Re: Digest Number 73

[Guest guest]

CTNative @aol.com writes:

> I for one feel that you are correct in feeling that this doc is not doing

the

> best for you. Is there a chance you can get a second opinion?

Yes, I can. I suppose this is the right thing to do. My internist thinks

this rheumatologist is the cat's pajamas so I hate to " fire " her. Plus,

whenever I get the message from a doctor that " there's really not much wrong

with you " i always start wondering if I'm a hypochondriac. You're right

though. I will find a new rheumatologist.

Dwanna

[Guest guest]

In a message dated 2/19/99 2:21:19 AM Central Standard Time, ANGERA@ webtv.net

writes:

> Another thing my Podiatrist keeps after me is the

> type of shoes I where. He says I should wear a closed in tennis shoe

> for more support. What he doesn't understand is how painful enclosing

> my toes is

Have you tried looking at a hiking/outdoor supplies store? They have shoes

that have side support but open toes. They're kind of ugly but fortunately

they're in style now

Dwanna (who lives in her Birkenstocks)

[Guest guest]

In a message dated 2/19/99 2:21:19 AM Central Standard Time, ctnative@...

writes:

> >Have you learned to inject yourself at home? You will feel much more in

> >control once you do. Ultram is a strong NSAID.

> >It worked well for me, but I got ringing in the ears (tinnitus) and had to

> >stop using it. It can also be hard on the stomach, so be careful,

> >

>

> Is Ultram an NSAID? I know it's a pain medication, but I don't think

> it's technically an NSAID. Of course I've been wrong on numerous

> occasions before! <G>

From http://www.rxlist.com/cgi/generic/tramadol.htm:

Ultram (tramadol hydrochloride) is a centrally acting analgesic. It is in the

opiate agonist class of drugs along with codeine, morphine, etc. Suggested

dosage is 50 mg to 100 mg as needed for relief every four to six hours, not to

exceed 400 mg per day. For moderate pain tramadol 50 mg may be adequate as the

initial dose, and for more severe pain, tramadol 100 mg is usually more

effective as the initial dose.

Although tramadol can produce drug dependence of the -opioid type (like

codeine or dextropropoxyphene) and potentially may be abused, there has been

little evidence of abuse in foreign clinical experience. In clinical trials,

tramadol produced effects similar to an opioid, and at supratherapeutic doses

was recognized as an opioid in subjective/behavioral studies. Tolerance

development has been reported to be relatively mild and withdrawal, when

present, is not considered to be as severe as that produced by other opioids.

[Guest guest]

Dwanna,

The pain is real. Don't ever feel that you are a hypochondriac.

Angera

[Guest guest]

Dwanna,

Thanks. I will look into that type of shoe. Never even gave them a

thought.

Angera

[Guest guest]

Dear Doris,

I do not feel there is any likely connection between RH factor and PDD.

While I have increased " respect " for possible immune stresses / triggers,

and in that context, would never rule out an " RH pregnancy " or Rhogam

(potentially " triggering " the wrong aspect of the immune system), I do not

know of any data supporting such an association, and as mentioned in the

response by , Rhogam's safety record is extremely good.

Glad you were able to attend the conference. Sorry, there was not enough

time for all the questions (wish we could have changed a few airline

schedules, but . .. )

Take care,

MJG

Message: 4

Date: Fri, 18 Jun 1999 23:08:20 -0400

From: steve and doris <sjsmith@...>

Subject: mother's RH factor

Dr Goldberg:

I submitted this question in for the final

Q & A but (alas! sigh!) due to time restrictions

wasn't answered:

I've read 1-2 articles which state a connection

between autism / PDD and the RH factor a mother has

Do you have any thoughts on this ?

Thank you!

Doris

's Mom who is RH negative

sville MD

Message: 5

Date: Fri, 18 Jun 1999 23:56:14 EDT

From: Virri345@...

Subject: Re: mother's RH factor

I had the RH factor and so had shots with both pregnancies (1 with autism

and 1 without). I remember the protocol changed for the administration

(when) of shot(s) by the time of the second (nonautistic) pregnancy.

