Re: work assessment

[Guest guest]

Hi all

I'm just checking in too. I am missing the chats with Zavie and co because I

am so well I have been doing some work. Wow that feels good, i am very tired

tonigh, but finally feel like " normal " what ever that is. I am only having a

blood test every 3 months from my oncologist, is this enough. My counts are

very normal now, but given I had so much trouble at the start, should I have

them more often. I am not going back to full time teaching, and am seeing an

independent team of doctors starting tomorrow to assess this. My docs say I

shouldn't work with children because my immune system isn't working well. I am

very suseptible to chest infections, so it will be interesting to see what this

team of experts say. Has anyone else been through this type of assessment

Judy Telford

wrote:

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[Guest guest]

Hi Judy,

You know the old saying " to each his own " but I personally wouldn't

be comfortable getting blood tests only every three months.

One example I can use is what happenned to one of our members. She

was also going a long time in between blood tests and found her Hgb

drop to a crazy level that I think required a transfusion because it

had gotten so low. If she would have remained " on top " of it, she

could have added Procrit before it got so dangerously low. I

believe she goes regularly now.

Another example is my own. I've been stable for three years but out

of the blue, for no known reason, my white count is crashing and

needs to be monitored much more closely.

Of course there's always the risk of liver and kidney toxicity too

and you can imagine how much damage can be done in three months if

things aren't being monitored.

As for your immune system, I can understand. I used to help out in

my daughter's class once a week but since my counts have been so

low, I've had to stay away. It's just not worth the risk.

Take care,

Tracey

> Hi all

> I'm just checking in too. I am missing the chats with Zavie and

co because I am so well I have been doing some work. Wow that feels

good, i am very tired tonigh, but finally feel like " normal " what

ever that is. I am only having a blood test every 3 months from my

oncologist, is this enough. My counts are very normal now, but

given I had so much trouble at the start, should I have them more

often. I am not going back to full time teaching, and am seeing an

independent team of doctors starting tomorrow to assess this. My

docs say I shouldn't work with children because my immune system

isn't working well. I am very suseptible to chest infections, so it

will be interesting to see what this team of experts say. Has

anyone else been through this type of assessment

> Judy Telford

>