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Welcome Kriszta,

Which state are you in? I'm sorry to hear about your troubles with your

doctor, this is so common!

Hope to see you posting!

List Owner of Vaccinations and Vaccine Info

www.geocities.com/mom2q (my work in progress!)

Mom of two great kids who are vaccine free!

New member introduction

Hi,

My name is Kriszta, I have joined the list to get suggestions, tips,

support and help.

I have a 4 year old son, who was diagnosed with autism, and has tons of

allergies. He is fully vaccinated. (And will not get another vaccine!)

I have a 4 month old baby, who hass not received any vaccines. I have a

very tough time with his pediatrician, who does not believe vaccinations

had anything to do with my 4 year old's problems, and pretty much told

me that if I dont' want to vaccinate my baby, I better find another

doctor, because his office is so strong believer of vaccinations.

So far I am very stong, but I need all the information I can get on

supporting my decision not just for the doctors, but for myself, so I

can feel good about it.

I look forward hearing from other parents who have decided not to

vaccinate, I am excited about joining this list.

Kriszta

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I live in Southern California.

Mom2Q wrote:

> Welcome Kriszta,

>

> Which state are you in? I'm sorry to hear about your troubles with your

> doctor, this is so common!

>

> Hope to see you posting!

>

>

> List Owner of Vaccinations and Vaccine Info

> www.geocities.com/mom2q (my work in progress!)

> Mom of two great kids who are vaccine free!

>

> New member introduction

>

> Hi,

> My name is Kriszta, I have joined the list to get suggestions, tips,

> support and help.

>

> I have a 4 year old son, who was diagnosed with autism, and has tons of

> allergies. He is fully vaccinated. (And will not get another vaccine!)

>

> I have a 4 month old baby, who hass not received any vaccines. I have a

> very tough time with his pediatrician, who does not believe vaccinations

> had anything to do with my 4 year old's problems, and pretty much told

> me that if I dont' want to vaccinate my baby, I better find another

> doctor, because his office is so strong believer of vaccinations.

>

> So far I am very stong, but I need all the information I can get on

> supporting my decision not just for the doctors, but for myself, so I

> can feel good about it.

>

> I look forward hearing from other parents who have decided not to

> vaccinate, I am excited about joining this list.

>

> Kriszta

>

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kriszta,

glad you are here, sorry to hear of your son's difficulties...hope you can

get a lot out if the list. what your ped told you about not keeping your

kids as patients, is a common thing--probably just as well although it is

hard to find an accepting ped. good luck, welcome to the list!!

brigit

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I've had several Dr.'s give me the "party line" on vac's. I just hold up my hand and tell them to save the speech for someone who needs it. I tell them I've done my homework and this is my child. My son will not be shot full of poison and if they would like more information I'd be glad to give them some.

I have yet to have a Dr refuse to treat my son or give me any more static. I get the biggest bunch of bull from the nursing staff. What a pain they can be. All puffed up thinking they know what's what and that they can shove it down everyone's throat. Mainly if you let them know right up front that you know what the score and you aren't backing down, they normally back off. After all, they are in it for the money, right?

Annette M. Hall

Vote NO on Prop 38

http://www.homeschoolchristian.com/Position/Duffy/Vouchers.html

subscribe/CA-Prop38

-----Original Message-----From: Kriszta Modrovich [mailto:kmodrovich@...]Sent: Sunday, August 27, 2000 8:46 PMVaccinationsegroupsSubject: New member introductionHi,My name is Kriszta, I have joined the list to get suggestions, tips,support and help.I have a 4 year old son, who was diagnosed with autism, and has tons ofallergies. He is fully vaccinated. (And will not get another vaccine!)I have a 4 month old baby, who hass not received any vaccines. I have avery tough time with his pediatrician, who does not believe vaccinationshad anything to do with my 4 year old's problems, and pretty much toldme that if I dont' want to vaccinate my baby, I better find anotherdoctor, because his office is so strong believer of vaccinations.So far I am very stong, but I need all the information I can get onsupporting my decision not just for the doctors, but for myself, so Ican feel good about it.I look forward hearing from other parents who have decided not tovaccinate, I am excited about joining this list.Kriszta

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Hi Kriszta,

Welcome to the list. I don't know if anyone mentioned this yet, but there

are lists with drs who are supportive of your decision. You would need to

indicate what area you are from so the list manager can start you in the

right direction!

Glad to hear you are educating yourself!

Kim in NYC

Mom to Sami (almost 1!!)

