help needed

February 5, 2000

Dear ,

I have a 14 year old son who has OCD since he was 7. There were so many

times where I felt the same way as you involving different circumstances that

might seem odd to other people. When I read what you said about your son's

problem, it reminded me of my son in the sense that he would avoid going into

bathrooms at all costs because of his fear of contamination from urine. The

paradox is that he would sometimes wet himself instead. OCD doesn't make

sense and so I've found that you can't try to figure it out rationally but

instead in the context of what it is. He would sometimes even lick his

fingers to get the germs off them. I was just thinking that maybe your son

is avoiding going into the bathroom or not wanting to get involved in all the

rituals he might have to do in there. It is just a thought because I don't

know what your son's OCD issues are. I thought maybe this might shed some

insight into the problem in some way.

Also, we have had doctors who were off target with their advice interpreting

my son's ocd avoidance with his being manipulative, impulsive and obstinate.

This just served to feed into my son's anger, scrupulosity and general

feeling of anxiety. It was almost like being wrongly accused of something or

that he was somehow doing something wrong because he couldn't control his

OCD. It is always hard to figure out what is the OCD and what is just a kid

being a kid. But we have found that if you know your child and his nature,

and he is acting really out of character in his resistance to do something,

then we look to find a reason because of his OCD. I hope this can help in

some way. I can only tell you about our experiences over the past 7 years.

Good luck.

Noelle

February 5, 2000

HI :

When Steve used to tell me he didn't know about his behavior, that was

generally confirmation that it was part of his OCD. Of course, he was

rather non-communicative about stuff then as he felt anything he told me

would be turned into a situation where I would " make " him touch a feared

object. Sometimes our beloved OCDers say they don't know because they are

so embarrassed about their behavior. If this is a new behavior I would

really try to rule out it being OCD before considering something else.

We had the same problem with Steve, instead of urine it was feces. Quite

offensive I can assure you. Actually it was one of the behaviors we put on

the list of difficult behaviors when we started our professional parenting

plan and family contract to change his behaviors. And I am happy to say it

was one that changed first. Steve hated it too. To this day I do not know

the specifics but it needed to be addressed in CBT therapy with his

therapist.

Steve has contamination OCD as a biggie and who knows the specifics of what

he was thinking. Two of our three bathrooms were too contaminated for him

to consider using them, and the third would go in and out of being

acceptable/riskable to him. Urinary and bowel obsessions are not at all

unusual. It is quite possible some kids think that they must hold it in or

something bad will happen. And finally biology takes over and removes the

decision from their control, and viola we have a stinking mess to deal with

and not get agitated about or else their OCD will flare up even more!

I know these behaviors are upsetting to us. I hated Steve's spitting

compulsions as he would spit on his shirt constantly (his saliva was too

contaminated to swallow) and he could not change it (clothing issues!). In

the tropical heat he would really start to smell rank in no time. I found

it repulsive but had to learn it was OCD, that he had to learn how to boss

this one, and until that happened I had to learn to keep my cool and be

patient until he got it under control. This problem has nothing to do with

your effectiveness in toilet training your child, in fact it lends itself

to quite a bit of humor and paradoxical therapy if you would like to try it.

If Steve was pooping on the rug now due to his OCD, I would ask him to

accompany me outside to my compost pile and arrange himself precariously

above it and make his deposits there so we could get something productive

out of his hard work! Maybe this seems too zany, but we have found the

more uncomfortable the situation, the better it responds to humor and

paradoxical therapy. Good luck, take care, aloha, Kathy (H)

kathyh@...

At 01:36 PM 02/05/2000 EST, you wrote:

>From: Gpcpkp@...

>

>My 8 year old son has ADHD and OCD. This latest problem embarrasses me

>terribly and I hesitate to share it but I must know if others have heard of

>it - he urinates on the carpet rather than in the bathroom! Why? He says he

>does not know. The doctor says it's a lack of impulse control and it is not

>that unusual.

>I am sickened over this. I feel so humiliated.

>'Thank you for amy help,

February 5, 2000

>he urinates on the carpet rather than in the bathroom! Why? He says he does

>not know. The doctor says it's a lack of impulse control and it is not that

>unusual. I am sickened over this. I feel so humiliated.> > 'Thank you for

>amy help,

,

When I presented a similar situation to a doc a year or so ago, his

response was to hand him the carpet spray and a sponge (rubber gloves if

necessary) and make him clean up. This suggestion came from a psychiatrist

who understands about ERP, but doesnt necessarily have time to conduct it

with patients. The doc's interpretation was " do it if you have to, but

you'll clean up too " . I believe by doing this Exposure part, the Response

Prevention is he'll hate to clean up and so he'll stop the behaviour.

