one. If anybody has it can you send me an email with a refresher on it? I looked on our evaluation DVD and can't find it there

either.A bit desperate here in Michigan,Kara Dedert

[Guest guest]

What is fear paralysis treatments? fear paralysis treatment?Sänt via BlackBerry från Telenor.From: Esty <bkesty@...>Sender: Date: Thu, 1 Sep 2011 22:01:39 -0700 < >Reply Subject: Re: Re : Moro Reflex - Help! How does he respond to tactile and fear paralysis treatments?If you get positive results with these therapies, you might consider doing them with him in his car seat.Also TLR seated. Esty CMTwww.brianesty.com415.350.4868On Sep 1, 2011, at 1:45 PM, Aixois 12 <aixois_loin@...> wrote: It might help him : stimulate a little bit his vestibular system. How old is he?You can put him on your bach and walk with him. Or just do some balancing on his chair. But not too much, 5 to 10 balancing but everyday and you see how it goes.or work on the emotional side. What does it mean for him and what does he want to communicate?with lovehediaDe : D & K Dedert <dedertfamily@...>À : " "< >Cc : iampcurlee@...; valfreitas2k@...Envoyé le : Mercredi 31 Août 2011 3h46Objet : Moro Reflex - Help! I would like to see if anybody in this group has some advice for me regarding the Moro Reflex.My son, Calvin, is nearly two and has severe neurological impairments. We attended a camp (which was wonderful!) last August in San Mateo. The past year has been touch and go with Calvin and so many times we nearly lost him. This has hampered our efforts to do therapy for him. This summer he's been doing well and we've renewed our efforts.Calvin's reflexes are extremely over active and not integrated. One of the biggest challenges we have in everyday life is Calvin's startle or moro reflex. Some time ago it started with me noticing every time I placed him on his back to change his diaper he'd startle, put his arms out, legs up, and begin crying. It would stopwhen I lifted him out of thatposition. Now it is getting stronger and more out of control. It's gotten to the point that we can scarcely go anywhere in the car with him or place him in any seated position. When we put him in the stroller or car seat he often begins breathing more rapids, his arms fly out, his legs come up a bit and it just builds from there. He begins to shriek in absolute fright, as soon as I get to him his little arms and legs feel as stiff as iron and his screaming out of control. We desperately have to quiet and calm him as quickly as possible because he has trachiabronchomalasia (his airways collapse under stress or with strong crying).It is so distressing for him and for us. It's odd that it doesn't necessarily begin when I put him in a seating device. He can be sitting there for five minutes and then all of a sudden it will start, or just as I'm putting him into a seat. The only way it does notactivate is if he is in a side-lying position. Sometime I've even had to drive to therapy with him lying sideways on my lap! I know it's not safe, but the other option is his airway collapsing.We've been doing rehab therapy at Free Bed Rehab and they've suggested a sort of neck brace to keep his head in an aligned position. This helps somewhat but the problem remains. Has anybody ever heard or this or experienced this? We have so many bizarre thing to handle we often feel like the only people in the world with this situation! I would be grateful for any advice, tips, or shared experience.I also have looked back in my camp notes and for some reason I all the instructions for the reflexes but am missing that particular one. If anybody has it can you send me an email with a refresher on it? I looked on our evaluation DVD and can't find it thereeither.A bit desperate here in Michigan,Kara Dedert

[Guest guest]

My heart goes out to you. I have been working with a child in my classroom that hated to even have his feet off the floor, his automatic response to many things was a scream. What he does like is Dr. songs, although he is mostly non-verbal he is starting to talk more and he knows what song comes next.. Anyway he sits in my lap we do movements, he has led my hands to do weird things for example beat the top of his legs, as we sing the songs we do movements, rocking back and forth, side to side, I slowly have started to do phase one, two and three of the moro. Phase one, I let his body tilt back to where I feel tension. I stop, back up a little, hold, then move him to stage two by curling him up in a ball, hold, I will then use a modified phase 3 when I pull him to me with a hug and for good measure look into his eyes and assure him, (Love). And yes the more I do this with him... three days in a row he did not have but one melt down because I turned the music off, we all left the room to go outside and although he wanted to stay and have more music. He followed us outside to the playground. Most of the day he was very compliant and no real outbursts.Anyone else out there with suggestions for us will be greattly appreciated.Love, Light and BlessingsOn Sep 1, 2011, at 4:45 PM, Aixois 12 wrote:

It might help him : stimulate a little bit his vestibular system. How old is he?You can put him on your bach and walk with him. Or just do some balancing on his chair. But not too much, 5 to 10 balancing but everyday and you see how it goes.or work on the emotional side. What does it mean for him and what does he want to communicate?with lovehediaDe : D & K Dedert <dedertfamily@...>À : " "

< >Cc : iampcurlee@...; valfreitas2k@...Envoyé le : Mercredi 31 Août 2011 3h46Objet : Moro Reflex - Help!

I would like to see if anybody in this group has some advice for me regarding the Moro Reflex.My son, Calvin, is nearly two and has severe neurological impairments. We attended a camp (which was wonderful!) last August in San Mateo. The past year has been touch and go with Calvin and so many times we nearly lost him. This has hampered our efforts to do therapy for him. This summer he's been doing well and we've renewed our efforts.Calvin's reflexes are extremely over active and not integrated. One of the biggest challenges we have in everyday life is Calvin's startle or moro reflex. Some time ago it started with me noticing every time I placed him on his back to change his diaper he'd startle, put his arms out, legs up, and begin crying. It would stop

when I lifted him out of that

position. Now it is getting stronger and more out of control. It's gotten to the point that we can scarcely go anywhere in the car with him or place him in any seated position. When we put him in the stroller or car seat he often begins breathing more rapids, his arms fly out, his legs come up a bit and it just builds from there. He begins to shriek in absolute fright, as soon as I get to him his little arms and legs feel as stiff as iron and his screaming out of control. We desperately have to quiet and calm him as quickly as possible because he has trachiabronchomalasia (his airways collapse under stress or with strong crying).It is so distressing for him and for us. It's odd that it doesn't necessarily begin when I put him in a seating device. He can be sitting there for five minutes and then all of a sudden it will start, or just as I'm putting him into a seat. The only way it does not

activate is if he is in a side-lying position. Sometime I've even had to drive to therapy with him lying sideways on my lap! I know it's not safe, but the other option is his airway collapsing.We've been doing rehab therapy at Free Bed Rehab and they've suggested a sort of neck brace to keep his head in an aligned position. This helps somewhat but the problem remains. Has anybody ever heard or this or experienced this? We have so many bizarre thing to handle we often feel like the only people in the world with this situation! I would be grateful for any advice, tips, or shared experience.I also have looked back in my camp notes and for some reason I all the instructions for the reflexes but am missing that particular one. If anybody has it can you send me an email with a refresher on it? I looked on our evaluation DVD and can't find it there

either.A bit desperate here in Michigan,Kara Dedert

Best Ed.S Sp. Ed. Brain Gym instructor/consultant537 McJunkin RdTellico Plains, TN 37385423-261-2279423-261-4228 cellwww.mindbodyconnects.netwww.braingym.orgwww.masgutovamethod.com

[Guest guest]

Dear Kara:

This is not so much a specific bit of advice as an encouragement. My daughter (now 10y-old) had a wildly overractive startle/Moro reflex that manifested as an explosively powerful extension pattern (spine in extension, head flung back, arms and legs extended and stiffened) that was triggered by just about anything, esp. all but the very gentlest tactile stimulation. For years, this powerful response would hijack nearly every attempt to work through various therapies, sometimes threatening to fling her right off my lap. While a variety of MNRI interventions were undoubtedly specifically helpful (eg trunk extension, spinal galant and especially spinal pereze), I really think that whole-system MNRI-work allowed her whole self, systemically, to begin to resolve and mature.

The happy point here is this: after this being such a dominant pattern for her first 6-7 years, now (we started initial MNRI-based hterapy at age 6) we almost never see this response--and when we do, it is a faint shadow of its former power.