>From: Kriszta Modrovich <kmodrovich@...>

>Reply-Vaccinationsegroups

>Vaccinationsegroups

>Subject: New member introduction

>Date: Sun, 27 Aug 2000 20:45:42 -0700

>

>Hi,

>My name is Kriszta, I have joined the list to get suggestions, tips,

>support and help.

>

>I have a 4 year old son, who was diagnosed with autism, and has tons of

>allergies. He is fully vaccinated. (And will not get another vaccine!)

>

>I have a 4 month old baby, who hass not received any vaccines. I have a

>very tough time with his pediatrician, who does not believe vaccinations

>had anything to do with my 4 year old's problems, and pretty much told

>me that if I dont' want to vaccinate my baby, I better find another

>doctor, because his office is so strong believer of vaccinations.

>

>So far I am very stong, but I need all the information I can get on

>supporting my decision not just for the doctors, but for myself, so I

>can feel good about it.

>

>I look forward hearing from other parents who have decided not to

>vaccinate, I am excited about joining this list.

>

>Kriszta

>

_________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com.

Share information about yourself, create your own public profile at

http://profiles.msn.com.

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Hi,

I would love to see those lists of doctors who support no vaccinations. I

live in Camarillo, CA, if anyone knows doctors in this area, or can point me

into where to find them I would really appreciate it.

Thanks,

Kriszta

Kim in NYC wrote:

>

> Hi Kriszta,

> Welcome to the list. I don't know if anyone mentioned this yet, but there

> are lists with drs who are supportive of your decision. You would need to

> indicate what area you are from so the list manager can start you in the

> right direction!

> Glad to hear you are educating yourself!

>

> Kim in NYC

> Mom to Sami (almost 1!!)

>

> >From: Kriszta Modrovich <kmodrovich@...>

> >Reply-Vaccinationsegroups

> >Vaccinationsegroups

> >Subject: New member introduction

> >Date: Sun, 27 Aug 2000 20:45:42 -0700

> >

> >Hi,

> >My name is Kriszta, I have joined the list to get suggestions, tips,

> >support and help.

> >

> >I have a 4 year old son, who was diagnosed with autism, and has tons of

> >allergies. He is fully vaccinated. (And will not get another vaccine!)

> >

> >I have a 4 month old baby, who hass not received any vaccines. I have a

> >very tough time with his pediatrician, who does not believe vaccinations

> >had anything to do with my 4 year old's problems, and pretty much told

> >me that if I dont' want to vaccinate my baby, I better find another

> >doctor, because his office is so strong believer of vaccinations.

> >

> >So far I am very stong, but I need all the information I can get on

> >supporting my decision not just for the doctors, but for myself, so I

> >can feel good about it.

> >

> >I look forward hearing from other parents who have decided not to

> >vaccinate, I am excited about joining this list.

> >

> >Kriszta

> >

>

> _________________________________________________________________________

> Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com.

>

> Share information about yourself, create your own public profile at

> http://profiles.msn.com.

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Greetings........I would love to obtain such a list for the Seattle,

Washington state area!.........Kim

>

>

> Hi Kriszta,

> Welcome to the list. I don't know if anyone mentioned this yet, but

> there

> are lists with drs who are supportive of your decision. You would

> need to

> indicate what area you are from so the list manager can start you in

> the

> right direction!

> Glad to hear you are educating yourself!

>

> Kim in NYC

> Mom to Sami (almost 1!!)

>

>

>

> >From: Kriszta Modrovich <kmodrovich@...>

> >Reply-Vaccinationsegroups

> >Vaccinationsegroups

> >Subject: New member introduction

> >Date: Sun, 27 Aug 2000 20:45:42 -0700

> >

> >Hi,

> >My name is Kriszta, I have joined the list to get suggestions,

> tips,

> >support and help.

> >

> >I have a 4 year old son, who was diagnosed with autism, and has

> tons of

> >allergies. He is fully vaccinated. (And will not get another

> vaccine!)

> >

> >I have a 4 month old baby, who hass not received any vaccines. I

> have a

> >very tough time with his pediatrician, who does not believe

> vaccinations

> >had anything to do with my 4 year old's problems, and pretty much

> told

> >me that if I dont' want to vaccinate my baby, I better find another

> >doctor, because his office is so strong believer of vaccinations.

> >

> >So far I am very stong, but I need all the information I can get on

> >supporting my decision not just for the doctors, but for myself, so

> I

> >can feel good about it.

> >

> >I look forward hearing from other parents who have decided not to

> >vaccinate, I am excited about joining this list.