You can explain that this is what is will happen if he urinated on a

carpet. As a mom, you can try and stay neutral and just hand him the

cleaning bucket in a matter of fact manner after he has urinated on the

carpet. (If you have to - GET OUT of the room or house if you think he's

going to get angry at you.) If he understands what's happened, put on some

music, and encourage him to take back control from that OCD monster that is

making him do extra work (peeing on the carpet and having to clean it up)!!

I guess you have to use a combination of parenting skills and ocd-parenting

skills to get yourself through this one!!

He probably sees this as YOUR problem, not his! thanks for sharing, this is

an issue that comes up among many parents, btw.

take care,

wendy in canada wb4@...

______________________________________________________

Get Your Private, Free Email at http://www.hotmail.com

February 5, 2000

I suspect he does know why he does it, and I doubt that it is lack of

impulse control. There are LOTS of bathroom issues that OCD can get

involved in. We've been through a bunch of them, but there's always a

new twist to it. If you could gain his confidence and find out why he

does it (in a way that HE won't feel humiliated and judged but

accepted), you can probably apply the ERP tools to change it.

Judy

Gpcpkp@... wrote:

>

> From: Gpcpkp@...

>

> My 8 year old son has ADHD and OCD. This latest problem embarrasses me

>

> terribly and I hesitate to share it but I must know if others have

> heard of

> it - he urinates on the carpet rather than in the bathroom! Why? He

> says he

> does not know. The doctor says it's a lack of impulse control and it

> is not

> that unusual.

> I am sickened over this. I feel so humiliated.

> 'Thank you for amy help,

> ----------------------------------------------------------------------

> [

February 6, 2000

Thanks to everyone for the good advice!

February 6, 2000

Dear ,

Please don't feel humiliated here. Everyone understands the pain and

confusion that this disorder brings to a family. You are right this is an

embarrassing situation and I want you to know you are not alone.

Ian started with something like this - he wouldn't realize he had to go to

the bathroom until it was too late and had a number of accidents. When we

talked with Dr. Hatton he suggested that while Ian was at home we should have

him go every hour on the hour so that he could reestablish his control. This

worked well and Ian was able to stop having accidents.

Then he started going to the bathroom outside (I don't know how long it had

actually been going on). One afternoon, I looked out in the backyard and Ian

was peeing in the middle of the patio and (it seemed to me) trying to pee on

his brother. Fortunately, we had an appointment with the Dr. that afternoon.

Ian said that yes he had gotten mad at his brother and did try to pee on him.

He also said that he had a 'secret spot' outside where he peed regularly.

When the Dr. asked why he said he liked to see the leaves move. Our dr. also

feels this is an impulse control issue. We now have a firm rule about no

peeing outside. And Ian has targets to choose from in the bathroom (Cheerios,

and such). We still have occasional lapses, but for the most part Ian is

trying to follow this rule.

Take care,

joy in san diego

February 7, 2000

Hi ,

My almost seven year old (2/16 is her birthday) has been doing that

on and off since I can remember. She still wears a pull up through the

night. She doesn't know why she sometimes urinates on the rug, kitchen

floor etc. " it just happens " . I know some are down right accidents, but

some I just can't grasp it. She was diagnosed with OC at 3 and 1/2 and mood

disorder this past summer. Maybe it is impusle control - these disorders

are so complex and the brain is so fascinating to figure out - you can't!

Please try not to feel humiliated - that never helped me as I was cleaning

up the mess!!

mary in pa

Help needed

>From: Gpcpkp@...

>

>My 8 year old son has ADHD and OCD. This latest problem embarrasses me

>terribly and I hesitate to share it but I must know if others have heard of

>it - he urinates on the carpet rather than in the bathroom! Why? He says he

>does not know. The doctor says it's a lack of impulse control and it is not

>that unusual.

>I am sickened over this. I feel so humiliated.

>'Thank you for amy help,

>

>---------------------------

March 22, 2001

At 08:28 PM 03/22/2001 +1100, you wrote:

>Hello all,

>I have been avidly reading, searching and researching all sites associated

>with vaccination side-effects. It is now much closer to home.

