Re: Gleevec Free (cross posted)

[Guest guest]

Hey Ginger,

Is this really the Best Little Turtle in Texas? Obviously a misnomer now.

Congratulations! Wonderful news from a real warrior/survivor who is now

thriving!

All the best,

L

[ ] Gleevec Free (cross posted)

I do not post much and I only read when I can, but I thought I would

share some information because it could be helpful to others.

For those of you that don't know me here is a very brief discription

Dx'd 11/98

INF 12/98 stopped 4/99

MUD BMT 7/99

Relapsed 7/00

INF 9/00 stopped 1/01

PR-1 trial 1/01 stopped 3/01

DLI 4/01 (Donor Lymphocyte Infusion - white blood cells from my

donor)

4/01 INF stopped 6/01

8/01 Gleevec stopped 10/01

Major infection haspitalized 9 days 10/01

300 mg Gleevec 12/01

DLI 5/02

PCRU 2/03

12/03 lower dosage of Gleevec to 200mg

2/05 NO MORE GLEEVEC

That's right I have been PCRU for over 2 years and 100% donor for

over two years. I am one of few that will be able to get off

Gleevec and will be able to use the " CURED " word. I am so excited

that I am having a hard time containing myself.

Of course Dr. Talpaz is watching me closely, I will get a PCR test

monthly and we will go from there, since I relapsed after

transplant and have been there done that I am not conserned at

all of a relapse, as I said I am 100% donor.

I just wanted to share information in case there is anyone out there

in my position (relapsed BMT on Gleeevc) and wanted to know what

next.

Ginger

[Guest guest]

that is FANTASTIC!!!! so very very happy for you!!!

Cammy T

[Guest guest]

Dear Ginger,

Thank you for sharing this information. There are many people out there in

your exact situation.

Like the Zero Club, your message gives HOPE that they too will go back to

being 'CURED'.

Ginger is number 324 in the Zero Club.

Zavie

< snip >

I just wanted to share information in case there is anyone out there

in my position (relapsed BMT on Gleeevc) and wanted to know what

next.

Ginger

[Guest guest]

Hey Ginger...I was overjoyed to hear this news from you on the phone

today. We are overjoyed for you. You surely deserve this after the

road you've been on. Congrats and see you soon.

dt and family

> That's right I have been PCRU for over 2 years and 100% donor for

> over two years. I am one of few that will be able to get off

> Gleevec and will be able to use the " CURED " word. I am so excited

> that I am having a hard time containing myself.

> Of course Dr. Talpaz is watching me closely, I will get a PCR test

> monthly and we will go from there, since I relapsed after

> transplant and have been there done that I am not conserned at

> all of a relapse, as I said I am 100% donor.

> I just wanted to share information in case there is anyone out

there

> in my position (relapsed BMT on Gleeevc) and wanted to know what

> next.

> Ginger