Guest guest Posted May 7, 2005 Report Share Posted May 7, 2005 It's nice to hear from you, . I had wondered what had become of you and whether you were ok. I'm really sorry about the back pain and hope you do get it under control. There's almost nothing worse. Love, > Date: Wed, 4 May 2005 19:12:47 -0500 > From: " jennifer g " <jenniferg@...> > Subject: RE: Re: Stopping Gleevec > > Hi all, > > I was wondering why I wasn't getting any messages and then realized I had > been bounced from yet again. It's so annoying. Grrr.... > > I just read the WSJ article. I can speak from personal experience about > stopping Gleevec: I relapsed within a couple of months. In fact, I am the > patient being referred to in the Leukemia Research article mentioned by the > reporter. In my discussions at the time with my docs at OHSU and Mayo, they > indicated that some people simply have different levels of aggressiveness in > their disease and people with more aggressive disease are more likely to > relapse when they stop. Unfortunately, I don't think anyone has determined > what characteristics, if any, may indicate who would relapse and who > wouldn't. Are any of you going to go for this trial? > > I had not heard about the compilation being done by Hochhaus et al. Does > anyone know how to get added to that or get in touch with them about it? > > I'm really sorry that I have not stayed in touch with anyone lately > (including not answering personal emails - my bad). I'm just very busy right > now. Outside of sitting all day at work, I haven't been able to sit at the > computer much at home because of ongoing back problems. I am having some > spinal injections done starting Friday and although I don't look forward to > the procedures, I am *so* looking forward to hopefully getting the pain > under some control. > > Our family is distraught right now over the recurrence of cancer in a young > friend. He will be undergoing a 12-18-hour (!) GI surgery next week for a > recurrence of adenocarcinoid tumor originating in the appendix. If you have > any good wishes or prayers to spare, please direct them toward this young > man named . > > Best to you all, > > jennifer g. > www.cmlsupport.com Quote Link to comment Share on other sites More sharing options...
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