>Last night my sister-in-law phoned. In tears she tried to tell me about her

>3 1/2 year old son's behaviour. She can no longer cope. All the signs and

>symptoms point overwhelmingly to his vaccinations. Here is the list:

>Never sleeps until early hours of the morning - doesn't have naps during the

>day.

>He walks and runs on tippy toes and jumps, climbs and destroys furniture.

>He now destroys his toys.

>An escalation of aggression with his baby brother (one year old).

>Speech is well above developmental years .eg. " Where is my playstation? " ,

> " This is my house " . " I don't know where it is. " " I don't know who did it. "

>I didn't do it " . " That's mine. " " You can't make me. " etc.

>He has chronic diarrhoea.

>He has a severe cough.

>A doctor tried to diagnose Asthma during breathing difficulties.

>Unexplained illnesses, temperatures and infantile convulsions.

>And,

>Vaccinations........from one month old. He has had the typical schedule

>outlined by the Australian Government.

>She needs help. She is living in , Australia in Shepparton. How do

>we find a good homeopathy person to help rid the bloody toxins from his

>body.

>I have now spoken to her.........she can see a correlation.

>i

>

Contact my friend n Winston (a homeoapthic historian) in New Zealand

who also knows excellent homeopaths in Australia

Tell him Sheri Nakken sent you

Also Australia Vaccine Network can be helpful

Contact for help

bron1@... Bronwyn OR

Meryl Verona

AVN AVN

PO Box 177 5 Westminster Road

Bangalow NSW 2479 Leeming WA 6149

02 6687 1699 (Phone) 08 9332 6541 (Phone)

02 6687 2032 (FAX) 08 9313 7067 (FAX)

0414 872 032 (Mobile) 0412 040 079 (Mobile)

meryl@... verona@...

her child has symptoms of one of the autism spectrum disorders

The above people can refer to good homeopath

--------------------------------------------------------

Sheri Nakken, R.N., MA

Vaccination Information & Choice Network, Nevada City CA & UK

530-478-1242 Voicemail

http://www.nccn.net/~wwithin/vaccine.htm

" All that is necessary for the triumph of evil is that good men ( &

women) do nothing " ...Edmund Burke

ANY INFO OBTAINED HERE NOT TO BE CONSTRUED AS MEDICAL OR LEGAL ADVICE. THE

DECISION TO VACCINATE IS YOURS AND YOURS ALONE.

Well Within's Earth Mysteries & Sacred Site Tours

http://www.nccn.net/~wwithin

International Tours, Homestudy Courses, ANTHRAX & OTHER Vaccine Dangers

Education, Homeopathic Education

CEU's for nurses, Books & Multi-Pure Water Filters

June 1, 2001

Hi Mike, welcome, and even though im sorry that an illness has brought

you here im happy that you came. First off where are you living? USA,

Canada or over seas? I know that would be helpful in tring to help

you.

Hugs,

melinda

At 03:38 PM 5/31/01 -0400, you wrote:

In a

message dated 5/31/2001 11:44:05 AM Eastern Daylight Time, Pro6971m

writes:

My name is Mike and I was diagnosed

with Nuero-sarcoidosis in 97. Since then

life has changed drastically for the worst. My on family no longer comes

over oe even call to see how I am doing. I have a very supportting wife

that withput her I would never had made it this far. She has shouldered

the

responsivbility for me and our two children plus put up with me. Her job

Vought aircraft in Ga fired her yesterday do to the fact that she

had

missed to many days do to me. She was covered under the FEMLY law but

they

fired her anyway. She is totally broken and feels like she has just let

the

family down. She was told several times by different supervisors that

they

where going to terminate her when they could. Please we need all the help

we can get to fight this, simply because of the insurance. We can not

afford my meds and with out them I will die. Its that simple. If anybody

can help please e-mail thank you dor you time

~~~~ *** ~~~ *** ~~~ *** ~~~~

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“Hold on to what is good, even if it's a handful of earth. Hold on to

what you believe, even if it's a tree that stands by itself. Hold on to

what you must do even, if it's a long way from here. Hold on to your

life, even if it's easier to let go. " - Pueblo Prayer

