Guest guest Posted April 22, 2005 Report Share Posted April 22, 2005 I just bought trichozole from NZ and it also says its metronidazole(flagyl) I think tinidazole is in the same class, Just don't know how close. My 2cents Jim D --- Jim Kepner <jimk192002@...> wrote: > Nelly- > I'll have to go back to Stratton's patent > application > materials which has quite a bit of detail about > preferred abx combo's and preferred antibacterials > (eg > flagyl), but I think I recall tinidazole as one of > the > alternatives. If you search the US patent site for > Stratton or Chlamydia pnemonia you'll find his > application and his listings. The url is also > somewhere a bunch of weeks ago on this list, so you > might search the archives for it. I'll check back on > it when I can. > Jim > > Message: 14 > Date: Thu, 21 Apr 2005 02:30:01 +0200 > From: " Nelly Pointis " <janel@...> > Subject: Re: Re: Cpn " resistance " > > I wrote an email to Stratton asking him > specifically > about the Wheldon version of his protocal, since > Wheldon's recommendations are a bit different in > terms > of the ongoing abx. Stratton wrote me back saying > that > the doxy/zithro combo was fine, but the flagyl is > the > key. Pretty much a direct quote. > > Hi, > > Did Stratton say whether tinidazole could be used > instead of > metronidazole? And whether any cycline/macrolide > combo > would do? I am doing > spiramycine + doxy (also taking artemisinin for > Babs) > and tinidazole 5 days > every 3 weeks. > > I am about to embark on my 2nd period with > tinidazole > and after that I > am thinking of switching to another > cycline/macrolide > combo > (mino/pristinamycine-it's a 2 macrolide macrolide), > still taking artemisinin btwn > 200 mg/day and 200 mg X2 day. > > Any comments welcome > > Nelly > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2005 Report Share Posted May 21, 2005 Hi all, I feel disturbed when reading about the unfortunate passing of one of our listmembers. It seems that we have recently lost several people. It complicates matters when we do not know the cause of their passing. If anyone can find out why Bob, , or the lady from England (sorry, her name is not coming to my gleevec brain at this moment) passed away, please post it for us. I am especially concerned that two members, Bob and , were being treated with bms in Texas. What could have happened? I get so much positive news about the newer drugs, but then I get the sad news of another death, and it's like a door slammed in my face. I still feel fairly new at all of this, having been diagnosed in 2004, so I'm worried about whether my good response will crumble. Thanks, in NY Zero Club #756 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2005 Report Share Posted May 21, 2005 Hi , I understand your concerns. Several people from the list have tried to get information regarding Landels in England but to no avail. While I do know that Bob was on the BMS drug, I don't think was but I could be wrong. Perhaps someone who knew her could clarify. From what I remember, did well on Gleevec, even reaching CCR but she had chronicly low counts and took a growth factor to stimulate white cell production. I do not know if her disease was her cause of death. Bob was on the BMS trial and was doing well at one point but he started out in a very bad way... in blast crisis, and these patients historically don't fair as well. But again, I do not know forsure if CML was related to his death. I think many of us have the " what if " syndrome but like some have said before in the past worrying about something that might never happen is like paying interest on a loan you might never need. It's unproductive. All you can do is take care of yourself the best way you can, go for your doctors apts, go for you regular tests and accept that you have no control over the rest. Take care, Tracey dx Jan 2002 > Hi all, > > I feel disturbed when reading about the unfortunate passing of one of our > listmembers. It seems that we have recently lost several people. It > complicates matters when we do not know the cause of their passing. If anyone can > find out why Bob, , or the lady from England (sorry, her name is not > coming to my gleevec brain at this moment) passed away, please post it for us. I > am especially concerned that two members, Bob and , were being > treated with bms in Texas. What could have happened? I get so much positive news > about the newer drugs, but then I get the sad news of another death, and it's > like a door slammed in my face. > > I still feel fairly new at all of this, having been diagnosed in 2004, so > I'm worried about whether my good response will crumble. > > Thanks, > in NY > Zero Club #756 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2005 Report Share Posted May 24, 2005 Hi , I can understand how you feel when you hear the sad news of the passing of fellow CMLers. As rare as CML is, a fairly good friend that I had known for about 25 years was dxed with this disease just 5 months after I was. Sadly his case was much more complex than mine and he never recovered from a BMT. I share this, only to help you put things into perspective. Of course we can never predict how well we will do, but in general if you are dxed while still in the chronic phase and respond well, then usually the situation shouldn't change, but in rare cases it does. Being a part of these support groups is very good; there's lots of information and sharing which helps us all. The down side of course is having to suffer the pain of the loss of either real or cyber friends that we make during this journey. My first year with this disease was a bit shaky and sometimes I found I had to work very hard to keep myself from worrying about things I had no control over. It gets a little easier as time goes on. My life will never be the same as it was before CML. Then again, every day brings changes in our life; I think, in my case at least, that I just never appreciated the daily changes until CML. Even one day when we are cured (and I believe we will be) we will never be the same. For now, I continue to teach myself to " surrender " to the experience of the journey and to " trust the emergence " . This coming November it will be my 5th year anniversary with this disease. I feel incredibly blessed with achieving a good response from both IFN and IM. My daily meditations and prayers always include friends with this disease and wishes that they will also achieve a good response. In general I feel very positive about the on-going research into CML and I am encouraged by the amount of clinical trials underway or gearing up. The best we can do is to continue to take very good care of ourselves and be very diligent about following up on our test results, doctors appointments etc. " What ever will be, will be " . Hope some of this helps, Warm healing wishes, Cheryl-Anne > Hi all, > > I feel disturbed when reading about the unfortunate passing of one of our > listmembers. It seems that we have recently lost several people. It > complicates matters when we do not know the cause of their passing. If anyone can > find out why Bob, , or the lady from England (sorry, her name is not > coming to my gleevec brain at this moment) passed away, please post it for us. I > am especially concerned that two members, Bob and , were being > treated with bms in Texas. What could have happened? I get so much positive news > about the newer drugs, but then I get the sad news of another death, and it's > like a door slammed in my face. > > I still feel fairly new at all of this, having been diagnosed in 2004, so > I'm worried about whether my good response will crumble. > > Thanks, > in NY > Zero Club #756 > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.