> >

> >Kriszta

> >

>

>

_________________________________________________________________________

> Get Your Private, Free E-mail from MSN Hotmail at

> http://www.hotmail.com.

>

> Share information about yourself, create your own public profile at

> http://profiles.msn.com.

>

>

>

>

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  • 7 months later...
Guest guest

Hi Kathy!

You do not have to vaccinate your son, irregardless of what the scare

letter said.

You can choose to ignore the letter and see if more are sent (are they from

the health department??) or just call up and tell them that you have a

private health provider now and not to send you anymore " reminders " . That

has worked well for others...

<A HREF= " http://www.909shot.com/ " >National Vaccine Information Center</A> <A

HREF= " http://www.nccn.net/~wwithin/vaccine.htm " >Vaccination Information & Choice

Network - Vaccine/Vaccination/Immunization Dan</A> <A

HREF= " http://www.access1.net/Via/ " >

</A><A HREF= " http://www.access1.net/Via/ " >VACCINE INFORMATION & AWARENESS</A>

(this one has state/legal info)

Once you know your legal rights in this matter, I'm sure you'll feel much

more secure.

As for homeschooling, it is not something you need to do to avoid

vax. N.C. has a religious exemption that you would use when it came time for

schooling. The archives have a ton of info concerning getting the exemption.

However, I would just add that homeschooling is as expensive or as cheap as

you want it to be, and as easy to do or as stressful as you make it. It

saddens me that so many parents think, " oh I'm not smart enough " or " We can't

afford it " - both are misconceptions. I strongly encourage parents with hsing

desires to read up and search the internet. Check your library for Growing

without Schooling magazine and Home Education Magazine.

<A

HREF= " http://www.home-ed-magazine.com/DSC/discus/messages/board-topics.html " >HEM\

's Networking and Discussion Boards</A>

<A HREF= " http://www.unschooling.com/ " >Unschooling.com</A> <A

HREF= " http://www.unschooling.com/ " >

</A> <A HREF= " http://fornits.com/gatto/ " > Gatto collection</A>

CherylO in MI

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Guest guest

Hi Kathy, Welcome to the list. :)

Not to burst your bubble, but don't be so sure everything is fine with your

son. Vaccinations can cause problems not readily recognize, I sure hope

that is not the case with your precious son.

It is my understanding all states have some form of exemption available.

I'm not sure which apply to NC but I'm sure someone here does. I would

highly recommend reading everything you can get your hands on so that you

have all the facts and have your own mind set, it's much easier to be talked

out of a decision you've made when you have a firm belief in what you are

doing. I've had Dr's and nurses try to back me in a corner before, if I was

not firmly resolved, I might have been pressured into complying.

As far as homeschooling, may families homeschool using nothing more than the

public library. It really isn't expensive at all. Time is largest hurdle

most families face. For more information on homeschooling I have a nice

collection of links in my favorites.

Matter of fact I have some nice links regarding vaccinations and Sheri's

website (listed at the bottom of all her emails) is a great source of info.

Good luck to you.

~Annette

http://www.reliableanswers.com/annette/favorites.asp

http://www.nccn.net/~wwithin/vaccine.htm - Sheri's website

-----Original Message-----

From: O'Neal [mailto:katndug@...]

Thank god that is all that went wrong. I am nervous about that and don't

know what our rights are with regards to that.

I am here to gain encouragement in my decision, meet other intelligent and

loving parents that have also made the decision and hopefully gain some

legal insight into how to protect ourselves for the not so distant future.

We have considered homeschooling to not have to get him immunized but I do

not think financially that we can manage that.

Kathy

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Guest guest

Oooh and be careful about listening too much and being too respectful. I was

just talking to someone - I think at the Mothering Board - who said she told

the doc she did NOT want a particular vaccination and her child received it

anyway. The mom was saying she felt the doctor may have translated her

listening respectfully as consent for the shot.

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Guest guest

Hello everyone, my name is Nellie, and I'm the mother of a beautiful 6mos.

old baby girl named . I have only recently been alerted of the

vaccination issue, and after considering all the information, I would like

to selectively vaccine. As of right now I know I don't want the MMR (to

many bad stories about the reactions to it) nor the varicella (which I think

is pointless, since vaccinated children are just as able to contract it as

unvaccinated; plus, isn't it deadlier when older? better not forget those

boosters) I do have questions though:

1. DD is on medicaid - do I have to vaccinate her?? And if I refuse, would

I lose it?

2. Exemption - Can I claim religious exemption on only a couple of vaccines?

Or must it be all or nothing?

