Checking back in

[Guest guest]

Hey, friends,

I've been SERIOUSLY absent from the list for the past couple of busy weeks.

I'm just checking in now to say hi - not much else.

Maine is finally gorgeous, with the last of the snow melted (just in the

last few days), flowers emerging, and the air warm with promise. TS Eliot

wrote that " April is the cruelest month, mixing memory with desire, " and I

know what he means - but I'll take it!

Love,

R

[Guest guest]

No, it isn't a given that he will develop AS and he may go into remission

and never have another flare. It does happen and I hope for everyone who has

the ReA that it does happen. Life can get pretty miserable otherwise.

GA

checking back in

> Hello to all. I am especially tuned to Becky these days because she

> is so newly dx and so is my husband. I am hoping that you get the

> proper help and information asap.

>

> Curiously, I though that everyone knew that ReA was caused by a food

> poisoning (or V.D.) and thus " something you ate " . I am still

> astounded that the docs here in Holland picked up on hubby's problem

> so quickly. I am so grateful for that as I see the frusutration of

> having the pain and disability is exacerbated by not knowing the

> cause.

> My husband got Salmonella poisoning and that triggered

> the " reaction " .

>

> I expressed to him the disadvantages of trying to go off all meds.

> He

> is in agreement. And, yes , I think he is in a bit of denial.

>

> By the way, he also got very sick on the days he took the

> Methotrexate

> and fixed that problem by taking the pills just before bedtime

> instead

> of during the day. Maybe you can try that?

>

> It is sometimes hard to read about all the other health problems that

> can come with this illness after so many years. I don't even tell my

> husband about all that! On the other hand, it is so good to hear

> that

> so many people are so positive about their lives, despite their

> issues

> and difficulties. I pray that my husband can get to this point soon.

>

> I wonder if it is a given that his ReA will eventually develop into

> AS. I would appreciate any and all advice on hindsight prevention

> for

> anything that may come up. Obviously, most of these issues are out

> of

> anyone's control, but I would love to know ANYTHING that can be done

> to alleviate the progression and intensity of the illness.

>

> I am pleased to have " met " you all and wish the best for you. Please

> keep up with your positive influence; it really helps me to have

> someone to " talk " to about all this.

>

> Analia

>

>

>

>

>

>

>

>

>

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[Guest guest]

Analia, we also pray that your husband also gets to that point faster.

One little story I have written on here a few times is something that I say to

myself many times.

If I wake up breathing, I thank the Lord

If I look in the local paper obituaries, I thank Him some more.

If the computer boots up without crashing,

I can safely get through the day.

Besides, think about it folks, waking up breathing sure beats the alternative.

I was sent a website the other day, it is http://deathclock.com and it will

calculate your mortality. All you plug in is your birthday, height and weight

and BMI reading which you can do on the site. It the calculates the year of

your demise. Of course it is really just something to play with a bit. BTW it

told me I would leave this mortal coil in the year 2038 that would put me in the

mid nineties.

Had a good laugh over that one.

+Dave

Analia wrote:

On the other hand, it is so good to hear that

so many people are so positive about their lives, despite their

issues and difficulties. I pray that my husband can get to this point soon.

[Guest guest]

Cheryl . . . Hopefully they'll find that what they suspect is Melanoma isn't . . . . Doctors have been wrong before . . . Don't we ALL know that? Hugs and prayers, Rogene

[Guest guest]

Cheryl,

Please let us know when you have any updates regarding

your biopsies! This is frightening, I know from

experience. I hope that the suspicious moles will come

back as benign. What is happening with your rupture? I

am sorry that I missed that post! I hope you are ok

and I wish you all the best with getting this all

sorted out.

Katy " )

--- Cheryl <sunbum256@...> wrote:

> Since I posted about my rupture 2 weeks ago, I

> thought I should check

> back in with you all! Two days after my rupture, I

> went to s

> Hopkins about my hair loss; didn't get any answers

> yet. Soon as I took

> my shirt off, conversation 'bout my hair stopped. I

> ended up w/2 moles

> removed from my back, they think I have Melanoma.

> Everything w/my

> implants are on hold until I get my path report

> back; although, I am

> looking for an attorney regarding my implants. The

> waiting for results

> & sagging boob are killing me; rather know for sure

> than thinking the

> worst. Meantime, I'm reading all your posts & I

> wish all of you health

> & healing. Will keep you posted!

> Hugs,

> Cheryl

>

>

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