Re: Question...to group

[Guest guest]

Hi Cammy,

Why not talk to Dr. Soiffer and ask him if you can continue with the 400 mg

dose as long as your counts are not going higher than 4% and you are stable

without the side effects.

So what if you don't get to Zero. As long as the CML remains chronic and you

have a good Quality of Life, you are doing as well as those who are at Zero.

There are many patients for whom it has taken over 3 years at the 400 mg

dose to get to Zero.

Zavie

[ ] Question...to group

Last November I went to my Onc at Dana Farber, Dr Soiffer, I was

still at 4% so he upped my gleevic to 600mg. Not only did it cause me

more stomache cramps but taking a half of a 400mg pill caused me to

vomit twice a day, before I went to bed and when I woke up. Not fun.

So here is the dilema. I am going to mail order prescriptions for my

gleevic. It will cost one co-payment for a 3 month supply. I was

taking 2-100mg tabs and 1-400mg tab, 2 prescriptions. The problem is

I now am going to be taking 6-100mg tabs. This way it is just 1

prescription. Is anyone else taking 6 pills?

I also take the whole 600 at night with food. I have tried the

morning, the lunch time and the dinner time mode. But each one caused

so much nausea, I was done for the day. And it was not that I didn't

eat enough, the scale showed that it was MORE than ample!!! This way

I sleep through the crappy feeling. But now I am worried about the

new dosing schedule. Not looking forward to anymore discomforts!

thanks,

Cammy

dx 10/03

400mg till 11/04 (4%Phillies)

600 present

waiting for PCR

[Guest guest]

Hello Cammy,

Sorry you are having trouble with nausea, while I am not on 600mg I

can relate to how it feels.

Since you are moving to 6 X 100mg pills you can try splitting the

dose, taking 3 in the morning and 3 in the pm. Sometimes with the

nausea feeling it isn't how much you eat but what you eat. I have

found that taking Gleevec with V8 works wonders. I also have a

juicer and juice quite a bit and it works very well. I seem to go

through cycles of what works best. My latest cycle is my homemade

juice in the morning which consists of 2 apples, 1 carrot and 1

orange. I try to use only organic fruits and vegetables when I

juice, but they can be quite expensive sometimes, now that spring is

here the prices will come down a bit;>)! I also eat either oatmeal

or peanut butter on 12 grain bread with banana - no nausea, and I

feel great. Homemade juice is the best because it is so thick and

pulpy and much more fresh than the store bought kind. My schedule is

incredibly hectic in the morning, juicing doesn't add much time to

my morning routine - it is very doable.

My homemade V8 recipe for one serving is 1 carrot, 1 celery, 1 small

raw beet, parsley and sometimes I use a tomato.

Both of these juice recipes work wonders against the nausea feeling.

Hope this helps, keep us posted if you find something that works for

you. Good luck on you PCR hope you have improved results.

Cheers,

Cheryl-Anne

" Cammy T " <wannabnice2@y...> wrote:

> I sleep through the crappy feeling. But now I am worried about the

> new dosing schedule. Not looking forward to anymore discomforts!

> thanks,

> Cammy

> dx 10/03

> 400mg till 11/04 (4%Phillies)

> 600 present

> waiting for PCR