Guest guest Posted May 7, 2005 Report Share Posted May 7, 2005 In a message dated 5/6/2005 7:58:46 P.M. Eastern Standard Time, bheath@... writes: I had hoped that my local onc would give it a while locally and let me take 3 - 4 units weekly of IFN along with my 800 mg of Gleevec but he feels that doing something like this is out of his league. Anyway - he is going to email Druker and I'll let you all know the results. Barb, GOOD. I am hoping to hear soon about this trial. It is my thought, even though I do not like IFN and did not do that well on it, that if I could just add on 3million units or so during the summer months that I could get my PCR down. I think you are right, and I like this idea now much better than BMS trial right now. I wondered, Barb, when you wrote the above, that your onc. says this is out of his league, why he said that? Weren't you on IFN/Gleevec combo for a long, long time? I thought you were? Well, let me know. Also, North Carolina is now back ON for me since my counts came down so well. I am doing a bmb in a few weeks because I want to go ahead and nail this thing now rather than later. I just hope on their end they don't lose my results or something...this is getting to be more the norm now. You'd think if your counts went up or something moved they'd call you and tell you. Nope. I had to call them so now the " no news is good news " theory is out the window, haha. Thanks for piping up here, I need to get more info on this idea, and I just might go this route. Like I said, it is summer time and I probably would do better this time of year to work on this rather than in the cold months and flu season. Thanks, Lynne A. Quote Link to comment Share on other sites More sharing options...
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