Guest guest Posted May 7, 2005 Report Share Posted May 7, 2005 Hi all. I just saw the thread that Lynne A send to Maui Nanc and wanted to jump in on this. My local oncologist is going to e-mail Dr. Druker to learn more about the interferon trial. I'd like to be in line to try this two pronged approach and have felt for years that this is the way to go to bring the disease level down to it's lowest possible burden since the interferon mechanism works so differently from IM. Almost like attacking it from two different directions. I had hoped that my local onc would give it a while locally and let me take 3 - 4 units weekly of IFN along with my 800 mg of Gleevec but he feels that doing something like this is out of his league. Anyway - he is going to email Druker and I'll let you all know the results. I will be at MDACC on the 14th of June. Let me know if any of you will be there at the same time. Maybe we can head to the Saltgrass Steak House for the " Mayfield famous cheese cake " !!!! Talk to you all soon. Love, Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2005 Report Share Posted May 7, 2005 At 11:57 PM 5/6/05 +0000, you wrote: >Hi all. I just saw the thread that Lynne A send to Maui Nanc and >wanted to jump in on this. > >My local oncologist is going to e-mail Dr. Druker to learn more about >the interferon trial. I'd like to be in line to try this two >pronged approach and have felt for years that this is the way to go >to bring the disease level down to it's lowest possible burden since >the interferon mechanism works so differently from IM. Almost like >attacking it from two different directions. I had hoped that my >local onc would give it a while locally and let me take 3 - 4 units >weekly of IFN along with my 800 mg of Gleevec but he feels that doing >something like this is out of his league. Anyway - he is going to >email Druker and I'll let you all know the results. Hi Barb, There were actually several posts about this trial of IM and inf, and maybe R. pointed out that you had to be within a year of dx??? but you could do what did, consult with Dr. Druker or Dr. Mauro at OHSU and have them be in charge of a one-on-one trial for you. You would probably only have to make 2 trips a year for consult, then fax them all your blood test results, etc. I know that you did quite well for a long time on inf....so this might be the ticket for you. Also, when you are in Portland for a consult you could see the Maui Turtle in person!!! Maui Nanc Quote Link to comment Share on other sites More sharing options...
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