Guest guest Posted March 31, 2005 Report Share Posted March 31, 2005 Hi Tammy, I'm not sure what causes the red flushed face but I have had it for years, long before the CML and Gleevec. For pain, I take Advil but your Mom should check with her doctor what he/she recommends. It's not a good idea to take Tylonal because it can be hard on the liver which is already somewhat taxed trying to metabolize the Gleevec. The cramps are a very common side effect of the Gleevec and can be helped with potassium, calcium and magnesium supplements. Again, check with your Mom's doctor to see how much to take as too much of anything can be dangerous. Lots of us get enough potassium from eating 1 or 2 bananas a day but the calcium and magnesium requirements are sometimes harder to meet. If she does take calcium, make sure to tell her not to take it within two hours of taking the Gleevec because calcium can interfer with the Gleevec absorbtion. Also, depending on the type of calcium, it will determine if she should take it with or without food. For instance, calcium citrate is best taken on an empty stomach whereas calcium carbonate is better with a food. No one knows what causes CML but some studies have linked benzene and radiation exposure to it. While some of the members on this list have had exposure to one or both of these, most of us have not so it's just the luck of the draw I guess. Take care, Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2005 Report Share Posted March 31, 2005 Tammy: Hi. My sixteen-year-old son often has redness of the face and is very pale. He is also cold a lot. He likes the heat turned up to the point where we can't stand it so we got him his own heater for his room. He also wears a sweatshirt in the house most of the time. I think this is either a side effect of the Gleevec or from CML because he didn't have this before. He is on 600 mg Gleevec daily. Barb Neddo, Mom to Tom 16, dx 8/04, BMT scheduled 5/04/05 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2005 Report Share Posted March 31, 2005 ---Hi all, Yes my Mom had some redness also before being told she had CML. I wonder what causes this; she is very fair also and very heat sensitive. She is also getting some dark purple moles on her tummy; is this CML related? Thanks In , " Tracey " <traceyincanada@y...> wrote: > > Hi Tammy, > > I'm not sure what causes the red flushed face but I have had it for > years, long before the CML and Gleevec. > > For pain, I take Advil but your Mom should check with her doctor > what he/she recommends. It's not a good idea to take Tylonal > because it can be hard on the liver which is already somewhat taxed > trying to metabolize the Gleevec. > > The cramps are a very common side effect of the Gleevec and can be > helped with potassium, calcium and magnesium supplements. Again, > check with your Mom's doctor to see how much to take as too much of > anything can be dangerous. > > Lots of us get enough potassium from eating 1 or 2 bananas a day but > the calcium and magnesium requirements are sometimes harder to > meet. > > If she does take calcium, make sure to tell her not to take it > within two hours of taking the Gleevec because calcium can interfer > with the Gleevec absorbtion. Also, depending on the type of > calcium, it will determine if she should take it with or without > food. For instance, calcium citrate is best taken on an empty > stomach whereas calcium carbonate is better with a food. > > No one knows what causes CML but some studies have linked benzene > and radiation exposure to it. While some of the members on this > list have had exposure to one or both of these, most of us have not > so it's just the luck of the draw I guess. > > Take care, > Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2005 Report Share Posted April 3, 2005 To add to that comment about Tom. can be flushed in the face and cold in the chest -- this happened quite a bit during the winter this year. husband, , dx 7/04 Gleevec 400 mg blood normal, still not PCRU but moving in that direction At 04:16 AM 3/31/2005, Barb Neddo intelligently penned >Tammy: > >Hi. My sixteen-year-old son often has redness of the face and is very >pale. He is also cold a lot. He likes the heat turned up to the point >where we can't stand it so we got him his own heater for his room. He >also wears a sweatshirt in the house most of the time. I think this is >either a side effect of the Gleevec or from CML because he didn't have >this before. He is on 600 mg Gleevec daily. > >Barb Neddo, >Mom to Tom 16, dx 8/04, >BMT scheduled 5/04/05 > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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