3. What vaccines on the market today contain thimerisol? (sp?) Since

medicaid is always bill last and will pay least, would I be unable to get

those vaccinations that are thimerisol free? And where can I get

information about how much mercury is in a vaccine?

DD has her 6 mos. check up next week, and I don't know how the dr. will

react when I start asking questions. Since I'm still technically a teenager

(I'm 19) I'm afraid all my questions will be dismissed and none answered.

Also, I'm considering home-schooling (many reasons, plus I've always wanted

to be a teacher when I grew up) but I don't have much information on it

(thanks for the links sent to Kathy, Cheryl!! Great help for me too). I

would like some recommendations and reviews if possible (feel free to email

me off-list I know it's off-topic).

Thank you!! I think that's all for now :)

Nellie

~ Elianna Jad'Rys, 10-18-2000 ~

Re: new member introduction>

><A HREF= " http://www.909shot.com/ " >National Vaccine Information Center</A>

<A HREF= " http://www.nccn.net/~wwithin/vaccine.htm " >Vaccination >Information

& Choice

> Network - Vaccine/Vaccination/Immunization Dan</A> <A

HREF= " http://www.access1.net/Via/ " >

> </A><A HREF= " http://www.access1.net/Via/ " >VACCINE INFORMATION &

AWARENESS</A> (this one has state/legal info)

> <A

HREF= " http://www.home-ed-magazine.com/DSC/discus/messages/board-topics.html "

>HEM's Networking and Discussion Boards</A>

> <A HREF= " http://www.unschooling.com/ " >Unschooling.com</A> <A

HREF= " http://www.unschooling.com/ " >

> </A> <A HREF= " http://fornits.com/gatto/ " > Gatto collection</A>

>

> CherylO in MI

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Guest guest

BEFORE her 6 month appt, find out the doctor's vaccine stance. If

possible, research and find a doctor sympathetic to selective

vaccination. They DO exist. I went 6 months without one until a

bunch of my La Leche League members pointed me in the right

direction. You can chose a family doctor versus a pediatrician.

That is what I have, a family doctor. I liked him so much my whole

family now goes to him.

If you don't have a choice, then keep it very simple. Just say, " I

am researching vaccines right now, so I will not permit vaccines at

this time. However, if you have some good web sites to point me at,

I would appreciate it. " And you should be very aware of what WHO,

the CDC, and the AAP has to say about vaccines. That way, you'll be

prepared for anything he has to say (I notice all the doctors who

pressured us were basically quoting from these sites). If you don't

know something that he says, tell him that you appreciate his

concern - that you know he has your child's best interest in mind,

and that you will think very hard on what he has to say. But at this

time, you are not going to permit shots. See where I am getting at?

You don't have to argue with him. You can be respectful. You can

listen. And then you can decline. Period.

....

2. My understanding is that you can only claim religious exemption

if you totally don't vaccinate. HOWEVER, the impression (said with a

sigh of relief) I am getting from this list is that you don't have to

justify ANYTHING. You simply state back what the law says in your

state and sign it. How are they ever going to know whether you

selectively vaccinate or not?

3. I know Merck is supposed to be mercury free:

The pharmaceutical industry has been quick to respond to this new

concern. On September 9, 1999, Merck announces that their series of

infant vaccine are now " Thimerosal-free " . What parents who are

vaccinating should keep in mind is that there is a current supply of

Thimerosal-containing vaccines still currently in circulation and

that not all drug companies have been as quick to respond to this

issue as Merck.

http://www.alternativeparenting.com/health/thimerosal.htm

4. Homeschooling:

http://www.n-h-a.org/

http://www.homeschoolzone.com/

http://homeschooling.about.com/education/homeschooling/

> Hello everyone, my name is Nellie, and I'm the mother of a

beautiful 6mos.

> old baby girl named . I have only recently been alerted of

the

> vaccination issue, and after considering all the information, I

would like

> to selectively vaccine. As of right now I know I don't want the

MMR (to

> many bad stories about the reactions to it) nor the varicella

(which I think

> is pointless, since vaccinated children are just as able to

contract it as

> unvaccinated; plus, isn't it deadlier when older? better not

forget those

> boosters) I do have questions though:

> 1. DD is on medicaid - do I have to vaccinate her?? And if I

refuse, would

> I lose it?

> 2. Exemption - Can I claim religious exemption on only a couple of

vaccines?

> Or must it be all or nothing?

> 3. What vaccines on the market today contain thimerisol? (sp?)

