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Hello, my name is Kathy. My son is Payton and he will be turning 5 next week. He

has spastic quadraplegic cerebral palsy. I was introduced to the Masgutova

method by his OT in ECI and after he graduated ECI we raised the money to go to

a camp in Minnesota. I have avoided going to an orthopedic doctor all these

years because I didn't want to get someone that wanted to perform surgery after

surgery or just give him a bunch of medicine. However he is getting older so I

felt like I needed to go to orthopedic doctor to atleast get xrays of hips and

spine to make sure they look ok...turns out they do look good...he was mostly

concerned about the tone in his legs, particularly his hamstrings. He felt like

his heel cords were good, but we do the foot tendon guard excercises 2xs a day

along with range of motion in ankle,knee, and hip 3xs down and 3xs up twice a

day, and we do (I think it's leg cross flexion-extension?)where you bend one leg

at the knee and have the heel of that leg over the knee of the other leg while

you are causing a little traction from the hip and from knee and then you pull

the leg down to the floor...we do that one 2xs a day..the orthopedic doctor was

strongly recommending botox injections which I have been very scared to try and

really don't want to! I am writing to see if there is something I could work on

to help his tight hamstrings...such as the foot tendon guard excercises for his

heel cords. We also do long legged sitting to try to stretch them. Also has

anyone heard of or had any experience with SPML? (selective percutaneous

muscle/tendon lengthening? From my research it is supposed to be minimally

invasive,outpatient type procedure where they just go in through the skin with

very small opening to lengthen the tendons so there is no/little scar tissue.

Any information yall have will be greatly appreciated. Just a little information

about Payton so you can have a picture of his physical abilities: he can roll

and scoot in the floor. He can sit indian style for 1 to 2 minutes and then

loses balance. He can sit on child potty seat by himself for up to 10 minutes

without falling. He can walk in a gait trainer but he comes up on his tip toes

so I limit the amount of time he spends in it, I basically just want to make

sure he is getting weight bearing in his legs. He doesn't have contractures.

Thank you, Kathy

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We live in east texas...athens areaSent via DROID on Verizon Wireless Re: Tight hamstrings Where do you live? I have a 13-year old with spastic quad and might be able to offer some guidance.IrisSent from my iPhoneOn Jun 2, 2011, at 12:38 AM, "kathyfeagin" <forevermine05@...> wrote: Hello, my name is Kathy. My son is Payton and he will be turning 5 next week. He has spastic quadraplegic cerebral palsy. I was introduced to the Masgutova method by his OT in ECI and after he graduated ECI we raised the money to go to a camp in Minnesota. I have avoided going to an orthopedic doctor all these years because I didn't want to get someone that wanted to perform surgery after surgery or just give him a bunch of medicine. However he is getting older so I felt like I needed to go to orthopedic doctor to atleast get xrays of hips and spine to make sure they look ok...turns out they do look good...he was mostly concerned about the tone in his legs, particularly his hamstrings. He felt like his heel cords were good, but we do the foot tendon guard excercises 2xs a day along with range of motion in ankle,knee, and hip 3xs down and 3xs up twice a day, and we do (I think it's leg cross flexion-extension?)where you bend one leg at the kneeand have the heel of that leg over the knee of the other leg while you are causing a little traction from the hip and from knee and then you pull the leg down to the floor...we do that one 2xs a day..the orthopedic doctor was strongly recommending botox injections which I have been very scared to try and really don't want to! I am writing to see if there is something I could work on to help his tight hamstrings...such as the foot tendon guard excercises for his heel cords. We also do long legged sitting to try to stretch them. Also has anyone heard of or had any experience with SPML? (selective percutaneous muscle/tendon lengthening? From my research it is supposed to be minimally invasive,outpatient type procedure where they just go in through the skin with very small opening to lengthen the tendons so there is no/little scar tissue. Any information yall have will be greatly appreciated. Just a little information about Payton so you can have a pictureof his physical abilities: he can roll and scoot in the floor. He can sit indian style for 1 to 2 minutes and then loses balance. He can sit on child potty seat by himself for up to 10 minutes without falling. He can walk in a gait trainer but he comes up on his tip toes so I limit the amount of time he spends in it, I basically just want to make sure he is getting weight bearing in his legs. He doesn't have contractures. Thank you, Kathy

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Ann Girard is a specialist and is in Tyler, so that might be do-able for you.  One thing to consider is the role of protection.  Did they assign Babinski?  Just thinking out loud, but also wondering about Core Tendon Guard.  

BTW, I live in Plano---welcome to a fellow Texan!On Thu, Jun 2, 2011 at 9:35 AM, forevermine05@... <forevermine05@...> wrote:

 

We live in east texas...athens areaSent via DROID on Verizon Wireless

Re: Tight hamstrings

 

Where do you live?  I have a 13-year old with spastic quad and might be able to offer some guidance.IrisSent from my iPhoneOn Jun 2, 2011, at 12:38 AM, " kathyfeagin " <forevermine05@...> wrote:

 

Hello, my name is Kathy. My son is Payton and he will be turning 5 next week. He has spastic quadraplegic cerebral palsy. I was introduced to the Masgutova method by his OT in ECI and after he graduated ECI we raised the money to go to a camp in Minnesota. I have avoided going to an orthopedic doctor all these years because I didn't want to get someone that wanted to perform surgery after surgery or just give him a bunch of medicine. However he is getting older so I felt like I needed to go to orthopedic doctor to atleast get xrays of hips and spine to make sure they look ok...turns out they do look good...he was mostly concerned about the tone in his legs, particularly his hamstrings. He felt like his heel cords were good, but we do the foot tendon guard excercises 2xs a day along with range of motion in ankle,knee, and hip 3xs down and 3xs up twice a day, and we do (I think it's leg cross flexion-extension?)where you bend one leg at the knee

and have the heel of that leg over the knee of the other leg while you are causing a little traction from the hip and from knee and then you pull the leg down to the floor...we do that one 2xs a day..the orthopedic doctor was strongly recommending botox injections which I have been very scared to try and really don't want to! I am writing to see if there is something I could work on to help his tight hamstrings...such as the foot tendon guard excercises for his heel cords. We also do long legged sitting to try to stretch them. Also has anyone heard of or had any experience with SPML? (selective percutaneous muscle/tendon lengthening? From my research it is supposed to be minimally invasive,outpatient type procedure where they just go in through the skin with very small opening to lengthen the tendons so there is no/little scar tissue. Any information yall have will be greatly appreciated. Just a little information about Payton so you can have a picture

of his physical abilities: he can roll and scoot in the floor. He can sit indian style for 1 to 2 minutes and then loses balance. He can sit on child potty seat by himself for up to 10 minutes without falling. He can walk in a gait trainer but he comes up on his tip toes so I limit the amount of time he spends in it, I basically just want to make sure he is getting weight bearing in his legs. He doesn't have contractures. Thank you, Kathy

-- Donna BatemanNeurodevelopmental Specialistwww.parentswithpurpose.comNatural Moms Talk Radio Interview Podcast:  http://is.gd/4Wwib

Mom to 26, Katy Kartchner 24 , Preston 22, Annie 20, Kent 18, Callie 15 (cured from dyslexia), Carson 13, Dawson 11 (brain injured--was severe now mild!)

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