____________________________________________________________________________

___

____________________________________________________________________________

___

Message: 6

Date: Fri, 18 Jun 1999 22:09:02 -0700

From: " Bukitt " <wingding@...>

Subject: Re: mother's RH factor

Don't know if this means anything, I'm Rh neg (type A) and had 5 Rho Gam

shots before and during the " autistic " son's gestation. I believe the shots

are to stop the mother's immune system from producing antibodies that could

attack the developing fetus, causing anemia (erythroblastosis), in the event

the baby is Rh +, and cells escape to the mother's bloodstream. There are

too many other compelling factors in my son's medical history which seem

more pertinent, such an inherited OCD and ADHD factors, added on top of a

baby having oxygen deprivision at birth. Rho Gam is supposed to be from

human source, and virus free. Serum from animals could have dubious

consequences, such as " unknown " viral contamination. I'd be most suspicious

of anything coming from simian source (monkeys)

-----Original Message-----

[Guest guest]

Sorry about that last cite. I forwarded it before I had finished reading it.

I got as far as to where he mentions that the science of AIDS doesn't hold

up and assumed that he was going in that direction. Unfortunately, the

writer was still too caught up in the AIDS trance to let go of the HIV

concept. Still, it was interesting, but not worth the time of reading it

all. Having just found myself thrown off the " -AIDSTALK " (LOL) list, I guess

I was a little quick on the click. It won't happen again.

I was caught a little off guard. I thought they liked me. The tide seems to

be turning. In August, POZ actually printed (parts of) a letter I wrote them

and this month there's an Op Ed by Celia Farber (whom I predict will one day

win a Pulitzer for her SPIN magazine series of AIDS articles).

Good news! I got to proofread the fourth edition of Maggiore's,

" What If Everything You Thought You Knew About AIDS Was Wrong? " (WIEYTYKAAWW)

It's more than twice the size of the 3rd edition. Even more interesting

facts emerge, but the best part is the Appendix. Dozens of us telling our

own experiences in our own words. It's more anecdotal evidence than anyone

can ignore. Or can they?

In the AIDSZONE, anything is possible.

Ed

<A HREF= " http://hometown.aol.com/curedaids/myhomepage/profile.html " >Cured's

Web Profile</A>

In a message dated 10/24/99 8:17:44 AM Eastern Daylight Time,

cures for AIDSonelist writes:

> Message: 1

> Date: Sat, 23 Oct 1999 09:31:10 EDT

> From: Curedaids@...

> Subject: Check out TRACKING THE REAL GENOCIDE

>

> <A HREF= " http://mediafilter.org/MFF/caq/CAQ58TrackGenocide.html " >Click

here:

> TRACKING THE REAL GENOCIDE</A>

>

>

[Guest guest]

> Previous issue cures for AIDSonelist--

> From: Curedaids@...

> Subject: Check out TRACKING THE REAL GENOCIDE

>

> http://mediafilter.org/MFF/caq/CAQ58TrackGenocide.html

That article holds out only Dr. Koop's mirage of false hope in

condoms, clean needles, and AZT.

Gilbert, author of the article at that link, accepts the notion

that HIV is AIDS, rather than a marker of AIDS and cancer

vulnerability. HIV can crowd the thymus gland and thus inhibit

t-cell development, so HIV can be a factor in AIDS.

Gilbert also assumes there that those who blame the

pharma/gov monopoly for AIDS deaths are blaming HIV for the

deaths, hence the centrality of government lab gene-splicing

theories as straw men to debunk. A friend of mine gave a seminar

at MD , a govt contractor lab, in 1987, to a group

of interested parties. My friend warned them not to use

AZT because it would kill people. He gave them the ddc and

ddi program as the best approach according to his data.

Apparently his AZT warning was seen as a promise of a

genocidal weapon against poor people and homosexuals

and drug users and prostitutes. AZT failed my friend's tests,

and alternating ddc and ddi achieved good results, plus AZT

showed signs of being lethal as well as ineffective--SIMPLE.