Since

> medicaid is always bill last and will pay least, would I be unable

to get

> those vaccinations that are thimerisol free? And where can I get

> information about how much mercury is in a vaccine?

> DD has her 6 mos. check up next week, and I don't know how the dr.

will

> react when I start asking questions. Since I'm still technically a

teenager

> (I'm 19) I'm afraid all my questions will be dismissed and none

answered.

>

> Also, I'm considering home-schooling (many reasons, plus I've

always wanted

> to be a teacher when I grew up) but I don't have much information

on it

> (thanks for the links sent to Kathy, Cheryl!! Great help for me

too). I

> would like some recommendations and reviews if possible (feel free

to email

> me off-list I know it's off-topic).

>

> Thank you!! I think that's all for now :)

>

> Nellie

> ~ Elianna Jad'Rys, 10-18-2000 ~

>

>

>

>

> Re: new member introduction>

> ><A HREF= " http://www.909shot.com/ " >National Vaccine Information

Center</A>

> <A HREF= " http://www.nccn.net/~wwithin/vaccine.htm " >Vaccination

>Information

> & Choice

> > Network - Vaccine/Vaccination/Immunization Dan</A> <A

> HREF= " http://www.access1.net/Via/ " >

> > </A><A HREF= " http://www.access1.net/Via/ " >VACCINE INFORMATION &

> AWARENESS</A> (this one has state/legal info)

> > <A

> HREF= " http://www.home-ed-magazine.com/DSC/discus/messages/board-

topics.html "

> >HEM's Networking and Discussion Boards</A>

> > <A HREF= " http://www.unschooling.com/ " >Unschooling.com</A> <A

> HREF= " http://www.unschooling.com/ " >

> > </A> <A HREF= " http://fornits.com/gatto/ " > Gatto

collection</A>

> >

> > CherylO in MI

>

>

>

> NetZero Platinum

> No Banner Ads and Unlimited Access

> Sign Up Today - Only $9.95 per month!

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Guest guest

This happened to a friend of mine. She specifically stated AND

documented that her son was not to have Prevnar. With on further

discussion, her son got it anyway. If you are going to partially

vaccinate, be very sure BEFORE that needle goes in as to what you are

agreeing to. Had my friend insisted on signing the papers BEFORE the

shots, she would have had a complete list of the shots and could have

reacted.

> Oooh and be careful about listening too much and being too

respectful. I was

> just talking to someone - I think at the Mothering Board - who said

she told

> the doc she did NOT want a particular vaccination and her child

received it

> anyway. The mom was saying she felt the doctor may have translated

her

> listening respectfully as consent for the shot.

>

>

>

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Guest guest

At 11:29 AM 04/20/2001 -0500, you wrote:

>Hello everyone, my name is Nellie, and I'm the mother of a beautiful 6mos.

>old baby girl named . I have only recently been alerted of the

>vaccination issue, and after considering all the information, I would like

>to selectively vaccine. As of right now I know I don't want the MMR (to

>many bad stories about the reactions to it) nor the varicella (which I think

>is pointless, since vaccinated children are just as able to contract it as

>unvaccinated; plus, isn't it deadlier when older? better not forget those

>boosters) I do have questions though:

ALL vaccines are dangerous and deadly - selectively is dangerous.

>1. DD is on medicaid - do I have to vaccinate her?? And if I refuse, would

>I lose it?

No and no!

>2. Exemption - Can I claim religious exemption on only a couple of vaccines?

>Or must it be all or nothing?

Exemptions are for school and they have no idea what you ahve gotten.

>3. What vaccines on the market today contain thimerisol? (sp?) Since

>medicaid is always bill last and will pay least, would I be unable to get

>those vaccinations that are thimerisol free? And where can I get

>information about how much mercury is in a vaccine?

Who knows anymore.

http://www.nccn.net/~wwithin/mercury.htm

And Mercury is ONLY ONE of the serious dangers. Please hang out on this

list awhile and familiarize yourself with my webpages

http://www.nccn.net/~wwithin/vaccine.htm

>DD has her 6 mos. check up next week, and I don't know how the dr. will

>react when I start asking questions. Since I'm still technically a teenager

>(I'm 19) I'm afraid all my questions will be dismissed and none answered.

Who is hte parent here. You don't go in for appointment until you are

strong. No one will pay for your damged or dead child but you - sorry to

be so blunt. You are employing the doctor.

>

>Also, I'm considering home-schooling (many reasons, plus I've always wanted

>to be a teacher when I grew up) but I don't have much information on it

>(thanks for the links sent to Kathy, Cheryl!! Great help for me too). I

>would like some recommendations and reviews if possible (feel free to email

>me off-list I know it's off-topic).

