New Horizons Conference in Ireland

June 21, 2005

Hello All,

As most of you know, Suzan McNamara and I were part of the contingent of

patients to participate in the patient conference in Ireland. I have

uploaded a word document of our report (the first part) and we will be

finishing up the second report about the workshops by this evening.

Suzan and I were very happy to be warmly greeted by so many people that

we've met on line but never met in person. A big thank you to Giora for

saving seats for us for breakfast and in the meeting halls. Giora is a

wonderful, genuine and caring human being, we are all so fortunate to have

him with us and especially the CMLers of Israel who he works so hard for.

We also met Sandy Craine and her partner , what a lovely couple. Sandy

and and work so well together to run CML Support UK. Sandy

looks absolutely fabulous just 4 months shy of her 2nd anniversary of her

SCT, she is an inspiration to so many and we thoroughly enjoyed the sessions

she chaired and the sessions presented by . We are looking forward to

seeing at this event next year and we can hardly wait to meet her.

We wish her a speedy and complete recovery from her SCT.

We also attended a workshop presented by Jan Geissler of Germany. Jan and

his wife do a terrific job of running Germany's most visited Leukemia

website and Jan is so active in the European Cancer and Leukemia community.

He has a lot of energy and insight and we are so grateful to him for sharing

his talents with us and offering us great tips on running an on-line CML

community. We look forward to working with Jan, Sandy and Giora and the

representatives from many other countries in the near future.

There were also members from Poland, Czech Republic, Portugal, France,

Bulgaria, Brazil, Croatia, Hungary, the Netherlands, Italy, Serbia and

Montenegro, and the USA.

The conference ran from Friday afternoon to Sunday at lunch time and there

is so much to report about.

Enjoy the first part of our report and more to follow later this evening.

Cheers,

Cheryl-Anne and Suzan

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