Guest guest Posted May 9, 2005 Report Share Posted May 9, 2005 Hi my name is susie and I think this is my first time on this new cml 2. I was diagnosed nov 2002 and have been on Gleevec since jan 2003. They first put me on 600mg and wasn't happy with results so they put me on 800mg. After the two year trial they then put me on 600mg due to the issue of money....since then my results have become stagnant... They say its doing well but they always want better. But im tired of all the side effects and I hate complaining as I feel I should be happy that atleast we have something that keeps us alive. Gleevec effects me everyday, even though ive been on it for two weeks. They say it will get easier..WHEN..... (Gleevec is making my life hell, I'd rather just have the leukemia...but know thats not gonna happend) i still have nausia problems and I run to the loo too often for the other problems ( I take 10 nausa tabs aday to prevent vomiting )as well as servere achy joints ( I have between 6 - 10 pain killers aday) and having to take pain killers for the pain. By afternoon i can either have a ten minute nap or it might go into 3 hours....Can someone give me advise, im not getting anywhere with my Onc...hes a great man and a great doctor... but I feel I have no conttol or even any life going on like this...There is a new drug on trial here in australia...but not really up and running...has some one got any suggestions...as im seeing my Onc. in two weeks. Im suppose to take up to 4 tabs aday for fluid retention but I don't. But with my 6 Gleevec, 10 nausa tabs and 6 -12 painkilers I sometimes could be taking between 20 to 30 tabs aday...I can't keep going on like this...HELP... Quote Link to comment Share on other sites More sharing options...
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