Re: While were on the subject ...

[Guest guest]

Hi ,

Thanks for sharing your experience. I also starting taking calcium

and magnesium. I somehow thought that I never needed any

supplements because I ate properly but I didn't factor in the fact

that Gleevec can deplete us of our electrolytes so now I'm taking

them.

I have definately noticed a difference in the muscle cramps. They

are much reduced since the supplement....not sure if it's the

calcium or the magnesium or both but either way, it's definately

made a difference.

I think my concentration has improved also but I haven't had any

situations to really test it. Maybe I'll try a new recipe soon and

see how well I can follow it

Congratulations on your PCR! I think I'm giving up on PCR's here.

Despite the attempts that have been made to standardize the testing

in Canada, there are still serious problems with them and in

particular with their interpretations so unfortunately I'll have to

rely on the old fashioned BMB until they can get their act

together...... if that's even possible <sigh>. I envy those of you

who have access to reputable testing!

Take care,

Tracey

PS how much calcium, magnesium and potassium are you taking?

>

>

> While were on the subject of edema, potassium, and magnesium...

> Just thought I would share that I went to my visit at Moffitt the

other day

> and explained to the doctor there that I had added the potassium,

magnesium

> and calcium supplements to my diet. I expected a negative

response; because

> in a discussion previously he said don't take anything but a daily

multi

> vitamin. He was actually ok with it and agreed that I should take

them for

> about a month and let him know if I notice any changes.

> If not he mentioned some antidepressant that he would like to try

which

> would also help with the deficiencies. I don't know which one he

was

> referring to.

>

> One night a few weeks ago I was eating very salty Barbecue corn

chips (I

> know, I know, but I had a craving and needed to get rid of it:)

> The next day I woke up with my eyes so huge. I am use to the extra

puffiness

> buy this was really drastic so I took a water pill. (moduretic)My

Onc gave

> them to me a while back but I only take a half here and there.

> This particular day I took it I had horrible feet cramps all

night. The

> worst I had in a long time. The pain was almost intolerable.

> That day I purchase the potassium, magnesium and calcium.

> No problems since.

> And Tracey, FYI, I actually notice that my concentration has been

better.

> With the exception of trying got put my granddaughter in the trunk

of my car

> last night:) I was under a lot of stress trying to get dinner

done, kids

> picked up from baseball practice and off to take a friend luggage

I was

> loaning.

> I took my 4 year old granddaughter with me and barely made it on

time to my

> friends. When we were returning to my car I had opened the door to

put my

> granddaughter in her car seat but I also had a small piece of

luggage to put

> in the trunk. Needless to say I put the luggage in the car seat

and then

> started to lift my granddaughter up to put her in the open trunk?

> She turned to look at me and all I could we could do was laugh.

> But she made sure to warn me that she would have to let her mom

and dad know

> I tried to put her in the trunk.

> Lastly, at my appointment I discussed the different PCR results

from the

> different labs and Dr List at Moffitt said that based on my result

history,

> he has noted on my chart that I have achieved a 5 log reduction

and he asked

> me not to use the local Lab corp here any more.

> (that was nice to hear)

>

>

> Tampa Fl

> 5-2000

> hyd/int/arc

> 6-2001 400 mgs Gleevec

> 8-2001 PCRU

>

>

>

>

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