>

>Thank you!! I think that's all for now :)

>

>Nellie

>~ Elianna Jad'Rys, 10-18-2000 ~

>

>

>

>

> Re: new member introduction>

>><A HREF= " http://www.909shot.com/ " >National Vaccine Information Center</A>

><A HREF= " http://www.nccn.net/~wwithin/vaccine.htm " >Vaccination >Information

> & Choice

>> Network - Vaccine/Vaccination/Immunization Dan</A> <A

>HREF= " http://www.access1.net/Via/ " >

>> </A><A HREF= " http://www.access1.net/Via/ " >VACCINE INFORMATION &

>AWARENESS</A> (this one has state/legal info)

>> <A

>HREF= " http://www.home-ed-magazine.com/DSC/discus/messages/board-topics.html "

>>HEM's Networking and Discussion Boards</A>

>> <A HREF= " http://www.unschooling.com/ " >Unschooling.com</A> <A

>HREF= " http://www.unschooling.com/ " >

>> </A> <A HREF= " http://fornits.com/gatto/ " > Gatto collection</A>

>>

>> CherylO in MI

>

>

>

>NetZero Platinum

>No Banner Ads and Unlimited Access

>Sign Up Today - Only $9.95 per month!

>http://www.netzero.net

>

>

>

>

>

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Guest guest

>listen. And then you can decline. Period.

>

>...

>

>2. My understanding is that you can only claim religious exemption

>if you totally don't vaccinate. HOWEVER, the impression (said with a

>sigh of relief) I am getting from this list is that you don't have to

>justify ANYTHING. You simply state back what the law says in your

>state and sign it. How are they ever going to know whether you

>selectively vaccinate or not?

Yes, they don't know. You just type up your form using the wording of your

state law.

>

>3. I know Merck is supposed to be mercury free:

>

>The pharmaceutical industry has been quick to respond to this new

>concern. On September 9, 1999, Merck announces that their series of

>infant vaccine are now " Thimerosal-free " . What parents who are

>vaccinating should keep in mind is that there is a current supply of

>Thimerosal-containing vaccines still currently in circulation and

>that not all drug companies have been as quick to respond to this

>issue as Merck.

Many doctors offices are still using the avccines with mercury in them

Again this is only one of the problems with vaccines - children die or are

damaged after vaccines without mercury in them too - MMR, polio, chickenpox

>

--------------------------------------------------------

Sheri Nakken, R.N., MA

Vaccination Information & Choice Network, Nevada City CA & UK

530-478-1242 Voicemail

http://www.nccn.net/~wwithin/vaccine.htm

" All that is necessary for the triumph of evil is that good men ( &

women) do nothing " ...Edmund Burke

ANY INFO OBTAINED HERE NOT TO BE CONSTRUED AS MEDICAL OR LEGAL ADVICE. THE

DECISION TO VACCINATE IS YOURS AND YOURS ALONE.

Well Within's Earth Mysteries & Sacred Site Tours

http://www.nccn.net/~wwithin

International Tours, Homestudy Courses, ANTHRAX & OTHER Vaccine Dangers

Education, Homeopathic Education

CEU's for nurses, Books & Multi-Pure Water Filters

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  • 1 year later...
Guest guest

Hello Biancka, You have found a great place to talk to other people

with your condition. I have had this for 4 years now, and I still

have a hard time finding anyone, even doctors and nurses who have

heard of it. If you read all the old messages, you will find people

who have the same syptoms you have had and it really helps to know

you are not alone. I have had 6 dilatations, but now am going to get

the myotomy operation to open the valve. I have lost about 40 pounds

with this, but I really needed to anyway! Janet -

-- In achalasia@y..., " - - --^[ b i a n c k a ]^-- - - "

<biancka@b...> wrote:

> Hello Everyone,

>

> Thank you so much for letting me be a part of this group. I am

Biancka, I am 28 years old and I live in The Netherlands (anyone else

out here from The Netherlands ???). I got diagnozed with Achalasia

just yesterday and I am still in shock. I have had difficulties

eating for as long as I can remember. The last couple of yours I have

difficulties with fluids too.

>

> The specialist I saw yesterday is going to check my gullet on July

2nd with a Gastroscopy. Not looking forward to it at all but the

specialist said that I'd better get used to it. He is going to have

to look at my gullet lots and lots of times in the future. The

treatment he suggested is dilation in combination with medication. I

havent started the medication yet but I will after July 2nd.