Subsequent use of AZT is iron-clad proof of culpability on

the part of genocidal maniacs. Hulda 's benzene theory

also implies pharma/gov monopoly's culpability.

Hulda says that snails culture cancer marker ortho-

phospho-tyrosine and HIV. Depending on whether

snails are fed isopropyl alcohol or benzene, they breed

cancer or HIV. HIV needs cancer agent NF-kappa-B to

replicate, so someone find out if snails with benzene have

NF-kappa-B.

l-cysteine kills HIV in a petri dish.

HIV can be prevented from replicating by oral dosing

with lipoic acid, which blocks NF-kappa-B. Of course

this is good for cancer, as well. 150mg lipoic acid 3x day,

see Passwater's book, " Lipoic Acid: the metabolic

anti-oxidant " , Keats Publishing, 27 Pine St. Box 876, New

Canaan, CT 06840-0876. Lipoic acid passes the blood-brain

barrier, is water and oil soluble, denying HIV any sanctuary.

-Bob

--

druggingamerica.com More Fun Than A Tom Clancy Novel

ciadrugs.co m

unfriendlyskies.com

college of crime

[Guest guest]

Hi, Everyone...........Beth.......sorry to hear PB didn't respond well to

Risperdal. That's what is sooooooooooo frustrating about our

kids........there is no ONE pill to help all kids. Please don't give up

though, there are so many other meds to try. I know one Mom wrote in about

a drug that I had never heard of. Her child was doing well on it. Perhaps

she will respond again. and others new to Risperdal........glad

you're seeing positive affects. Kara.........did the test on

Gareth. All he did was growl............toes never moved either way!!!!!!!!

Take care everyone. Margaret

[Guest guest]

MARY, that is so great to hear about Matt's wonderful news. nice to see schools

actually trying and for a child to succeed is even better... hurray for you

both. and yes i am also ashton's mom going through hell with the school. please

forward me all of the w-law and i will print. can send to me privately if you

wish. thanks a bunch. after another trip to ent and her episode this morning

there is noway i could home school her. i would be in a grave somewhere..... my

son wakes me up at 630 am saying " mommy mommy emergency " i of course am asleep

say " go back to bed " he says " mommy ashton is outside in her bathing suit at the

neighbor's house!!!!!! " i jump my butt up throw on some sweats and go to find

her...forgetting to put shoes on, stepped in fresh dog crapt, Ikesssssss...

needless to say i found her with her butt hanging out, bathing suiton backwards,

no shoes, happy as can be picking flowers at the new neighbors house i have

never met. !!! i was so pissed. i just grabbed he!

r and stuck her in time out for an half hour while i calmed down. we then ate

breakfast and went to walmart to buy chains, locks, adn a pole for glass door

and to buy an azalea plant as a peace offering. i am sure my neighbors are so

impressed with my mothering skills. so when dh calls from his trip to tell me

how much fun he had at some medevil thing i let him have it. he's agreed to a

weekend by myself.....think i will go visit the amish in penn...........so i am

fed up, used up, and going to remember to always wear shoes. take care all and

thanks for support leah

ps tried teh babinski thing.....got kicked in the head so who knows about little

miss on a rampage====ashton

[Guest guest]

Leah,

Sorry to enjoy your letters so much! You have a very VIVID writing style,

even though you are writing about some pretty tough situations. I got a very

clear picture of you and Ashton this morning! Almost sounded like my

non-austic girls. I've had almost a similar experience at about 3 in the

morning, only the screeching cars woke me up!!! I hope all your problems

work out okay and you get your well deserved rest! 8-)

Gail, Mom to Seth(4) jo(7) (9) (22) (24) grandma to

Errick(4) and wife to (my hero)

