Re: Masgutova camp

[Guest guest]

Hi Deb

Thank you for sharing all the good news about ! We truly appreciate your taking the time to share his accomplishments ! Please give him our love .

Regarding the grasp, I will just give a general response and perhaps Svetlana will add more specific information. The process described in the Postural and Dynamic Reflex Integration manual will re-educate

hyper or hypo reactive grasp. Be sure to have your finger on the sensory stimulation area at the base of the fingers while re-educating.

In a message dated 11/8/2008 7:18:02 P.M. Mountain Standard Time, dachesley@... writes:

6 November 2008Hi allI attended the Surrey camp with my 22-year-old son, in August. We came away with much information and much hope. I felt I shouldshare some things that we are seeing as a result of the camp.Background: has cerebral palsy, is non-verbal, has almost nodexterity (he can point at things, mostly with a fist; his grasp isvery uncoordinated, he cannot feed himself, etc.) and cannot walk. Hecommunicates by pointing, gesturing, and otherwise using things in hisenvironment—including agreeing or disagreeing with things other peoplesay, spelling out (a few) words on an alphabet page, pointing atsymbols/pictures, etc. Most of the time it is a huge guessing game,but he is persistent and usually we figure out what he wants--eventually. "says" that some things have changed for him during the camp orsince then because of it. I will try to remember them.*He now feels like he has two legs, not just one. (Shortly before thecamp, we learned that this is how he felt.)*He can now see words on a page and they are not "jumping around onthe page" as they apparently did before. (We learned at the camp thatthis was how he saw the printed page.) He indicates that this is trueonly of large print. Small print is still jumpy.* has indicated recently that he would like to go to college.*He says his feet feel better. They are more relaxed.*Today is 8 November 2008—I started writing this a few days ago,hoping to remember everything we wanted to share (and figure out thethings that feels are different). TODAY, shortly aftercompleting today's "Neuro-Tactile Integration" session, spelledout (with his fist on the carpet, actually forming/"writing" theletters) his friend's name: J-a-n. This is a first!I am very excited about all the progress and possibilities for thefuture! If I think of other changes, maybe I will post again. (Nowto figure out how to post this…)Thanks to all who share information here, and best wishes to thoseplanning to attend upcoming camps, etc.Deb Chesleyp.s. For those of you with more experience than I: 's grasp isuncoordinated/unintegrated, or whatever we want to call it. He has ahard time grasping (maybe hypo-active reaction or a-reflexive?), butwhen he does, his grasp is very strong and I assume that would be thehyperactive reaction. Can anyone tell me which exercises I should bedoing to improve his ability to grasp objects? There are differentones for hypoactive/a-reflexive and hyperactive reactions. I don'tknow which to do.(or if I could/should do both with him, which seemslike it might be too confusing). Svetlana's program mentioned to"work on grasp", but I will feel better about it if I know for sure Iam doing the right exercises. Thanks! AOL Search: Your one stop for directions, recipes and all other Holiday needs. Search Now.

[Guest guest]

Hi!

I want to introduce myself, my name is Alfi, i have a 2 1/2 years boy, we live in jakarta. My son was diagnosed autistic at 18 months. it has been hectic ever since : )

He is my little sunshine, he LOVES to sing even though he does not undestand the words. He has gross and fine motor problems, his muscle tone is very low, and his balance is very very poor.

We are very excited that we are joining the December camp in Singapore. We had 2 sessions with Dr. Svetlana when she came to singapore in September. i noticed the improvement right after the first session, i took my son that afternoon to Vivo city playground. he usually got tired after just going up and down the hill 2-3 times. That day he happily went up and down the hill for almost 18 times, very confident at the slides.

We have been doing the massages consistently for 1 month, but i can still cannot remember the names of the exercises! : ) his gross motor is showing improvements, i have not seen him tip toe for 5 days. (hopefully forever!) his leg muscles are stronger.

So i am, very exited to join the camp in December, hopefully i can learn on how to improve is upper body strength, fine motor, balance, and his attention.

Alfi

From: PamelaCurleeBG@... <PamelaCurleeBG@...>Subject: Re: Masgutova camp Date: Sunday, November 9, 2008, 2:37 AM

Hi Deb

Thank you for sharing all the good news about ! We truly appreciate your taking the time to share his accomplishments ! Please give him our love .

Regarding the grasp, I will just give a general response and perhaps Svetlana will add more specific information. The process described in the Postural and Dynamic Reflex Integration manual will re-educate

hyper or hypo reactive grasp. Be sure to have your finger on the sensory stimulation area at the base of the fingers while re-educating.