~~~~ *** ~~~ *** ~~~ *** ~~~~

June 1, 2001

Hi Melinda I live in Byron Ga. Deep in the south where it seems there is very little or no help to be found. I am very worried about my wife since she lost her job she has took a nose dive into depression and I am getting to the point that I do not leave her alone. If possible I would appreciate all the legal advice I can get . I have called a few so called friends and family and it seems the first sentence starts with (We don't have any money) I am not looking for a handout. All I want is what is right and due to my wife. She is really stressing about my meds since we can no longer afford them . I have to have the meds. I am sure that other people are in the same situation. No insurance means no meds which means no longer living. Its getting hard to trust in God anymore because all the answer I get from him are not very helpful. Melinda I appreciate the ear you have loaned to me it feels good to to have someone to unload on Thank youfor your time Mike Ross

June 1, 2001

No problem Mike,

hmm im trying to think of what you can do. there are alot of lawyers who

will give some kinda advice over the phone for free. As for your meds,

are you on disability? can you go to welfare, i know welfare stinks but

go please. They might also have more resources for you to draw from to

get more help with things like medical insurance and food. Here in

massachusetts we have something called Masshealth. its a Medicaid of

sorts. Find out if your state has that and apply.

you could ask for help from churches, and i dont know if you have a

survival center down there like we have up here, kinda like the salvation

army only they do food too. Obviously if you dont have money for meds you

probably dont have money for food or other esentials.

I wish i were more help. but i would start with your state agency. as for

your wife being depressed, i dont know what to say, with out insurance i

dont know what you can do........

Im not much help, but i can try to find out more i just dont know much

hugs mike hang in there.

melinda

At 12:44 PM 6/1/01 -0400, you wrote:

Hi

Melinda I live in Byron Ga. Deep in the south where it seems there is

very

little or no help to be found. I am very worried about my wife since she

lost

her job she has took a nose dive into depression and I am getting to the

point that I do not leave her alone. If possible I would appreciate all

the

legal advice I can get . I have called a few so called friends and family

and

it seems the first sentence starts with (We don't have any money) I am

not

looking for a handout. All I want is what is right and due to my wife.

She is

really stressing about my meds since we can no longer afford them . I

have to

have the meds. I am sure that other people are in the same situation. No

insurance means no meds which means no longer living. Its getting hard to

trust in God anymore because all the answer I get from him are not very

helpful. Melinda I appreciate the ear you have loaned to me it feels good

to

to have someone to unload on Thank youfor your time Mike Ross

~~~~ *** ~~~ *** ~~~ *** ~~~~

The Being Sick Community

Memorial Page

http://www.dreamwater.net/lovingmemory/

Message Archives and Digest Attachment Pictures:-

/messages

Chat:-

Scheduled Daily Chats at # on IRC DALnet.

/files/chat.htm

Bookmarks:-

Add a website URL you have found useful.

/links

Personal Complaints or problems:-

Please contact a moderator

email: -owner

Subscription Details:-

1) Individual email - means that every email sent to the list you

receive.

2) Daily Digest - sends you 25 messages in one single email for you to

browse. This is an excellent option if you receive alot of email.

3) Web only/No mail - means that you can pop into eGroups at your

convenience and receive no email.

To modify your subscription settings please visit:-

/join

To subscribe or unsubscribe please email:-

-subscribe

-unsubscribe