[Guest guest]

gail,

heheh glad you get some laughter outta my crazy life...i truly believe thats how

we survive is by laughing with each other and sharing ideas, concerns, comments,

and crazy times.....thats all mine seem to be...... but soon i too will laugh..i

went to wally world and bought some hair dye and some cheap wine at the 7-11 and

i am gonna have a mommies night out in the bathroom with ms. clairol

herself.....heheh what was going on at 3am if i may ask???????? this wasnt a

special needs child, but socalled reg ed kid????/ please share...hehe take care

and thanks to all for support.........leah==know has clean feet and shoes on

[Guest guest]

Leah,

Seems like your sense of humor is 99% of what gets you through. My girls, 21

years ago, at ages 1 and 2 decided at 3 in the morning to go roller skating

down the yellow line in the road out front. I heard cars screeching and

jumped up and ran to their room and found empty beds! I ran down stairs and

found the door wide open and some lady with a kid under each arm saying , no,

hollering " these things yours? " needless to say, that night there were

barricades up at every exit and locks on the tops of every door. Isn't it

strange that I never heard them get up or go out or the TV going full blast,

but when I heard the cars screech, I knew they were my kids they were

stopping for? If Seth ever did that , oh I don't know what I would do! I'm

too old now to hear the cars screech or see the door open. I don't know if

that is a curse or a blessing! Confusious say, always wear shoes if there is

dog nearby! HE HE HE

Gail, Mom to Seth(4) jo(7) (9) (22) (24) grandma to

Errick(4) and wife to (my hero)

[Guest guest]

Beth and Margaret and all,

I think I may be the one with the kid on the med that you cant' remember.

Matt is on Naltrexone, an opiod antagonist. I have asked a couple of

times, and no one has responded so I guess he is the only one on this

list who is on it. It is difficult to find info on it as it relates to

autism. But it has worked well for Matt.

S

On Thu, 16 Mar 2000 19:35:06 EST mfroof@... writes:

> From: mfroof@...

>

> Hi, Everyone...........Beth.......sorry to hear PB didn't

> respond well to

> Risperdal. That's what is sooooooooooo frustrating about our

> kids........there is no ONE pill to help all kids. Please don't

> give up

> though, there are so many other meds to try. I know one Mom wrote

> in about

> a drug that I had never heard of. Her child was doing well on it.

> Perhaps

> she will respond again. and others new to

> Risperdal........glad

> you're seeing positive affects. Kara.........did the

> test on

> Gareth. All he did was growl............toes never moved either

> way!!!!!!!!

> Take care everyone.

> Margaret

>

>

------------------------------------------------------------------------

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> Intro or 9.9% Fixed APR and no hidden fees. Apply NOW!

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>

[Guest guest]

gail,

thanks for sharing that story.......i am rolling in the floor with more

laughter than i have had in a long time..... what smart little ones you

had...hehe i have learned to never take ashton for granted and to put NOTHING

PAST HER......HEHEH she is smart little whip who will deceive you in a

heartbeat........lmao i fixed that patio today with a lock and my dh

drill.... and i got bells and buzzers adn chains on every door. we are locked

in tight, sad thing is i am up the wazoo if we ever had a fire......heheh

school board called today.no message just on caller id.no telling what they

wanted.....ikes..take care all, leah--still have clean feet!!!!!!

[Guest guest]

Leah,

I was sure nervous about going to Seth's IEP last week after all I have been

reading. I guess it went okay. As usual there was no parent advocate, but I

think they think of me as a madwoman after I exploded about bussing a few

times, so I think they were more nervous than I was. They accepted a request

for a full time aide for Seth which should start during the summer program.

I don't know about other places, but here the kids stay in class all summer

full time. I had to take all the kids with me because I never was notified

of the meeting, so I called the day before and said I heard there was one and

did they intend to include me. Apparently no other parents were notified

either so they didn't have many meetings that day. Seth's speech therapist

was crying because she changed jobs and when she saw Seth the tears started

flowing. Everyone that works with Seth is awesome! I wish everyone else was

out of the picture and there were no " meetings " . I hate sitting there having

people that don't even know him making decisions about his life. One of the

ladies goes to our church and is a real good person. She has 4 adopted kids

and has followed Seth since he was 8 months old. She does encourage me to

fight the " wrongs " in which she has even steered me in the right direction

more than a few times. Guess I'm lucky compared to the stories I've been

reading. It just kills me that they sit there with their donuts and drinks

and hand down decisions like God or something! I'm sure they are all good

people doing what they think is best, same as I do. Irish blessing for

Leah.... may the wind be always at your back, may the poop rise up to meet a

shoe, and till we post again, HANG IN THERE!