In a message dated 11/8/2008 7:18:02 P.M. Mountain Standard Time, dachesleymsn (DOT) com writes:

6 November 2008Hi allI attended the Surrey camp with my 22-year-old son, in August. We came away with much information and much hope. I felt I shouldshare some things that we are seeing as a result of the camp.Background: has cerebral palsy, is non-verbal, has almost nodexterity (he can point at things, mostly with a fist; his grasp isvery uncoordinated, he cannot feed himself, etc.) and cannot walk. Hecommunicates by pointing, gesturing, and otherwise using things in hisenvironment—includin g agreeing or disagreeing with things other peoplesay, spelling out (a few) words on an alphabet page, pointing atsymbols/pictures, etc. Most of the time it is a huge guessing game,but he is persistent and usually we figure out what he wants--eventually. "says" that some things have changed for him during the camp orsince then because of it. I will try to remember

them.*He now feels like he has two legs, not just one. (Shortly before thecamp, we learned that this is how he felt.)*He can now see words on a page and they are not "jumping around onthe page" as they apparently did before. (We learned at the camp thatthis was how he saw the printed page.) He indicates that this is trueonly of large print. Small print is still jumpy.* has indicated recently that he would like to go to college.*He says his feet feel better. They are more relaxed.*Today is 8 November 2008—I started writing this a few days ago,hoping to remember everything we wanted to share (and figure out thethings that feels are different). TODAY, shortly aftercompleting today's "Neuro-Tactile Integration" session, spelledout (with his fist on the carpet, actually forming/"writing" theletters) his friend's name: J-a-n. This is a first!I am very

excited about all the progress and possibilities for thefuture! If I think of other changes, maybe I will post again. (Nowto figure out how to post this…)Thanks to all who share information here, and best wishes to thoseplanning to attend upcoming camps, etc.Deb Chesleyp.s. For those of you with more experience than I: 's grasp isuncoordinated/ unintegrated, or whatever we want to call it. He has ahard time grasping (maybe hypo-active reaction or a-reflexive? ), butwhen he does, his grasp is very strong and I assume that would be thehyperactive reaction. Can anyone tell me which exercises I should bedoing to improve his ability to grasp objects? There are differentones for hypoactive/a- reflexive and hyperactive reactions. I don'tknow which to do.(or if I could/should do both with him, which seemslike it might be too confusing). Svetlana's program mentioned to"work on grasp",

but I will feel better about it if I know for sure Iam doing the right exercises. Thanks!

AOL Search: Your one stop for directions, recipes and all other Holiday needs. Search Now.

[Guest guest]

Hi Deb;

It is nice to hear about how is doing, thanks for sharing. It will be great to hear of more "firsts" from him. Please keep sharing!

It would be great to hear stories from others who attended the Surrey camp in August and what they have been experiencing since that time - (just throwing that out there)!

[Guest guest]

Hello Deb & ,

Thanks so much for sharing the great news about . What a warm and touching journey. As a learning educator in the camp I was so filled with excitement as I watched the process each day and night. Each individual student and their parents dedicated to embrace the moment with all of us sharing along with our challenges personal to each of us.

Thanks to all of the parents who have shared their beautiful children to work with us. Parents holding space allowing us to grow and learn together step by step as we all embark on a journey of discovery into new dimensions. I look forward to our on going learning with new insights from Svetlana ,Peteor and staff with this Reflex work.

Blessings of Appreciation,

Jocelyn

From: PamelaCurleeBG@... <PamelaCurleeBG@...>Subject: Re: Masgutova camp Date: Saturday, November 8, 2008, 6:37 PM

Hi Deb

Thank you for sharing all the good news about ! We truly appreciate your taking the time to share his accomplishments ! Please give him our love .

Regarding the grasp, I will just give a general response and perhaps Svetlana will add more specific information. The process described in the Postural and Dynamic Reflex Integration manual will re-educate

hyper or hypo reactive grasp. Be sure to have your finger on the sensory stimulation area at the base of the fingers while re-educating.

In a message dated 11/8/2008 7:18:02 P.M. Mountain Standard Time, dachesleymsn (DOT) com writes:

6 November 2008Hi allI attended the Surrey camp with my 22-year-old son, in August. We came away with much information and much hope. I felt I shouldshare some things that we are seeing as a result of the camp.Background: has cerebral palsy, is non-verbal, has almost nodexterity (he can point at things, mostly with a fist; his grasp isvery uncoordinated, he cannot feed himself, etc.) and cannot walk. Hecommunicates by pointing, gesturing, and otherwise using things in hisenvironment—includin g agreeing or disagreeing with things other peoplesay, spelling out (a few) words on an alphabet page, pointing atsymbols/pictures, etc. Most of the time it is a huge guessing game,but he is persistent and usually we figure out what he wants--eventually. "says" that some things have changed for him during the camp orsince then because of it. I will try to