>

> I just read another email by Tanje. She said it was best to go on a

fluid diet before you have an exam. That is exactly what my

specialist said too. I have to go in to hospital on tuesday and he

said I had to start my fluid diet on saturday. Wow, will I lose

weight or what. That is the only thing that hasn't happened to me

yet: lose weight because of Achalasia. I have done in the past (now I

know it was Achalasia, then the doctors that I had an

eatingdisorder).

>

> I'd better go and have some breakfast :-)

>

> Hugs,

>

> Biancka

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  • 3 months later...

Shari Welcome. Remember whatever plan you chose the 3 important tips to any

plan is PORTIONS, water, and exercise. I suggest a journal. It is a

wonderful tool. I like weighin in on fridays.

NH

Mommy to Abby Liz 10-25-94

Mommy to Anne 7-1-99

START 6/1/02

238/220/199

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<PRE>I too was a member of Overeaters Anon. It is a wonderful thing for many

people but not for me. No matter what they said I was alway consumed with

guilt if I fell of my program even by a little and then coupled with the fact

they kept telling me that I couldn't stop once I started only led me to eat

and eat and eat once I fell off. Many Many people have been helped by this

organization but I wasn't one of them It wasn't the fault of OA it was my

fault. Peace pat

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> I used to be a member of Overeaters Anonymous, this may sound like a lead.

:) Sorry

Not at all. A few ladies here were asking about OA a few months ago and I

think a few do attend meetings.

>and a mother of two boys, age 15 and 11.

Dangerous ages!

>We plan to get a dairy goat in the spring.

I live in gritty, urban NJ, and one of my lifelong dreams has been to raise

Nubian goats. I guess that's from reading too much Mother Earth News in the

1970's. LOL

> joining OA and a Codependency group,

These groups have fallen out of favor in our area. The only 2 OA meetings

left are held at night - one in a hospital a half hour away in a really bad

urban neighborhood (people have been mugged going to meetings), the other is

just a few blocks away from me BUT it's sponsored by a therapist who runs

every meeting and urges everyone to get therapy - he offers a discount to OA

members. :(

> I am stronger emotionally and spiritually than ever before. My weight

finally stopped climbing and I have maintained a fairly consistent weight

for the past three years. I have even lost a few pounds.

Sounds like you were doing great.

> About two years ago I began having trouble with my blood-sugar dropping.

I've been battling hypoglycemia since my pregnancy, 19 years ago, and may

have shown signs of it years sooner but never knew it. I have an Accucheck

and test my blood sugars frequently.

> I had my annual check up this week and my doctor is unhappy I have not

lost more weight.

So you're in a Catch-22 situation - if you continue eating the way you are,

your blood sugars are stable but so is your weight. If you cut back on your

food and eat less, your blood sugars get out of control.

Did the doctor have any great hints on how you're supposed to achieve weight

loss under those circumstances? Any words of wisdom, or just " do it " ?

>She suggested I consider bariatric surgery. I do not want to do anything

that drastic.

I don't blame you. I suggest *anyone* who even thought about it in the back

of their minds to see this site:

http://gastricbypass.netfirms.com/

> I have not received any emails yet,

Let me know if you had to read this on the web site because isn't

sending you listmail. Many people are complaining on every list I belong to

that they signed up, got the intro/Welcome message, and never received

another post, even though messages are on the web site archives. I've been

trying to get email from the Sansone list for 2 weeks now. :(

>Commit your food plan or exercise goals? On a daily basis? What about

weigh-ins?

Nothing formal - we had members that complained it was wrong of us to impose

our will on the list and make demands like that. Some of us *do* post our

daily food plans and/or weekly weigh-in's, but there's no groups concensus

on it.

> I noticed on some of the posts there are numbers after the signature. What

are these? Weights?

Start date of the current weight loss plan, then Starting weight/current

weight/goal weight and sometimes a mini-goal weight is tacked on at the end.

Totally optional information.

Welcome to the list, and hopefully others will come out and say Hi, too.

It's been really quiet here lately, especially since school started.

Be sure to look over the Files for recipes and Links for some good info.

Sue in NJ

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> Hi Shari,

Shari is having some problems getting email from the list, the same problem

I'm having with the Sansone list. It's another glitch where

we're members, have full web access, yet no email is coming through to us.

I'll forward your message to her at: sharibaker@... and hopefully

she'll respond via the web.

Sue in NJ

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  • 2 months later...

Welcome Sue! My husband types in all caps too, so I'm used to it!