Gail, Mom to Seth(4) jo(7) (9) (22) (24) grandma to

Errick(4) and wife to (my hero)

[Guest guest]

Maybe I misread it, but I doubt it, but about two weeks ago the NY Times

had a front page article that said that further testing by the government

had made it necessary to re-evaluate the value of gleevec and say it had

limited success, if any. Can someone check?

>From:

>Reply-

>

>Subject: Digest Number 73

>Date: 29 Jun 2001 07:31:57 -0000

>

>Let's keep the list UNCLUTTERED!!!

>

>To do ANY HOUSEKEEPING business such as changing the way you get mail,

>please go to mygoups or mail me at

>scott_fs@....

>

>

[Guest guest]

Hi, Carole!

I think that you will, indeed, be able to accomplish all of those things during that time period.

I had bilateral knee replacements done last June, and so I am coming up to my 11-month post-op time now. I was in the hospital only 4 days and then came home, where I was alone for most of the day during the week. My husband is gone for about 12 hours on weekdays. I had in-home PT twice a week for the first two weeks and then out-patient therapy three times a week for the next 5 weeks.

It is a long recovery and it is an exhausting thing to push through, but you can do it! My formula for success is 3 things: a great surgeon, a great physical therapist, and a positive attitude. Those will get you through!

As to the kneeling and gardening, I can tell you that there are differences, depending on the manufacturer of your knees and your own recovery time. My doc says I can kneel but I know that others are told not to do so by docs who put in different prostheses. I myself can kneel but it is not pleasant and so I seldom do it. It still feels as if I am kneeling on gravel or some sort of uneven surface. But I can sit on the ground with my grandchildren and my dogs, and I can play with them that way and then get myself up without putting the knees on the ground. I have a weird way of doing that but I am able to touch my toes without bending and that enables me to kind of "walk" myself up from the ground. My PT and I worked it out and she thinks it doesn't hurt any muscles, so that's what I do. But you could probably garden with a little seat or stool or something. I think you should think of that for next summer rather than this coming one, though. It is a very long recovery.

If you want to email me directly, please do so. I am Fivesolo@...

Many good wishes for a great recovery! You will be glad that you did this! FS

[Guest guest]

Hi all:

My time is getting short for my bilateral knee replacements. I have one week

to go and I'm starting to get nervous, but can't wait to get it over with.

I noticed that you can garden. That doesn't mean you can get on your hands

and knees does it? I would love to do that next year. My aunt who own my

house be me had an English garden and I would like to start it again. I had

to give it up because of my weight and knees. All I can do is a whiskey

barrel and hanging planters.

I had my PAT, met the team that will take care of me. They treatened me if I

don't behave that they will crank the machine up and make me have more PT. I

will be spending 5 days in the surgical ward and two weeks in rehab because

of the double knees. They expect me to walk 200 to 250 " , get in and out of a

car, walk up and down stairs, bend 90°, and dress myself before I can go

home. Is this going to be hard to accomplish?

Carole - AKA Thorn Willowweb, AKA Daisy Proudfoot of Standelf.

God grant me the Senility to forget the people I never liked anyway, the

good fortune to run into the ones I do, and the eyesight to tell the

difference.

·.,¸¸,.·´¯`·.,¸¸,.·´¯`·.»§«©©©»§«·.,¸¸,.·´¯`·.,¸¸,.·´¯`·

I think I lost my mind, so watch where you step!

·.,¸¸,.·´¯`·.,¸¸,.·´¯`·.»§«©©©»§«·.,¸¸,.·´¯`·.,¸¸,.·´¯`·

[Guest guest]

Make sure you have a big car with big doors and seats that go ALL the way

back <smile>.