remember them.*He now feels like he has two legs, not just one. (Shortly before thecamp, we learned that this is how he felt.)*He can now see words on a page and they are not "jumping around onthe page" as they apparently did before. (We learned at the camp thatthis was how he saw the printed page.) He indicates that this is trueonly of large print. Small print is still jumpy.* has indicated recently that he would like to go to college.*He says his feet feel better. They are more relaxed.*Today is 8 November 2008—I started writing this a few days ago,hoping to remember everything we wanted to share (and figure out thethings that feels are different). TODAY, shortly aftercompleting today's "Neuro-Tactile Integration" session, spelledout (with his fist on the carpet, actually forming/"writing" theletters) his friend's name: J-a-n. This is a first!I am

very excited about all the progress and possibilities for thefuture! If I think of other changes, maybe I will post again. (Nowto figure out how to post this…)Thanks to all who share information here, and best wishes to thoseplanning to attend upcoming camps, etc.Deb Chesleyp.s. For those of you with more experience than I: 's grasp isuncoordinated/ unintegrated, or whatever we want to call it. He has ahard time grasping (maybe hypo-active reaction or a-reflexive? ), butwhen he does, his grasp is very strong and I assume that would be thehyperactive reaction. Can anyone tell me which exercises I should bedoing to improve his ability to grasp objects? There are differentones for hypoactive/a- reflexive and hyperactive reactions. I don'tknow which to do.(or if I could/should do both with him, which seemslike it might be too confusing). Svetlana's program mentioned to"work on

grasp", but I will feel better about it if I know for sure Iam doing the right exercises. Thanks!

AOL Search: Your one stop for directions, recipes and all other Holiday needs. Search Now.

[Guest guest]

Hi Deb and ,

It is so great to hear about 's progress. It does alway encourage and reinforces this wonderful work. As a PT and learning Svetlana"s methods I have found that weight bearing on his arms before doing the grasp helps decrease the muscle tone and more normal muscle movement can occure. Than start working the different hand positions.

Best of luck

Diane Whiteside

From: PamelaCurleeBG@ aol.com <PamelaCurleeBG@ aol.com>Subject: Re: [childrenwithchalle nges] Masgutova campchildrenwithchallen gesgroups (DOT) comDate: Saturday, November 8, 2008, 6:37 PM

Hi Deb

Thank you for sharing all the good news about ! We truly appreciate your taking the time to share his accomplishments ! Please give him our love .

Regarding the grasp, I will just give a general response and perhaps Svetlana will add more specific information. The process described in the Postural and Dynamic Reflex Integration manual will re-educate

hyper or hypo reactive grasp. Be sure to have your finger on the sensory stimulation area at the base of the fingers while re-educating.

In a message dated 11/8/2008 7:18:02 P.M. Mountain Standard Time, dachesleymsn (DOT) com writes:

6 November 2008Hi allI attended the Surrey camp with my 22-year-old son, in August. We came away with much information and much hope. I felt I shouldshare some things that we are seeing as a result of the camp.Background: has cerebral palsy, is non-verbal, has almost nodexterity (he can point at things, mostly with a fist; his grasp isvery uncoordinated, he cannot feed himself, etc.) and cannot walk. Hecommunicates by pointing, gesturing, and otherwise using things in hisenvironment—includin g agreeing or disagreeing with things other peoplesay, spelling out (a few) words on an alphabet page, pointing atsymbols/pictures, etc. Most of the time it is a huge guessing game,but he is persistent and usually we figure out what he wants--eventually. "says" that some things have changed for him during the camp orsince then because of it. I will try to

remember them.*He now feels like he has two legs, not just one. (Shortly before thecamp, we learned that this is how he felt.)*He can now see words on a page and they are not "jumping around onthe page" as they apparently did before. (We learned at the camp thatthis was how he saw the printed page.) He indicates that this is trueonly of large print. Small print is still jumpy.* has indicated recently that he would like to go to college.*He says his feet feel better. They are more relaxed.*Today is 8 November 2008—I started writing this a few days ago,hoping to remember everything we wanted to share (and figure out thethings that feels are different). TODAY, shortly aftercompleting today's "Neuro-Tactile Integration" session, spelledout (with his fist on the carpet, actually forming/"writing" theletters) his friend's name: J-a-n. This is a first!I am

very excited about all the progress and possibilities for thefuture! If I think of other changes, maybe I will post again. (Nowto figure out how to post this…)Thanks to all who share information here, and best wishes to thoseplanning to attend upcoming camps, etc.Deb Chesleyp.s. For those of you with more experience than I: 's grasp isuncoordinated/ unintegrated, or whatever we want to call it. He has ahard time grasping (maybe hypo-active reaction or a-reflexive? ), butwhen he does, his grasp is very strong and I assume that would be thehyperactive reaction. Can anyone tell me which exercises I should bedoing to improve his ability to grasp objects? There are differentones for hypoactive/a- reflexive and hyperactive reactions. I don'tknow which to do.(or if I could/should do both with him, which seemslike it might be too confusing). Svetlana's program mentioned to"work on

grasp", but I will feel better about it if I know for sure Iam doing the right exercises. Thanks!

AOL Search: Your one stop for directions, recipes and all other Holiday needs. Search Now.