My name is Debbi, and I'm in Kalamazoo County, Michigan. I've been

treated at the University of Michigan Medical Center since 1996. You

might want to consider seeking treatment there... Also, I recall

someone just in the past week or so saying that one of the doctors

from U of M had recently moved to St. phs Hospital. I never saw

that doc myself (I see Nostrant at UMMC), but I have heard great

things about him.

I personally plan on seeking a consult at The Cleveland Clinic this

year. Check them out at

http://www.clevelandclinic.org/digestivedisease/swallowing.htm

I've heard wonderful things about Cleveland here on this board!

As for your own ballooning, I can only suggest that you ask how many

balloonings the doc performing yours has done previously. Dilations

are one of those things where " practice makes perfect " . Your chances

of having your esophagus perforated are higher with a doc who's not

as experienced. That's precisely why I drive to Ann Arbor for my

treatments -- they do dilations there all the time, compared to my

town where only *one* out of the 20+ GI docs in the region even DOES

dilations, and he doesn't do them very often.

The procedure itself wasn't bad for me, except both times (I had one

in 1996 and one in 1998) I woke up in the middle of the procedure

(they put me right out again... it's just kinda scary waking up with

tubes in your throat and peoples' hands in your mouth, etc, and you

not knowing where you are). Tell 'em you want LOTS of happy juice in

your IV tube before they start! :o)

Both times I would have gone right back to work the very next day if

it had been allowed. I was told to eat softer foods for a few days

and then slowly add more normal foods. I had mild discomfort from

the second ballooning (which was significantly larger than the

first), but never enough that I even bothered taking Tylenol.

Feel free to email me directly or post here on the board if you have

any questions -- my esophageal life is an open book to anyone

interested in reading it!

Debbi in SW Michigan

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Debbi

from Indiana here. I was born in Michigan. At St. ph's. Funny..anywho..I highly reccommend Cleveland Clinic. I don't think I'd be where I am today without Dr. Rice. He was a God send to me {sorry if i offfend anyone with using the word God}. I recently went back for my check up and it was great news. I am now a little over 3 months post op and still am having no symptoms. I traveled 7 hours one way to get there and it was worth it. I know another girl from our group Amber who had her surgery there on Dec 13th. I haven't heard from her yet. I need to email her and see how she is doing. I did call her while she was in the hospital though and she said she was coming along. It is a long and hard recovery. Another woman Clara i shared a room with her and she is doing quite well also. I have not a bad thing to say about them up there. I only wish I had done it sooner. Instead of letting some other Dr get ahold of me.

In Indiana

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  • 5 months later...
  • 9 months later...
Guest guest

Hi , I believe I recognize you from elsewhere :-)

I've been on this list a good while and am unable to keep up with it

regularly, but I still find it invaluable for occasional issues that

come up for me. Plus of course there's a lifetime of information to

devour/digest, as you mentioned. I'm still educating myself about

vaccines but feel quite leery of them, I must say. Our 4y11mo had

standard vax in Canada through 18m but nothing since (we're in the US

now). Our 24mo has had none. If we do anything at all for dc2 we'll

selective/delay, but the burden of proof is on the vaccinators' side.

Of course the burden of education is on mine! My point is, it's going

to take a lot to convince me to do ANY vaccinating. I wish I'd known

more before vaxing our first. I feel infinitely blessed that we

haven't *appeared* to have any reactions.

Welcome and good luck with your explorations!

Ninette

> Hello, I am . My daughter is Callie, born 6-16-03. I have

to

> admit I am overwhelmed at the amount of information that was

shipped

> to me upon joining. Callie received some vaccines already. She

got

> both doses of hep b, and the first round of the others at her 2

month

> appt. She is now almost 10 months old. I have not been back to

the

> doc since the 2 month well baby. I felt like I researched vaccines

> well enough to decide not to get any more (and I regret the ones we

> did). Then on another list I am on, someone brought up a subject

> that made me worry if I had truly researched it enough. I did get

my

> information from the internet, and who knows if the bibliographies

> were accurate. Like if the info I read was even true. I am sure

> vaccines are wrong, my mommy voice tells me so. I am also against

> them for the simple fact that the vaccine is made from a cell line

> that originated from an aborted fetus. But doubt reared its ugly

> head, so I have come to you that have been here longer (in our eye

> opened reality) to study some more. I htink I will be kept busy

for

> a year or two following the leads in my mailbox, thank you Sheri.

I

> was strongly encouraged to post an intro, so here it is.

>

> mother to Callie 6-16-03 diaperless at 17 wks!

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