Stay on the CPM as long as you can, I used mine pretty much around the clock

for the first several days.

I changed clothes on day 4 and was getting up to do a quick freshen up on my

own by then. I had to have them unplug my IV (I was on a morphine drip for

quite awhile) and the nurses would get hyper because I wasn't waiting for a

therapist to come by. First walk I went about 30 feet, next about 100 and

the third was way over that.

First couple days I needed assistance getting out of bed (your legs seem to

lose all strength and if you just drop them over the side, you're gonna wish

you hadn't) I got it so I could lower the bed to get out, then raise it to

get back in.

I rode in a mini-van, only hard part was getting enough bend in the knees to

get in the door. 90 degrees should be no problem if you keep up on the

CPM....

I got concerned about two days out...wondered if I was doing the right

thing, etc. But by the day of surgery, I was ready to go...they almost

tossed me out of the room waiting for surgery because I was making too much

racket...once in the OR, I complained it was too cold...they finally gassed

me to shut me up.

Think positive, keep a positive attitude and realize you won't be back 100%

over night...my knee joints have not hurt since surgery. There is pain as a

result of the incisions and the therapy will be stretching/strengthening

your muscles so you'll probably get some aches/pains there too. Tylenol

usually takes care of that....or, I prefer aspirin. If you're on coumadin,

you can't take aspirin so stick with Tylenol.

I'm 9+ weeks post surgery, my only complaint is things don't go as fast as I

would like <smile>. Therapy has been excellent and I plan on going back to

work (1/2 days to start) in another week. I'll have to modify my work a bit

as I usually do quite a bit of climbing steps and ladders. I can do both,

coming down is still a bit uncomfortable. And of course, the knees

swell....but, that too is improving.

Keep us up to date!

Tim T.

Re: Digest Number 73

Hi all:

My time is getting short for my bilateral knee replacements. I have one week

to go and I'm starting to get nervous, but can't wait to get it over with.

I noticed that you can garden. That doesn't mean you can get on your hands

and knees does it? I would love to do that next year. My aunt who own my

house be me had an English garden and I would like to start it again. I had

to give it up because of my weight and knees. All I can do is a whiskey

barrel and hanging planters.

I had my PAT, met the team that will take care of me. They treatened me if I

don't behave that they will crank the machine up and make me have more PT. I

will be spending 5 days in the surgical ward and two weeks in rehab because

of the double knees. They expect me to walk 200 to 250 " , get in and out of a

car, walk up and down stairs, bend 90°, and dress myself before I can go

home. Is this going to be hard to accomplish?

Carole - AKA Thorn Willowweb, AKA Daisy Proudfoot of Standelf.

God grant me the Senility to forget the people I never liked anyway, the

good fortune to run into the ones I do, and the eyesight to tell the

difference.

·.,¸¸,.·´¯`·.,¸¸,.·´¯`·.»§«©©©»§«·.,¸¸,.·´¯`·.,¸¸,.·´¯`·

I think I lost my mind, so watch where you step!

·.,¸¸,.·´¯`·.,¸¸,.·´¯`·.»§«©©©»§«·.,¸¸,.·´¯`·.,¸¸,.·´¯`·

[Guest guest]

-Hi Laurie, I use coconut oil for almost all my cooking. I got the expeller

pressed from tropical traditions .It has no taste of coconut to it.I also drink

a coconut milk shake every morning.I make it by putting 1/2 can of coconut milk

and 1/2 can of water in a cup a scoop of whey protein and about a tablespoon of

Virgin coconut oil.I figure the shake gives me at least 2 tablespoons of oil

since there is oil in the coconut milk.I get at least another tablespoon ful by

cooking throughout the day.

IN NC

-- In Coconut Oil , Laurie Daigle <lauriedaigle@y...>

wrote:

> Hi, my name is Laurie and I am new to the board. I live in Houston, Texas.

>

> How do you take coconut oil to lose weight? Do you just take the three

recommended tbsp of the oil?

