Guest guest Posted March 26, 1999 Report Share Posted March 26, 1999 In a message dated 3/26/99 2:21:04 AM, onelist wrote: >I have now been urged to go on MTX. > > > >I have long dreaded and deeply feared this moment. > > > >I have heard MTX horror stories. > > > >I have heard positives, too, but I also have little faith in MDs, as > >they deaccentuate and brish-down the side effect realities. > > > >MY ? IS: > > > >Are there any other safer, less risky Psoriatic A meds that anyone knows > >of? > > > >Thanks, > > > >Jon I've been on MTX for about seven years--it's really helped and there've been no major problems. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 1999 Report Share Posted March 26, 1999 Rdobrick@... wrote: > > From: Rdobrick@... > > In a message dated 3/26/99 2:21:04 AM, onelist wrote: > > >I have now been urged to go on MTX. > > > > > > > >I have long dreaded and deeply feared this moment. > > > > > > > >I have heard MTX horror stories. > > > > > > > >I have heard positives, too, but I also have little faith in MDs, as > > > >they deaccentuate and brish-down the side effect realities. > > > > > > > >MY ? IS: > > > > > > > >Are there any other safer, less risky Psoriatic A meds that anyone knows > > > >of? > > > > > > > >Thanks, > > > > > > > >Jon > > I've been on MTX for about seven years--it's really helped and there've been > no major problems. > > > > > > ------------------------------------------------------------------------ > If you like orange and blue, then you will love our new web site! > > Onelist: ing connections and information exchange Thanks, All--- Who BETTER to ask than all of you? Jon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 1999 Report Share Posted April 3, 1999 ......I would like you to remove me from the list temporarily. Starting April 4th, and starting back up April 12th. I'm sorry I have just moved and I can't find the paperwork that tells me how to do this so I hope you understand. We are going on a trip to Hawaii tomorrow which I hope to enjoy very much. Thanks. Laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 1999 Report Share Posted June 25, 1999 >From: bowel cleanseonelist >Reply-bowel cleanseonelist >bowel cleanseonelist >Subject: Digest Number 103 >Date: 24 Jun 1999 07:51:09 -0000 > > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2000 Report Share Posted April 4, 2000 In a message dated 4/4/00 12:11:35 AM Pacific Daylight Time, egroups writes: << I have seen very little of the 3 Stooges, but what I can remember, I dont' want him imitating! Are you comeing here???? >> Hehehe.....unfortunately, most parents in my younger days, didn't want their kids to watch them either, because of the imitating of the crazy antics....for some strange reason, has NEVER done that....I'm surprised too, as he loves to " tap " on the tv and furniture with his toothbrushes....BTW, we have gone " cold turkey " and have taken everything away from him that's regarded as " tapping material " !! Lots of our " special kids " for some reason, are very visual, and " get " slapstick comedy, while the jokes and innuendoes fly right over their heads....it was stated somewhere that a handicapped girl back in the 40's or 50's would not " speak " until she was introduced to the Stooges....ever since then, they have always made a rule of visiting sick children in hospitals.....great guys..... Anyway, that's all for now...nyuk, nyuk, nyuk.........pick out two! P.S. If the convention is held in Vegas.....soitenly I'll be there.....(Stooges one, that is!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2000 Report Share Posted April 4, 2000 In a message dated 4/4/00 12:11:35 AM Pacific Daylight Time, egroups writes: << You are so funny! >> Gail: Hehehe....what did I say? Come on, now, fill me in........!! No, seriously, my thoughts and prayers are with you and Seth.....even a " simple " surgery can be complicated by our worries for our " special " kiddos.....remember 's dental surgery? I got so pissed off when people's expressions changed from " OMG....surgery! " to " Oh, just DENTAL? " GEEEEEEEEZ.......isn't that something? Just cause it's a tooth doesn't mean it ain't surgery and not just as serious.....those people don't have a clue.....guess I should forgive em..... " Those People " are the parents who haven't been " blessed " with children like ours and will never experience the exhiliration and devastation we go through. Enough, enough, or as Moe would say " Take your time but hurry up! " I'm gone, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2000 Report Share Posted April 4, 2000 In a message dated 4/4/00 12:11:35 AM Pacific Daylight Time, egroups writes: << What are they doing working in a children's hospital anyway? Rant over, >> That's what I'd like to know.........let me at em....... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2000 Report Share Posted April 4, 2000 In a message dated 4/4/00 12:11:35 AM Pacific Daylight Time, egroups writes: << Sorry to offend anyone in the medical profession but I am beginning to believe if you are too stupid to have a career anywhere else, you can always get one in the medical field! >> Not only stupid but not compassionate, ignorant, and totally oblivious to the needs of special children.......I know from experience.....I've got a brother for a doctor and he fits ALL categories.....reading this, Leah?? Nyuk, Nyuk, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2000 Report Share Posted April 4, 2000 lmao your brother " dick " , is he the one your speaking of laura,,,,,,heheh yes i am listening........hahah leah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2000 Report Share Posted April 13, 2000 Dear Sara: I think it is also all our work habits, lack of sleep, all the things going on, as well as we are getting older. Some of the brain fog is the virus and liver effects, but, a