Guest guest Posted January 26, 2007 Report Share Posted January 26, 2007 here is what i got Down Syndrome > Hi, > My name is Glavin. I run a website devoted to providing resourceful > information for a number of topics in education and disorders. I have > created an information page on Down Syndrome including an overview, > medical research, sociology, notable individuals with d.s., d.s. in > fiction, Support Services, Special Education Schools, Camps, Articles, > Books, Videos, Magazines & DVDs for the genetic disorder . Please take a > moment out of your day to visit the page. If you would like to help in any > way please do not hesitate to contact me. I am always looking for > individuals interested in providing articles, resources or have any > services for individuals with D.S. > http://www.k12academics.com/downsyndrome.htm > Thanks! > Glavin > K12academics.com > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2007 Report Share Posted March 3, 2007 My suggestion to you is to discuss this with a benefits counselor. The illinois lifespan has several listed that I would also suggest an expert attny. in special needs trusts. Keep in touch, good luck, Cindi Swanson could help you work through the system. Somehow you need to get on Medicaid, with waiver attached. That is the gateway to services and it is the way services are being provided in other states. If you need specific info on benefits counselors contact the Illinois Lifespan Project at 800-588-7002 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2007 Report Share Posted March 5, 2007 If your looking for an attorney who specializes in Special Needs Trusts I have enclosed a list. A Special Needs Trust will allow your son to qualify for all the medicaid benefits while still allowing him access to supplemental funds in a trust. --- momofchris2007 <slpanda2@...> wrote: > Good Morning. I am hoping to get a discussion > started with other > parents with Down Syndrome adults. Everyone is > welcome to read and > respond of course, all information and questions > welcome. Please > share your information and ask questions. Lets all > help each other. > We have a son with DS who will be 26 in April. > He has had > great experiences with school, social activities, > work, and > community. was born with 2 club feet which > did run in our > family. He had 3 surgeries on his feet and walks > very well and most > people could never tell he had a problem. He wears > glasses, He did > have a PDA that he had closed heart surgery to > correct. Since his > first few years he has been very healthy and has > always been a happy > sweet young man. He had great teachers and was in > special classes > but joined the regular classes for gym, lunch, art, > music, shop, and > others. In High School his teachers got him jobs to > try outside of > school and taught him community living, household > chores as well as > Math, English, and a little of everything. His > teacher is the one > that got him the job at Jewel Foods 5 years ago and > he still loves it > and does a great job. He attends the Social Club > through the Park > District/Gateway program every other Friday but also > attends other > activities with them. He is able to take care of > his daily needs, > keep his room clean, help with chores but needs > direction and will > need someone to watch over him and live with him. > He has no desire > to move out and we do not want him too but someday > he may have too. > This is my only concern at this time. I have had > bad experiences > with PACT and am told there are no longer waiting > lists for living > situations. They are on an emergency basis only. I > do not know > where to go or how to investigate housing as I am > told we have to get > him on Medicaid as I have said he can not qualify > for as he gets too > much Soc. Sec. Dis. and what he makes at Jewel. He > does have > Medicare A and B as well as my insurance as a > secondary, Please > share your story. Thanks, Shirley > > Nixon ________________________________________________________________________________\ ____ Get your own web address. Have a HUGE year through Small Business. http://smallbusiness./domains/?p=BESTDEAL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2011 Report Share Posted July 8, 2011 Hi, just wondering is there any classes of such in Singapore.Thanks and regardsSent from my iPhoneOn Jul 8, 2011, at 23:59, kyness@... wrote: Dr. Masgutova, Pam mentioned in the class I took that you were doing particular work relevant to the Down syndrome population? I have been using some of your techniques with good results to help resolve some issues but am excited to think that you are putting together particulars for them. We work with a large population of individuals with down syndrome from birth thru adulthood so are very interested in your findings. If relevant, friends are looking at putting on a down syndrome conference in Florida next year and would be great to have you as one of the presenters. Let us know the updates in this area. Looking forward to taking more of your classes - time and circumstances keep getting in the way! Wish I lived in Calif - so many classes there! Blessings on your work. Kay Ness - icando.org - Atlanta Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2011 Report Share Posted July 13, 2011 Thank you Leah. My e-mail address is lpzfamily@... I look forward to your e-mail. Thank you. Angelina From: Leah Amdur <leahamdur@...>Subject: Re: Down syndrome Date: Monday, July 11, 2011, 7:44 AM I have an 11 year old son with DS and also PDD which is on the autistic spectrum I saw that the school was not succeeding with teaching him to speak I took a Prompt speech course and I spent 30 to 40 hours a week on speech therapy which I taught him myself I have over 1800 songs for him and I have over 300 DVDs it has paid off He understands everything. He has a wide general knowledge and he loves life I got him moved from a life skills program to a cognitive program and the staff have read over 20 children’s books to him this year I am teaching him alef beis and how to read He was born premature at 27 weeks and he had many sensory motor issues.. Thank G-d those are now mostly resolved He only walked at 4 years and he still does not jump He stayed permanently in hospital til the age of 2 1/2 years and he had frequent pneumonia He is the love of our lives he is such a strong character and he is so happy and positive From: sheena s. Sent: Monday, July 11, 2011 4:37 PM chat list Subject: RE: Down syndrome my son has down syndrome..he's almost 5..i would love to know whats best to do with him...esp for speech:)«•´`•.(*•.¸(`•.¸ ¸..•´)¸.•*).•´`•» «•´¨*•.¸¸.*¤~*SHEENA*~¤*.¸¸.•*¨`•» «•´`•.(¸.•´(¸.•* *•.¸)`•.¸).•´`•» Holistic Nutritionist & Certified Nutritional ConsultantBrain Gym ® Consultant/Instructorhealthyu@..."You must be the change you wish to see in the world.." Mahatma GandhiFeeling unloved is the worst poverty in the world. ~ Mother Quote Link to comment Share on other sites More sharing options...
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