>

> Thanks,

> Laurie

>

> Coconut Oil wrote:

>

>

[Guest guest]

>-Hi Laurie, I use coconut oil for almost all my cooking. I got the

>expeller pressed from tropical traditions .It has no taste of

>coconut to it.I also drink a coconut milk shake every morning.I make

>it by putting 1/2 can of coconut milk and 1/2 can of water in a cup

>a scoop of whey protein and about a tablespoon of Virgin coconut

>oil.I figure the shake gives me at least 2 tablespoons of oil since

>there is oil in the coconut milk.I get at least another tablespoon

>ful by cooking throughout the day.

> IN NC

Hi , that sounds like a good breakfast shake, I'll have to try

your recipe.

Thanks,

Jeanmarie in CA

[Guest guest]

Thanks for typing up the infor Carolyn. When I get the fund I might have to

invest it. Although I need to find a few workouts that are short and can be

alternated daily for strength training. I really like the ides behind Joyce

Vedral's 12-min a day book. (The right minute guy is too easy) But I of course

want it on DVD.

a

Who spent last night in the ER with a terrible bug. :-(

--

_______________________________________________

Find what you are looking for with the Lycos Yellow Pages

http://r.lycos.com/r/yp_emailfooter/http://yellowpages.lycos.com/default.asp?SRC\

=lycos10

[Guest guest]

Bone marrow transplants rarely use bone marrow anymore. Over the past 10

years most transplant centers have moved to peripheral stem cells as the

donor source. When bone marrow was used, the harvesting procedure was done

in an operating room and involved inserting a large needle repeatedly in the

the iliac bone (the bone you can feel on your lower back). Depending on the

size of the person being transplanted, as many as 100 separate aspirates

would need to be obtained. Needless to say, the donors were a little sore

when they woke up.

Stem cell harvesting is much less painful. A large catheter (IV) is put

into a big blood vessel, usually the femoral vein in the groin. The donor

is hooked up to a machine and blood runs through with stem cells being

separated out and everything else returned to the donor. If you've ever

donated platelets, its a similar procedure. It takes several hours, and may

need to be repeated once or twice on consecutive days in order to get enough

stem cells (the number needed is depending on the size of the recipient).

Rob Hanson, M.D.

Pediatric Cancer and Hematology Center

607 S. New Ballas Rd., Suite 2415

St. Louis, MO 63141

(314) 569-6986 office

(314) 995-4136 fax

This message contains privileged and confidential information. It is

intended only for the use of the individual named above. If the reader of

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[Guest guest]

Nelly-

I'll have to go back to Stratton's patent application

materials which has quite a bit of detail about

preferred abx combo's and preferred antibacterials (eg

flagyl), but I think I recall tinidazole as one of the

alternatives. If you search the US patent site for

Stratton or Chlamydia pnemonia you'll find his

application and his listings. The url is also

somewhere a bunch of weeks ago on this list, so you

might search the archives for it. I'll check back on

it when I can.

Jim

Message: 14

Date: Thu, 21 Apr 2005 02:30:01 +0200

From: " Nelly Pointis " <janel@...>

Subject: Re: Re: Cpn " resistance "

I wrote an email to Stratton asking him specifically

about the Wheldon version of his protocal, since

Wheldon's recommendations are a bit different in terms

of the ongoing abx. Stratton wrote me back saying that

the doxy/zithro combo was fine, but the flagyl is the

key. Pretty much a direct quote.

Hi,

Did Stratton say whether tinidazole could be used

instead of

metronidazole? And whether any cycline/macrolide combo

would do? I am doing

spiramycine + doxy (also taking artemisinin for Babs)

and tinidazole 5 days

every 3 weeks.

I am about to embark on my 2nd period with tinidazole

and after that I

am thinking of switching to another cycline/macrolide

combo

(mino/pristinamycine-it's a 2 macrolide macrolide),

still taking artemisinin btwn

200 mg/day and 200 mg X2 day.

Any comments welcome

Nelly