~~~~ *** ~~~ *** ~~~ *** ~~~~

“Hold on to what is good, even if it's a handful of earth. Hold on to

what you believe, even if it's a tree that stands by itself. Hold on to

what you must do even, if it's a long way from here. Hold on to your

life, even if it's easier to let go. " - Pueblo Prayer

~~~~ *** ~~~ *** ~~~ *** ~~~~

June 1, 2001

Mike, Melinda gave most of the advice that I can come up with, has your wife checked into unemployment? It is a check until she can get on her feet. Also in my city we have a Family Health Center where the doctor visits and medication are based are your ability to pay. Most cities have a crisis hotline that should also be able to help you to locate services in your community. We are pulling for you Mike, and I will say a prayer (who knows it might help). I did not take employment law when I was in school so I really don't know what to say except talk to an attorney. She might have a case of wrongful termination.

Hugs to all

Jan SclerodermaHope PartnersinCaring mgus

ICQ # 24934693 AIM: FargJan

June 2, 2001

If looking for FREE MEDS check out theses web sites!!!!

Helen

http://www.themedicineprogram.com/

http://www.getfreemeds.com/

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> > My name is Mike and I was diagnosed with Nuero-sarcoidosis in 97.

Since then

> > life has changed drastically for the worst. My on family no

longer comes

> > over oe even call to see how I am doing. I have a very

supportting wife

> > that withput her I would never had made it this far. She has

shouldered the

> > responsivbility for me and our two children plus put up with me.

Her job

> > Vought aircraft in Ga fired her yesterday do to the fact

that she had

> > missed to many days do to me. She was covered under the FEMLY law

but they

> > fired her anyway. She is totally broken and feels like she has

just let the

> > family down. She was told several times by different supervisors

that they

> > where going to terminate her when they could. Please we need all

the help

> > we can get to fight this, simply because of the insurance. We can

not

> > afford my meds and with out them I will die. Its that simple. If

anybody

March 21, 2002

and Jill- Anytime you have a child with a disability, even just

stumbling across a website that lets you know someone is walking in your

shoes can be enough of a pick me up for that one day. My Bridget is 6 and

autistic. I also Home Educate her and my computer is a huge source of

support, information and education to everyone in my family. That two people

would spend so much of there own time helping people, some of whom they will

never see face to face, is charity in the truest sense of the word. In this

day and age when fewer and fewer are willing to do something for nothing, we

should at least recognize those selfless few and call their work what it is-

Charitable. Here's to you! Deanna Gann in Northwestern, Oregon USA

February 7, 2003

Bill, I can tell you from first hand experience, if you want to find out about a physician all you need do is to contact the Medical Review Board, which is generally in the Capitol of your State. I failed two complaints against my EP in SC and they both went on his record. Gordon Griffith Help needed Can anyone tell me anything about a doctor/surgeon named LeNardo (Danny) ? Send me info in private if you prefer. Thanks. BillPlease visit the Zapper homepage athttp://www.ZapLife.org

February 8, 2003

Gordon:

Thanks. Will use that info.

Best.

Bill

Help needed

Can anyone tell me anything about a doctor/surgeon named LeNardo (Danny) ? Send me info in private if you prefer. Thanks.

BillPlease visit the Zapper homepage athttp://www.ZapLife.org

February 13, 2003

Gordon,

Is there a way to check out the medical review board list of doctors that have complaints against them? If you know of an internet site, would you let me know?

Ruth in PA

February 13, 2003

not a general list. you can request input on a specific doctor Griff Re: Help needed Gordon, Is there a way to check out the medical review board list of doctors that have complaints against them? If you know of an internet site, would you let me know? Ruth in PAPlease visit the Zapper homepage athttp://www.ZapLife.org

September 18, 2003

Answered privately

December 6, 2003

Hi...

I remember way back the big controversy over apricot pits....they do

contain B-17....

kinda like the flouride in water controversy..........you know.......if they

don't want you to know the truth just make all kinds of absurb

statements.......

December 6, 2003

Hi...

I remember way back the big controversy over apricot pits....they do

contain B-17....

kinda like the flouride in water controversy..........you know.......if they

don't want you to know the truth just make all kinds of absurb

statements.......

December 6, 2003

:

Print out the home page from my web site http://cures for cancer.ws and submit

that to the judge. Tell him that doctors and hospitals kill and injure

hundreds of thousands of patients every year out of ignorance, incompetence,

and negligence. Give him the book World Without Cancer and show how the FDA

has conspired with pharmaceutical companies and the American Medical

Association to prevent people from having the advantage of natural remedies

for diseases, and cancer-related issues are the most egregious. The banning

of vitamin B17 by the FDA is just one example.

I cannot come to the court hearing. I wish you good fortune

Bob Hurt

Help Needed

> Name:

> Email: Men1@...

> Comments: I'm being accused of placing my son in danger by giving him

complimentary therapies As I'm well aware of and I'm sure your well aware,

this is far from the truth. None the less the court date is Friday, December

19th at the Tarrant County Civil Courts building in Fort Worth Texas at 8:30

a.m. I would like anyone that has used any complimentary or alternative

therapies for their cancer to be at the hearing. I would also appreciate

knowledgeable people of products,Homeopaths, Herbalist, Nutritionist, etc..

to be present. I have already notified all news stations and they are

anxious to hear the stories of folks using alternative therapies and

complimentary therapies. This is turning out to be a very large ordeal and

if you are available to come, It would not only be great representation for

you but also a way to reach people about the many ways to cure one's cancer

or help with the side effects. Thank you very much for any and all help.

Sincerely ~

>

> This message was sent to you from:

>

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>

December 6, 2003