BMT + 64 and still doing fine.

April 14, 2005

Just a note to say I am now 64 days post transplant and feeling fine. They have

me down to two days a week in the clinic, the other days on my own doing home

transfusions which are a piece of cake. I am enjoying the freedom and doing a

lot of exploring out in the countryside outside of Houston. I figure I'm safest

away from the crowds and out in the country, so I spend a lot of time getting

lost and then trying to find my way back home. which is something I've been

doing ever since I moved to Texas.

Had the privilege of meeting Hertz-Nurtle (Avis) today at the Rotary House for

lunch. Such a vibrant, interesting woman with great true to life stories always

on the tip of her tongue. She kept us spellbound at the table for well over an

hour. Thank you Avis!

My counts remain unchanged. Constantly low on magnesium, still trying to find

a happy balance between doses of magnesium and immodium...not sure there is one.

The only thing I am getting via IV is saline and magnesium supplements. I time

my days and travels by distances between bathrooms, and the scariest thing I

have to do is occasionally use a public bathroom. I must look pretty funny

donning gloves and mask before entering a public bathroom as if I were a doctor

entering an OR. I do get some strange looks from people.

Slightly low on the hemogloben around 10 or 11 o the average, but that is where

I was for most of my years on Gleevec.

My second post BMT biopsy is scheduled for the 18th with the results coming

around 10 days later. Until then it's watching out for kooties while I hurry up

and wait. I do think I am getting another weekend furlough to go see my kids

this weekend, so we are excited about that.

Hope this note finds everyone doing well.

Regards and Prayers, DT

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