Introduction

[Guest guest]

Thank you for letting me join this group. As instructed, here is my

introduction:

My name is and I live in the San Francisco Bay Area. My 8 year old son

was diagnosed at 3yrs with ASD and SPD. Later he picked up a few other dx's

including Bells Palsy, seizure disorder, auditory and visual processing

disorders and lyme disease. May have had a mild stroke as a toddler, according

to one neurologist's interpretation of MRI and physical exam.

He's recovered from it all wonderfully and is mainstreamed in 2nd grade with few

noticing his residual difficulties. Visual processing being the main one. His

vision therapist picked up on some " primative reflex " red flags, some of which

the neurologist had documented a year or so ago. A slight gait issue, posturing

of the right hand when instructed to stand on one leg etc. Weakness in hip

flexors, trunk instability and a few other things including terribly bad

handwriting. This is the most obvious issue in school. Secondary is his poor

co-ordination in team sports.

Physical therapy was on the list of things to re-visit after completing vision

therapy and before starting auditory processing therapy this summer. But we

can't quite get the vision problem straightened out. He showed great improvement

last year, then regressed very quickly after stopping for a couple of months

over the holidays.

After re-evaluating, the vision therapist said we should start investigating the

primative reflex angle, as that may be impacting my son's ability to maintain

the progress gained in vision therapy.

Talked to the PT he recommended and she said that regular therapy probably

wouldn't help much in this particular situation. She alternatively recommended a

local Masgutova therapist because she believes that would be the better solution

for primitive reflex related issues. We have an appointment for assessment next

week.

Previous/current treatments and therapies are too numerous to list, but here are

a few: 5 years of Biomed and special diets, 1 year of RDI, OT, PT, Sensory

processing therapy.

All very successful except perhaps the physical therapy 4 years ago, because

they didn't pick up on things that were later found by the other doctors. It did

help with his tibial torsion though, so it wasn't a complete waste.

And that's my story thus far. I'm very interested in learning about Masgutova

and have a lot of reading to do this weekend. It would be fantastic if it can

help with my son's last remaining issues. We're up for the challenge. He's very

accepting of all treatments/home therapy programs and I know how to make

anything seem like great fun!