Fw: BMS Trial in Denver

[Guest guest]

I first sent this message to the old group which is now CML Hope. I never heard

much from anyone But, Zavie told me about the new group. I knew there was one, I

just didn't know " where " .

I hope the petition I am hearing so much about helps us all.

I don't see how BMS can play God with us. Are we all " pawns " ?

BMS Trial in Denver

Well, my fellow CML'ers...I have been there and done that!

I don't post too often, but I am feeling a little desperate.

I live in Colorado, and decided to wait for the BMS trial to begin in Denver at

the Rocky Mountain Cancer Center. It is 5 hours away, but, closer than LA or

Houston.

My WBC hasn't been below 70,000 in some time, and I am doing Procrit to help the

low hemoglobin. My spleen is the size of Texas, (well, it feels that big!), and

I am TIRED all the time.

My regular oncologist told me to try, so I am trying to get on this BMS trial.

I meet Dr. Matus in Denver ,in early May. I went to get all the tests done last

Thursday, BMB, EKG, bloodwork...Friday I was told my " blast " cells are at

12,000, therefore I wasn't eligible for the trial! I need to be at 15,000 or

better (worse!)...or in the " chronic " phase.

It's all SO unfair! The doctors tell me I am a " mirical " , a true " survivor " . I

mean, I have gone through " blast " phases , some as high as 22,000. and survived.

I get better, and then worse.

Has anyone else had this happen? I mean, I was dx'd in '93...yes, '93. I suppose

I should be dead. But, that's no fun!

I keep thinking, has ANYONE else survived like I have? In and out of " blast "

phase?

Are there any other studies out there I could be on? I am not sick enough, or,

too sick! It's crazy.

Still crazy after all these years,

Sharman Denison