Keep doing the work: you will get there.

christine

From: [mailto: ] On Behalf Of BestSent: Friday, September 02, 2011 9:05 AM Subject: Re: Re : Moro Reflex - Help!

My heart goes out to you. I have been working with a child in my classroom that hated to even have his feet off the floor, his automatic response to many things was a scream. What he does like is Dr. songs, although he is mostly non-verbal he is starting to talk more and he knows what song comes next.. Anyway he sits in my lap we do movements, he has led my hands to do weird things for example beat the top of his legs, as we sing the songs we do movements, rocking back and forth, side to side, I slowly have started to do phase one, two and three of the moro. Phase one, I let his body tilt back to where I feel tension. I stop, back up a little, hold, then move him to stage two by curling him up in a ball, hold, I will then use a modified phase 3 when I pull him to me with a hug and for good measure look into his eyes and assure him, (Love). And yes the more I do this with him... three days in a row he did not have but one melt down because I turned the music off, we all left the room to go outside and although he wanted to stay and have more music. He followed us outside to the playground. Most of the day he was very compliant and no real outbursts.

Anyone else out there with suggestions for us will be greattly appreciated.

Love, Light and Blessings

On Sep 1, 2011, at 4:45 PM, Aixois 12 wrote:

It might help him : stimulate a little bit his vestibular system. How old is he?

You can put him on your bach and walk with him. Or just do some balancing on his chair. But not too much, 5 to 10 balancing but everyday and you see how it goes.

or work on the emotional side. What does it mean for him and what does he want to communicate?

with love

hedia

De : D & K Dedert <dedertfamily@...>À : " " < >Cc : iampcurlee@...; valfreitas2k@...Envoyé le : Mercredi 31 Août 2011 3h46Objet : Moro Reflex - Help!

I would like to see if anybody in this group has some advice for me regarding the Moro Reflex.

My son, Calvin, is nearly two and has severe neurological impairments. We attended a camp (which was wonderful!) last August in San Mateo. The past year has been touch and go with Calvin and so many times we nearly lost him. This has hampered our efforts to do therapy for him. This summer he's been doing well and we've renewed our efforts.

Calvin's reflexes are extremely over active and not integrated. One of the biggest challenges we have in everyday life is Calvin's startle or moro reflex. Some time ago it started with me noticing every time I placed him on his back to change his diaper he'd startle, put his arms out, legs up, and begin crying. It would stop when I lifted him out of that position. Now it is getting stronger and more out of control. It's gotten to the point that we can scarcely go anywhere in the car with him or place him in any seated position.

When we put him in the stroller or car seat he often begins breathing more rapids, his arms fly out, his legs come up a bit and it just builds from there. He begins to shriek in absolute fright, as soon as I get to him his little arms and legs feel as stiff as iron and his screaming out of control. We desperately have to quiet and calm him as quickly as possible because he has trachiabronchomalasia (his airways collapse under stress or with strong crying).

It is so distressing for him and for us. It's odd that it doesn't necessarily begin when I put him in a seating device. He can be sitting there for five minutes and then all of a sudden it will start, or just as I'm putting him into a seat. The only way it does not activate is if he is in a side-lying position. Sometime I've even had to drive to therapy with him lying sideways on my lap! I know it's not safe, but the other option is his airway collapsing.

We've been doing rehab therapy at Free Bed Rehab and they've suggested a sort of neck brace to keep his head in an aligned position. This helps somewhat but the problem remains.

Has anybody ever heard or this or experienced this? We have so many bizarre thing to handle we often feel like the only people in the world with this situation! I would be grateful for any advice, tips, or shared experience.

I also have looked back in my camp notes and for some reason I all the instructions for the reflexes but am missing that particular one. If anybody has it can you send me an email with a refresher on it? I looked on our evaluation DVD and can't find it there either.

A bit desperate here in Michigan,

Kara Dedert

Best Ed.S Sp. Ed.

Brain Gym instructor/consultant

537 McJunkin Rd

Tellico Plains, TN 37385

423-261-2279

423-261-4228 cell

www.mindbodyconnects.net

www.braingym.orgwww.masgutovamethod.com