great deal is also " normal " day to day habits, and I can't find any excuse in my case, except age. Marty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2001 Report Share Posted September 14, 2001 Thanks all of yall, for being here for me. I knew, in my heart, I could count on each of you. It's funny, Terri used to say to me that my "list mail takes up my (her) time" and that they weren't living our relationship, she and I were. LOL Just when you think you've got it all figured out . . . boom. Anyway, enough of that. Today is a sorrowful day, as has been this week, since Tuesday morning. I'm talking baby steps today and taking it one day at a time. Thanks so much for being here to take those steps with me. Together we will fight and beat this dragon. God bless each of you . . . Always, SJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2001 Report Share Posted September 14, 2001 SJ we are all here for each other. Pick yourself up....dust yourself off...put on that charming smile and face each day as a fresh new one. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2001 Report Share Posted September 15, 2001 Hi Sj Just wanted to send a little note to let you know that my thoughts are with you in your time of pain. Re: [ ] Digest Number 103 Thanks all of yall, for being here for me. I knew, in my heart, I could count on each of you. It's funny, Terri used to say to me that my "list mail takes up my (her) time" and that they weren't living our relationship, she and I were. LOL Just when you think you've got it all figured out . . . boom. Anyway, enough of that. Today is a sorrowful day, as has been this week, since Tuesday morning. I'm talking baby steps today and taking it one day at a time. Thanks so much for being here to take those steps with me. Together we will fight and beat this dragon. God bless each of you . . . Always, SJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2002 Report Share Posted June 10, 2002 I am planning to be there tonight..need a good cup of soup... Barb F I have some long pants for you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2003 Report Share Posted May 25, 2003 Hi ita: No you didn't offend me one bit. I'm used to getting questions about my other names. I thoroughly enjoy quilting. I took it with me to the hospital and did it between therapy sessions. My knee that I hurt this past week is much better. I'm so happy that it wasn't a break just a muscle tear. I'm back to normal now. I still have fear of the dreaded going down stairs. I have no problems going up or getting in or out of a car. I have to thank you all for all the advice you have given me. I think this helped me to heal faster. I did everything you all said to do. Thanks again. Hugs, Carole - AKA Thorn Willowweb, AKA Daisy Proudfoot of Standelf. God grant me the Senility to forget the people I never liked anyway, the good fortune to run into the ones I do, and the eyesight to tell the difference. ·.,¸¸,.·´¯`·.,¸¸,.·´¯`·.»§«©©©»§«·.,¸¸,.·´¯`·.,¸¸,.·´¯`· I think I lost my mind, so watch where you step! ·.,¸¸,.·´¯`·.,¸¸,.·´¯`·.»§«©©©»§«·.,¸¸,.·´¯`·.,¸¸,.·´¯`· Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2003 Report Share Posted May 26, 2003 Is there anything specific that can be done for the "going down stairs" syndrome? Walking up hill, climbing up stairs...no problem. Going the other direction, no fun. Haven't found anything that seems to help...but hope springs eternal... Tim T. -----Original Message-----From: vze1ortg [mailto:m.lakomec@...]Sent: Sunday, May 25, 2003 5:08 PMJoint Replacement Subject: Re: Digest Number 103Hi ita:No you didn't offend me one bit. I'm used to getting questions about myother names.I thoroughly enjoy quilting. I took it with me to the hospital and did itbetween therapy sessions.My knee that I hurt this past week is much better. I'm so happy that itwasn't a break just a muscle tear. I'm back to normal now. I still have fearof the dreaded going down stairs. I have no problems going up or getting inor out of a car.I have to thank you all for all the advice you have given me. I think thishelped me to heal faster. I did everything you all said to do. Thanks again.Hugs,Carole - AKA Thorn Willowweb, AKA Daisy Proudfoot of Standelf.God grant me the Senility to forget the people I never liked anyway, thegood fortune to run into the ones I do, and the eyesight to tell thedifference.·.,¸¸,.·´¯`·.,¸¸,.·´¯`·.»§«©©©»§«·.,¸¸,.·´¯`·.,¸¸,.·´¯`· I think I lost my mind, so watch where you step! ·.,¸¸,.·´¯`·.,¸¸,.·´¯`·.»§«©©©»§«·.,¸¸,.·´¯`·.,¸¸,.·´¯`· Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2005 Report Share Posted May 8, 2005 Bleu- I realized I didn't see a response yet to my request for the doses and types of B vitamins you are taking lately. I may have missed the post if you replied. I'm still interested in this as you've had some useful responses with your Cpn fight using them. Jim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2005 Report Share Posted June 20, 2005 Hi all I have some good news to share, I had my results from my last lot of tests today. The quantative pcr result is now 0.03% this has dropped from 85% at relapse last June, and 1% in January this year. My oncologist is very pleased with reduction. The marrow test failed, but he feels it is not necessary to repeat at this stage as the other test was so good. He says I have now had a 2 log reduction twice, is this true, I feel really well again, and have not had a recurrence of the lung difficulties i had when I relapsed. So I'm going to Queensland here in Australia for a few days on my own to gather my thoughts and decide what to do now!!! Judy Telford Melbourne Australia Send instant messages to your online friends http://au.messenger. Quote Link to comment Share on other sites More sharing options...
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